Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac?


XxKittykat

Recommended Posts

XxKittykat Rookie

I posted this in another section of the boards, but figured I should have put it here first...?

Hi, my name is Kat. I'm 16 1/2 years old and I believe I am celiac. I suffer from severe lactose intolerence, I have fibromyalgia, acid reflux, insomnia, and subluxation. Over the past 2-3 years I have been having strange, unexplainable symptoms. One of the biggest includes bouts of loud, powerful burping, uncontrollable vommiting (large amounts at a time), and horrible bloating with stomach pains. I have felt stomach cramps, stabbing sensations, stomach aches, a feeling in the stomach that I need to burp (this causes me to be unable to sleep lying down at night), and loud stomach sloshing...also, I have felt slight twitches in my stomach (this I believe is caused by food digesting). In addition, I have had headaches, sore throat, itching, an odd rash on my abdomin, hair loss, back/knee/wrist pain, insomnia, poor appitite, buring stomach sensations, weakness, tiredness, intestial pain, unable to urinate dispite drinking loads for water, dizziness, sores in the mouth, hands and feet keep falling asleep, brittle nails, anemia, gas, constipation, muscle cramps, unexplained loss of tooth enamal, and weight loss. I am 5'4" and currently 77 pounds (since begining a gluten-free diet I have gained 4 pounds in 4 days). Last week I removed gluten from my diet and saw an improvment - I had more energy, I have been more upbeat, less bloating, less burping, less vommitting, and sleeping more often. I had been feeling great until yesterday when I had eaten out at the local Bill Millar's - veggie soup, french fries, and a side of beans. Instantly I felt horrible and I've been vommitting and bupring all over again since I woke up this morning and I can't bring my horribly painful bloating down. Sounds like celiac to me! What do you all think? I'm new on here and I have no one else to turn to. Every doctor I've seen wants to shove meds down my throat, send me to an eating disorder counselor, tell me it's "all in my head", or pass me along to another doctor who does the same thing. I've already been tested for lupus, chrone's, and something else that I can't seem to remember. All tests came out negative. It is not candida either, I've been tested and went though that diet for some time (w/o removing the wheat though). Thanks for your time and I appolozige for this post being so long (this was the short version by the way!).

- ~*~Kat~*~ "Lost and doesn't know where to turn"


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

You have numerous symptoms of celiac disease.

The bad news, if you want to get medical testing - you need to keep eating gluten for any tests to be accurate. (Even if the Dr. says the tests are so sensitive, blah, blah, blah)

  • 2 weeks later...
deba Newbie

I posted this in another section of the boards, but figured I should have put it here first...?

Hi, my name is Kat. I'm 16 1/2 years old and I believe I am celiac. I suffer from severe lactose intolerence, I have fibromyalgia, acid reflux, insomnia, and subluxation. Over the past 2-3 years I have been having strange, unexplainable symptoms. One of the biggest includes bouts of loud, powerful burping, uncontrollable vommiting (large amounts at a time), and horrible bloating with stomach pains. I have felt stomach cramps, stabbing sensations, stomach aches, a feeling in the stomach that I need to burp (this causes me to be unable to sleep lying down at night), and loud stomach sloshing...also, I have felt slight twitches in my stomach (this I believe is caused by food digesting). In addition, I have had headaches, sore throat, itching, an odd rash on my abdomin, hair loss, back/knee/wrist pain, insomnia, poor appitite, buring stomach sensations, weakness, tiredness, intestial pain, unable to urinate dispite drinking loads for water, dizziness, sores in the mouth, hands and feet keep falling asleep, brittle nails, anemia, gas, constipation, muscle cramps, unexplained loss of tooth enamal, and weight loss. I am 5'4" and currently 77 pounds (since begining a gluten-free diet I have gained 4 pounds in 4 days). Last week I removed gluten from my diet and saw an improvment - I had more energy, I have been more upbeat, less bloating, less burping, less vommitting, and sleeping more often. I had been feeling great until yesterday when I had eaten out at the local Bill Millar's - veggie soup, french fries, and a side of beans. Instantly I felt horrible and I've been vommitting and bupring all over again since I woke up this morning and I can't bring my horribly painful bloating down. Sounds like celiac to me! What do you all think? I'm new on here and I have no one else to turn to. Every doctor I've seen wants to shove meds down my throat, send me to an eating disorder counselor, tell me it's "all in my head", or pass me along to another doctor who does the same thing. I've already been tested for lupus, chrone's, and something else that I can't seem to remember. All tests came out negative. It is not candida either, I've been tested and went though that diet for some time (w/o removing the wheat though). Thanks for your time and I appolozige for this post being so long (this was the short version by the way!).

- ~*~Kat~*~ "Lost and doesn't know where to turn"

deba Newbie
Hi Kate, You sound ill. You do not have to keep eating gluten to get tested, the doctors may not be helpful to you. Please go to enterolab.com and read the stuff. It is full of information. deba

I posted this in another section of the boards, but figured I should have put it here first...?

Hi, my name is Kat. I'm 16 1/2 years old and I believe I am celiac. I suffer from severe lactose intolerence, I have fibromyalgia, acid reflux, insomnia, and subluxation. Over the past 2-3 years I have been having strange, unexplainable symptoms. One of the biggest includes bouts of loud, powerful burping, uncontrollable vommiting (large amounts at a time), and horrible bloating with stomach pains. I have felt stomach cramps, stabbing sensations, stomach aches, a feeling in the stomach that I need to burp (this causes me to be unable to sleep lying down at night), and loud stomach sloshing...also, I have felt slight twitches in my stomach (this I believe is caused by food digesting). In addition, I have had headaches, sore throat, itching, an odd rash on my abdomin, hair loss, back/knee/wrist pain, insomnia, poor appitite, buring stomach sensations, weakness, tiredness, intestial pain, unable to urinate dispite drinking loads for water, dizziness, sores in the mouth, hands and feet keep falling asleep, brittle nails, anemia, gas, constipation, muscle cramps, unexplained loss of tooth enamal, and weight loss. I am 5'4" and currently 77 pounds (since begining a gluten-free diet I have gained 4 pounds in 4 days). Last week I removed gluten from my diet and saw an improvment - I had more energy, I have been more upbeat, less bloating, less burping, less vommitting, and sleeping more often. I had been feeling great until yesterday when I had eaten out at the local Bill Millar's - veggie soup, french fries, and a side of beans. Instantly I felt horrible and I've been vommitting and bupring all over again since I woke up this morning and I can't bring my horribly painful bloating down. Sounds like celiac to me! What do you all think? I'm new on here and I have no one else to turn to. Every doctor I've seen wants to shove meds down my throat, send me to an eating disorder counselor, tell me it's "all in my head", or pass me along to another doctor who does the same thing. I've already been tested for lupus, chrone's, and something else that I can't seem to remember. All tests came out negative. It is not candida either, I've been tested and went though that diet for some time (w/o removing the wheat though). Thanks for your time and I appolozige for this post being so long (this was the short version by the way!).

- ~*~Kat~*~ "Lost and doesn't know where to turn"

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Richardo replied to Richardo's topic in Dermatitis Herpetiformis
      5

      dermatitis herpetiformis with all grains

    2. - Matt13 replied to Matt13's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      29

      Can food allergies like milk and soy flatten villi?

    3. - Rogol72 replied to Richardo's topic in Dermatitis Herpetiformis
      5

      dermatitis herpetiformis with all grains

    4. - trents replied to Richardo's topic in Dermatitis Herpetiformis
      5

      dermatitis herpetiformis with all grains

    5. - Richardo replied to Richardo's topic in Dermatitis Herpetiformis
      5

      dermatitis herpetiformis with all grains


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,342
    • Most Online (within 30 mins)
      7,748

    Julie Clayton
    Newest Member
    Julie Clayton
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.1k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Richardo
      I've never had problems with quinoa but I always rinse it well before cooking in case it's processed with other grains. I think quinoa is classified as a seed. I can't eat grains at all but I can eat all seeds. Ain't the human body a pandora's box of surprises??? 
    • Matt13
      Hi knitty kitty, Scott and all, Thanks for kind words and asking!I will def. talk about histamine intolerance  on my next visit to gastro doc. My doc.gastro says that lactose or casein is very unlikely to create marsh 3b histology like gluten in adults in intestines. (that was previous question for Scott) Regarding my last EGD the villy was OK so refractory is out of the question based on my talk with dr. If Scott is right and there are so many intolerance in food for celiac what is left to eat?? And now histamine? I mean what should i eat? Maybe gastritis is doing all this trouble? Thanks Kind regard    
    • Rogol72
      @Richardo, I'm in the same boat as you! I can't handle certified gluten free oats at all. Quinoa is the worst, even when I soak it in water and then wash under the tap for 10 minutes ... I have a reaction. It must be an immune system reaction to the proteins in these gluten-free grains. 
    • trents
      We are all different and our immune systems are unique. I will say, however, that I have not gotten the impression as a moderator and reading hundreds and hundreds of posts on this forum over the years that a dermatitis herpetiformis outbreak caused by grains other than wheat, barley and rye is common. But perhaps it is more common than we have realized and it could be why it it is seems to be common that those who suffer from dermatitis herpetiformis struggle to keep it under control. Perhaps there are qualities found in all cereal grains besides gluten that are contributing factors. Also, have you tried a low iodine diet to see if it helps with your dermatitis herpetiformis? Reportedly, reducing iodine helps some folks afflicted with dermatitis herpetiformis.
    • Richardo
      Ok thanks Trents. I had the lesions biopsied and confirmed dermatitis herpetiformis, so I guess dermatitis herpetiformis can be associated with other grains not typically gluten. I appreciate your comment and I'll give Dr Osborne the benefit of the doubt because without him I would never have known of my grain intolerance and would still be suffering today. I simply never read anyone explain how grains could worsen dermatitis herpetiformis and I feel that information should be made much more readily available. Hey if someone tries going grain free and there's no improvement, no loss, however it drastically changed my life for the better and could at least be offered as a suggestion to sufferers from dermatitis herpetiformis. The other option is Dapsome and I wouldn't want anyone taking that chemical if there was a more natural solution. thanks again 
×
×
  • Create New...