Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Itchy Bumps Behind My Ears


ElenaDragon

Recommended Posts

ElenaDragon Explorer

I have been gluten free for a month now. I have not been diagnosed with celiac (bloodwork was negative), but am giving the diet a try to see if it helps. Yesterday the backs of both my ears started itching and by this morning there are lots of tiny bumps. I have been camping for the past week, and although I've been careful, it's certainly possible that some gluten has gotten in. I've never had bumps like this before I went gluten free though. Could this be DH?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cdford Contributor

DH is always a possibility, but having been camping it could also be poison ivy/oak. They look and feel similar if you have not ever had them at the same time.

ElenaDragon Explorer

Thanks for the response. :) I'm fairly certain it is not poison ivy or poison oak since I am very familiar with what those look like and was watching out for them on the trip. Also, it was only the backs of my ears and nowhere else on my body (like my legs or arms, which would be more common). One thing that was unusual for me was that I got more sun on that area because I had my hair up and was wearing a ball cap (and was out hiking for a few of the days). I wore sunscreen, but I probably missed the backs of my ears. They don't feel sunburned though, mainly itchy and a little tender. The bumps are still there now four days after they appeared, although I think they have lessened a bit. Still itchy though.

CtheCeliac Rookie
I have been gluten free for a month now. I have not been diagnosed with celiac (bloodwork was negative), but am giving the diet a try to see if it helps. Yesterday the backs of both my ears started itching and by this morning there are lots of tiny bumps. I have been camping for the past week, and although I've been careful, it's certainly possible that some gluten has gotten in. I've never had bumps like this before I went gluten free though. Could this be DH?

If I get glutened through cross-contamination, I have DH problems on the back of my ears. How annoying, huh?

JennyC Enthusiast

My son gets bumpy, flaky, itchy skin behind his ears also. It responds to Elidel (sp?), which is an eczema medication. Maybe you could get some samples from your doctor to see if it helps. :)

ElenaDragon Explorer

Thanks for the responses. :) The bumps are gone, still a little itchy though (the back of my head has been kind of itchy too, not sure if it is related). I guess the best thing to do is to wait and see if it happens again. If it was an isolated incident, then it was probably something from camping.

  • 3 weeks later...
cdford Contributor
Thanks for the responses. :) The bumps are gone, still a little itchy though (the back of my head has been kind of itchy too, not sure if it is related). I guess the best thing to do is to wait and see if it happens again. If it was an isolated incident, then it was probably something from camping.

Just checking in on you. When I get glutened, even slightly, the first places that will itch are in my scalp and around my ears. Then my face, neck, and down my arms and legs. It starts at the top and marches downward!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,208
    • Most Online (within 30 mins)
      7,748

    Emily H
    Newest Member
    Emily H
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
    • trents
      Jason, I have a bone to pick with your terminology. There is "gluten intolerance" which I believe is synonymous with celiac disease and then there is "gluten sensitivity" which comes from Non Celiac Gluten Sensitivity or NCGS for short. It is true, however, that there is still a lot of inconsistency in the use of these terms.
    • Liquid lunch
      I can’t say this will work for everyone but for me the difference is incredible so might be worth trying. I’ve never been diagnosed celiac but via an elimination diet I realised I can’t eat any lectins, gluten soy and oats are particularly problematic. If I eat them I’m in bed for a week, then heavy bleeding and extreme pain for another, followed by a third week of bleeding on and off. My skin was a mess and it snowed when I brushed my hair. Since taking reishi and cordyceps mushroom tincture I can’t believe the difference, I’ve had a lot of help from this site so I want to return the favour. I took the tincture for my guts but the most apparent effect is that I feel like my brain works again, I can’t begin to describe how wonderful it is to be able to achieve basic things, I’ve barely been able to organise getting out of bed for so long, it feels like I haven’t been hit over the head with a mallet for the first time in years. Then I glutened myself, not necessarily gluten as so many things wipe me out but definitely ate something I shouldn’t have, I took a treble dose of the tincture and almost immediately felt much better so continued with the increased dose and three days (not weeks) later was back to feeling great, no bleeding involved. My skin is better than I can remember it ever being, I feel great 😊. I spend £1.50 a day on these but it’s worth every penny, I hope this helps someone else out there reading this. I wish I’d known about them 20 years ago. best wishes everyone 🍄 
    • Scott Adams
      Given your history of a high TTG (167) that decreased to 16 on a gluten-free diet, along with genetic confirmation of celiac disease, it’s likely the negative biopsy is a false negative due to not eating gluten before the endoscopy. Gluten is necessary to trigger the intestinal damage seen in celiac disease, and avoiding it can lead to healing and a normal biopsy despite ongoing immune activity (reflected in your still-elevated TTG). The inflammation observed during the endoscopy (“diffuse moderately erythematous mucosa”) could be residual damage, mild ongoing inflammation, or another condition like peptic duodenitis, but it’s consistent with celiac disease in context. Continued positive blood markers suggest ongoing gluten exposure, possibly from cross-contamination or hidden sources. Strict adherence to a gluten-free diet and follow-up testing are key to managing symptoms and reducing inflammation. Discuss these findings with your doctor to confirm the diagnosis and refine your dietary approach. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Scott Adams
      Yes, it sounds like great progress, but what was the time frame between the two endoscopies? 
×
×
  • Create New...