Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Do You Say To Food-pushing Grandparents?


dandelionmom

Recommended Posts

dandelionmom Enthusiast

We have two separate grandparent problems:

1. Julia has lost a lot of weight and had very little appetite before her diagnosis. My parents are so excited to see Julia eating that they've started praising her like mad when she takes a bite of anything around them. They've even resorted to bribery. Can you say "eating disorder" in the making?! Ugh. I nicely tried to ask them to stop but I almost think they can't help themselves! Any suggestions?

2. My in-laws kept trying to make Julia eat things even after I told them it wasn't a safe food for her to eat (Rice Krispie treats, they kept insisting it was just rice so was fine and ice cream, she is dairy-free right now). They actually picked a little fight with me, in front of Julia. I'm worried that if they keep questioning me regarding foods for her she'll get very confused and won't know who to trust anymore. And it just pissed me off ~ but that is another issue! :) So does anyone else have to deal with something like this? How do you handle it?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Tritty Rookie

UGH...What a situation.

FOr the first one, maybe you need to take your mom and dad aside and just explain to them that pushing her to eat when she may not want any, is not a great idea. That is could really upset her stomach. It takes awhile for it to heal. She knows her body and when she's hungry. Let her take her time. I wouldn't even bring up the future eating disorder that it's heading for, but focus on the now and how she feels physically?

As for the second, you need to put your foot down. I know it's hard with in-laws, but let them know you are in charge of her diet and no one else. End of story. I had a similar situation with my in-laws about a whole separate issue and when I was so just "no discussion" about it - they dropped it and have tried their best not to interfere...

Good luck.. :)

zarfkitty Explorer

The following response represents my opinion only. :)

As for problem #1: It depends. Are you willing to undergo a little mutual hurt feelings to get them to stop? A lot of grandparents come from a generation where "good eaters" are praised and "cleaning your plate" is even better. I could go either way on this... the grandparents probably aren't going to have as much effect on her "eating personality" as you and her eventual teenage peers. And yet, once you've told your parents your opinion on a childcare issue, it really is important that they defer to you.

As for problem #2: TAKE NO PRISONERS! If your in-laws can't support the diet to the letter, they can't see her, period. Especially if they are going to fight with you about it right in front of her. If you aren't ready to make that kind of ultimatum, remind them that untreated celiac puts her at greater risk of CANCER. Ask them if they themselves are willing to eat a rice crispie treat/cookie/whatever that may or may not have been dipped in poison. Or just put them on diarrhea duty until they get the idea. ;)

I hope problem #2 is just a passing phase, certainly they as grandparents want her to be healthy! As for problem #1, I think it's just generational difference (although be sure to put your foot down if you perceive a future food-emotion problem!)

EBsMom Apprentice

I agree with Zarfkitty. The praise for "good eating" is probably a generational thing. My mom tends to do it. I have said to her, on numerous occasions, "She will eat when she is hungry." She gets the point, but later falls back into her old habits and I have to remind her again. I've chosen not to make a big issue out of it, but my mom lives several states away from us, so it's not a constant battle. I might decide differently if it were happening more often.

I also agree with the "TAKE NO PRISONERS" approach for your in-laws. I'm going through a weird and rather nasty struggle with my in-laws right now that is similar. They refuse to educate themselves about the gluten-free diet, but want to cook for us or bring a dish when we invite them to dinner. I assigned my m-i-l salad duty last weekend, thinking to myself that it was "safe." She brought a homemade vinaigrette - oops - and when I questioned her about the specific ingredients, she got very huffy and said "It's only salad dressing." I calmly persisted, and made her tell me everything that she'd put in the dressing. It was, as it turned out, gluten-free. I didn't let her get smug, though. I decided that it was an appropriate time to "draw the line" for her, and said "This is what I have to do every time I cook. I will NEVER knowingly give my dd gluten, nor will I allow someone else to do so." I followed that with a challenging stare, and she got the message. This whole gluten-free thing has damaged my relationship with my in-laws....but if that's what it takes to keep my dd safe, then so be it. My m-i-l mentioned recently that she wants to have us over for dinner soon....I suspect it will be a show-down of notable proportions, lol!

Good luck to you!

Rho

Juliet Newbie

I agree with everyone's responses for both problems 1 and 2, but I'd like to ask one question regarding problem #2: Where does your husband stand on this? If I had a problem with my in-laws regarding the diet, it wouldn't just be me talking to them about it. My husband saw first hand just how sick our son was; since I had to stay home with our 3 day old newborn daughter, it was my husband who was with our son during his 2 day/2 night hospital stay. I wouldn't have to fight; if my in-laws didn't get it the first time when I nicely explained to them the problem, Dean would take over from that point, like when his dad got upset when I told him he couldn't share his water bottle with his grandson because he was eating a gluten-filled sandwich. And vice versa. I'm the one who deals with my own mother's comments like, "maybe (your son) is getting more sensitive to gluten because you're not exposing him enough to it." I nipped that one in the bud right away. I can't say our relationships with our own parents are strengthened because of the struggles, but in the end each of us are better capable to handle our own parents than our "in-laws" because we know our own parents.

dandelionmom Enthusiast
Where does your husband stand on this? If I had a problem with my in-laws regarding the diet, it wouldn't just be me talking to them about it.

My husband isn't around much ~ he travels a lot for work and even when he is around, he's not good with his parents. There are some communication issues there.

As hard as it is going to be, I think you're all right about the "no prisoners" (LOL!) strategy with the in-laws. It was very upsetting to argue with them in front of my daughter (especially since I'm pretty sure she knows the argument was about her).

I think the my parents would respond well to the idea that Julia is healing. That might be just the thing to get the to stop and think.

Fiddle-Faddle Community Regular

Good advice so far from everyone!

With your parents, I would tell them that you know that they have the best intentions, but that in your daughter's case, it is actually destructive. Give them guidelines as to what YOU KNOW works, and insist that they stick with it for a specified period--say, 2 months--after which point you will reevaluate and discuss it with them again. Emphasize that you know how much they care and how hard they are trying, but that your daughter simply isn't reacting in the way that your parents expected, and that things are so serious, you really must be in control of the situation.

With your in-laws, explain that this is potentially a VERY serious situation, like a peanut allergy (even though technically it isn't an allergy). If you have to, get a note from the doctor's office (if you have an understanding MD, they will write a note for any caregiver or anyone in the position of giving her food). You could also download official lists of "unsafe" foods like Rice Krispies, so that they can't argue.

I wouldn't hesitate to tell them that, according to DOCTORS, this is so serious that if your in-laws can't follow the instructions, that they will only be able to visit your daughter at your house, because her health is more important than their feelings.

Again, it's always best to start by saying that you know how much they care, and how hard they are trying (even if they aren't trying), blah, blah, blah, but the bottom line is your daughter's health. They haven't done the research; you have.

You can also invite them to your house to make gluten-free goodies like cupcakes, gluten-free rice krispy treats, etc., and give them a bunch to keep in their freezer for treats, so they don't feel overwhelmed by having to read labels (which is VERY difficult for anyone who is starting to need reading glasses!). You DID give them safe foods to keep for Julia, not just a list, right?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



EBsMom Apprentice
My husband isn't around much ~ he travels a lot for work and even when he is around, he's not good with his parents. There are some communication issues there.

I empathize! That is *exactly* my situation - hubby travels, doesn't communicate well with his parents. It's no fun being the one to have to stand up to everyone, all the time....though I must say it's getting easier for me.... and it's even empowering at times, when I know I've taken the high road and done a good job.

Rho

dandelionmom Enthusiast
You DID give them safe foods to keep for Julia, not just a list, right?

Good point! I brought Julia's food (she was eating a gluten-free cupcake when all this happened) but I didn't bring a list. Maybe if I bring a list they'll realize how involved all of this is!

Electra375 Newbie

I supply my child's food, end of discussion. This child is not permitted to eat anything unless I bring it for the child. My ILs are so stupid, I would not trust them. My MIL is not capable of understanding. My ds has been df since birth and he would get 'worse' diarhea and I'd ask what he ate with them. Answer "mashed potatos" Did you make those with milk "yes". He Can't have milk. "oh, I forgot" :angry:

My mother makes comments about my dd eating too much. A disorder in the making. We don't see them often enough for me to make a huge deal out of it.

For that ILs moved far far away and we have not seen them in several years THANK GOD!

gfpaperdoll Rookie

Just wanted to say you moms are doing the right thing.

In my family it is the opposite, I am the gluten-free grandmother & they all think I am nuts, although I have a grandson that tested positive at Enterolab & has double DQ1 & had failure to thrive as an infant. he is 11 now. 3 years ago, I spent about $1000.00 for cookbooks, all tupperware, food, new things for the kitchen, all lunch kits, thermoses & stuff for 3 kids & dil...& a lot of time getting the grandkids gluten-free & my dil, but my son refused & after 5 months made them go back to eating gluten, I know they are just stupid & uneducated, & flat out do not care... Of course my son has gluten intolerance also & already has liver damage (unexplained, yea right). My dil has it also & has depression, (she has taken antidepressants for years) overweight, dyslexia...

Fiddle-Faddle Community Regular
Good point! I brought Julia's food (she was eating a gluten-free cupcake when all this happened) but I didn't bring a list. Maybe if I bring a list they'll realize how involved all of this is!

Just to play Devil's Advocate here, the labels on many food products have such tiny print, I can't read them myself without a magnifying glass--and I don't need reading glasses (yet) for anything else, like the newspaper or books! I can only imagine that someone older than I would just give up if he or she had to suddenly read labels.

So, if you print out a list for them, make it large print, and make it organized, so that it's practically idiot-proof! :D

I remember how daunting it all seemed when I first got started, and also how much in denial I wanted to be!

Betty in Texas Newbie

Just have a meeting with them with both parents and let them know how serious it is and educate them remember how you were when you just found out you had to learn every thing and still learning . I am celiac and a grandparent they don't want to hurt any child they just want to love them and help out with them. Grandparents are very importmant in these kids lives and would't help your child to get every body mad and not have the grandparent relationship any more. Get them some things to read and learn about it They want what is best for the child so just keep explaining and talking it over remember they came from the old school as every body says . But I don't beleive they want to hust any body . I know my grandkids would be lost without us they want to spend the night about 3 times a week. Amd they are our life and our furture thank you

Juliet Newbie

Julia, and everyone else whose significant other isn't around a lot due to work or any other valid (or invalid :) ) reason, I'm sorry that the brunt of this has to be left to you. I know what it's like - it would be great if both of you could be full time parents all the time, but money has to come from somewhere. So inevitably, one parent has to take the brunt of the "parenting" work while the other does the majority of the "paid" work. I do most of the research, shopping, and cooking, in large part because my husband does most of the "paid" work for our household, but when it comes to emotional support for our children and each other it is very shared. And I'm lucky enough that my husband and I both work from home. And I understand communication issues with parents - I definitely suffer from that quite a bit. But when it comes to our children's health, I just suck it up and stick to my guns. Then again, I've been doing this for going on two years in December, so I've definitely gotten better at it now that I've gotten so much practice :)

kbabe1968 Enthusiast

Could you show them the label on the Rice Crispy Treat Box....or if they are homemade show them the label for the rice cripies that says "Barley Malt". Yes, to them, they probably think rice is okay, not even realizing that an ingredient in the cereal could be an issue.

It's hard. I hope you get it worked out. I know how hard it is for ME, as an adult, to stand up for myself in regards to Celiac.

zarfkitty Explorer

I can sympathize with the fine print on labels, making mistakes in the beginning, etc. Of course most grandparents only want the best for their grandkids. The thing that raised my hackles was that the in-laws in question picked a fight about rice crispies right in front of the child. That really is another issue entirely... more of a power struggle than a genuine concern for a grandchild's health. Unfortunately, this is common in relationships.

So far, so good with my parents and in-laws. But if any of them wanted to pick a fight about unsafe foods right in front of my daughter, I'd pull rank IMMEDIATELY. I don't have time or energy to re-teach everything I've already taught my little girl about eating safely, and such behavior on the part of an authority figure (grandparent) would be confusing.

stef-the-kicking-cuty Enthusiast

With #1 I would say, it's never ok to bribe a child with food. Grandparents or not. They need to know about this and that they shouldn't do it.

#2 I'd also say 'no prisoners'. The health of your child is way more important than their feelings. So I would talk to them about this. You can take the rice krispies box (mentioned earlier) as an example of that other ingredients can be the culprit, too. And if they don't understand, then they can only see the child, when you are around. Period. <_< Well, and if they are getting it slow but sure, I would try and throw little bits at them once in a while, so that they gain more and more understanding over time. The entire subject might be too much at one time. Especially, when they are older already, then learning new stuff sometimes gets more difficult...

prinsessa Contributor

I had some trouble with my ILs when the kids and I first went gluten free. They would make comments and try to give them food with gluten in it anyway. I stood my ground (without fighting with them about it) and finally sent (emailed) DH some info about gluten intolerance to give them. It sometimes helps to have someone on your side so you aren't the only "crazy" one. They finally got it and now explain gluten intolerance to other people. They have also changed from buying cakes for every birthday to buying flan. It might take a while but hopefully your parents and ILs will get it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to EssexMum's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Concerning GP advice

    2. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      327

      Terrible Neurological Symptoms

    3. - cristiana replied to EssexMum's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Concerning GP advice

    4. - EssexMum posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Concerning GP advice

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,637
    • Most Online (within 30 mins)
      7,748

    CIARAN CONROY
    Newest Member
    CIARAN CONROY
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community @EssexMum! First, let me correct some misinformation you have been given. Except in the case of what is known as "refractory" celiac disease, which is very rare, it is not true that the "fingers" will not grow back once a consistently gluten free diet is adopted. Celiac disease is an autoimmune condition whereby the ingestion of gluten triggers an inflammatory process that damages the millions of tiny finger-like projections that make up the lining of the small bowel. We call this the "villous lining". Over time, continued ingestion of gluten on a regular basis results in the wearing down of these fingers which greatly reduces the surface area of this very important membrane. It is where essentially all the nutrition from what we eat is absorbed. So, losing this surface area results in inefficiency in nutrient absorption and often to medical problems related to nutrient deficiencies. Again, if a gluten-free diet is consistently observed, the villous lining of the small bowel should rebound. "We was informed that her body absorbs the gluten rather then rejecting it and that is why she doesn't react to the gluten straight away, it will be a build up and then the pains start. " That sounds like unscientific BS to me. But it does sound like your stepdaughter may have a type of celiac disease we know as "silent" celiac disease, meaning, she is asymptomatic or at least the symptoms are not intense enough to usually notice. She is not completely asymptomatic, however, because you stated was experiencing tummy aches off and on. Cristiana gives some good suggestions about ordering "safe" food for your stepdaughter from restaurant menus in Europe. You must realize that as the step parent who only has her part of the time you have no real control over how cooperative her other set of parents are with regard to your stepdaughter's needs to eat gluten free. It sounds like they don't really understand the seriousness of the matter. This is very common in family settings where other members are ignorant about celiac disease and the damage it can do to body systems. So, they don't take it seriously. The best you can do is make suggestions. Perhaps print out some info about celiac disease from the Internet to send them. Being inconsistent with the gluten free diet keeps the inflammation smoldering and delays or inhibits healing of the villous lining. 
    • Scott Adams
      Here are some articles on cross-reactivity and celiac disease:      
    • knitty kitty
      @HectorConvector, Here are some articles about "dry Beriberi" and neuropathy.  I hope you've been able to acquire thiamine hydrochloride or Benfotiamine.  I'm concerned.   Dry Beriberi Due to Thiamine Deficiency Associated with Peripheral Neuropathy and Wernicke's Encephalopathy Mimicking Guillain-Barré syndrome: A Case Report and Review of the Literature https://pubmed.ncbi.nlm.nih.gov/30862772/ Dry Beriberi Manifesting as Acute Inflammatory Demyelinating Polyneuropathy in a Patient With Decompensated Alcohol-Induced Cirrhosis https://pmc.ncbi.nlm.nih.gov/articles/PMC7707918/ A Rare Case of Thiamine Deficiency Leading to Dry Beriberi, Peripheral Neuropathy, and Torsades De Pointes https://pmc.ncbi.nlm.nih.gov/articles/PMC10723625/
    • cristiana
      Good evening @EssexMum You are quite right to be concerned about this situation.  Once diagnosed as coeliac, always a coeliac, and the way to heal  is through adopting and sticking to a strict gluten diet. That said... I have travelled twice to France since my diagnosis, firstly in May 2013 and again in August 2019.   My spoken French isn't bad, and whilst there I tried my best to explain my needs to chefs and catering staff, and I read labels very carefully when shopping in supermarkets, but both times I came away with worsening gastric symptoms and pain. Interestingly,  after the second holiday, my annual coeliac review took place the following month and although I'd been very careful to avoid gluten all year, thanks to that August holiday my coeliac antibodies were elevated,  Clearly I hadn't been imagining these symptoms and they must have been caused by gluten sneaking in somehow. When I spoke to my gastroenterologist on my return, who is an excellent doctor, he told me with a smile that this was a very common experience in France among his patients, and not to worry too much about it! In fact, before we went away in May 2013, which was just after I had been formally diagnosed, he told me not to even bother trying to adopt a gluten free diet until I returned, knowing what France was like, but I was feeling so awful at that time I ignored his advice and at least tried to make a start with it. (I ought to say - both these visits were some time ago, so perhaps things are a lot better there now.) So what to do?  I would say at least try to explain to catering staff the situation - they should be able to rustle up a plate of cheese, boiled eggs, tuna, salad and fruit, and if things like crackers and gluten-free pot noodle or oats can be packed in the UK, those can be produced at mealtimes.    Of course, most larger supermarkets in France do now cater for coeliacs, but when I was last there the the choice wasn't as wide a range as we have in the UK but I think that is partly because the French like to cook from scratch, whereas our gluten-free aisles have quite a lot of dried or pre-baked goods in them/convenience foods, because I think we as a nation tend to use them more. I would be worth doing a bit of research on the internet before the trip, - the words you want are 'sans gluten'.  I've just googled 'sans gluten Disney Paris" and this came up.  I do hope at least some of this is of help. https://www.tripadvisor.co.uk/Restaurants-g2079053-zfz10992-Disneyland_Paris_Ile_de_France.html  Whatever befalls in France, at least your stepdaughter can resume her usual diet on her return. On a related tack, would you be happy to post any positive findings/tips upon her return - it might be of use to others travelling to Disneyland Paris with children in future? Cristiana
    • EssexMum
      Hi, I am after some advice re my step daughter and her Coeliac Disease. She is 9 years old and had a very limited diet before being diagnosed (very fussy and very lenient parents), since being diagnosed it has become hard to find places out that will cater for her, but we manage.  History: She had been having severe tummy pains on and off every few months so had a bunch of tests and eventually was diagnosed with celiac disease a number of months ago. We was told that she is at a very high level and should avoid gluten for the rest of her lift, we was told that the gluten she has been eating has damaged the 'fingers' inside her and they will not replenish. We was informed that her body absorbs the gluten rather then rejecting it and that is why she doesnt react to the gluten straight away, it will be a build up and then the pains start. We was advised that by her not reacting straight away, it did not mean it wasnt harming her inside. We was given literature about buying a separate toaster and cutting board etc to avoid cross contamination and have been checking all food labels etc.  Problem: the issue is the novelty seems to have worn off with her Mum and we are now posed with a situation. They are going on holiday to Disneyland Paris for 3 nights and she phoned the hotel who said they cannot cater for gluten free. She phoned the GP and had a conversation and then told my partner that the GP had said it was fine for her to have gluten for the 3-4 days. He questioned it and she said no its fine, she hasnt had it for months so a few days wont hurt and she exposed to it anyway without knowing so it will be fine and shes not ruining her holiday etc.   My partner could see from the online notes that his ex wife had told the doctor that the child does not follow a strict gluten-free diet anyway - not true. At least not with us! My partner requested a call with the same doctor who told him that it is the mums discretion and that the child should be monitored for reactions - he explained that the issue is she doesnt react straight away. The GP said no its all mums discretion and she knows best. We are going to try to speak to the consultant at the hospital, but I just wanted to gauge some thoughts. It just seems bizarre to me that we can go from being told to avoid gluten for the rest of her life and how harmful it is to her body, to now it being ok for her to have it for a few days. Thanks in advance  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.