Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Has Anyone Had A Second Opinion On Their Biopsies?

Tritty

Recommended Posts

Tritty Rookie
Tritty
Posted

OK - so I'm really confused :)

My son is 17 months old and keeps getting smaller and smaller on the percentage scale. Soon he's going to fall off of it :(

Anyway, my ped sent him to a ped GI and they've tested his ttg's etc a couple of times - and no positives (Not surprising since he's only 17 months). HOwever, they went ahead and did an endoscopy two weeks ago b/c he has the gene and isn't gaining weight, has a distended belly, etc. They said they thought everything looked normal, but had to review the actual biopsies. When reviewed they found that he has eosinophilic esophogitis. WHite blood cells in the esophogus that I guess make the esophogus constrict and harder to eat. Usually caused by many food allergies. So they did the RAST test and only milk came up as a MILD allergy. NOt enough to cause the eosinophils (they think). His doctor ordered my biopsies from the lab that processed them to compare mine to his. He is curious if I really have eosinophilic esophogitis and not celiac. However, my ttg's were high. ANd my biopsies were done 6 weeks after I started my diet (I was losing too much weight to wait - so I'm afraid they won't see what they need...). But I guess if I am responding so well to my diet and I show the eosinophils that it might show some relation between the two? There is a Dr doing research as celiac presenting itself in this way. Does anyone know anything about it? Or anything about eosinophilic esophogitis?

THANKS!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted
OK - so I'm really confused :)

My son is 17 months old and keeps getting smaller and smaller on the percentage scale. Soon he's going to fall off of it :(

Anyway, my ped sent him to a ped GI and they've tested his ttg's etc a couple of times - and no positives (Not surprising since he's only 17 months). HOwever, they went ahead and did an endoscopy two weeks ago b/c he has the gene and isn't gaining weight, has a distended belly, etc. They said they thought everything looked normal, but had to review the actual biopsies. When reviewed they found that he has eosinophilic esophogitis. WHite blood cells in the esophogus that I guess make the esophogus constrict and harder to eat. Usually caused by many food allergies. So they did the RAST test and only milk came up as a MILD allergy. NOt enough to cause the eosinophils (they think). His doctor ordered my biopsies from the lab that processed them to compare mine to his. He is curious if I really have eosinophilic esophogitis and not celiac. However, my ttg's were high. ANd my biopsies were done 6 weeks after I started my diet (I was losing too much weight to wait - so I'm afraid they won't see what they need...). But I guess if I am responding so well to my diet and I show the eosinophils that it might show some relation between the two? There is a Dr doing research as celiac presenting itself in this way. Does anyone know anything about it? Or anything about eosinophilic esophogitis?

THANKS!

If memory serves me eosinophilic esophogitis is one of the findings for celiac. Gluten will also not show up on a RAST test as it is an intolerance and not a true allergy. I would stick with the diet for a while before deciding that you both don't need it.

tabdegner Apprentice
tabdegner
Posted

A friend of mine had a second opinion on a biopsy. She went to a celiac specialist in Chicago. She said that the doctor looked at her biopsy and could immediately tell that they cut it the wrong way. Apparently with a celiac biopsy, it has to be cut a certain way when they take it. The new doctor said that because they cut it the wrong way, they cut off the portion that would have shown damage. He said that she most likely did have celiac -- he could see that it was probably damaged in the biopsy, but very very hard to see.

I would really like a second opinion on my biopsy as well. We may move to the Chicago area in a few months, and I'll probably get a second opinion, too. I had no idea that the celiac biopsies had to be cut differently than a normal biopsy.

Anyone else hear of this?

Tritty Rookie
Tritty
Posted
  • Author

No, I had not heard that they needed to be cut a certain way. I think he may just think I have this on top of celiac - or that this is how some of my damage from celiac showed. And if it is - since he doesn't have any of the other damage - they would assume he has celiac too. Does anyone here have both - or is this how anyone's presented itself?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,951
    • Most Online (within 30 mins)
      7,748
    Malik
    Newest Member
    Malik
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • growlinhard1
      Colonoscopy with large area of inflammation

      By growlinhard1 · Posted

      I had the endoscopy with biopsy done. I have gastritis and duodenitis at this point. The biopsy should provide the cause of the inflammation findings. How common are these findings when Celiac is the ultimate culprit?
    • Wheatwacked
      Anyone else with very high HDL?

      By Wheatwacked · Posted

      Welcome to the forum @cookiesyum, I lasted on staton for about a month before getting so weak I had to stop.   Switched to Nicotinic Acid and I posted the results in a previous post.  Instead of getting sicker and weaker on the statin I feel I am improving day by day.  Nicotinic Acid was first used for cholesterol in 1955.  
    • Wheatwacked
      3 year old gluten intolerance?

      By Wheatwacked · Posted

      According to research, consuming gluten can potentially trigger sudden mood swings and increased irritability in children, particularly those with gluten sensitivity or celiac disease, making them more likely to have tantrums or display behavioral issues; this is because gluten can trigger an immune response in the body, potentially impacting brain function and neurotransmitter levels.  When my son was diagnosed in 1976 when he was weaned his doctor told us that at 5 years old his kindergarden teacher would beg us to put him on Ritalin.  And so it did happen.  My son was on Ritalin though high school.  In the morning he was a devil who could not put on his socks. Half an hour after the morning dose he was an angel wanting to help mom get ready.  Talk about Jekyll and Hyde! Dr Danel Amen could be a good resource for you.   
    • MommaBear82
      3 year old gluten intolerance?

      By MommaBear82 · Posted

      Yes, it certainly can! My daughter has a reaction from just playing with Playdough. She doesn't get GI symptoms at first, just psychological mostly. It can get really bad. It's like night/day behavior. My daughter is eight, but started showing signs around 6.
    • cookiesyum
      Anyone else with very high HDL?

      By cookiesyum · Posted

      The easiest way to remember the difference between the cholesterol types is HDL;   H=healthy equals healthy (omega 3, 7, limit 6 & 9 MCFA'S =Medium Chain Fatty Acids. 3= coconut oil, 7= sunflower oil, avocado. The higher your HDL the healthier you are & less likely to experience strokes, clogged arteries Etc. You can even use cold expeller pressed coconut oil on your skin and that is the best kind of coconut oil to eat as well. You want your HDL much higher than your LDL, it will help you stay healthy.   LDL;    L=Lousy. Meat fats, processed fats.  The higher your LDL is the more likely you will have strokes, clogged artery is, heart disease, fatty liver.   Then there's lipids... they are the culprit to be blamed for many heart attacks and things like that they are very small round particles that transport fats. You can have a low overall cholesterol reading and most of it be healthy cholesterol and have a ton of lipids and there's nothing you can do to change the lipid count. High number of lipids is very dangerous.   I'm going on statins is extremely dangerous if you ask me it's just completely my opinion, because I have seen so many of my elderly friends bleed to death internally because of the statins. I mean you wouldn't take all the oil and grease out of your car or a motorcycle and then try to drive it that way would you? You see that's what statins do they remove all of your bodies fats and it doesn't matter whether it's healthy fats or a lousy fats. It removes all of them and then your body can't function properly. You have to have fats to keep your skin supple and to stay warm. Your body also needs fats to digest & process certain nutrients, amino acids & vitamins.   Your brain is composed of fat so is that something you really want to remove with a pill every morning and night?   The thing about statins is that they also make the blood vessels and capillaries permeable. So this is how my friends who were on cardiac medication for a long time and statins ended up bleeding internally to death.   If you want to make sure that your heart is healthy, take odorless garlic at night and magnesium, vitamin K & calcium.     
×
×
  • Create New...