Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

First Glutening Episode!


Babygirl6915

Recommended Posts

Babygirl6915 Explorer

Ok, so this is my first serious accidental glutening & I am feeling horrible! Boyf & I had a quick dinner last night (we both get home really late @ night so usually we have seperate dinners) from a place we always eat @ & apparently something got into the sauce that should not have been there! About


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Teacher1958 Apprentice
Ok, so this is my first serious accidental glutening & I am feeling horrible! Boyf & I had a quick dinner last night (we both get home really late @ night so usually we have seperate dinners) from a place we always eat @ & apparently something got into the sauce that should not have been there! About
Cherry Tart Apprentice

Getting glutened stinks!!! :angry:

I know some people take charcoal pills (Glutenease?) to help speed it along, but I have never tried it. For me, it's one of those things that has to run its course. It usually takes me anywhere from a few hours to a couple of days depending on how much gluten I've consumed. I recommend drinking lots of water and simple foods for a couple of days (plain rice, baked potato, plain chicken breast...no roughage). I hope you feel better soon! :)

April in KC Apprentice

From your sig (and from your mention of having "hives" among your symptoms), it sounds like you might have a true wheat allergy mixed into your Celiac symptoms. If so, that's IgE mediated, and A FEW of your unpleasant symptoms might be relieved by taking an oral antihistamine like Benadryl every 4-6 hours (as long as you can have Benadryl). If the Benadry doesn't bring any relef, you might not want to continue taking it. But it might help with some of the symptoms that have to do with a histamine release (internal as well as external).

Unfortunately, I don't have any great tips on how to calm down the Celiac aspects of your reaction, but I hope you get some good advice.

My son has Celiac and also has an IgE-mediated peanut allergy, so we have dealt with both (just not together). If you have IgE type food allergies, you might consider looking up the symptoms of anaphylaxis and carrying an Epi-Pen (Rx) and in case you ever have a really bad reaction that swells your airways or drops your blood pressure. The epinephrine is the only drug that can stop an anaphylactic reaction.

juliela Rookie

Jessica-

I don't know of anything to make the symptoms go away any faster, but I try to think of having the symptoms as a "positive" thing. Some celiacs don't experience any symptoms when they eat gluten bu accident. I feel like if I were one of those people, I might keep making the same mistake and end up doing damage. You can at least be greatful that your body is trying to give you a message not to do it again. :)

Hope you feel better!

Julie

Babygirl6915 Explorer
From your sig (and from your mention of having "hives" among your symptoms), it sounds like you might have a true wheat allergy mixed into your Celiac symptoms. If so, that's IgE mediated, and A FEW of your unpleasant symptoms might be relieved by taking an oral antihistamine like Benadryl every 4-6 hours (as long as you can have Benadryl). If the Benadry doesn't bring any relef, you might not want to continue taking it. But it might help with some of the symptoms that have to do with a histamine release (internal as well as external).

Unfortunately, I don't have any great tips on how to calm down the Celiac aspects of your reaction, but I hope you get some good advice.

My son has Celiac and also has an IgE-mediated peanut allergy, so we have dealt with both (just not together). If you have IgE type food allergies, you might consider looking up the symptoms of anaphylaxis and carrying an Epi-Pen (Rx) and in case you ever have a really bad reaction that swells your airways or drops your blood pressure. The epinephrine is the only drug that can stop an anaphylactic reaction.

I do indeed have Wheat Allergies! And I actually do not have "confirmed" celiac but whatever. I will try the benadryl today & see if it helps. I normally take it if I accidentally eat one of my other food allergies & yes I do have an Epi-Pen as I have had an anaphylaxis reaction before. Just really hate to think about using b/c I never have before! *knock on wood*

Thanks for all the input & support ya'll!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - DayaInTheSun replied to DayaInTheSun's topic in Coping with Celiac Disease
      5

      Being a burden to family/friends

    2. - Kiwifruit replied to Kiwifruit's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Years of testing - no real answers

    3. - trents replied to Gill.brittany8's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      9 Year Old test results - help interpret

    4. - Gill.brittany8 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      9 Year Old test results - help interpret

    5. - Mnofsinger replied to Mnofsinger's topic in Related Issues & Disorders
      7

      Food Tasting Salty


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,834
    • Most Online (within 30 mins)
      7,748

    mcsmommy
    Newest Member
    mcsmommy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DayaInTheSun
      Interesting you mention MCAS. I have come across mcas before but I wasn’t entirely sure if that’s what it was. When I eat certain food like dairy or soy my face gets so hot and I feel flush and my heart rate shoot’s up. And sometimes my bottom lip swells or I get hives somewhere. This started happening after I had a really bad case of Covid.  Before that I was able to eat all those things (minus gluten) I was diagnosed with celiac way before I had Covid.  Hmm, not sure really. I may look for a different allergist my current one told me to take Zyrtec and gave me an epi pen. 
    • Kiwifruit
      This is all really useful information, thank you so much to you both.    I have a history of B12 and vit D deficiency which has always just been treated and then ignored until it’s now again.
    • trents
      Welcome to the forum, @Gill.brittany8! There are two main genes that have been identified as creating potential for developing celiac disease, HLDQ2 and HLDQ8. Your daughter has one of them. So, she possesses genetic the potential to develop celiac disease. About 40% of the general population carries one or both of these genes but only about 1% of the general population develops celiac disease. It takes both the genetic potential and some kind of triggering stress factor (e.g., a viral infection or another prolonged health problem or an environmental factor) to "turn on" the gene or genes. Unfortunately, your daughter's doctor ordered a very minimal celiac antibody panel, the tTG-IGA and total IGA. Total IGA is not even a test per celiac disease per se but is a check for IGA deficiency. If the person being checked for celiac disease is IGA deficient, then the scores for individual IGA tests (such as the tTG-IGA) will be abnormally low and false negatives can often be the result. However, your daughter's total IGA score shows she is not IGA deficient. You should consider asking our physician for a more complete celiac panel including DGP-IGA, TTG_IGG and DGP-IGG. If she had been avoiding gluten that can also create false negative test results as valid antibody testing requires having been consuming generous amounts of gluten for weeks leading up to the blood draw. Do you know if the GI doc who did the upper GI took biopsies of the duodenum and the duodenum bulb to check for the damage to the small bowel lining caused by celiac disease? Having said all that, her standard blood work shows evidence of possible celiac disease because of an elevated liver enzyme (Alkaline Phosphatase) and low values for hemoglobin.
    • Gill.brittany8
      Hi everyone  After years of stomach issues being ignored by doctors, my 9 y/o daughter finally had an upper endoscopy which showed a ton of stomach inflammation. The GI doctor ordered some bloodwork and I’m attaching the results here. Part will be from the CBC and the other is celiac specific. I’m not sure what’s relevant so I’m just including extra information just in case.   The results are confusing because they say “No serological evidence of celiac disease. tTG IgA may normalize in individuals with celiac disease who maintain a gluten-free diet. Consider HLA DQ2 and DQ8 testing to rule out celiac disease.” But just a few lines down, it says DQ2 positive. Can someone help make sense of this? Thanks so much.  result images here: https://ibb.co/WFkF0fm https://ibb.co/kHvX7pC https://ibb.co/crhYp2h https://ibb.co/fGYFygQ  
    • Mnofsinger
      Those are great points and some follow up thoughts and ideas. I think you're both stating the same thing in two different ways, but I appreciate the "accuracy" of what you're getting to.   1. Are you both stating that the "too salty of a taste" could be triggered by a histamine reaction, and the flavor is coming from the electrolytes? If that is the case, wouldn't the individuals mouth always be salty during a "Glutening" situation, or are we saying that the person could get "use to the flavor" until introducing food or beverage and that could be enough to "stir the pot" and notice the salty flavor? 2. To push back on "#1": If that were true anyone with issues of histamine releasing foods/treatments would experience the same thing. Also, I did not experience a situation where most beverages were "too salty". Thoughts?
×
×
  • Create New...