Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Specific Carbohydrate Diet


Carriefaith

Recommended Posts

Carriefaith Enthusiast

The specific carbohydrate diet is a gluten free, grain free, lactose free, low sugar, low carb diet.

It is recommened for individuals with celiac disease that have not responded well to the gluten free diet. (It is also recommended for a number of other things such as chrons disease, ulcerative colitis, IBS). Here is a website: Open Original Shared Link

I have read a lot of success stories about how the diet has worked and relieved symptoms for people with celiac, chrons, ulcerative colities /ect.

I am considering trying the diet in order to relieve my symptoms (I have been gluten free for almost 8 months with continuing symptoms) but it looks like a very hard diet to follow.

I was just wondering if anyone has tried the diet (or knows anyone who has tried it) and if it works.

Thanks for any responses

-Carrie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lilliexx Contributor

i havnt tried that one, but i am on a similar diet now. ( no starch, sugar, minimal dairy, no grain) and i feel ten times better now then i have during my 3 months being gluten free.

i was still having gas, bloating, every day and during the first three days of the new diet it stopped.

i think its a good idea to try a more strict diet, if the gluten free isnt working.

lillie

wclemens Newbie

Hi,

I am 60 years old and have dealt with symptoms of Celiac since the age of 8, though I didn't know then that what I had was Celiac. I am intolerant of all grains, milk & dairy products (casein and whey included), egg whites, and yeast. My symptoms present as Asthma, and I have been in the hospital so many times, but not anymore! I am now on The Carbohydrate Addict's Diet, written by Drs. Richard and Rachel Heller. I am almost five feet tall and weigh 106. Throughout my life I always used to struggle with my weight, but not anymore! The diet is low carb foods 23 hours a day, except for one hour called your "reward meal" when you can eat or drink whatever you like (of course within your own dietary restrictions).

I have so much energy I outlast those many years younger than I, and I have just applied to law school, after retiring from 25 years of teaching, so you can see that the diet is a good one, and is so pleasurable and easy to stick with.

I used to eat my one hour at night, then relax, but lately I have been eating it for breakfast, and taking advantage of the energy that eating fruits, etc. give me during my working hours at a local bakery, or on my writing career, etc.

I hope you find this helpful, and that you find the diet that gives you relief, energy, excitement, and enthusiasm for life. Welda

travelthomas Apprentice

I read what they recomend and other than, rice and wild, no salt added canned salmon, I eat the diet. I do really good with the wild Alaskan canned salmon and see no problem with it. I don't do so good with some chicken meat, and I could not even imagin eating pork, or other meats loaded with hormones, chemicals, etc.

Carriefaith Enthusiast

Thanks everyone for your responses! I am considering eliminating other foods from my diet in order to feel better. I am just so tired of being sick I am almost willing to try anything at this point. If so many people are feeling better by elminating more foods than it must work! :)

-Carrie

Welda,

Thanks! I will definatley read up on the Carbohydrate Addict's Diet since it has worked so well for you.

baldridgem Rookie

I have been on SCD for 2 years now. I have IBS and celiac. It does work

I've had a lot of up and downs-trying to figure out what I can and can't eat.

I can't eat some of the legal foods on the diet-its trial and error. MaaryB

AntiGluten Rookie

Hey Carrie,

My mom and I both have been diagnosed with celiac for three years. We did gluten free for little over a year and still were not feeling all that great. We heard about the SCD and tried it out. I'd say after being on it for a couple weeks we were both feeling really great. One morning I felt like a 10 out of 10 for the first time in a couple years. But then we started introducing the yogurt, nut flour and meals. My mom has fybromyalgia (sp?) so that wasnt working to well for her cuz of the nuts, and I react to casein and eggs, so the wasn't working too well for me. We ended up stopping the diet, but lately I've been thinking about starting it up again, but limiting it further. I know it's slightly more difficult than just being gluten free (which is ridiculously easy in my opinion), but if you can do it, I highly recomend trying it for a few months.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



strack2004 Rookie

Hi, I have been on the SCD diet since July 30. I also have had some ups and downs due to errors in eating. And I also do not tolerate many of the legal items on the diet. Am lactose intolerant, Don't get along with the potato tomato family and find that cabbage family vegetables are troublesome. Speaking of chicken, I wonder if some chicken comes from broth added poultry. I hadn't thought of chicken as a problem, but will check it out . Just finished a package, so will wait awhile, but I have had more trouble during the past few days. My next step should really be an elimination diet , going down to a very few foods that I am quite sure don't bother me and adding others one at a time.

Another area of concern has been toothpaste. I know one can buy gluten-free toothpaste at health food stores, but so expensive. I tried baking soda and then salt. Someone on the board said that soda would cause me to get cavities. I ran that past my dentist last week. He said that soda should be fine, but salt has sugar in it! I wonder how much sugar could be in salt? and in any case, I rinse my mouth thoroughly with water and mouth wash after brushing. The whole area of shampoos and soaps, etc. is a difficult one. Actually, my problems are small since I use no cosmetics.

Back to SCD, I definitely sleep better and have more energy since being on the diet. I have not been formally diagnosed, but have had digestive problems since early childhood. I figure that if my villi are damaged, this has been going on for 70 odd years, maybe longer. And if this is not actually due to celiac, this diet is also designed for ibs and other digestive problems. My doctor is following my situation . I have been losing weight slowly but steadily, but he is not worried. And I like fitting into clothes I haven't worn in awhile. Cheers, Ruth S.

Carriefaith Enthusiast
I know it's slightly more difficult than just being gluten free (which is ridiculously easy in my opinion)

I know what you mean, the gluten free diet seems like heaven compared to the SCD. That's why I'm a little hesitant about trying it. I eat potatoes, rice, turnip, soy, and corn (ect.) and don't know if I could give them ALL up.

But.... the SCD does seem to work for most people. So I don't know....

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jeff Platt replied to Vozzyv's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Weird Symptoms

    2. - cristiana replied to Vozzyv's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Weird Symptoms

    3. - Scott Adams replied to More2Learn's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Celiac Maybe a Possibility?

    4. - More2Learn posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Celiac Maybe a Possibility?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,103
    • Most Online (within 30 mins)
      7,748

    DDysard
    Newest Member
    DDysard
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jeff Platt
      Ear pain and ringing your entire life may or may not be TMJ related but could be something else. A good TMJ exam would be helpful to rule that out as a potential cause from a dentist who treats that. I have teens as well as adults of all ages who suffer from TMJ issues so it’s not a certain age when it shows up.   
    • cristiana
      Not sure if related to coeliac disease but my ear ringing  has stepped up a notch since diagnosis.  Even since a child silence really hurts my ears - there is always a really loud noise if there is no other noise in a quiet room - but my brain has learned to filter it out.  Since diagnosis in my forties I also get a metallic ringing in my ears, sometimes just one, sometimes both.  But it comes and goes.   My sister also suffers now, we are both in our fifties, but she is not a coeliac, so for all I know it could just be an age thing.  I do get occasional stabbing pain in my ears but that has been all my life, and I do appear to be vulnerable to outer ear infections too.  So not a particularly helpful reply here, but I suppose what I am trying to say is it might be related but then again it could just be one of those things.   I think in the UK where I live doctors like you to report if you get tinnitus in just the one ear.  I reported mine but no cause was found.  Most of the time it is nothing but sometimes it can have a cause that can be treated, so perhaps worth reporting to your GP.  
    • Scott Adams
      Welcome to the forum, and thank you for sharing your story! It sounds like you’ve been through an incredible journey with your health, and it’s no wonder you’re starting to piece things together and wonder about celiac disease. Your experiences—from childhood through adulthood—paint a picture of symptoms that are often associated with celiac disease, though they can overlap with other conditions as well. The recurring sinus infections, being underweight as a child, chronic gastrointestinal issues, nutrient-related symptoms like cramps, and the persistent fatigue and brain fog are all things that many people with undiagnosed celiac report. Your reactions to gluten also stand out. The improvement in symptoms when you reduce or remove gluten, followed by the resurgence of pain and other problems when you reintroduce it, is a common experience for those with celiac or gluten intolerance. While your frustrations and trials with elimination diets might not have given you concrete answers yet, they’ve provided valuable clues. It’s also worth noting that celiac disease doesn’t always present in the classic way. Many people, like yourself, may not experience severe gastrointestinal distress but instead have “atypical” or extraintestinal symptoms like joint pain, menstrual irregularities, fatigue, and more. It’s a condition that can go undiagnosed for years, especially when symptoms are subtle, sporadic, or mistakenly attributed to other issues. The fact that you’ve sought alternative approaches to feel better shows just how determined you’ve been to find relief, even without a definitive diagnosis. Given your history and how your body responds to gluten, it would be worth exploring celiac disease further with a medical professional. Before removing gluten completely, it’s important to get tested while you’re still eating it, as going gluten-free beforehand can affect the accuracy of the results. A blood test for celiac antibodies (like tTG-IgA) is usually the first step, and if positive, an endoscopy may follow to confirm the diagnosis. If the testing process feels daunting, keep in mind that getting answers could give you clarity and help guide your health decisions going forward. Whatever the outcome, you’ve already made significant strides in identifying triggers and managing your symptoms. Your awareness and persistence are key, and this community is here to support you as you continue to seek answers. This article might be helpful. It breaks down each type of blood test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • More2Learn
      Hi, I am new!  (Although I've used this forum as a reference over the past couple of years.) I'm just looking for some initial reactions to if I actually might possibly have Celiac Disease, or if I'm reaching here.  I have had lifelong health issues and not once has a doctor suggested I look into celiac. I always thought it was basically an extreme allergy that needed an EpiPen, and I know that's not me.  However, I stumbled upon some symptoms, realized I was wrong, and after some research I'm almost shocked at what I have found.  It seems like anything I've ever struggled with has a potential correlation to this disease!  I'm in my 40's, now.  Here is my journey to date... Issues as a Kid: tons of allergies, and had sinus infections all the time... however I didn't have hayfever-like allergies and the scratch tests didn't register much, it was more that when I was exposed to allergens (like say I spent hours with a cat) I was certain to get a sinus infection and it lasted months. was extremely skinny and everyone always said I was anorexic (I wasn't) always getting sick and the illnesses hang on for a long time always cold (my favorite thing to do is sit in front of a space heater or be out in 90 degree weather) intermittent bad constipation (still happens but not as severe) horrible toe cramps that would wake me up in the middle of the night As I got older (teenage/college years): acid reflux diagnosis learned that beer made me EXTREMELY sick, cannot tolerate it horrible issues with menstrual cycle - I wasn't regular, had awful cramps and PMS, sometimes cannot function the first couple of days night terrors/sleep walking more stomach issues - I learned I couldn't have black coffee.  I often had issues especially when traveling.  For example I finally noticed a pattern that I could never, ever eat at a hotel buffet spread - it would always make me sick afterwards. More recent problems: always tired periodic pain on right side that can be so painful I can't stand up straight. Have had all kinds of scans and doctors always say I'm fine.  I was so sure I had gallstones or my liver was failing but... nope. chest pain brain fog not diagnosed but many, many ADHD symptoms lots of inflammation, am overweight now toe cramps evolved into leg/calf cramps None of my symptoms from any era of my life ever really resolved, except I went from being skinny to ~20/30 pounds overweight, and as I got older I got less outright sinus infections.  Largely due to the pain in my right side and the fact that I always, always seem to pick up every illness, especially when traveling, I started pursuing alternative medicine paths... I did the Pritikin lifestyle, I tried an elimination diet, I followed the Root Cause Protocol, I did a Leptin reset.  A lot of these paths recommend removing gluten, and in the past year or so some of my symptoms have gone away!  Specifically less issues with toe cramps, sometimes the side pain would go away for a long time, and my acid reflux got much better.  But, because I was never diagnosed with any specific intolerance, I wasn't militant about the gluten - I had cut out dairy, soy, all kinds of things.  So I would say cross-contamination is ok, or make an exception at a group outing. Then one day, I just got frustrated and ate some normal slices of pizza... and my side pain came back!  I started doing research and now I'm here and wondering... could I have actually had this my whole life??!? Thoughts and observations welcome.           
    • Wheatwacked
      "grass-fed" meat by definition cannot contain wheat as it means the animal is only fed grass  organic meat can be fed wheat feed
×
×
  • Create New...