Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dear Colon


melmak5

Recommended Posts

melmak5 Contributor

Perhaps this sounds odd, but I am new here...

When you are exposed to gluten are you VERY aware of your colon?

i.e. - can feel it, along with rumbles, grumbles & pain

(I was actually walking down the street this afternoon and looked downward and said allowed: "ok, NOW what do you want!?!")

My doctor thinks that perhaps there is something else going on (wrong) with my GI tract because I have been gluten free for just over a month and I am in constant dull to sometimes sharp pain, specifically under my ribs when I eat.

Is there something that helps?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GeoffCJ Enthusiast
When you are exposed to gluten are you VERY aware of your colon?

i.e. - can feel it, along with rumbles, grumbles & pain

Mine isn't really my Colon, I don't think, but I certainly get "rumbles".

Geoff

melmak5 Contributor

Thanks Geoff.

This is rumbles plus the added bonus of pain and/discomfort.

And a weird sensation of "hey, look at me, i am acting up and you are paying attention to me now, aren't you!?"

(yes, sometimes I feel that my digestive system acts and sounds like a small/needy child)

c5land Newbie
Perhaps this sounds odd, but I am new here...

When you are exposed to gluten are you VERY aware of your colon?

i.e. - can feel it, along with rumbles, grumbles & pain

(I was actually walking down the street this afternoon and looked downward and said allowed: "ok, NOW what do you want!?!")

My doctor thinks that perhaps there is something else going on (wrong) with my GI tract because I have been gluten free for just over a month and I am in constant dull to sometimes sharp pain, specifically under my ribs when I eat.

Is there something that helps?

I have been gluten free for just over 2 months now and I am having the exact same pains under my ribs, mine is mainly on right side. My doctor thinks it may be gall stones. I am having an ultrasound done on Thurs. so I guess we will see. Seems odd to me that these pains started after I went gluten free. Anyone else with similar pains??

melmak5 Contributor

c5land - good luck!

I had an ultrasound done and my gallbladder is a-ok. I just scheduled a bacterial overgrowth test. (theory is that there are too many bad bacterium in my small intestines that go wild when I eat = pain)

I really really really hope this is the answer, cause I can handle 2 weeks of antibiotics and NO MORE TESTS!

gfpaperdoll Rookie

You might try going dairy free, it worked for me

burdee Enthusiast
c5land - good luck!

I had an ultrasound done and my gallbladder is a-ok. I just scheduled a bacterial overgrowth test. (theory is that there are too many bad bacterium in my small intestines that go wild when I eat = pain)

I really really really hope this is the answer, cause I can handle 2 weeks of antibiotics and NO MORE TESTS!

I had a bad Klebsiella overgrowth which caused pain after eating even 2 years after cutting out gluten, dairy and soy. I took caprylic acid to kill the Klebsi kritters, then high dose probiotics to restore my very depleted good guy levels. Then I went on vacation and experienced no pain after meals and NORMAL stools for the first time in my life. Unfortunately during my Maui vacation, I later got food poisoning from food left on the hot beach. So I again had to treat for bacteria and retake high dose probiotics. Everytime I take probiotics I feel better!

My advice: Take the tests. Kill off the kritters. Reseed your gut with good bacteria. It's worth all the effort so you can feel normal after eating.

BURDEE


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cookie22 Newbie
Perhaps this sounds odd, but I am new here...

When you are exposed to gluten are you VERY aware of your colon?

i.e. - can feel it, along with rumbles, grumbles & pain

(I was actually walking down the street this afternoon and looked downward and said allowed: "ok, NOW what do you want!?!")

My doctor thinks that perhaps there is something else going on (wrong) with my GI tract because I have been gluten free for just over a month and I am in constant dull to sometimes sharp pain, specifically under my ribs when I eat.

Is there something that helps?

well i've never heard someone say that one, but if you really feel it's in your colon, maybe it is ulcerative colitis or crohn's and your doctor is right that it may be something else. but, you are for sure still healing after being gluten-free only a month. and your colon isn't under your ribcage so you are having pain in both places? or just under the ribs? either way, you're still healing for quite some time after being diagnosed.

melmak5 Contributor

I should have been clearer... yes, I am having two very different types of pain.

1. Under my ribs (it feels like someone is shoving their fingers under my rib cage) after I eat.

2. Pressure, pain, distention and LOUD gurgles coming from what I believe is my colon. The bloating/pressure is throughout my entire abdomen, it swells up, sometimes 2 sizes larger and becomes very hard. The pain and gurgles seem to be coming from the outer edges of my abdomen, specifically in the corners. (This seems to happen willy-nilly, sometimes on an empty stomach, sometimes not.)

I have been on probiotics for almost 2 months... but maybe they aren't enough.

I have cut out dairy, but recently added a bit back because my doctor told me I should eat at least one yogurt a day. I can take that out again and see if that helps.

Thanks!

cookie22 Newbie
I should have been clearer... yes, I am having two very different types of pain.

1. Under my ribs (it feels like someone is shoving their fingers under my rib cage) after I eat.

2. Pressure, pain, distention and LOUD gurgles coming from what I believe is my colon. The bloating/pressure is throughout my entire abdomen, it swells up, sometimes 2 sizes larger and becomes very hard. The pain and gurgles seem to be coming from the outer edges of my abdomen, specifically in the corners. (This seems to happen willy-nilly, sometimes on an empty stomach, sometimes not.)

I have been on probiotics for almost 2 months... but maybe they aren't enough.

I have cut out dairy, but recently added a bit back because my doctor told me I should eat at least one yogurt a day. I can take that out again and see if that helps.

Thanks!

oh, sorry about that one :rolleyes: . I think the first part sounds like a gallbladder problem or UC or Crohns, there is a juncture in your large intestine where alot of people with the two have a ton of pain. But you probably have to give the gluten-free diet a bit longer to see if it is ust celaic.

burdee Enthusiast
I have been on probiotics for almost 2 months... but maybe they aren't enough.

I have cut out dairy, but recently added a bit back because my doctor told me I should eat at least one yogurt a day. I can take that out again and see if that helps.

Thanks!

If you don't experience a lot more bloating and gas when you first start taking probiotics, that product is not changing your balance of bacteria. When you get enough good bacteria, you will experience obvious symptoms that probiotics are changing the way your gut processes food. There are many ineffective brands of probiotics on the market.

Yogurt does not supply much of the good bacteria we need. You'd have to eat a LOT of yogurt to replenish your gut if you have low probiotic levels. We have over 300 trillion bacteria in our gut. A good probiotic should supply 100-200 billion LIVE organisms per dose. If the probiotic is NOT freeze dried, the organisms may be dead (useless). If the probiotic requires refrigeration, the organisms could easily die in transport from wherever you buy them. Freeze dried probiotics most often have viable organisms.

BURDEE

melmak5 Contributor

Burdee,

I just switched probiotics last week to a different company, with a higher bacteria count. Maybe all of this lovely bloat is this new one working.

I am going to GI Specialist #2 on Monday, so hopefully IBS and/or Chrons can be ruled out.

cookie22 - patience is not my virtue... you are probably correct, its just hard to swallow

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,960
    • Most Online (within 30 mins)
      7,748

    jujubean
    Newest Member
    jujubean
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Because you have already had the "gold standard" test done, and because you have some experiential evidence that removing gluten from your diet causes you to feel better, it would make sense to begin the gluten-free diet as you wait for biopsy results.
    • growlinhard1
      I wasn't given any blood tests. I think I should try the gluten free diet because when I cut it out a few weeks ago for just a couple of days, I know I started feeling better. The difference was actually pretty dramatic. When I learned gluyen free earing may cause false negative biopsy results, I went back to gluten full force and feel like you know what × 10. Do you feel it would be okay since the gold standard for diagnosis is behind me or should I wait for biopsy results? In your opinion, of course. I know you can't offer me medical advice.
    • Wheatwacked
      My mom said when he was born "you got what you gave".  Until 5 years of he was gluten free, was well liked by his friends, although did get them into mischief at times, a leader of his group of friends, physically active and paid attention, as much as any preschooler.      At 5 years old we moved to my hometown and had to rely on our friends, my pediatrition (still the best doctor I ever had), my wife was a nurse so her aquaintences and doctor friends.  They all still believed back in 1980's that Celiac was a growing phase, and he wanted to be like everyone else.  So everyone's opinion was that if he tolerates gluten with no symptoms he had outgrown it.  He passed the summer at the beach (lots of vitamin D) was a prodegy swimmer and the whole team liked him and he fit in well.     Fall came, he started kindergarden school, less sun ( low vitamin D, Seasonal Affective Disorder is real), new people and a morning schedule that did not end up in a fun, active day at the beach.  Getting him going got more difficult.  By the first teacher-parent meeting in December, they brought up the subject.  He was disruptive in class.  By then we had forgotten what his doctor said 5 years earlier.  So he was diagnosed as ADHD.      Competitive swimming was his saving grace.  All though High School he continued to swim with his competetive team most days after or before school and with the beach club team in addition in the summer.  Some records he set lasted years.  After high school he became a professional ocean guard. Now getting close to retirement.  But always had difficulty concentrating on schoolwork.      He, and his wife, incidentally, is now having the health problems that I just have just gotten rid of.  I had forgotten what the doctor said to us 60 years earlier, bout Celiac Disease being hereditory.  He is starting to listen, but still in denial.  Loves his pizza.  At 63 I had arthritis, fibromyalgia, sleep apnea, enlarged prostate, alcoholism and I got dumber as the years passed.  They all are gone with gluten free and vitamin replenishment. My wife had allergies, endometriosis, fertility problems and miscarriages.  She passed 18 years ago. Sorry for the long story.  Reminds me of a Joni Mitchell song.  "L've looked at life from both sides now. From win and lose, but still somehow, it's life's illusions I recall. I really don't know life, at all"  
    • Beverage
      I feel for you. I've had an interesting history with some vaccine, especially t-DAP. One time after just getting it, I remember walking from the pharmacy to my car, reaching for the door handle of my car as my last memory, then waking up slumped into my car with the door wide open hours later. Nobody even knew I was there. I did get a bad cut from rotting rusty wood and probably animal droppings, and it had been 10 years, so I got a booster recently, but took someone with me. My doc back then did say he was concerned about my reactions to vaccines, but we never talked about what alternatives there might be. What is your risk when you do get sick? For me, I almost always end up needing prednisone and antibiotics and have to crawl back to life for months after those are done, prednisone really messes me up, raises my blood pressure to stroke levels, and the antibiotics mess up my intestines really bad. I have to take mega doses of C and D and B's, especially flush niacin, and probiotics.  So preventing flu is critical for me since I always get a long term negative effect from the treatment. I did a lot of research, traditional and alternative medicine, and they all say high vitamin D levels are crucial to so many kinds of illnesses, including flu, cancer, etc.  People with high D during covid had much better outcomes.  I always tested low in D even with high oral supplementation of D3 and K2.  So last year I saved up and bought a real vitamin D lamp, not one of those cheapie ones that you can get on Amazon that don't work, seriously, those are junk. Wow what a difference with a real D Lamp. We haven't been sick all year, which is rare for me, even after being around several sick people or people that came down sick just after visiting. I use the lamp about every other day or if I've been in a group of people or around anyone sick.  I have not yet had my D levels retested since starting with it (will do that at annual check up later this year), but I have not gotten a cold or flu (knock on wood), feel better than usual for a cold wet winter in the NorthWest, and my hair is growing in like crazy, all signs of improved vitamin D levels. It doesn't take long to use, just a few seconds and first and gradually build up. I now do it for a count of 200, which is about 3 minutes. I don't remember all the details on how the body creates its own vitamin D, but I do remember that the body makes a reaction on the skin and you don't want to wash that off for a few hours.  So I do the D Lamp right after my shower, not before.  There are 2 reputable ones that I found in my research: Sperti Vitamin D Lamp uses florescent tubes, you stand and turn in front of it, be sure to get the VITAMIN D LAMP, not the tanning lamp:  https://www.sperti.com/product/sperti-vitamin-d-light-box/ Chroma Vitamin D Lamp is LED's, you can stand and turn in front of it or hold it in your hand and wave it over your body, always keeping it moving so you don't burn:  https://getchroma.co/products/d-light-vitamin-d-light-device-uvb-red-nir AND YOU MUST WEAR SPECIFIC EYE PROTECTION WHEN USING, KEEP ALL PETS AND OTHERS AWAY, THE GLASSES ARE PROVIDED WITH THE D LAMP. I got the Chroma D Lamp when they had a huge sale last year, it's a small start-up company in Seattle.  Sperti is a larger longer term well known, and you can sign up for a 10% discount on their web site.  If Chroma had not had the sale when I was going to buy one, the Sperti would have been fine. They both often have back orders on them, but they do deliver as promised. I have read various articles on the effectiveness of the flu vaccine for example, not always highly effective every year.  Since your risk with vaccines is high, or if your risk of bad illness if you get sick is high, maybe consider how to mitigate both in another way, perhaps a D Lamp. 
    • trents
      That's what came immediately to my mind as well, Bell's palsy. And don't assume every medical problem is connected to her celiac disease as there is still something known as coincidence. Get this checked out by medical professionals and push for some serious testing. Don't let them brush you off. Be appropriately assertive.
×
×
  • Create New...