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Symptom Check


bloatedntexas

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Janeti Apprentice

I have been gluten free for 5 months, with the occasional, oops I think I was glutened...How long does it take for the muscle and joint pain to go away? Every morning I wake up, I feel like I was run over. Also, how long does it take for your intestines to stop dancing around? I don't know how else to describe it. I guess maybe they are spasming, healing, I'm not sure whats going on. But does anyone know what thats all about? Thanks, Janet


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Betty in Texas Newbie

I have had lots of these you all have talked about one time are another but my most common is

bloating really bad in the top of my stomacha

acid reflux

tightness in the chest

acessive sweating

Betty in Texas Newbie

I have had lot of these symptoms you all have talked about one time are another but my most common are

bloating really big

acid reflux

tightness in the chest

acessive sweating

Betty in Texas Newbie

I am sorry for the double post my comuter was doing something weird

JustMeInMD Rookie

I'm newly gluten-free (well, permanently anyway), but my lifelong symptoms (that went away after I did a gluten-free trial) are:

-Bloating

-Gas (especially at night)

-D and C (mostly in the a.m.)

-Horrible, gnawing hunger pain about 1 hour after eating

-nausea

-vomiting

-headache

-indigestion

-intermittent tingly fingers/toes

-spacey-ness

deesmith Apprentice
thanks angel! I wasn't sure... usually when I eat my stomach will get pretty big. Now I'm a skinny guy (6' and 170 lbs), but how do you tell if it's bloating or just because you ate a lot? I did a google search but it's too hard to even focus right now. If I don't feel rumbling or feel anything there really, can it still be bloating?

edit: Also, are there any Celiacs here that would say there main symptoms are C and brain fog by far?

Bloating- my mom had skinny pants and fat pants, depending on what she had eaten. Also, the best ways I can think of to describe it is a really bad beer gut (that seems to go away) or you look pregnant (you know, if you were a woman). My daughter asked me, before I knew anything about Celiac, why so many people in our family have a gut!

I would definatley say my main symptoms are C and brain fog. But also coupled with fatigue and really bad bone pain. But the C is awful! Sometimes I just want to stop eating all together because it's painful and I think I probably can't fit anymore in. I take Metamusil, but I think I need to increase it, especially when glutened. I can go days and days without going. Those are definately fat pant days!

And the brain fog.... it gets pretty bad. I think I'm a relatively smart person. But the other day I called my son and told him to pick me up after work. He said "Mom, you have your car today"!!!

:o

Luisa2552 Apprentice

Here are mine. Not sure if all celiac related 'cause I'm new to this

Bloating

Painful gas

Fecal leaking (gross I know, but I had to mention..)

brain fog

irritability

fatigue

itchy eyes

post nasal drip

I go for my upper gi biopsy on Friday. How long 'till you get results??


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Mickide Apprentice
Here are mine. Not sure if all celiac related 'cause I'm new to this

Bloating

Painful gas

Fecal leaking (gross I know, but I had to mention..)

brain fog

irritability

fatigue

itchy eyes

post nasal drip

I go for my upper gi biopsy on Friday. How long 'till you get results??

My biopsy was Monday and had the results yesterday, although there was no question on Monday after the biopsy. Goodluck with your biopsy!

This is such an interesting Topic. I thought my symptoms were just me and normal for me.

Brain Fog- yup have that, so I guess I am not just an airhead :lol: good to know.

Constipation

Bloatedness

Irritability- DH is glad to know this is a symptom and not my new personality :D

Weightloss- does that count as a symptom?

PeggyV Apprentice

1. Usually D

2. Next Bloating (looks like I am pregnant)

3. gas

4 c

5 joint pain (usually lower back)

6. sometimes mouth sores

7. sometimes what I think is DH - this usually happens if I accidently injest several times close together - mainly during traveling

8. fatigue

9. brain fog

Rick45 Rookie

Bright Light, Bright Light, Bright light, I didn't know it was from the poision. bad sinus headach, back to bed after a strong pot of coffee, sore bone and joints, Anger and all the rest, sores on my scalp?

7-cody Apprentice
Bloating- my mom had skinny pants and fat pants, depending on what she had eaten. Also, the best ways I can think of to describe it is a really bad beer gut (that seems to go away) or you look pregnant (you know, if you were a woman). My daughter asked me, before I knew anything about Celiac, why so many people in our family have a gut!

I would definatley say my main symptoms are C and brain fog. But also coupled with fatigue and really bad bone pain. But the C is awful! Sometimes I just want to stop eating all together because it's painful and I think I probably can't fit anymore in. I take Metamusil, but I think I need to increase it, especially when glutened. I can go days and days without going. Those are definately fat pant days!

And the brain fog.... it gets pretty bad. I think I'm a relatively smart person. But the other day I called my son and told him to pick me up after work. He said "Mom, you have your car today"!!!

:o

That's nothing! I forget to start up my car. Forget to grab something in the morning multiple days in a row. Often forget what I'm doing. Just pretty much feel like I can't use my brain at all.

Janeti Apprentice

Did anyone get symptoms that came and went, and never happened again?? At one point, I had a burning rash on my face, the Dr was baffled, and also for a couple of days in a row, I had a metallic taste in my mouth, and also, yuk, mouth sores too. Anyone know what that is? :unsure:

tmk Explorer

haven't been diagnosed yet (GI appt. next week), but these are my symptoms: chronic diarrhea for the last 18 years, nausea, gurgling stomach, bloating, occassional abdominal pain, urgency, gas, lightheaded & sweaty before BM, anemia, low WBC, chronic fatigue, joint pain, mouth sores, tingling in hands & feet, back pain, night sweats, cramping in legs, body jerks, increased appetite, moody. :blink:

zkat Apprentice

I have a pretty set course

1. Extreme fatigue-I just can't stay awake, even with starbucks or red bull

2. Swelling and water retention-about 10 lbs worth

3. Sinus type headache for 3 days

4. Constipation the first day

5. Day 2-5 Horrible toxic gas

6. Diarrhea and loose stools for about a week

7. Brain fog stays pretty constant for at least 3-4 days

8. Terrible cramps after I eat in my upper digestive track for about 2 week

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    1. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
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      Are Lindt chocolate balls gluten free?

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      Are Lindt chocolate balls gluten free?

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      Are Lindt chocolate balls gluten free?


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    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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