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Staying On The Diet


paradise2004

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paradise2004 Rookie

I have known about my Celiac disease for about five years, and probably had it for at least 8. I constantly had stomach aches and was exhausted. Since my diagnosis I have gone on and off the diet. I can feel the consequences but somehow I still eat gluten. Compared to most, my reactions aren't that bad. I get a bad stomach ache and feel exhausted. Is there anyone that can convince me to stay on this program? I know what may happen: It will ruin my intestine and may give me stomach cancer, I don't know if I really understand it though. Thanks.


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kvogt Rookie

Anyone in your family have lupus? It killed my grandmother. I figure it could kill me, too. Anyone have rhumatoid arthritis? That would be a nasty thing to get. I've got a big ugly, red, itchy patch of eczema on my leg - another autoimmune disease - that I would have rather not gotten. Probably wouldn't have it if I had been diagnosed in time. You may have light symptoms now, but as you get older and your immune system gets more tired, you will probably have more trouble.

Is this the sort of response you were looking for?

tarnalberry Community Regular

"Is there anyone that can convince me to stay on this program?"

No. Until you determine if your quality and length of life is more important than the taste of wheat based products, you won't stick with the diet. And I don't mean that in a rude or judgemental way; it's possible that someone finds bagels and wheat pasta so important to their life that it is worthwhile, in overall happiness over the span of their life, to deal with whatever level of symptoms they have an risk dieing earlier. I'd disagree, of course, but that wouldn't mean it wasn't true for them. ;-) (My moral philosophy is ethical egoism... this take on it comes from that.)

Some reasons to consider:

* Eating gluten when you have gluten intolerance will:

- Give you intestinal symptoms (even if they are mild)

- Give you other symptoms (mental and physical, and again they may be mild)

- Lower your quality of life, by an amount that you can't determine until you try being gluten-free for a while, and by an amount that may vary over the course of your life

- Increase your risk of dieing early

- Increase your risk of cancer and the cost, symptoms and medical treatments (many of which are uncomfortable) along with that

- Increase your risk of diabetes and the cost, symptoms and medical treatments (many of which are unpleasant) along with that

- Increase your risk of other autoimmune diseases and the cost, symptoms and medical treatments (many of which aren't fun) along with that

* Avoiding gluten, while initially difficult, is a learned skill that becomes easier with time.

* Taking full responsibility for your health and the work that goes into maintaining your health is representative of other healthy choices to be made in your life and is practice for all of those other decisions.

Those are just a couple things that come to mind.

wclemens Newbie

paradise2004,

Hi. Glad you're here. In 1977 I learned that my sister, brother, and I were the only ones on my mother's side of the family to not have Polycystic Kidney Disease, an hereditary, terminal kidney disease. I watched my mother, grandmother, two aunts, and two cousins die of the disease. Imagine how ecstatic my sister, brother, and I were to realize that we had been given a life without the threat of this terminal illness (my mother died at 48).

Later we watched as our father died of colon cancer. Oh what we would give to have our mother and father here with us now, as we, along with our children and grandchildren experience life.

Celiac Disease has tried to bring us all down. It has caused physical illness, depression, doubts about our sanity, conflict, anger, irritation, frustration, and pain. Suffering is no stranger to us. Why would we give in to it, and cause our early demise, by eating foods which we know are poison for us? My dad always told me, "Don't be a quitter!" I'd be giving up, just quitting, if I let grains, milk, dairy, egg whites or yeast pass these ruby red lips--lips which have so much good and so much positive to share with others. I just won't do it. I will stand up and fight! I will take each day and make the most of it, giving my best. I will offer hope and inspiration to others, who may not know what to do. I will thank my Creator that He spared me from an hereditary kidney disease and colon cancer, and that He gave me the opportunity to live my dreams.

We care about you, and we really want you to join with us in this fight. Together we can change the world. We can make a difference. We can experience victory, joy, and jubilation. Yay! Go team, go! Welda

flagbabyds Collaborator

It's really up to you and you have to decide if you want to die when you are 60 or when you are 100? I choose 100 but it is really up to you. If you want to be throwing up and being sick all the time then that is your choice, but if you want to be happy and healthy, stay on the diet.

burdee Enthusiast

OK, I'll add my 2 cents' worth: When you 'cheat', whom are you cheating? Only yourself. ;) When you learn that touching a hot burner on a stove will cause pain and damage your body, do you intentionally put your hand on the hot burner? Would you 'cheat' the 'rule against touching the hot burner' if you did?

Perhaps the 'cheating' notion comes from calling the gluten free eating program a 'diet'. Most diets deprive us of foods we like and force us to eat foods we dislike. That's not necessarily so with the gluten-free approach. You can find GREAT gluten-free substitutes for many gluten containing breads, pastries, pastas, etc. You can find gluten-free brands for many condiments and gluten-free versions of many other foods. Focus on SUBSTITUTION, not deprivation.

You may discover many great foods you never tried, because you were stuck in a gluten rut. I certainly was. :( I hardly ever tried other grains or starches, because I didn't like white rice or white russet potatoes, but I ate a LOT of gluten laden breads. I seldom tried other ethnic foods. Now I love all kinds of rice, rice noodles, quinoa, amaranth, many varieties of nuts and nut butters, all kinds of beans, squashes, and any potato except russet. I love trying authentic Mexican and Thai restaurants which have lots of gluten-free choices. Even though I must avoid dairy and soy, as well as gluten, I now have soooo many more food choices, because I was forced to look beyond my old favorites. ;)

BURDEE

darlindeb25 Collaborator
:D i tell people that i am not on a diet--it's a way of life and gluten-free is a way of life--when you are diabetic and have to change the way you eat, its not called a diet--same thing--its the way we live, no ifs, ands, or buts--i tell people i do not have a wheat allergy, but that i can not tolerate any wheat in my system and then i add or barley, rye, and oats and they dont understand, its up to us to educate people--lets be teachers----deb :P

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darlindeb25 Collaborator
;) ps---we cant look at gluten-free as a life sentence--its---WOW, I HAVE MY LIFE BACK--YEHA-------deb :D

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    • Scott Adams
      The first set of results show two positive results for celiac disease, so at the very least it looks like you could have it, or at the least NCGS.   Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.      
    • Scott Adams
      Elevated tissue transglutaminase IgA (tTG-IgA) levels are highly specific for celiac disease, and they are a key biomarker used in its diagnosis. However, there are some rare instances where elevated tTG-IgA levels have been reported in conditions other than celiac disease. While these cases are not common, they have been documented in the literature. Below are some examples and references to studies or reviews that discuss these scenarios:  1. Non-Celiac Gluten Sensitivity (NCGS)    - NCGS typically does not cause elevated tTG-IgA levels, as it is not an autoimmune condition. However, some individuals with NCGS may have mild elevations in tTG-IgA due to intestinal inflammation or other factors, though this is not well-documented in large studies.    - Reference: Catassi, C., et al. (2013). *Non-Celiac Gluten Sensitivity: The New Frontier of Gluten-Related Disorders*. Nutrients, 5(10), 3839–3853. [DOI:10.3390/nu5103839](https://doi.org/10.3390/nu5103839)  2. Autoimmune Diseases    - Elevated tTG-IgA levels have been reported in other autoimmune conditions, such as type 1 diabetes, autoimmune hepatitis, and systemic lupus erythematosus (SLE). This is thought to be due to cross-reactivity or polyautoimmunity.    - Reference: Sblattero, D., et al. (2000). *The Role of Anti-Tissue Transglutaminase in the Diagnosis and Management of Celiac Disease*. Autoimmunity Reviews, 1(3), 129–135. [DOI:10.1016/S1568-9972(01)00022-3](https://doi.org/10.1016/S1568-9972(01)00022-3)  3. Chronic Liver Disease    - Conditions like chronic hepatitis or cirrhosis can sometimes lead to elevated tTG-IgA levels, possibly due to increased intestinal permeability or immune dysregulation.    - Reference: Vecchi, M., et al. (2003). *High Prevalence of Celiac Disease in Patients with Chronic Liver Disease: A Role for Gluten-Free Diet?* Gastroenterology, 125(5), 1522–1523. [DOI:10.1016/j.gastro.2003.08.031](https://doi.org/10.1016/j.gastro.2003.08.031)  4. Inflammatory Bowel Disease (IBD)    - Some patients with Crohn’s disease or ulcerative colitis may have elevated tTG-IgA levels due to intestinal inflammation and damage, though this is not common.    - Reference: Walker-Smith, J. A., et al. (1990). *Celiac Disease and Inflammatory Bowel Disease*. Journal of Pediatric Gastroenterology and Nutrition, 10(3), 389–391. [DOI:10.1097/00005176-199004000-00020](https://doi.org/10.1097/00005176-199004000-00020)  5. Infections and Parasites    - While infections (e.g., giardiasis) are more commonly associated with false-positive tTG-IgA results, chronic infections or parasitic infestations can sometimes lead to elevated levels due to mucosal damage.    - Reference: Rostami, K., et al. (1999). *The Role of Infections in Celiac Disease*. European Journal of Gastroenterology & Hepatology, 11(11), 1255–1258. [DOI:10.1097/00042737-199911000-00010](https://doi.org/10.1097/00042737-199911000-00010)  6. Cardiac Conditions    - Rarely, heart failure or severe cardiovascular disease has been associated with elevated tTG-IgA levels, possibly due to gut ischemia and increased intestinal permeability.    - Reference: Ludvigsson, J. F., et al. (2007). *Celiac Disease and Risk of Cardiovascular Disease: A Population-Based Cohort Study*. American Heart Journal, 153(6), 972–976. [DOI:10.1016/j.ahj.2007.03.019](https://doi.org/10.1016/j.ahj.2007.03.019)  Key Points: - Elevated tTG-IgA levels are highly specific for celiac disease, and in most cases, a positive result strongly suggests celiac disease. - Other conditions causing elevated tTG-IgA are rare and often accompanied by additional clinical findings. - If celiac disease is suspected, further testing (e.g., endoscopy with biopsy) is typically required for confirmation. If you’re looking for more specific studies, I recommend searching PubMed or other medical databases using terms like "elevated tTG-IgA non-celiac" or "tTG-IgA in non-celiac conditions." Let me know if you’d like help with that!
    • MaryMJ
      I called zero water and they state their filters do not contain gluten or gluten containing ingredients. 
    • trents
      I agree. Doesn't look like you have celiac disease. Your elevated DGP-IGG must be due to something else. And it was within normal at that after your gluten challenge so it is erratic and doesn't seem to be tied to gluten consumption.
    • Jack Common
      Hello! I want to share my situation. I had symptoms like some food intolerance, diarrhea, bloating, belching one year ago. I thought I could have celiac disease so I did the blood tests. The results were ambiguous for me so I saw the doctor and he said I needed to do tests to check whether I had any parasites as well. It turned out I had giardiasis. After treating it my symptoms didn't disappear immediately. And I decided to start a gluten free diet despite my doctor said I didn't have it. After some time symptoms disappeared but that time it wasn't unclear whether I'd had them because of eliminating gluten or that parasite. The symptoms for both are very similar. Giardiasis also damages the small intestine. The only way to check this was to start eating bread again as I thought. Now about my results.   These are my first test results (almost a year ago) when I had symptoms: The Tissue Transglutaminase IgA antibody - 0.5 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) The Tissue Transglutaminase IgG antibody - 6.6 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) Immunoglobulin A - 1.91 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) IgA Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) IgG Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) Deamidated gliadin peptide IgA - 0.3 U/ml (for the lab I did the tests 0.0 - 6.0 is normal) Deamidated gliadin peptide IgG - 46.1 U/ml (for the lab I did the tests 0.0 - 6.0 is normal)   Then I didn't eat gluten for six months. Symptoms disappeared. And I started a gluten challenge. Before the challenge I did some tests. My results: The Tissue Transglutaminase IgG antibody - 0.5 U/ml (for the lab I did the tests < 20 U/ml is normal)) Deamidated gliadin peptide IgG - 28 U/ml (for the lab I did the tests < 20 U/ml is normal)   During the challenge I ate 6 slices of wheat bread. After the challenge my results are: The Tissue Transglutaminase IgA antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) The Tissue Transglutaminase IgG antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.31 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgA - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Deamidated gliadin peptide IgG - 2.13 U/ml (for the lab I did the tests < 20 U/ml is normal)   To be sure I continued consuming gluten. I ate a lot each day. Two months after I did the tests again. My results I got today are: The Tissue Transglutaminase IgA antibody - 0.7 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.62 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgG - 25.6 U/ml (for the lab I did the tests < 20 U/ml is normal)   Nowadays I didn't have any symptoms except tiredness but I think it's just work. I think it was this parasite because two years ago, for example, and before I didn't have these symptoms and I always ate gluten food. But I'm still not sure especially because the Deamidated gliadin peptide IgG results are sometimes high. What do you think? @Scott Adams
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