Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Should I Go Glutenfree Before Diagnosis?

tuxedocat

Recommended Posts

tuxedocat Apprentice
tuxedocat
Posted

Question - should I go gluten-free before having the biopsy and everything? I'm reading I may get a "false negative"... what do you all think?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AndreaB Contributor
AndreaB
Posted

If you are going to have a biopsy done you need to remain on the gluten. You could definately get a false negative if you go off gluten beforehand.

happygirl Collaborator
happygirl
Posted

The blood and biopsy tests are worthless if you are gluten free. You should not go gluten free until you have completed testing.

The tests measure different types of antibodies to gluten and the damage caused by gluten/antibodies. If you remove gluten (and you are a Celiac), your body stops producing antibodies, and you begin to heal. The goal for a Celiac is to have their blood/biopsy results return to normal after going gluten free. Only when they eat gluten will their antibodies, etc. rise again. Not eating gluten defeats the purprose of initial Celiac testing.

CarlaB Enthusiast
CarlaB
Posted

ditto what they said. :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. plumbago
      - plumbago replied to plumbago's topic in Related Issues & Disorders
      7

      Anyone else with very high HDL?

      I have taken thiamine on and off (just not at this exact moment), and I’m not sure it's made any difference. Yes, I almost always “fast” (12 hours NPO) for blood tests, as do a great many other Americans, so I tend to think that’s not it. All I can say is that the mystery continues. I could do some speculating here…well, heck, let me go ahead and specu...
    2. trents
      - trents replied to plumbago's topic in Related Issues & Disorders
      7

      Anyone else with very high HDL?

      Well, I have the opposite problem. My LDL has been moderately high for years. I eat healthy and exercise regularly but can't seem to move that meter. I used to be on a statin (and my doctors want me to go back on one) and it brought both HDL and LDL down but the ratios never changed. I think a lot of that cholesterol stuff is just baked into the genes.
    3. knitty kitty
      - knitty kitty replied to plumbago's topic in Related Issues & Disorders
      7

      Anyone else with very high HDL?

      Wow, @plumbago, Curiouser, and curioser... Have you been fasting? Apparently HDL levels increase after fasting... https://ajcn.nutrition.org/article/S0002-9165(23)31185-7/abstract I must say it, try taking some Thiamine. Thiamine helps regulate lipoproteins... Thiamine helped lower HDL in this study whether they had diabetes or...
    4. trents
      - trents replied to Tyoung's topic in Related Issues & Disorders
      1

      Celiac Disease and Mild Chronic Gastritis

      Welcome to the forum, @Tyoung! I would assume for the time being that the mild gastritis and the celiac disease are connected and that once you get a good handle on gluten free eating and experience significant healing in the lining of your duodenum, you will also see improvement in the gastritis as well. Gastritis is more often than not an accompanying...
    5. Tyoung
      - Tyoung posted a topic in Related Issues & Disorders
      1

      Celiac Disease and Mild Chronic Gastritis

      Hello! I was recently diagnosed with celiacs and mild chronic gastritis was noted on my EGD as well. My GI did not even bring up the gastritis and when I asked she brushed it off. I really want to heal my gut completely not just from celiacs but also the gastritis. Did anyone else have this at diagnosis? Were you able to treat it? Was it associated with celiacs...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,908
    • Most Online (within 30 mins)
      7,748
    Rhan
    Newest Member
    Rhan
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • plumbago
      Anyone else with very high HDL?

      By plumbago · Posted

      I have taken thiamine on and off (just not at this exact moment), and I’m not sure it's made any difference. Yes, I almost always “fast” (12 hours NPO) for blood tests, as do a great many other Americans, so I tend to think that’s not it. All I can say is that the mystery continues. I could do some speculating here…well, heck, let me go ahead and speculate now: The lab ranges we all see on our reports are more or less the averages of Americans who have had those blood tests. Now, it’s up to you and me whether or not to think of the average American as healthy. I can make arguments both ways, more often than not, on the negative. My point here is that maybe the current range of HDL is somewhat skewed (ie, low), and maybe just maybe my super high (plus 100s) HDL results are not something to worry about; the range just needs updating. Why do I say this? Because pre-celiac disease diagnosis, my HDL values were in the normal range, but post celiac disease diagnosis, my HDL levels are way above average. See where I’m going? My trusty guidebook on celiac disease, Recognizing Celiac Disease by Cleo Libonati, RN, BSN, says that HDL increases after being on the gluten free diet. Or can increase, I guess. Then again, it could be something else. ¯\_(ツ)_/¯ In thinking of going to a cardiologist, I sort of fear that he/she will be dismissive of a link to celiac disease, treated celiac disease, and would not therefore be considering all possibilities. @trents I'm sorry you've been diligently working on your numbers to no effect. That must be frustrating. LDL is a world that is far better understood than HDL, so for you there's maybe less "mystery." Familial hypercholesterolemia is for sure something that can be tested. Outside of that, you're right, genetics can determine a general pattern.
    • trents
      Anyone else with very high HDL?

      By trents · Posted

      Well, I have the opposite problem. My LDL has been moderately high for years. I eat healthy and exercise regularly but can't seem to move that meter. I used to be on a statin (and my doctors want me to go back on one) and it brought both HDL and LDL down but the ratios never changed. I think a lot of that cholesterol stuff is just baked into the genes.
    • knitty kitty
      Anyone else with very high HDL?

      By knitty kitty · Posted

      Wow, @plumbago, Curiouser, and curioser... Have you been fasting?  Apparently HDL levels increase after fasting... https://ajcn.nutrition.org/article/S0002-9165(23)31185-7/abstract   I must say it, try taking some Thiamine.  Thiamine helps regulate lipoproteins... Thiamine helped lower HDL in this study whether they had diabetes or not. https://pmc.ncbi.nlm.nih.gov/articles/PMC3921172/#:~:text=Serum thiamine and its derivatives,supplementation (p %3D 0.009).
    • trents
      Celiac Disease and Mild Chronic Gastritis

      By trents · Posted

      Welcome to the forum, @Tyoung! I would assume for the time being that the mild gastritis and the celiac disease are connected and that once you get a good handle on gluten free eating and experience significant healing in the lining of your duodenum, you will also see improvement in the gastritis as well. Gastritis is more often than not an accompanying finding that is commented on in the post scope/biopsy notes when people are positive for celiac disease. 
    • Tyoung
      Celiac Disease and Mild Chronic Gastritis

      By Tyoung · Posted

      Hello! I was recently diagnosed with celiacs and mild chronic gastritis was noted on my EGD as well. My GI did not even bring up the gastritis and when I asked she brushed it off. I really want to heal my gut completely not just from celiacs but also the gastritis. Did anyone else have this at diagnosis? Were you able to treat it? Was it associated with celiacs or something entirely different? Thank you!!
×
×
  • Create New...