Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Experience Of A Biopsy


person011

Recommended Posts

person011 Rookie

I am getting a biopsy next Friday. I am going to try to do it awake because I am terified of being put to sleep. I was wondering what people experiences are doing this.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ehrin Explorer

I'm not sure if procedures are different, but with my biopsy they didn't put me to sleep - they just "knocked" me out. I was awake, but was not conscious if that makes any sense? It was kind of like a large dose of laughing gas...I really don't think you want to be awake for this, mainly because if you have a knee jerk reaction, while they're down there, it's not going to feel pleasant.

cookie22 Newbie
I am getting a biopsy next Friday. I am going to try to do it awake because I am terified of being put to sleep. I was wondering what people experiences are doing this.

most of them are concious sedation. meaning, you will be very out of it and they also give you something else that makes you not remember a thing. is that what you are doing? because if you are doing it wide awake it will likely be less than pleasant. there's a big difference between concious sedation and general anesthesia. good luck.

jerseyangel Proficient

I had conscious sedation--I was asleep but not unconcious and they gave me something so I wouldn't remember.. I remembered nothing from right after the IV went in until I woke up in recovery. I did not feel groggy, within a few minutes I was sitting up drinking apple juice. It basically felt like I had a nice nap :)

One thing--if you decide to go this route, have someone with you when the doctor comes in to speak with you afterward. I forgot everything he said to me and had to ask the nurse to have him come back and repeat what he said.

Cherry Tart Apprentice

I agree w/ ehrin. I recommend going to "sleep." You're technically "awake", but they give you enough medication so it feels like you're sleeping. They will be going down your throat w/ instruments and it won't be pleasant if you are totally aware of everything. The twilight sleep is great! You're only out for a few minutes (the procedure is very fast). It isn't scary or disconcerting in the least. If I can do it, you can do it! ;)

Guest Doll
I am getting a biopsy next Friday. I am going to try to do it awake because I am terified of being put to sleep. I was wondering what people experiences are doing this.

I did my biopsy with NO drugs (this means no sedation either). This is apprently not common, but I chose to do this becuase a) I have Type 1 diabetes and also wear an insulin pump (the nurse there was braindead, I just knew she'd screw something up), and B) I had no one to drive me home.

The doctor sprayed the back of my throat with a numbing spray. I layed down on my side facing him, and he explained what he was going to do. There is a "mouthpiece" that straps around your mouth so that the doctor can guide in the scope. This is uncomfortable, but not painful. The scope itself feels much larger than it looks!

The first part is the hardest. You actually need to swallow the scope. If you are awake, the doctor guides it down slowly, and will ask you to swallow. After it is down, it is very uncomfortable at first. Due to the scope irritating a nerve, you may begin to breathe fast and hyperventilate for a few seconds. Not a big deal, the doctor will simply ask you to relax and try to breathe slowly. I remember drooling a lot on the pillow (tie your hair back!!!!) and burping like their was no tomorrow as the air was forced out. :) Barney Gumble (the burping guy from the Simpsons) had nothing on me!

After a few minutes, it is less uncomfortable. I was told that I wouldn't feel the actual biopsy, but I did. :o It felt like a dull ache, exactly like someone was grabing a piece of my intestines! I felt a bit sore after, but nothing to complain about. I also burped a lot afterwards. :D Bringing up the scope "tickled" and was sometimes uncomfortable, but did not hurt.

The total time from talking with the doctor and nurse to having my biopsy completed was about 7 minutes. Apparently I broke a record! :) If I had to do it again, I would, but I now know that what I did was pretty crazy! Oh well, some people give birth drug free, right? What's the difference?

Overall, the biopsy is NOT that bad. Most people have issues due to the sedation. I avoided all of that.

P.S. "Twlilight Sedation" is what is being referred to above. This is a great choice, and what I would suggest for most people.

confusedks Enthusiast

I just wanted to say...I used to be DEATHLY afraid of being put out or in any altered state. Then a month ago I was hospitalized and had to have a procedure and they put me in the twilight state and it was not a big deal at all! I promise...it's not that scary at all. I don't remember anything other than the oxygen mask (was only oxygen...no laughing gas) and then I woke up. It's not scary...I promise!

Kassandra


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lob6796 Contributor

I asked if I could do mine awake and they told me that unless there are extenuating circumstances, they won't do it with you fully conscious. It makes their job more difficult. I am deathly afraid of being put to sleep, but they don't actually put you under anesthesia, they just give you enough medicine so you don't care what they are doing to you. They did it to my daughter and she was even talking to me and could identify pictures in a book (they went in the other end-different procedure). You don't remember alot of what happened, but you aren't actually asleep. Basically it is like you are drunk and can't remember most of what you did the night before ;)

They did say to be sure someone came in with you who could take notes, because alot of times you don't remember what the doctor says. Mine is Wednesday, I'm nervous!

Guest micah

I used to work with a doctor who did endoscopies/colonoscopies doing research. I have witnessed lots of them. For the most part, the hard part about the endoscopy is the feeling like you are choking on something. You really have to convince yourself that you aren't choking and you CAN breathe. If you relax and breathe slowly, you'll realize you CAN breathe. I hate to be sedated too, I'm really afraid of even novacaine or benadryl because my body overreacts. I did a colonoscopy without sedation and it wasn't that painful - like really bad gas pains. I think it would be too hard for me to do the endoscopy without it though, just to be honest with you. But if you think having a tube down your throat won't freak you out, I'd say go for it.

Micah

Teacher1958 Apprentice

The total time from talking with the doctor and nurse to having my biopsy completed was about 7 minutes. Apparently I broke a record! :) If I had to do it again, I would, but I now know that what I did was pretty crazy! Oh well, some people give birth drug free, right? What's the difference?

Give me as many drugs as it is humanly possible to give! I tried natural childbirth for a few minutes and then begged for the epidural. I wish I hadn't waited so long! :lol:

Craftycat Newbie

I had an Endoscopy/Colonoscopy yesterday morning. They put me in what they call "Twilight" which another person had mentioned here. I don't like being put all the way out either. They usually use Demoral and Verced, and they can awaken you easily. It was so fast and simple! I came out of it fine. They have you sit up fairly soon and give you something to drink. They had my husband come in, while the doctor was talking to me. I can remember most of what he said. I came home and slept a little afterwards, but felt good.

I had a pacemaker replacement last September and they used the same drugs. They had me sedated for about 4 hours that time. I did wake up here and there, but they would give me more each time and I'd go back to sleep. When surgery was over, I was alert and felt fine. Felt great the next morning as well. It doesn't seem to leave any residual effects afterwards and I'm a lightweight when it comes to medications. Things that will put people to sleep, like Benedryl and Restoril will make me hyper. The Demoral/Verced combo seems to work very well though.

Ultimately, it's your choice, but I think you might want to consider it.

Hope all goes well for you either way.

grommet Newbie
I am getting a biopsy next Friday. I am going to try to do it awake because I am terified of being put to sleep. I was wondering what people experiences are doing this.

I had mine awake - although becasue I'd been eating gluten for several weeks I was half asleep anyway. I didn't want to be groggy for the rest of the day, and wanted to get on with the rest of my life. Biopsy day was a sort of celebration day for me - the end of eating gluten.

It's not pleasant but if you are good at relaxation techniques and can switch off, or are good at "taking yourself somewhere else" you'll be fine. The procedure took a few minutes, and I went shopping twenty minutes later then out for lunch.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,870
    • Most Online (within 30 mins)
      7,748

    Blawson
    Newest Member
    Blawson
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Most likely cross-contamination I believe.
    • cristiana
      I think it takes different people different amounts of time, but in my own case I had pain,  bloating and loose stools for some time, exacerbated by a lactose intolerance, which eventually went.  I would say the really bad diarrhea got better quite quickly, but the bloating pain carried on for a few months, until I was told to give up lactose for a few weeks.  That helped enormously and once I realised milk and yoghurt was the cause, after a short break I went back to lactose very gradually and felt a lot better.  Now I can tolerate it well. From Coeliac UK "The enzyme lactase is found in the brush border of the small intestine. This is why people with coeliac disease can be deficient in lactase at diagnosis. Once established on a gluten free diet, the gut is able to heal and lactose digestion returns to normal. Lactose intolerance is therefore usually temporary." So if this helps your daughter, this doesn't mean you have to give up lactose forever, especially as dairy is such a good source of calcium for growing kids.   Bear in mind you should be able to reintroduce it. As for fatigue, this can be due to vitamin and mineral deficiencies,such as iron, vitamin D and B12.  Were these levels tested?  If not, I would suggest you get them done.  If your daughter is deficient in these, it is vital you address the deficiencies, and get the tests redone in a few months, particularly the iron, because too much can be dangerous.
    • knitty kitty
      Hello,   The medication in these inhalers can cause a thiamine deficiency if used by someone already low in thiamine.  We don't absorb sufficient amounts of vitamins and minerals due to the inflammation and damage done to our villi in Celiac Disease.  Even a long term strict gluten free diet may not provide sufficient amounts of vitamins and minerals.  There are eight B vitamins that all work together.  Thiamine deficiency often shows up first because our bodies use so much of it and it can't be stored very long. Thiamine deficiency symptoms can appear in as little as three days.  Without thiamine, the other B vitamins may not be able to function properly.   Thiamine is needed to clear lactic acid accumulation caused by the inhalers: Shoshin beriberi provoked by the inhalation of salbutamol https://pubmed.ncbi.nlm.nih.gov/12951730/    Significant Lactic Acidosis from Albuterol https://pmc.ncbi.nlm.nih.gov/articles/PMC5965110/ Albuterol-Induced Type B Lactic Acidosis: Not an Uncommon Finding https://pmc.ncbi.nlm.nih.gov/articles/PMC7263006/ Lessons of the month 1: Salbutamol induced lactic acidosis: clinically recognised but often forgotten https://pmc.ncbi.nlm.nih.gov/articles/PMC6964186/ An Overview of Type B Lactic Acidosis Due to Thiamine (B1) Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC10731935/   Thiamine has antifungal and antibacterial properties.  Thiamine helps keep Candida in check.  Thiamine helps keep SIBO in check.  Thiamine helps with black mold, Aspergillis infection.  Riboflavin helps fight Candida infection in the mouth. Riboflavin Targets the Cellular Metabolic and Ribosomal Pathways of Candida albicans In Vitro and Exhibits Efficacy against Oropharyngeal Candidiasis https://pubmed.ncbi.nlm.nih.gov/36625571/   Thiamine deficiency can make ones voice hoarse and can cause localized edema.  Niacin deficiency can make ones voice hoarse.  (Niacin deficiency and Thiamine deficiency can each cause irritability, agitation, and lability.) Hoarseness in pellagra https://pubmed.ncbi.nlm.nih.gov/21507655/ Hidden Hunger: A Pellagra Case Report https://pmc.ncbi.nlm.nih.gov/articles/PMC8152714/   Anesthesia can cause B12 deficiency.  B12 deficiency can show up as mouth sores and geographic tongue, diarrhea, and dementia. Vitamin deficiency, a neglected risk factor for post-anesthesia complications: a systematic review https://pmc.ncbi.nlm.nih.gov/articles/PMC11823251/ Neurologic degeneration associated with nitrous oxide anesthesia in patients with vitamin B12 deficiency https://pubmed.ncbi.nlm.nih.gov/8250714/ Subacute combined degeneration of the spinal cord following nitrous oxide anesthesia: A systematic review of cases https://pubmed.ncbi.nlm.nih.gov/30144777/ The Effect of Vitamin B12 Infusion on Prevention of Nitrous Oxide-induced Homocysteine Increase: A Double-blind Randomized Controlled Trial https://pmc.ncbi.nlm.nih.gov/articles/PMC4052402/     Eating a diet that is heavy in carbohydrates can precipitate a thiamine deficiency.  As the amount of carbohydrates consumed increases, additional thiamine is needed, otherwise the carbs will be stored as fat.   Thiamine deficiency disorders: a clinical perspective https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/   The deficiency symptoms of some of the B vitamins cause gastrointestinal symptoms that resemble the same symptoms as when being glutened.   Thiamine deficiency can present as vomiting, diarrhea and abdominal pain (Gastrointestinal Beriberi).  Niacin deficiency can present as diarrhea (Pellagra = diarrhea, dermatitis, dementia, then death ).  B12 deficiency can present as diarrhea or dementia.  Not everything is caused by hidden gluten.  Gluten free processed foods are not required to be enriched with vitamins lost in processing like gluten containing foods are. Blood tests are not accurate measurements of vitamin levels, but do talk to your doctor and nutritionist about supplementing with the eight B vitamins, Vitamin C, the four fat soluble vitamins and minerals like magnesium.  Your physician can give you a shot of B12 before anesthesia administration.   By the way, Celiac Disease genes have been traced back to having originated in Neanderthals.  I'm not a singing teacher on the net.  I earned a degree in Microbiology after studying nutrition because I wanted to know what vitamins are doing inside the body.  I've experienced nutritional deficiencies myself. Hope this helps!  Keep us posted on your progress!
    • trents
      Welcome to the forum, @jnstefan! She should start feeling better within a week or two if she is truly avoiding gluten and if she isn't also showing intolerance to other foods. It is quite common for celiacs to be dairy intolerant (not just the lactose but the protein casein in dairy) and to oats (protein is avenin). Casein and avenin have structures similar to gluten. We call this cross reactivity (not to be confused with cross contamination). So, you might look at pulling these two food items from her diet to see if there is improvement. But achieving a gluten free state is more challenging than people realize when the first start in. It is hidden in so many foods you would never expect to find it in like soy sauce and canned tomato soup, just to site two examples. This might help:  
    • jnstefan
      My 10 year old daughter was diagnosed with Celiac 2 weeks ago. We've been on gluten free diet now for 2 weeks. She still experiences abdominal pain at times , and is struggling with fatigue. What is everyone's experience with how long it takes for the body to heal and stabilize after starting the gluten free diet? Thanks for any feedback!
×
×
  • Create New...