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Spasms & Dr's Visit Outcome


BettyL.

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BettyL. Rookie

Hello,

I wished to thank everyone for all the help you have given me in the last few days. I am feeling stronger and ready to accept my fate. Your comments help me talking with my doctor about the surgery is planing on doing ASSP. My hiatal hernia has ruptured again. The herina is on the back side of the throat. This is the 3rd time. He said he has had failures after the first repair but never the after the 2nd repair. I was keep in the hospital the last time for 3 weeks because my stomach & intestines were jumping all the time. I was so doped up that I didn't realized they were doing that. I all knew I couldn't eat. He feels the rupture is occurring because of the spasms. I have been complaining about them since before 2002 and I was taken seriously. My husband asked about gluten-free medicines and the look on his. I could just feel that he suddenly understood what I am been talking about. Everything will be gluten-free and I will take my own soap, etc with me. I don't used body powder, so does any one know a gluten-free powder. The hospital used Johnson Baby Powder the last. He will put in a pain pump, a feeding tube. Four hours in surgery, 2 weeks in the hospital and if all goes well I should be better in about a month.

The first post I read was about bladder spasms and that may be the answer to my intestinal spams. I am doing do some research and will mention cystitis to my doctor.

I feel good about this doctor learning about celiac disease. My first surgery, I was told I needed more fiber as in grains. Yesterday, he finally realize what I was talking in regards to celiac disease. He does a lot of teaching in the area. This doctor cares for his patients you can tell when you talk with him. I couldn't have a better surgeon.

Betty


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trents Grand Master

I think most body powders are either talc or corn starch based.

Steve

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    • trents
      Welcome to the forum, @Trish G! "Gluten free" does not necessarily equate to "no gluten". According to FDA standards it actually means that a food product contains no more than 20ppm of gluten. This is safe for most celiacs but would not be for those who are on the more sensitive end of the spectrum. So, it would depend on the individual celiac and their level of sensitivity to minor amounts of gluten. That's the long and nuanced answer. The short answer is that it is a product derived from wheat and so you can be certain it will contain some residual amounts of gluten. No gluten removal process is 100% effective. So, to be absolutely certain, stay away from it. Have you tried chia seeds? Very high in fiber and quickly turns into a gel when added to water. Make sure you get seeds that are gluten free if you decide to try it.
    • Trish G
      I was taking Benefiber for my IBS-C before my celiac diagnosis. It does say Gluten Free but lists Wheat Dextrin on the label. I really dont like psyllium fiber, so is there anything else I can take or is the Benefiber really ok for someone with Celiac disease?  Thanks!!!
    • kpf
      Abdominal pain and an itchy stomach were the symptoms I asked to see a GI about. Now I’ve learned these other symptoms—that I have but attributed to other issues—could also be related to celiac disease:  fatigue joint pain canker sores numbness or tingling in hands or feet difficulty with coordination anemia headaches neutropenia I never dreamed in a million years she would consider celiac disease. It was a shock to me. It’s definitely not what I went to her for. 
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    • trents
      What are your symptoms? What has brought you to the point where you sought celiac disease testing?
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