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Just Found Out


little d

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little d Enthusiast

Hi All I was not sure where to post this since it is about my mom

I just found out yesterday after moving my Mom into her new house that she has Diabetes :(

She did not tell any of us kids that she had this kind of issue going on, we knew about her higt blood pressure, injections to her back for her siatic nerve that is bothering her after an accident at work, she little surgery for a cyst on her back close to her armpit which is ok, it never occured to her that it could be bad, her upcoming surgery on her eye lids which are making her lashes curl under and causing her to not see as well, So with all this going on she failed to mention to us that she has Diabetes since January. My sister was with her when she had her surgery for her cyst when the Doctor came in and said so we had diabetes with my sister right there my sister did not know eighter and they see each other every day. I looked at my mom and said and when were you going to tell us, I'm the last to know on this one. I am a little shocked, but relieved that my mom is doing something about it eating right, going to classes to find out the correct way to eat. I was about to ask her if she has thought about getting tested for Celiacs as well since I know that diabetes can be a complication to celiac disease, but I did not. She has just come to terms with the idea of having High blood pressure which she is convinced that caused the diabetes or vice versa. So now that she is taking meds for both and checking her sugar for both I'm happy about that. I don't want to push too much on her, since she does not want me to rule out the possiblity of maybe have a gall stone instead of the gluten problem she says, I'm taking it into concideration that could be my problem. But if that was my problem when would gluten foods affect me the way it does when I do eat it (being tired after I eat, heartburn, stomachburn, nausea almost to the point at time where I want to vomit but don't) severe gas, they go away after I poo, bloating, D, C, thin stools inbetween the two, I don't poo the normal brown usually the light tan/brown, sometimes kakki brownish green, brain fog. When I eat Gluten free I don't have any of these symptoms I feel great I have tons of energy, I can get up in the morning and not want to go back to sleep. I know that Gall bladder issues have some of these same symptoms. I don't think that I am overreacting. I know that if I had a diagnoses from a doctor then she would be fine with it and know that I have covered all my bases, I never did ask my GI doc about a possible gallbladder issue maybe I should have because my grandmother had hers removed. Sorry that this is a little long, I guess I want some opionion on the matter.

donna


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blueeyedmanda Community Regular

I hope your mom starts getting better soon. We are here for you.

CDFAMILY Rookie

Donna,

Just wanted to let you know my high blood pressure was definitely from Gluten. It was so high and went untreated because at night it would go low...I could always feel it going up and down. When I went gluten free my blood pressure returned to normal. I also had a fasting glucose of 99 so I was heading for probably type 1 diabetes since I had exercised and was thin and I am in my 50's and have 2 brothers with type one diabetes.

So, can gluten cause blood pressure problems and sugar problems...you bet. In about 20 years doctors will be taught this but until then, we have to be our own advocates. More than likely if your Mom is in her late 60's+ many still believe and worship their doctors and won't deviate from what they are told so it is hard to convince them that their doc might not know everything.

Dr. Mercola just had a really interesting video on your immune system. Some parts where graphic on animal mistreatment so I just fast forwarded that but some was fascinating about the autoimmune diseases. Here is the link:

Open Original Shared Link

Good Luck

little d Enthusiast

She is 59, and her doc is cute so she thinks that i ok.

donna

neesee Apprentice

Type 2 diabetes has no connection to celiac. I don't believe high blood pressure is connected either. I've been gluten free for 20 yrs, and on blood pressure meds for 10 yrs.

It is type 1 that has the connection. My mom had that. Dad was type 2. He lost a lot of weight and gained excellent control of his blood sugar that way.

neesee

neesee Apprentice

I also had a fasting glucose of 99 so I was heading for probably type 1 diabetes since I had exercised and was thin and I am in my 50's

I'm not so sure about that! Type 1 hits like gangbusters,usually with heavy flu type symptoms. Type 2 sneaks up on you with a rise in blood pressure and cholesterol and slowly rising blood sugar. Usually, there is weight gain, but occasionally a type 2 will be a normal weight.

neesee

little d Enthusiast
I hope your mom starts getting better soon. We are here for you.

Thank you she is actually doing great, taking classes to understand how she is suppose to eat, taking it all in stride and accepting that she has a problem and taking care of it that is the surprising thing, before with her BP issue she was not being compliant about her meds so now she is understanding that this is her life now. It was just a shock to me when she told me out of the blue "Well since I'm diabetic now I have to watch what I eat and check my blood sugar" saying it like that was like huh your what! When were you going to tell me? Even my sister did not know until the she was with her for a little procedure and the doc came in and said "So were diabetic are we" My sister was in shock too.

donna


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    • trents
      We are all different and our immune systems are unique. I will say, however, that I have not gotten the impression as a moderator and reading hundreds and hundreds of posts on this forum over the years that a dermatitis herpetiformis outbreak caused by grains other than wheat, barley and rye is common. But perhaps it is more common than we have realized and it could be why it it is seems to be common that those who suffer from dermatitis herpetiformis struggle to keep it under control. Perhaps there are qualities found in all cereal grains besides gluten that are contributing factors. Also, have you tried a low iodine diet to see if it helps with your dermatitis herpetiformis? Reportedly, reducing iodine helps some folks afflicted with dermatitis herpetiformis.
    • Richardo
      Ok thanks Trents. I had the lesions biopsied and confirmed dermatitis herpetiformis, so I guess dermatitis herpetiformis can be associated with other grains not typically gluten. I appreciate your comment and I'll give Dr Osborne the benefit of the doubt because without him I would never have known of my grain intolerance and would still be suffering today. I simply never read anyone explain how grains could worsen dermatitis herpetiformis and I feel that information should be made much more readily available. Hey if someone tries going grain free and there's no improvement, no loss, however it drastically changed my life for the better and could at least be offered as a suggestion to sufferers from dermatitis herpetiformis. The other option is Dapsome and I wouldn't want anyone taking that chemical if there was a more natural solution. thanks again 
    • trents
      Welcome to the forum, @Richardo! We sometimes run across terms like "rice gluten", "corn gluten", and "oat gluten" but they are used informally and, technically, it is incorrect to speak of grains other than wheat, barley and rye as having gluten. Gluten is a protein with a specific structure found only in wheat, barley and rye. Other cereal grains contain proteins that are more or less similar in structure to gluten in some ways but are not actually gluten. Having said that, the proteins found in these other cereal grains are similar enough to gluten to possibly cause cross reactivity in some celiacs. Cross reactivity also happens with non cereal grain foods as well that have a protein structure similar to gluten. A prime example is dairy (the protein "casein"). Another example may be soy. Other foods can also cause cross reactivity for different reasons, such as microbial transglutaminase (aka, "meat glue") used commonly in pressed meat products. Just so you'll know, Dr. Osborne's claims have not received wide acceptance in the celiac community and are looked upon with skepticism by the medical and scientific community. Although he is a board certified nutritionist, his doctorates are actually in chiropractic medicine and pastoral science: https://www.drpeterosborne.com/about/dr-peter-osborne/ I am not sure Osborne has the training and background to address the chemical structure that defines gluten. I would encourage you to do some research on what gluten actually is. I have done this for myself and came away convinced that only wheat, barely and rye actually contain the protein gluten. I do not doubt your claims that you have breakouts of dermatitis herpetiformis from consuming these other grains. I am just contending it is not actually from gluten.
    • Richardo
      I was diagnosed celiac about 15 years ago and followed the usual diet restriction on Wheat, barley and rye and did very well on those restrictions with no problems with dermatitis herpetiformis. 4 years ago I started getting bad rashes on my knees and calves, buttocks, around my waist and my elbows and forearms and hands. It seemed to last about 11/2 to 2 months then clear up for a month and come back  again. I never changed anything in my diet and a dermatologist told me I  must getting  cross contamination, which I knew I wasn't.  Finally after struggling with it all that time, I watched a video by Dr Osborne who sited a study done in England showing that ALL grains (rice, corn etc) contain gluten. I went on a totally grain free diet and have now been 100 percent free of dermatitis herpetiformis for over a year. I tried a test and ate corn flour and it started to come back so I'm off all grains again. Long story I know, but my question is, why is practically EVERY celiac site private or Govt only mentioning the BIG 3 and never mentions other grains as a possible means of contamination? I am free  from a horribly uncomfortable condition now and I know there are others who would be encouraged by this.
    • trents
      Your chest pain could be related to the Sarcoidosis. "When it affects the lungs, wheezing, coughing, shortness of breath, or chest pain may occur." https://en.wikipedia.org/wiki/Sarcoidosis   The bowel incontinence could be caused by surgical damage (or scar tissue) to the cauda equina nerve bundle in the lumbar area of the spine. Or, it could be related to unintentional gluten exposure.
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