Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Seizures And Migrains


livvie2sha

Recommended Posts

livvie2sha Newbie

I was wondering if this just concerns us and my family , my daughter has celiac and recently developed severe migrains that seems no meds will help and as of 2 weeks ago seizures all throughout the day even in her sleep , she is 12 .....

is this just her body or does anoyne else with celiac know of or also go through anything like this ????maybe it's not related but I thought I could ask????

Thank you .


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



grey Explorer

They could be related.

Quoting Peter Green, head of the Celiac Disease Center at Columbia, Celiac Disease: A Hidden Epidemic:

p 86-87

"The well-defined neurological associations with celiac disease include the following:

- peripheral neuropathies (numbness and/or tingling in the hands and feet)

- ataxia (balance disturbance)

- epileptic seizures, with and without intracranial calcifications (calcium deposits in the brain), particularly in children

- migraines

- brain atrophy and dementia

Any one of these complications may affect as many as 8 to 10 percent of people with celiac disease."

On p. 87-89 he talks briefly about epilepsy & seizure, and migraines.

One thing on p88 "The relationship between epilepsy and celiac disease may be simply be the occurrence of two relatively common diseases in the same patient. For others, especially in children, the connection is more clearly defined."

There are definately studies on celiac and migraines, and celiac and seizures, but I don't have access to medline now. Someone may post links to some in the this thread.

I have severe migraines that weren't resolving after years of drug therapy-no meds would help. (I've tried all kinds of things, including anti-epileptic drugs). That and a B12 deficiency were what caused my primary care physician to test for celiac.

I've been gluten-free since the end of May. I had a set of bad migraines right before going in the hospital and getting treatment for 'celiac complications' which including severe vitamin and mineral deficiences. Since then (in the past month) I've only had one (lasted 2 1/2 days though) and it was mild. It was clearly triggered by having gotten only about an hour of sleep and allergies.

Has your daughter been dx'd with celiac? Most important, has she had vitamin and mineral levels checked lately? If she's deficient, that could definately be causing or adding to her condition. B12, potassium, and magnesium are just 3 that are related to migraine; other nutrient def. also have severe effects on the neurol. system.

It's definately not just you and your family. I hope your daughter's health improves.

I was wondering if this just concerns us and my family , my daughter has celiac and recently developed severe migrains that seems no meds will help and as of 2 weeks ago seizures all throughout the day even in her sleep , she is 12 .....

is this just her body or does anoyne else with celiac know of or also go through anything like this ????maybe it's not related but I thought I could ask????

Thank you .

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,705
    • Most Online (within 30 mins)
      7,748

    Carol L Woodyard
    Newest Member
    Carol L Woodyard
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • RMJ
      I’d say celiac is likely.  Please continue to eat plenty of gluten until your endoscopy to be sure that any gluten-related damage can be seen.  Plus it gives you one last chance to enjoy your favorite gluten-containing foods. I hope the endoscopy/biopsies give you a definitive answer. 
    • TexasCeliacNewbie
      I do also have the bloating, gas, constipation, hair loss, an auto-splenectomy that no one can see any reason for and some elevated liver enzymes that don't seem to have a cause, I also have joint pain and some spinal compression fractures that have no explanation.  I am only 42 so haven't had a bone density test yet.  My calcium was normal, but my D was a little low.  They haven't checked for any other vitamin deficiencies yet.  My blood test for an autoimmue disorder was quite high but my Thyroid was all normal.
    • TexasCeliacNewbie
      Hi, I have been having a lot of back pain and gut issues for 8 weeks or so.  I saw the GI on Monday and my results just came in from the lab.  Some of these number are high and off the little chart from the lab.  I am reading this correctly that I most likely have Celiac, right???  It would explain a lot of things for me.  She does have me scheduled for a colonoscopy and endoscopy in  2 weeks to do the biopsy.  I posted this prior, but forgot to put the range assuming they were all the same.  Someone advised me to repost with the ranges for some insight in the meantime. Immunoglobulin A, Qn, Serum 140 (normal) - Normal is 87-352 Deamidated Gliadin Abs, IgA 256 (High) - Moderate to strong positive at or above 30 Deamidated Gliadin Abs, IgG 65 (High) - Moderate to strong positive at or above 30 t-Transglutaminase (tTG) IgA 31 (High) - Moderate to strong positive above 10 t-Transglutaminase (tTG) IgG 10 (High) - Positive is at or above 10
    • trents
      Usually, the blood testing is done first and the endoscopy/biopsy follows for confirmation if there are positive antibody test scores. Historically, the endoscopy with biopsy has been considered to be the gold standard for diagnosing celiac disease. If the tTG-IGA scores are very high (5x-10x normal), some doctors will forego the endoscpoy/biopsy and grant a celiac disease diagnosis without it. So, if you are starting with the endoscopy/biopsy that may be all you need to arrive at a diagnosis. Another possibility would be for the GI doc to do a blood draw for antibody testing on the same day you come in for the endoscopy/biopsy.
    • AuntieAutoimmune
      Thanks,Scott. Yes, I had already seen those 
×
×
  • Create New...