Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Alerting Care Givers

Electra375

Recommended Posts

Electra375 Newbie
Electra375
Posted

I thought I'd share how I plan on alerting care givers at our church's nursery.

I'm going to make a diaper bag and embroider a Med Alert that states in bright bold Red and Black

FOOD ALLERGY (Might get an embroidery Medical Alert Symbol $8 to by the design)

NO GLUTEN

NO WHEAT

NO BARLEY

NO RYE

NO OATS

I never leave any message on my children with just the word gluten, you don't know how many times someone has said "oh, poor thing is diabetic" or "I try not to eat too much sugar either it makes me sick".

:rolleyes: We can't afford mistakes.

I also order things from cafepress.com. My older child is out growing his first set of Silly Yak Ts, so I just ordered him new ones. I ordered one for the baby that is just like above, nothing cute or fancy.

The baby may not stay in the nursery once he begins to crawl, I can't isolate him away from other crawler, after speaking to the director, the don't get that a child with wheat or oat proteins on their hands transfering it to a toy that my child then touches and then puts his fingers in his mouth is enough to make him sick. Unfortunately, my baby is a 4 finger sucker and will not take to a pacifier. A paci would make it a bit easier b/c he would not likely put anything in his mouth w the paci in it. And the nursery serves Cheerios and Goldfish.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


momof2sn Apprentice
momof2sn
Posted
I thought I'd share how I plan on alerting care givers at our church's nursery.

I'm going to make a diaper bag and embroider a Med Alert that states in bright bold Red and Black

FOOD ALLERGY (Might get an embroidery Medical Alert Symbol $8 to by the design)

NO GLUTEN

NO WHEAT

NO BARLEY

NO RYE

NO OATS

I never leave any message on my children with just the word gluten, you don't know how many times someone has said "oh, poor thing is diabetic" or "I try not to eat too much sugar either it makes me sick".

:rolleyes: We can't afford mistakes.

I also order things from cafepress.com. My older child is out growing his first set of Silly Yak Ts, so I just ordered him new ones. I ordered one for the baby that is just like above, nothing cute or fancy.

The baby may not stay in the nursery once he begins to crawl, I can't isolate him away from other crawler, after speaking to the director, the don't get that a child with wheat or oat proteins on their hands transfering it to a toy that my child then touches and then puts his fingers in his mouth is enough to make him sick. Unfortunately, my baby is a 4 finger sucker and will not take to a pacifier. A paci would make it a bit easier b/c he would not likely put anything in his mouth w the paci in it. And the nursery serves Cheerios and Goldfish.

I'm glad you brought that up, because I am a nervous wreck anymore when I go to church. I know people are hearing me when I tell them what she can't have and pack her her own snacks, but I still freak out. Our nursery is only one room. Honestly how can they keep a two year old away from the other kids snacks and I'm sure they don't wash the other kids hands after they have their snack. There has to be gluten everywhere. Should I be freaking out? I am new to this. Our kitchen at home is shared so maybe she gets more gluten there? I just feel the spontinaity(did I spell that right??) is gone from our life. I will never be able to relax again!!!!!!!!!!!!!!

What are the silly yak t's?

ptkds Community Regular
ptkds
Posted

I thought this web site may be somewhat helpfu:l Open Original Shared Link. I also bought one of my dd's a med ID bracelet that states she is allergic to wheat, barley, rye, and oats.

I'm lucky enough that the nursery in our church is small. There are only 2-3 kids in there. They just bring fresh fruit and cheese and stuff like that for all the kids. Now if I could just figure out potlucks at church, I'd be happy!!

ptkds

Guhlia Rising Star
Guhlia
Posted

I always put a sticker on my daughter's back that says:

NO GLUTEN

No wheat

No barley

No rye

No oats

No malt

No Play-Doh

Electra375 Newbie
Electra375
Posted
  • Author

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

I like Sansgluten b/c they have shirts that have the Definition of Celiac. My older child likes SillyYaks b/c the purple Yak is cute. I found glutenfreekids b/c for my baby it is simple, straight forward and list out what gluten is.

I have for my older child a button "don't poison me" and a medical ID braclet that he never liked to wear that is now too small, I ended up putting it on the velcos of his shoe.

The baby is new territory for me. My other was 3 at dx. It is somewhat different in that the baby can't even ask "its gots wheats?"

There are also some allergy type ts and things available on the net.

Since I've been dealing with people in preschool and church nursery for a few years, I've found that people understand the word "allergy" more than they do "autoimmune genetic disorder". But you have people in general who will dismiss food allergies and even medically dx Celiac Disease as hog wash and not give a beep (mostly I find that is with my dh's family and a few of my own extended family members). A medical ID bracelet clearly identifies a serious medical problem and I find most people respect those.

Guhlia Rising Star
Guhlia
Posted

If anyone is interested I'd be happy to design a T-shirt for the little ones. Not for profit, of course. I can design it and then pass the file along so that you can order one on cafe press. I just need to know what everyone would like on the shirt. Let me know if anyone's interested. Text only please.

blueeyedmanda Community Regular
blueeyedmanda
Posted
If anyone is interested I'd be happy to design a T-shirt for the little ones. Not for profit, of course. I can design it and then pass the file along so that you can order one on cafe press. I just need to know what everyone would like on the shirt. Let me know if anyone's interested. Text only please.

That's a cool idea Angie.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


janelyb Enthusiast
janelyb
Posted

we got a medical alert bracelet as well and my son refuses to wear them on his arm so I cut the chain off and placed it on a small key chain and attached it to his shoe. It works perfect. This also got me thinking and I was playing around with powerpoint today and made a few Gluten-free Casein-free logos to print out as he gets older to laminate and attach to backpacks and lunch boxes.

sample 1

Sample 2

sample 3

Electra375 Newbie
Electra375
Posted
  • Author
we got a medical alert bracelet as well and my son refuses to wear them on his arm so I cut the chain off and placed it on a small key chain and attached it to his shoe. It works perfect. This also got me thinking and I was playing around with powerpoint today and made a few Gluten-free Casein-free logos to print out as he gets older to laminate and attach to backpacks and lunch boxes.

sample 1

Sample 2

sample 3

Very nice.

BTW - whatever happened to character lunch boxes that came with a thermos??? I was in a store that had all the school stuffs out and they wanted $9 for a zippered tote for a "lunch box", it didn't come with a drink thing at all!!! I guess I'm going on the internet to look for lunch totes that are large enough to fit the stainless steal thermos soup carrier and thermos and fruit carrier.

janelyb Enthusiast
janelyb
Posted

I know the gold old lunch boxes, now they are vintage and probably pretty pricey on ebay. Try thrift shops or garage sells. I wish I still had mine from childhood, however, I don't think my son would be into Miss Piggy or Strawberry shortcake...lol....

Very nice.

BTW - whatever happened to character lunch boxes that came with a thermos??? I was in a store that had all the school stuffs out and they wanted $9 for a zippered tote for a "lunch box", it didn't come with a drink thing at all!!! I guess I'm going on the internet to look for lunch totes that are large enough to fit the stainless steal thermos soup carrier and thermos and fruit carrier.

blueeyedmanda Community Regular
blueeyedmanda
Posted
I know the gold old lunch boxes, now they are vintage and probably pretty pricey on ebay. Try thrift shops or garage sells. I wish I still had mine from childhood, however, I don't think my son would be into Miss Piggy or Strawberry shortcake...lol....

I used to have a sky blue Wizard of Oz lunch box. Boy did I love that. I did pick up a Wuzzles lunch box at a flea market one day for a quarter. The good old days when cartoons were decent, not like the crap they have out there today.

Moustique77 Newbie
Moustique77
Posted
Very nice.

BTW - whatever happened to character lunch boxes that came with a thermos??? I was in a store that had all the school stuffs out and they wanted $9 for a zippered tote for a "lunch box", it didn't come with a drink thing at all!!! I guess I'm going on the internet to look for lunch totes that are large enough to fit the stainless steal thermos soup carrier and thermos and fruit carrier.

I was just diagnosed a few months ago and needed a lunchbox for work. I found a Silly Yak Pack at www.sansgluten.com Its a good size lunch cooler - no thermos, but it certainly fits my containers and I put my cell phone and wallet in the pocket. Its really great and I get to tell people about my celiac disease when it gets noticed.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. glucel
      - glucel replied to Bindi's topic in Super Sensitive People
      36

      Refractory or super sensitive?

      I don't react the same way to all of them but do react badly to many of them where others may not. I also have a touch of hypochondria so when the labs come back too high or makes me anxious. I am dismayed but not really surprised that I may be in the small group of people to suffer a particular side effect. I was originally on warfirin. I think that was...
    2. trents
      - trents replied to Bindi's topic in Super Sensitive People
      36

      Refractory or super sensitive?

      What do you mean when you say, "blood thinners are all the same to me"? Do you mean you react negatively in the same way to all of them? Otherwise, they are not all the same. They work in different ways. Aspirin causes the platelets to be less sticky. Warfarin and related meds work by reducing the production of platelets. You might talk to your doctor about...
    3. glucel
      - glucel replied to Bindi's topic in Super Sensitive People
      36

      Refractory or super sensitive?

      That's interesting because I think that the lousy 81 mg irritates my gut. I'm sensitive to drugs in general and blood thinners are all the same to me so aspirin necessary evil. As they say, better to be a live chicken than a dead duck.
    4. Scott Adams
      - Scott Adams replied to Tonya Kane's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Water filters and gluten

      I've been using a Brita water filter for well over a decade without any issues. I seriously doubt that these water filter companies would use glues that would end up in your water, as that would be counter to what they are trying to do, which is to purify tap water. Please provide some specific evidence to back this claim up, as such speculation can...
    5. trents
      - trents replied to aperlo34's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      2 months in... struggling with symptoms

      Welcome to the forum, @aperlo34! You said you had a colonoscopy "ordered" in July? Has that procedure happened yet? A colonoscopy cannot be used to diagnose celiac disease so I assume the order for the colonoscopy is to check for something else. The procedure used to diagnose celiac disease is the endoscopy. So, I assume you have had blood antibody testing...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      125,937
    • Most Online (within 30 mins)
      7,748
    AmyD73
    Newest Member
    AmyD73
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • glucel
      Refractory or super sensitive?

      By glucel · Posted

      I don't react the same way to all of them but do react badly to many of them where others may not. I also have a touch of hypochondria so when the labs come back too high or makes me anxious. I am dismayed but not really surprised that I may be in the small group of people to suffer a particular side effect. I was originally on warfirin. I think that was the one where I had trouble with vitamin k numbers and or was anemic with low hemoglobin, red blood cells etc.  My blood pressure drops to very low numbers after taking something as simple as turmeric for a few weeks. My diastolic had touched 50 one day before I finally figured out that the herb was the problem. No intention to go for 40 so never looked back. I wanted to try benfothiamine but one of the listed side effects is bradycardia and other stuff that I am not going to challenge esp since I have had and still have to a lesser degree heart rhythm problems. 
    • trents
      Refractory or super sensitive?

      By trents · Posted

      What do you mean when you say, "blood thinners are all the same to me"? Do you mean you react negatively in the same way to all of them? Otherwise, they are not all the same. They work in different ways. Aspirin causes the platelets to be less sticky. Warfarin and related meds work by reducing the production of platelets. You might talk to your doctor about alternatives to aspirin. 
    • glucel
      Refractory or super sensitive?

      By glucel · Posted

      That's interesting because I think that the lousy 81 mg irritates my gut. I'm sensitive to drugs in general and blood thinners are all the same to me so aspirin necessary evil. As they say, better to be a live chicken than a dead duck. 
    • Scott Adams
      Water filters and gluten

      By Scott Adams · Posted

      I've been using a Brita water filter for well over a decade without any issues. I seriously doubt that these water filter companies would use glues that would end up in your water, as that would be counter to what they are trying to do, which is to purify tap water. Please provide some specific evidence to back this claim up, as such speculation can cause undo fear, as well as reputational damage to these companies. Don't get me wrong here, I am not saying that this isn't possible, but is very unlikely.
    • trents
      2 months in... struggling with symptoms

      By trents · Posted

      Welcome to the forum, @aperlo34! You said you had a colonoscopy "ordered" in July? Has that procedure happened yet? A colonoscopy cannot be used to diagnose celiac disease so I assume the order for the colonoscopy is to check for something else. The procedure used to diagnose celiac disease is the endoscopy. So, I assume you have had blood antibody testing done and it was positive and then you had an endoscopy/biopsy done to confirm those results? That is the normal process for diagnosing celiac disease. Have your constipation/irregularity problems improved since going gluten free? Some of the continuing symptoms you describe would seem to fall into the category of neurological effects (muscle twitching, shakiness, weakness and headaches) and others such as dry eyes, fatigue, stiffness and joint aches sound like they could be autoimmune effects. Are you taking any high potency to vitamin and mineral supplements? Celiac disease often/typically results in vitamin and mineral deficiencies due to malabsorption from the damage to the small bowel lining it causes. I note that your vitamin D levels are barely within normal range and the only B vitamin testes is B12. The B vitamins and D3 are very important to neurological health. And the several B vitamins all work together synergistically. So, they all need to be up to snuff, not just B12. I would suggest starting on D3 supplementation in the amount of about 5000 IU daily and also a high potency B-complex. Costco's Nature Made and Kirkland brand products are good quality and priced well and usually gluten free (and will state so on the packaging). Realize also that gluten free flours and facsimile foods are not fortified as are their FDA mandated gluten equivalents. So, when you cut out gluten, you cut out a significant source of vitamins. One thing to be aware of is that Celiac disease is an autoimmune disorder and autoimmune disorders tend to cluster. That is, when you have one you there is a good chance you will develop others in time. I don't wish to alarm you because I know you have said you already struggle with heath anxiety but many of your symptoms make me think you have some other autoimmune condition going on in addition to celiac disease. Have you been checked for Sjogren's or lupus for instance?  Finally, I am including an article that is helpful to newly diagnosed celiacs in getting a head start on the learning curve of eating gluten free:   
×
×
  • Create New...