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- trents replied to Jessica H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3Help Interpreting My Lab Results? (updated)
They do use stages but only when evaluated the damage done to the villi of the small bowel after looking at the biopsy samples. I'm referring to the "Marsh" scale. As far as I know, "stages" has never been applied to blood antibody test scores. It would not be appropriate to assign stages based on antibody scores as the damage done would depend not only... -
- Mo Stipisic posted a topic in Coping with Celiac Disease0Home-made kefir
Hello there, I am just a newbie starting to learn how to cope with gluten and potentially celiac. I learned that the ferments are great for the gluten-free nutrition. I have beed drawn to kefir for quite many a year and, since the culture grows so pungently, I would like to share it with whoever is interested. Supposedly it falls into that category... -
- Jessica H replied to Jessica H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms8Help Interpreting My Lab Results?
I did start a new thread but here are the results with the modifications in case anyone wants to reply in this thread also. Thanks for any insight. I’m pretty sure I’ve got my answer but support is always welcome. Gliadin Deaminated Antibody IgA (Normal Value <7.0 U/mL) - 21.0 Gliadin Deaminated Antibody IgG (Normal Value <7.0 U/mL) - 19... -
- Jessica H replied to Jessica H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3
Help Interpreting My Lab Results? (updated)
Thanks for the reply. I was assuming my score was pretty high and I was probably looking at a diagnosis. Do you think being 10x the upper limit signifies anything I should be more concerned about? I know they don’t use ‘stages’ anymore but would this indicate it’s pretty bad or not necessarily? I just don’t know how to interpret what that number could mea... -
- Scott Adams replied to Jhona's topic in Meet Up Room12Does anyone here also have Afib
It sounds like you’ve noticed a clear connection between gluten exposure and your Afib episodes, which is really important insight. While it’s understandable to hesitate about medication if it feels like it might mask your symptoms, your cardiologist’s concern likely comes from wanting to protect your heart from potential risks, even if Afib is triggered inter...
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They do use stages but only when evaluated the damage done to the villi of the small bowel after looking at the biopsy samples. I'm referring to the "Marsh" scale. As far as I know, "stages" has never been applied to blood antibody test scores. It would not be appropriate to assign stages based on antibody scores as the damage done would depend not only the antibody levels in the blood at the time of testing but the duration of it and the intensity of it over time since the onset. And those are all very subjective things. I understand your concern about irreparable damage done to body systems but you are fairly young and your body still has very good rejuvenation powers. Is there laboratory or medical evidence that anything other than the lining of your small bowel has been compromised yet? Do you have bone demineralization for instance or unexplained dental decay or neurological deficits? Stuff like that? It took 13 years to arrive at a diagnosis of celiac disease in my case from the first laboratory evidence (elevated liver enzymes) of onset and by that time I had developed osteopenia. I was 50 or 51 at the age of diagnosis. -
By Mo Stipisic · Posted
Hello there, I am just a newbie starting to learn how to cope with gluten and potentially celiac. I learned that the ferments are great for the gluten-free nutrition. I have beed drawn to kefir for quite many a year and, since the culture grows so pungently, I would like to share it with whoever is interested. Supposedly it falls into that category of ferments good for the gut - haven't started doing my sauerkraut or kimchi yet, but it is on my schedule. Whoever is interested in the kefir culture, just lmk - I live in NYC. kindly, -mo -
I did start a new thread but here are the results with the modifications in case anyone wants to reply in this thread also. Thanks for any insight. I’m pretty sure I’ve got my answer but support is always welcome. Gliadin Deaminated Antibody IgA (Normal Value <7.0 U/mL) - 21.0 Gliadin Deaminated Antibody IgG (Normal Value <7.0 U/mL) - 19.0 Tissue Transglutaminase IgA Ab (Normal Value <7.0 U/mL) - 128.0 Tissue Transglutaminase IgG (Normal Value <7.0 U/mL) - 27.0 Immunoglobulin A (IgA) (Normal Range 70-400 mg/dl) - 167.0
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Thanks for the reply. I was assuming my score was pretty high and I was probably looking at a diagnosis. Do you think being 10x the upper limit signifies anything I should be more concerned about? I know they don’t use ‘stages’ anymore but would this indicate it’s pretty bad or not necessarily? I just don’t know how to interpret what that number could mean. It’s all kind of scary when I see how high it is compared to the norm.
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By Scott Adams · Posted
It sounds like you’ve noticed a clear connection between gluten exposure and your Afib episodes, which is really important insight. While it’s understandable to hesitate about medication if it feels like it might mask your symptoms, your cardiologist’s concern likely comes from wanting to protect your heart from potential risks, even if Afib is triggered intermittently. Have you considered discussing a middle ground—like monitoring your heart more closely or exploring whether certain medications could act as a safety net without completely hiding gluten exposure symptoms? Either way, your awareness of how gluten affects you is valuable, and hopefully, you and your doctor can find a solution that addresses both your immediate reactions and long-term heart health. Untreated high blood pressure can lead to some serious heart issues, and because you are already seeing a cardiologist you likely know this.
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