Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Spasms & Dr's Visit Outcome


BettyL.

Recommended Posts

BettyL. Rookie

Hello,

I wished to thank everyone for all the help you have given me in the last few days. I am feeling stronger and ready to accept my fate. Your comments help me talking with my doctor about the surgery is planing on doing ASSP. My hiatal hernia has ruptured again. The herina is on the back side of the throat. This is the 3rd time. He said he has had failures after the first repair but never the after the 2nd repair. I was keep in the hospital the last time for 3 weeks because my stomach & intestines were jumping all the time. I was so doped up that I didn't realized they were doing that. I all knew I couldn't eat. He feels the rupture is occurring because of the spasms. I have been complaining about them since before 2002 and I was taken seriously. My husband asked about gluten-free medicines and the look on his. I could just feel that he suddenly understood what I am been talking about. Everything will be gluten-free and I will take my own soap, etc with me. I don't used body powder, so does any one know a gluten-free powder. The hospital used Johnson Baby Powder the last. He will put in a pain pump, a feeding tube. Four hours in surgery, 2 weeks in the hospital and if all goes well I should be better in about a month.

The first post I read was about bladder spasms and that may be the answer to my intestinal spams. I am doing do some research and will mention cystitis to my doctor.

I feel good about this doctor learning about celiac disease. My first surgery, I was told I needed more fiber as in grains. Yesterday, he finally realize what I was talking in regards to celiac disease. He does a lot of teaching in the area. This doctor cares for his patients you can tell when you talk with him. I couldn't have a better surgeon.

Betty


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

I think most body powders are either talc or corn starch based.

Steve

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,200
    • Most Online (within 30 mins)
      7,748

    TGE
    Newest Member
    TGE
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.