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Symptom Check


bloatedntexas

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Janeti Apprentice

I have been gluten free for 5 months, with the occasional, oops I think I was glutened...How long does it take for the muscle and joint pain to go away? Every morning I wake up, I feel like I was run over. Also, how long does it take for your intestines to stop dancing around? I don't know how else to describe it. I guess maybe they are spasming, healing, I'm not sure whats going on. But does anyone know what thats all about? Thanks, Janet


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Betty in Texas Newbie

I have had lots of these you all have talked about one time are another but my most common is

bloating really bad in the top of my stomacha

acid reflux

tightness in the chest

acessive sweating

Betty in Texas Newbie

I have had lot of these symptoms you all have talked about one time are another but my most common are

bloating really big

acid reflux

tightness in the chest

acessive sweating

Betty in Texas Newbie

I am sorry for the double post my comuter was doing something weird

JustMeInMD Rookie

I'm newly gluten-free (well, permanently anyway), but my lifelong symptoms (that went away after I did a gluten-free trial) are:

-Bloating

-Gas (especially at night)

-D and C (mostly in the a.m.)

-Horrible, gnawing hunger pain about 1 hour after eating

-nausea

-vomiting

-headache

-indigestion

-intermittent tingly fingers/toes

-spacey-ness

deesmith Apprentice
thanks angel! I wasn't sure... usually when I eat my stomach will get pretty big. Now I'm a skinny guy (6' and 170 lbs), but how do you tell if it's bloating or just because you ate a lot? I did a google search but it's too hard to even focus right now. If I don't feel rumbling or feel anything there really, can it still be bloating?

edit: Also, are there any Celiacs here that would say there main symptoms are C and brain fog by far?

Bloating- my mom had skinny pants and fat pants, depending on what she had eaten. Also, the best ways I can think of to describe it is a really bad beer gut (that seems to go away) or you look pregnant (you know, if you were a woman). My daughter asked me, before I knew anything about Celiac, why so many people in our family have a gut!

I would definatley say my main symptoms are C and brain fog. But also coupled with fatigue and really bad bone pain. But the C is awful! Sometimes I just want to stop eating all together because it's painful and I think I probably can't fit anymore in. I take Metamusil, but I think I need to increase it, especially when glutened. I can go days and days without going. Those are definately fat pant days!

And the brain fog.... it gets pretty bad. I think I'm a relatively smart person. But the other day I called my son and told him to pick me up after work. He said "Mom, you have your car today"!!!

:o

Luisa2552 Apprentice

Here are mine. Not sure if all celiac related 'cause I'm new to this

Bloating

Painful gas

Fecal leaking (gross I know, but I had to mention..)

brain fog

irritability

fatigue

itchy eyes

post nasal drip

I go for my upper gi biopsy on Friday. How long 'till you get results??


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Mickide Apprentice
Here are mine. Not sure if all celiac related 'cause I'm new to this

Bloating

Painful gas

Fecal leaking (gross I know, but I had to mention..)

brain fog

irritability

fatigue

itchy eyes

post nasal drip

I go for my upper gi biopsy on Friday. How long 'till you get results??

My biopsy was Monday and had the results yesterday, although there was no question on Monday after the biopsy. Goodluck with your biopsy!

This is such an interesting Topic. I thought my symptoms were just me and normal for me.

Brain Fog- yup have that, so I guess I am not just an airhead :lol: good to know.

Constipation

Bloatedness

Irritability- DH is glad to know this is a symptom and not my new personality :D

Weightloss- does that count as a symptom?

PeggyV Apprentice

1. Usually D

2. Next Bloating (looks like I am pregnant)

3. gas

4 c

5 joint pain (usually lower back)

6. sometimes mouth sores

7. sometimes what I think is DH - this usually happens if I accidently injest several times close together - mainly during traveling

8. fatigue

9. brain fog

Rick45 Rookie

Bright Light, Bright Light, Bright light, I didn't know it was from the poision. bad sinus headach, back to bed after a strong pot of coffee, sore bone and joints, Anger and all the rest, sores on my scalp?

7-cody Apprentice
Bloating- my mom had skinny pants and fat pants, depending on what she had eaten. Also, the best ways I can think of to describe it is a really bad beer gut (that seems to go away) or you look pregnant (you know, if you were a woman). My daughter asked me, before I knew anything about Celiac, why so many people in our family have a gut!

I would definatley say my main symptoms are C and brain fog. But also coupled with fatigue and really bad bone pain. But the C is awful! Sometimes I just want to stop eating all together because it's painful and I think I probably can't fit anymore in. I take Metamusil, but I think I need to increase it, especially when glutened. I can go days and days without going. Those are definately fat pant days!

And the brain fog.... it gets pretty bad. I think I'm a relatively smart person. But the other day I called my son and told him to pick me up after work. He said "Mom, you have your car today"!!!

:o

That's nothing! I forget to start up my car. Forget to grab something in the morning multiple days in a row. Often forget what I'm doing. Just pretty much feel like I can't use my brain at all.

Janeti Apprentice

Did anyone get symptoms that came and went, and never happened again?? At one point, I had a burning rash on my face, the Dr was baffled, and also for a couple of days in a row, I had a metallic taste in my mouth, and also, yuk, mouth sores too. Anyone know what that is? :unsure:

tmk Explorer

haven't been diagnosed yet (GI appt. next week), but these are my symptoms: chronic diarrhea for the last 18 years, nausea, gurgling stomach, bloating, occassional abdominal pain, urgency, gas, lightheaded & sweaty before BM, anemia, low WBC, chronic fatigue, joint pain, mouth sores, tingling in hands & feet, back pain, night sweats, cramping in legs, body jerks, increased appetite, moody. :blink:

zkat Apprentice

I have a pretty set course

1. Extreme fatigue-I just can't stay awake, even with starbucks or red bull

2. Swelling and water retention-about 10 lbs worth

3. Sinus type headache for 3 days

4. Constipation the first day

5. Day 2-5 Horrible toxic gas

6. Diarrhea and loose stools for about a week

7. Brain fog stays pretty constant for at least 3-4 days

8. Terrible cramps after I eat in my upper digestive track for about 2 week

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    • xxnonamexx
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      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
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