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Good Days/bad Days

pogirl1786

By pogirl1786
in Coping with Celiac Disease

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pogirl1786 Apprentice
pogirl1786
Posted

hey all, i'm just about to hit my one- year mark for being gluten free, and i'm feeling so much better than this time last year, but i had a question. i know at first it's said that we'll have good days and bad days while we're healing, but do any of you who have been gluten free for a year or more still have bad days occasionally? mine are very few and far, but sometimes it's hard to tell if i'm feeling bad because of celiac or just because i don't feel well for other reasons. thanks for any input you might have...

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stargirl Apprentice
stargirl
Posted

My one year mark hits in January and I still have up and down days. Granted, the up are a lot more often but I still get sick and feel crappy some days. I think it just might be part of living with Celiac.

kvogt Rookie
kvogt
Posted

I'm at the 2 year mark. I had good/bad days too. I discovered my bad days were not from gluten, but other food problems. I dropped milk and now have almost entirely good days. I suggest you get tested first.

lilliexx Contributor
lilliexx
Posted

i agree with getting tested for other alergies/food intolerences.( or better yet doing an elimination diet) I was having a bout 50% good and bad days untill i recently gave up milk, corn, rice & fruit. Now i am having nearly 100% good days :) I am slowly bringing back every thing i have eliminated. starting wiht rice and apples, and havnt had a problem with iether. I strongly suspect that i have another food tolerance, and this way i will be able to finally pin point it.

It seems that SO many other people have gotten rid of nearly all symptoms by doing elimination diets, so i highly suggest doing this , if you are still having that many bad days after 1 year!!

good luck, lillie

pogirl1786 Apprentice
pogirl1786
Posted
  • Author

i've figured out dairy only hurts my stomach after i've had a lot, but my doctor just ran a test to see if i'm anemic, which could be the reason why i'm so tired and such on bad days, so we shall see. thanks for the replies :)

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    • Jy11
      Conflicting results

      By Jy11 · Posted

      Would you also agree that being so close to the IgA deficient cut off is significant? We just have been told he’s not as just over into the not deficient category…   thank you so much for all the help so far, it’s been so helpful!
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      One study showed that up to 44% of first degree relatives also have celiac disease, so his odds of having it are quite high. Also, if he were not IgA deficient his celiac disease test scores would likely have been much higher because they were based on the IgA antibodies.
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