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Hello I Am Getting Somewhwre I Think Xx

needtobebetter

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needtobebetter Apprentice
needtobebetter
Posted

hi ya ..

following on from last message hope your all well and keepm ing your chins up..x

I decided to pay to see neuro private had to borrow some money but i think it was worth it..she was loevely..

I explained everything allergies ..facial droop, shriveled skin..dsitention in tummy, paralisis, loss of sensation right side of body, tingle in face...seizure..constipation..bla bla..

She tested me and said that i have no refllexes something is wrong but from what i have explained she thinks she knows what it is and wants me to have tests and physio asap ..but wouldnt tell me.. she doesnt think i have celiac but I have been ill and

i have problems with foods for s long i dont want to dive back in to eating it again..

she said that i will get better and that the doctor must send her refereal letter asap. she was quite sharp about the doctor which was later on understandable. i ve been going for two years and they have just labelled me ibs depressed person with bit of bells palsy..they wont refer me nhs any more but i knew i had to see neuro about what had just happened as it was serious..

when i got to ppointment i had forgotten my letter from doc..they said dont worry we will get it faxed over..so after id seen her i opened the letter and it was basically calling me a depressed patients who had no real reason to go just bells pulsy..when really by what she says its alot more serious..

she said she thinks i ve got a syndrome..the only thing i can find is Guilli barre syndrome...sounds just like it ...but why ...and does any one know if this connects to celiac disease...

i know it an autimmune and wondered if any one has both

xxxx

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Lisa Mentor
Lisa
Posted

I think that you should get a total medibolic blood work up and make sure that you are not deficient in anything due to Celiac.

You may also look into Peripheral Neuropathy. Google that and see if it fits. Low B-12 or hypoglycemia can also cause symptoms such as you described.

Good luck in your search.

Chris E Rookie
Chris E
Posted
hi ya ..

following on from last message hope your all well and keepm ing your chins up..x

I decided to pay to see neuro private had to borrow some money but i think it was worth it..she was loevely..

I explained everything allergies ..facial droop, shriveled skin..dsitention in tummy, paralisis, loss of sensation right side of body, tingle in face...seizure..constipation..bla bla..

She tested me and said that i have no refllexes something is wrong but from what i have explained she thinks she knows what it is and wants me to have tests and physio asap ..but wouldnt tell me.. she doesnt think i have celiac but I have been ill and

i have problems with foods for s long i dont want to dive back in to eating it again..

she said that i will get better and that the doctor must send her refereal letter asap. she was quite sharp about the doctor which was later on understandable. i ve been going for two years and they have just labelled me ibs depressed person with bit of bells palsy..they wont refer me nhs any more but i knew i had to see neuro about what had just happened as it was serious..

when i got to ppointment i had forgotten my letter from doc..they said dont worry we will get it faxed over..so after id seen her i opened the letter and it was basically calling me a depressed patients who had no real reason to go just bells pulsy..when really by what she says its alot more serious..

she said she thinks i ve got a syndrome..the only thing i can find is Guilli barre syndrome...sounds just like it ...but why ...and does any one know if this connects to celiac disease...

i know it an autimmune and wondered if any one has both

xxxx

Hi

I gather your from the UK by your reference to the NHS? Where abouts are you from? Just wanted to say..... don't accept the diagnosis of depression. Only you know when there is something wrong with your own body. I have been unwell for over a year now and have not yet got to the bottom of my problems and depression has been suggested as an explanation. However i know that i am not depressed and will not keep giving up with my doctor.

My symptoms seem to be extremely similar to those of celiac, but i do not want to try such a hard diet until an official diagnosis. I have had the blood test and it was negative. Like yourself i have also experienced Bells Palsy although this was about a year before the onset of all of my problems. Does anyone know if Bells Palsy is related to celiac in anyway?

I have lost all trust i have in doctors now and some of my own family also think im mad. So annoying!

keep going

Chris

grey Explorer
grey
Posted

FYI, I think this is probably the syndrome your doctor was talking about: Guillain-Barre Syndrome.

This is the link to more info at the Mayo Clinic, including a symptom list.

Open Original Shared Link

this is the internation foudation for the syndrome.

Open Original Shared Link

I hope your health improves.

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