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Diagnosed!


barbara123

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barbara123 Apprentice

Hey Everyone

I got my results today, I am positive for celiac I have mixed feelings about this, I am so happy that I found out what was wrong with me. Didn't really want this but at least now I know that I am not crazy!!!

Guess now I will have to do more studying and be more vigilant on my diet!

:huh:

I have already learned so much from yall Thank you so much


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CarlaB Enthusiast

Congratulations on getting answers! When I finally got diagnosed (with Lyme, I'm non-celiac gluten intolerant), we went out to celebrate knowing what was wrong ... not the confirmation that I was sick, but the hope that I could get better. I understand how you feel -- relieved.

Rosewynde Rookie

I know how you feel! * cheers * I was thrilled when they finally pegged down the cause of my years of problems. Keep researching, there is a lot of very good information out there to find. Feel free to ask questions too. Sometimes you get mixed information with internet searches and asking questions here can clear up confusion. Besides, I get the majority of the answers to my questions by reading posts from others that have similar problems ; D

sherryGF Newbie

Barbara, I'm thrilled you finally got some definitive answers! There's nothing more frustrating that to know something's wrong, and not get any answers from the health care professionals!!! I've been gluten-free for 7 years now, but was originally mis-diagnosed with Crohn's for over 10 years! I, too, am going through some health "issues" right now, with no definitive answers--VERY frustrating! Best of luck to you & your new diet! Hope you'll be feeling better soo!

cmom Contributor

I agree. I need to go to the doctor about some issues I'm having like unexplained weight gain, etc. I have not made an appt yet b/c I don't think I would be taken seriously. I predict I will hear "well, you are getting older and closer to menopause and that's just the way it happens." There are 2 women nurse practitioners that I trust so I may request one of them instead. MEN! :o

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    • Lori Lavell
      The body reacts to all grain proteins in all grains from my observation. Call it Gluten, Gliadin, which is what they test for commonly, however, I am Celiac and react with dermatitis herpetiformis to corn and the glutenous protein in it is called Zein. They only test for Gliadin. Testing needs to be updated in my opinion. It only take a small parts per million to continuously create systemic inflammation. This is not productive to healing and all grains contain some for gluten like substance. It's called Molecular Mimicry.
    • Scott Adams
      Thank you for sharing your perspective. It's true that many grains contain proteins that are technically classified as "glutens" (like zein in corn and orzenin in rice), but it's important to clarify that these proteins are not the same as the gluten found in wheat, barley, and rye, which contains gliadin and glutenin. These specific proteins are the ones that trigger an autoimmune response in people with celiac disease. For individuals with celiac disease, the primary concern is avoiding gluten from wheat, barley, and rye, as these are the grains scientifically proven to cause damage to the small intestine. While some people with celiac disease or non-celiac gluten sensitivity may also react to other grains, this is not universal and varies from person to person. For most people with celiac disease, grains like corn and rice are considered safe and are widely recommended as part of a gluten-free diet. That said, you raise an important point about systemic inflammation and individual tolerance. Some people may indeed have sensitivities to other grains or find that eliminating additional grains helps them feel better. However, it’s crucial to differentiate between celiac disease, which requires strict avoidance of wheat, barley, and rye, and other conditions or sensitivities that may involve broader dietary restrictions.
    • trents
      I disagree, Lori. Gluten is a particular protein, not a category of proteins. It is found in wheat, barley and rye. Other cereal grains have proteins that resemble gluten to one degree or another but are not gluten. Gluten is gluten. Avenin is avenin. But yes, it is true, that informally speaking, some have used the term "gluten" to refer to the proteins found in these other cereal grains. It's like the term "kleenex" has come to refer to all facial tissues.
    • Lori Lavell
      In fact ALL grains contain different forms of gluten that go by different names. Corn contains Zein and Rice contains Orzenin. We all need to realize that a very small amount of any of these grains can cause continued systemic inflammation which is not optimal for allowing the body to heal itself.  
    • Scott Adams
      This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease.     
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