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Diseases Related To Celiac?

robic

By robic
in Related Issues & Disorders

Recommended Posts

robic Newbie
robic
Posted

Hi. I'm a fairly recently diagnosed celiac. I have, in the last 3 months heard of 2 women who suffered both celiacs disease and polycystic ovarian syndrome. I too suffer from both of these conditions. Does anyone know if there has been any research or speculations as to a relationship between the two? Is there any other women out there with both who might have some information. My doctor just scoffed and paid no attention to my query.

Thanks, Izzy

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rsavage Newbie
rsavage
Posted

:o Dear Izzy,

I too have wondered if there might be some kind of connection between Celiac and female problems. Please allow me to explain. My mother (celiac) had uterine cancer. My sister (celiac) had breast cancer. This along with 3 women celiacs for each man sort of makes me wonder what if anything the hormones do to change cells. I have not seen anything about this but you know that some doctors think they are God and haven't a clue about things so they get real upset if you question them. Keep searching, there are good doctors and answers for all of us out there. God bless, Royann

Guest Terry
Guest Terry
Posted

Hi- I have been diagnosed with Celiac for close to 7 years now- I have several other diseases that "go along "with celiac. Asthma, Diabetes, IGA deficiency, Interstisial cystis.

Terry :huh:

tarnalberry Community Regular
tarnalberry
Posted

Some women have also found a link between celiac and vulvodynia.

beelzebubble Contributor
beelzebubble
Posted

i also have pcos. i don't know if there's any sort of connection. but, i know that the incidence of irritable bowell syndrom appears to be higher among pcos'ers, so there might be. if you want, you can send me a pm, and we could chat about it.

c-

  • 3 weeks later...
slockhart Newbie
slockhart
Posted

I'm yet another celiac with PCO syndrome. I discovered I was a coeliac in 2000 and have had bouts of cysts since then. However, I have only recently discovered that my gluten-free diet wasn't as gluten-free as I thought. No pain since starting the stricter diet but its only been a couple of months.

I have been doing quite a bit of research lately into gluten intolerance and its related diseases and I am sure I came across a connection between the two. However, at the time my focus was on another connection with coeliac disease and so put it aside. If I find it I will let you know. Otherwise, general infertility problems are well documented. There's a book called Dangerous Grains which summarises most of the known or suspected connections of gluten intolerance and other health problems including infertility. Also, a google search can be great and can even lead to the primary literature in the medical journals - perfect ammunition to arm yourself with when next you visit those doctors too lazy to do their own research and/or too arrogant to accept information from patients.

  • 3 months later...
armymom3 Newbie
armymom3
Posted

Hi. I am a brand new member and I actually got on this board to find out this exact thing...I have type II diabetes and am 34 years old. Unusual as I was diagnosed when I was 32 and most Type II's are age on set as well as over weight. Not my case...I have not had the Celiac blood panel run yet but am going in on Monday. I have actually been using a gluten-free and wheat free diet for about 5 days now (had some slip ups along the way) and my sugars are much more manageable and I feel better. My grandmother had an allergy to gluten and wheat but as far as we know was never technically diagnosed with Celiac. She was also a Type II diabetic (age on- set). Is there anyone out there that is an early diagnosed type II and has Celiac? I found alot of correlation with Type I and Celiac but not so much info on Type II and Celiac. Strange, but I almost hope it is Celiac - atleast I would know what is wrong with me and get on the track of recovery. Also, does anyone out there with Celiac have gallbladder problems?

Thanks

Leslie

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Guest jhmom
Guest jhmom
Posted

Here is a very informative link about Research on Diseases and Disorders Associated with Celiac Disease

I hope this is helpful to each of you looking for answers :D

kalo Rookie
kalo
Posted

Hi Leslie. Welcome to the group. I wanted to say that I understand about wanting to have celiac disease. I have a 7 page health history which begins at birth and I was 55 on Thursday. After a diagnosis of chronic fatigue, fibromyalgia, low thyroid/low adrenal, IBS, and sinus/allergy and still not well it would be SUCH A RELIEF. Keep us posted. My blood test was negative which doesn't mean anything. I'm awaiting the results from a simple stool test from enterolabs. A much more accurate test. Best wishes. Hugs, Carol B

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    • cristiana
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By cristiana · Posted

      Hi Marie Welcome to the forum. I am so sorry your daughter is pointing the finger at you like this.   I am afraid children of any age can be very cruel to their parents - I certainly look back at some of the things I said to my mother and father in the past, and wish I could unsay them.  Sometimes people just need a safe place to vent, and unfortunately having a go at one's parents is the all too easy option.  If she is anything like me, she will regret what she says one day.  (Oh... if only I had the chance rewind the clock!) I just wanted to add one more thing to Trent's and Scott's excellent posts and that is regarding diet:  I have to say, not one person  (my nutritionist, my gastroenterologist or GP) has EVER suggested that a poor diet was the cause of my coeliac disease.    In all the various clinics I have attended these past nearly 12 years no-one has ever asked if I was brought up on processed food, or questioned if I eat 5 fruit and veg a day.  Sure, unfortunately I am only too well aware that I could do a lot better with my diet and it's a constant challenge for me not to give into what I like (unfortunately I've always had a sweet tooth).   But I know some super healthy 10 fruit and veg a day types who still got coeliac disease, and equally, a lot of people who eat all the wrong stuff and they still have cast iron stomachs. Do encourage her to get checked though - it may be that she hasn't got coeliac disease at all. Come back to us if you need any more support through the process. Cristiana
    • trents
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By trents · Posted

      Welcome to the forum, @Marie70! The first thing to know is that celiac disease has a genetic base. The two main genes that have been identified as providing the potential to develop celiac disease are HLA-DQ2 and HLA-DQ8. About 40% of  the general population carries one or both of these genes. However, only about 1% of the general population ever develops celiac disease. So, we know that in addition to possessing the genetic potential to develop celiac disease, there has to be some triggering environmental or medical "stress" factor (or factors) that switches the gene or genes on such that they are awakened from their latent condition and become active. What may be the triggering factor (or factors) is the subject of much debate. Here is an article that discusses this subject: Second, what will your daughter have to say if her testing for celiac disease is negative? She may have to add crow to her diet. Third, and this is what I really want to focus on because my wife and I are dealing with something similar in our relationship with our own adult daughter: the real problem is not whatever shortcomings you, as the family cook, may have had when providing meals, the real problem is with your daughter's heart/soul/attitude. If it turns out to be true that she has celiac disease, it is likely she would have developed the condition sooner or later even if her diet had been healthier while growing up. She is angry about the prospect of having to deal with the dietary and social limitations that having celiac disease would impose upon her. She doesn't want to face up to the fact that this may be a new reality that will dramatically changer her life and she is looking for someone or something to blame. And she has conveniently turned her wrath on you rather than saying to herself, "Okay, this is what it is. Now what can I do to make adjustments in order to with it the best way I can?"  When faced with a life-changing reality, people will either accept it for what it is, make adjustments and move on or they will become angry and look for something or someone to blame and get stuck. For now, at least, your daughter has chosen the latter option. Don't let her problem destroy both of you.
    • Scott Adams
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By Scott Adams · Posted

      It sounds like you’re carrying a lot of guilt, but please know that you didn’t cause your daughter’s potential celiac disease or your son’s Crohn’s. These conditions have strong genetic components, and while diet can influence symptoms, it does not cause autoimmune diseases. You did the best you could with the knowledge you had at the time, and no parent is perfect. Your daughter’s frustration is understandable, but it’s likely coming from a place of fear and uncertainty rather than true blame. Let her get tested, and if she does have celiac disease, you can support her moving forward. Instead of focusing on guilt, try shifting the conversation toward healing and learning together. You’re not alone, and you don’t deserve to carry this weight on your own. This article might be helpful. She needs to be screened for celiac disease before she can be sure that she has it. Another approach not discussed in the article is a genetic test for celiac disease, which she could do without eating gluten.      
    • Marie70
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By Marie70 · Posted

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    • RMJ
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