Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reaction?


devo

Recommended Posts

devo Explorer

HI,

I have an allergy to wheat, but my bloodwork tested negative for celiac disease. It wasn't until recently that my naturalist suggested I try a gluten free diet. I am excited to say that for the first time in a year, my skin is starting to clear up and I'm beginning to look healthy again. I also feel like I can think more clearly and I feel a little more like myself.

I have been living gluten free for the past month, but have had a few instances where I mistakenly ate something with gluten. I was starting to feel better for a while, but I ate something on Wednesday at a fast food restaurant I thought was safe, but it wasn't. I still don't feel quite right today on Sunday. Is this typical? I feel tired, weak, and have no energy. Since this diet is new to me, my question is, when you have a gluten reaction, how long does it typically take to feel better again? Also, once you have gone gluten free, how long until you truly feel well? I know it is different for each person, but I would love to hear from some of you. I'm so encouraged by this community and have learned so much already. Thank you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

For many after the D shows up the worst is over but we can have related issues for up to 3 weeks, this applies especially if you have neuro or DH issues.

The best ways to help speed healing along for me are first off I make sure I have taken my sublingual B12, it helps with the nerve and neuro related issues, if I have acute stomach pain I will take pepto bismal, name brand, but I do try to avoid taking immodium unless I absolutely have to. That is just my personal preference after living on multiple doses for 15 years. I prefer to let the offending substance make it's way out as fast as possible. I find in the initial days after a glutening buckwheat hot cereal, very much like cream of wheat, to be soothing and easy to digest especially with a good helping of cinnamon added. I am sure others will post with things that help them but unfortunately the only complete relief is going to come from time.

ArtGirl Enthusiast

You've certainly come to the right place to learn all you need to know about being gluten-free.

It can be difficult when first starting the diet to avoid accidental glutenings. But it gets better as you become more educated and experienced. Full recovery is such an individual thing. It helps to think in terms of months rather than days or weeks. My own point of reference has been ..."next year I'll be well and able to do......[fill in the blank]" It didn't actually take a full year, but thinking this way keeps me from being too impatient. Also, I had other issues that needed to be addressed before I started feeling really good, and it took a fair amount of time to discover what they all were.

I feel tired, weak, and have no energy. !

I can certainly relate. When I get glutened now, it's 2-3 days in the bathroom with D and mild cramping and feeling like crap, and then a week or two of being tired and having little energy. But that happens rarely now that I know what I'm doing.

devo Explorer

Thank you both for your insight. It is helpful to know that it is only a matter of time until I start to feel better again.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - JohannesW85 replied to JohannesW85's topic in Related Issues & Disorders
      4

      Do I have celiac/Gluten sensitivity?

    2. - captaincrab55 replied to Connie Smitj's topic in Coping with Celiac Disease
      2

      Hunger, nervous stomach or Hpylori?

    3. - trents replied to Connie Smitj's topic in Coping with Celiac Disease
      2

      Hunger, nervous stomach or Hpylori?

    4. - Connie Smitj posted a topic in Coping with Celiac Disease
      2

      Hunger, nervous stomach or Hpylori?

    5. - trents replied to Brown42186's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      Help Understanding Test Results


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,369
    • Most Online (within 30 mins)
      7,748

    FionaM
    Newest Member
    FionaM
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • JohannesW85
      Did you take a look at my pics that I uploaded?    These rashes is not itchy, but I have seen that people have this too that have celiac and it’s not itchy for them either. I have also heard that sulfur burps are a common things with celiac too.  Yes it can be something else too but it’s to much symptoms that I have that match with either gluten sensitivity or celiac.   Hopefully it’s just gluten intolerance and not celiac.  As I said before I have the gen type for celiac and diabetes typ 1 and the those diseases going hand in hand.    Thanks again Trent for your time to reply, and I wonder if any body else have kind of the same symptoms that I have?   
    • captaincrab55
      Welcome Connie Smitj,  Did you have a follow up test to see if the treatment for H Pylori was successful?  It's possible to catch it again, especially from a partner.  When I contracted it a second time my wife was tested and was positive for two of the bacteria in H Pylori.  
    • trents
      Welcome to the forum, @Connie Smitj! Can you give us a little more history about your celiac journey? How long ago were you diagnosed and how long have your been gluten free? Do you have other symptoms besides quick onset of hunger after eating and gut pain? How long have these symptoms being happening?
    • Connie Smitj
      I eat a gluten-free diet but hunger pains start within an hour of eating dinner. I  had h pylori infection before I was diagnosed. Occasionally I’ll have bouts of pain. Could it come back or is it just celiac disease?
    • trents
      Scott, am I missing something? For the TTG-IGA normal is anything 3 or less and his score less than 2. I think that one is in normal range. @Brown42186, if the GI doc is not interested in doing an endoscopy with biopsy of the small bowel lining based on the elevated TTG-IGG I would request a repeat on the bloodwork now that you have resumed gluten consumption again.
×
×
  • Create New...