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The Next Few Days Should Be Interesting

Crystalkd

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Crystalkd Contributor
Crystalkd
Posted

I wasn't really sure how to title this but I need a little support for one thing and am excited about the other and just wanted to share.

I go to my GI in the morning. This is the first time since the endoscpy that he says came back negitive but due to my diet responce my Internist thinks I do have it plus the blood test came back odd twice. (I'm going to ask for copies of the results so I can see them with my own eyes. I'm concerned about what the GI will think of the internists dx. I'll just have to wait and see I guess.

My other thing is that I'm finally feeling comfortable enough to even enterain spending the weekend more than 5 mins away from my house!! I haven't done this since I first started getting sick in Jan. It may vseem small but for me it's big because I'm getting my life back. I'm taking snacks with me that I can eat but its also comforting to know that there are a few in the group I'll be with that understand my diet first hand.

Just had to share.

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Eriella Explorer
Eriella
Posted

First of all-- congrats on feeling better! Don't worry about what the test results say, if gluten makes you sick, don't eat it. That is what my GI and my primary care physician told me when my blood results came back with 0 levels. If your physician is worth his or her weight in salt, they will say the same thing too. You may not be celiac, but instead by gluten intolerant (my official diagnosis, although we all have a strong suspicion that I one of those few that don't produce any antibodies, but have the autoimmune aspect), but does it really matter? No matter what the doctor tells you tomorrow, do what makes you feel better. If you can find a doctor who will support you, that's great. If not, then we will support you. A gluten free diet won't hurt you at all, so there is no risk and all gain.

A word from someone who went through this yesterday-- go in with a list of symptoms you had before, what improvements you had, and specific questions to ask (like why am I responding positively if my test is negative? What would be the benefits of retesting?). I have found that if you go in and say that you know the science says something else, but you feel better this way, doctors tend to agree and just want you to feel better.

Good Luck!

Crystalkd Contributor
Crystalkd
Posted
  • Author
First of all-- congrats on feeling better! Don't worry about what the test results say, if gluten makes you sick, don't eat it. That is what my GI and my primary care physician told me when my blood results came back with 0 levels. If your physician is worth his or her weight in salt, they will say the same thing too. You may not be celiac, but instead by gluten intolerant (my official diagnosis, although we all have a strong suspicion that I one of those few that don't produce any antibodies, but have the autoimmune aspect), but does it really matter? No matter what the doctor tells you tomorrow, do what makes you feel better. If you can find a doctor who will support you, that's great. If not, then we will support you. A gluten free diet won't hurt you at all, so there is no risk and all gain.

A word from someone who went through this yesterday-- go in with a list of symptoms you had before, what improvements you had, and specific questions to ask (like why am I responding positively if my test is negative? What would be the benefits of retesting?). I have found that if you go in and say that you know the science says something else, but you feel better this way, doctors tend to agree and just want you to feel better.

Good Luck!

This doc is a sweetheart so I think everything will be fine. I just never know these days. I have a physical disability on top of the celiac disease so I learned very early how to handle docs. This is just a doc I haven't figured out yet since I haven't been going to him long.

blueeyedmanda Community Regular
blueeyedmanda
Posted

Crystal,

It is good to see you are finally starting to feel better. You have a lot of confidence in yourself, it took me long than just a few months to stay away from my home. That is great! It is nice to see you are getting on with your life. Have fun this weekend. :)

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