Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Got My Results From Enterolab


jds22

Recommended Posts

jds22 Newbie

I was tested for gluten and milk/casein and both came back positive. :(

I have done quite a bit of reading lately and have a few books on going gluten-free but I am wondering about casein. Does the casein allergy affect the body the same way gluten does? Does is affect the villi the same way? Do I need to avoid casein as completely as I do gluten? Can or should I take acidophilus? Is whey protein casein? I'm sure I'll have more questions as time goes by.

Thanks again,

Jerry


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest barbara3675

Had the same results you did from Enterolab, Jerry. I know whey is one of the trigger words you need to avoid when reading lables if you want to avoid casein. Casein doesn't effect the villi, I don't think, it effects your tummy and gives you gas/bloating and can cause diareah/constipation the same way gluten intolerance does. I know now that I have avoided casein, I am feeling much better. It is as hard or harder to avoid than gluten. I think after some time goes by, I am going to try some cheese......I miss pizza the most and I heard that casein-free cheese is nasty. They say that milk and ice cream are the hardest on you. Fleishman's margarine is the only margarine that is completely free of dairy according to a list I got from a gluten-free/cf site. That site is www.gfcfdiet.com designed originally for parents with autistic children who seem to be doing very well on the diet. They have a book you can buy. I make the pizza with gluten-free bread, gluten-free sauce, veggies and cheese....makes me hungry for it just thinking about it.

Hope this helps in some way for you, Jerry. Barbara

taneil Apprentice

I had the same results from Entrolab. I went gluten-free six months ago and have watched dairy intake but would eat ice cream once in a while and also would use butter. Now however, I am going to go Caesin free as well. The symptom I notice when I ingest Caesin in extreme irritablility within a few hours. I want to rip someone head off if they bug me. But when I avoid caesin I am fine.

The substitute ice cream I found is "Sweet Nothings" it is made by the same company that makes Soy Dream. I avoid Soy so I was really excited to find this non dairy, non-soy Ice Cream allternative. The only kind I have tried is the Mocha but it is really good I think.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,073
    • Most Online (within 30 mins)
      7,748

    David Croft
    Newest Member
    David Croft
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @KRipple, thank you for the lab results from your husband's celiac disease blood antibody testing. The lab result you share would seem to be the tTG-IGA (Tissue Transglutaminase IGA) and the test result is in excess of 10x normal. This is significant as there is an increasing tendency for physicians to grant a celiac disease diagnosis on the basis of antibody testing alone when the scores on that particular test exceed 10x normal. This trend started in the UK during the COVID pandemic when there was tremendous pressure on the medical system over there and it has spread to the USA. The tTG-IGA is the centerpiece of celiac disease blood antibody testing. All this to say that some doctors would grant a celiac disease diagnosis on your husband's bloodwork alone and not feel a need to go forward with an endoscopy with biopsy. This is something you and your husband might wish to take up with his physicians. In view of his many health issues it might be wise to avoid any further damage to his small bowel lining by the continuing consumption of gluten and also to allow healing of such to progress. The lining of the small bowel is the place where essentially all of our nutrition is absorbed. This is why celiac disease when it is not addressed with a gluten free diet for many years typically results in additional health problems that are tied to nutritional deficiencies. The millions and millions of tiny finger-like projections that make up the nutrient absorbing surface of the small bowel lining are worn down by the constant inflammation from gluten consumption. In celiac disease, the immune system has been tricked into labeling gluten as an invader. As these finger-like projections are worn down, the efficiency of nutrient absorption becomes more and more compromised.
    • KRipple
      Thank you so much! And sorry for not responding sooner. I've been scouring the hospital records and can find nothing other than the following results (no lab info provided): Component Transglutaminase IgA   Normal Range: 0 - 15.0 U/mL >250.0 U/mL High   We live in Olympia, WA and I will be calling University of Washington Hospital - Roosevelt in Seattle first thing tomorrow. They seem to be the most knowledgeable about complex endocrine issues like APS 2 (and perhaps the dynamics of how APS 2 and Celiacs can affect each other). His diarrhea has not abated even without eating gluten, but that could be a presentation of either Celiac's or Addison's. So complicated. We don't have a date for endoscopy yet. I will let my husband know about resuming gluten.    Again, thank you so much for sharing your knowledge with me!
    • Jmartes71
      Ginger is my best friend, it helps alot with tummy issues..
    • aattana
      Hi Phosphone, did you ever figure out what elevated your DGP?  I am in the same boat. 
    • trents
      Scott makes a good point about the prednisone. It has a general suppressing effect on the immune system. Don't misunderstand me. In view of your husband's several autoimmune afflictions, it would seem to be an appropriate medication therapy but it will likely invalidate endoscopy/biopsy test results for celiac disease.
×
×
  • Create New...