Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened Vs. Uterus


melmak5

Recommended Posts

melmak5 Contributor

JNB - thank you, I know this is temporary, its just kicking my butt today.

Yes. I was on probiotics, before, during and after being on the antibiotics. I have switched and mixed two different brands, to make sure I was getting enough.

I have avoided dairy, corn and soy for the past two months. (I tried re-introducing all three on separate occasions and each caused more pain/bloating/D)

I will be honest that I have had a little bit of dairy of the past week. I know its counter intuitive to feel unwell and still eat something that is not helping with that, but dairy is kind of my world. I work in a cheese shop, I have made cheese, I just finished writing a piece on raw milk for a magazine.

I know about blue cheese and haven't touched the stuff, but I did put some cow's milk in my coffee this morning... that's the extent of my "dairy free cheating."

I will take dairy back out again.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JNBunnie1 Community Regular
JNB - thank you, I know this is temporary, its just kicking my butt today.

Yes. I was on probiotics, before, during and after being on the antibiotics. I have switched and mixed two different brands, to make sure I was getting enough.

I have avoided dairy, corn and soy for the past two months. (I tried re-introducing all three on separate occasions and each caused more pain/bloating/D)

I will be honest that I have had a little bit of dairy of the past week. I know its counter intuitive to feel unwell and still eat something that is not helping with that, but dairy is kind of my world. I work in a cheese shop, I have made cheese, I just finished writing a piece on raw milk for a magazine.

I know about blue cheese and haven't touched the stuff, but I did put some cow's milk in my coffee this morning... that's the extent of my "dairy free cheating."

I will take dairy back out again.

I was actually asking because so many dairy things can be so very beneficial, ESPECIALLY raw milk, ESPECIALLY raw goat's milk if you can get it. A lot of people who can't tolerate normal dairy can tolerate raw goat's milk. Actually, after the last time I got glutened, I became temporarily lactose intolerant for the first time. I found that taking a lactase with each meal made it completely tolerable for me, and I stuck with it because I so deperately need the calories. If you'd like to try either of those things, they sell lactase super-cheap at walmart, and the wesbite realmilk.org can help you find a goat's milk supplier in you area, if it's legal in your state. It'll cost you though, that's the only problem.

Any chance you could tell me what brand probiotics you're using?

melmak5 Contributor

I can get raw cow's milk, but not goat at this time... though I am not sure my body is down with either.

I take Jarro-Dophilus (4.4 billion per capsule, 8 species)

FloraSmart (6 billion per caplet, 10 species)

I chose them cause they are both dairy-free, gluten-free and are not suppose to break down in the stomach.

I take one capsule in the morning, when I get up, with a full glass of water. (I try to get ready, THEN eat breakfast, so they have time in there by themselves).

I usually take another one in the evening.

JNBunnie1 Community Regular

Hmm, well, sounds to me like you're doing everything right, as far as my knowledge extends. How long have you been gluten-free, by the way?

For foods that are healing to the digestive tract, I'd try Weston Price's website, also. I found a farm that sells goat milk out in Mendon, not sure if they're operational or taking new customers or if you'd really wanna drive that far....

melmak5 Contributor

I don't have a car, so I probably won't make the trip, but its really good to know its available.

Gluten free since mid-June, but I had a lot of trouble (ie - was taking a multivitamin with wheat, working in an office licking envelopes, etc. - I had a big learning curve with one of those doctors who called on the phone and said "you have celiac disease, go look it up on the internet and don't eat gluten)

Maybe some of this is reproductively related. Hopefully once that is cleared up the focus can be all digestive.

Thanks again!

JNBunnie1 Community Regular

Well, good lord girl, give yourself a minute to breathe! Very rarely does anyone get better right away, and I think it WILL take a while for the bacterial stuff in your system to straighten out. You're still healing, it may take some time. But you're doing the exactly right thing.

And if it makes you feel any better, I didn't know that rye was unsafe for over a year after I stopped eating wheat. Only recently was I able to confirm to myself that I have Celiac, I got DH for the first time. Up til a few months before then, I'd been glutening myself unknowingly, and not understanding why I was still so tired all the time, even though my GI symptoms went away. I only learned when I came to this board.

And there's always a chance there's a co-op for raw dairy in your neighborhood, maybe get in touch with your local celiac support chapter for ideas? That's only if you're only lactose intolerant though, if you have a casein issue there's no pill you can take for that.

melmak5 Contributor

I know, patience is not my thing.

It took the doctors 2 months to diagnose me, and I know in "celiac diagnosis time" that is but a speck, but it just feels like I have been sick and unwell for a lot longer. Being in the ER last week just took so much physically and emotionally out of me. I just feel beat.

I have had some difficulties contacting the local support group, perhaps summer is a busy time for people. I hear nothing but great things about them, so I am going to give them another shot.

I just, just found a woman who lives close by who picks up raw milk every 3 weeks, so there is a chance I can car pool.

I have never been tested for any dairy issues. Many years ago my doctor told me to try lactaid when I had some digestive problems (when I was diagnosed as being allergic to MSG) and it helped some of the time, but not all. Right now anything with fat has been an issue, but maybe I can give lactaid + yogurt a try and see how that fairs.

I have the overwhelming urge to frankenstein myself some new body parts and see how they do too.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JNBunnie1 Community Regular
I know, patience is not my thing.

It took the doctors 2 months to diagnose me, and I know in "celiac diagnosis time" that is but a speck, but it just feels like I have been sick and unwell for a lot longer. Being in the ER last week just took so much physically and emotionally out of me. I just feel beat.

I have had some difficulties contacting the local support group, perhaps summer is a busy time for people. I hear nothing but great things about them, so I am going to give them another shot.

I just, just found a woman who lives close by who picks up raw milk every 3 weeks, so there is a chance I can car pool.

I have never been tested for any dairy issues. Many years ago my doctor told me to try lactaid when I had some digestive problems (when I was diagnosed as being allergic to MSG) and it helped some of the time, but not all. Right now anything with fat has been an issue, but maybe I can give lactaid + yogurt a try and see how that fairs.

I have the overwhelming urge to frankenstein myself some new body parts and see how they do too.

Good idea! Just make sure it's plain yogurt, pref. organic, definitely don't need all that extra sugar. I add frozn fruit, like cherries, makes a yummy syrup when it melts, and it's just plain fruit.

jmd3 Contributor
- I had a big learning curve with one of those doctors who called on the phone and said "you have celiac disease, go look it up on the internet and don't eat gluten)

I had two drs tell me the same thing, one in office, one on the phone. It is a shocked because you have no idea where to go.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    2. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    3. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    4. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,220
    • Most Online (within 30 mins)
      7,748

    Dye42
    Newest Member
    Dye42
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.