Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened Vs. Uterus


melmak5

Recommended Posts

melmak5 Contributor

JNB - thank you, I know this is temporary, its just kicking my butt today.

Yes. I was on probiotics, before, during and after being on the antibiotics. I have switched and mixed two different brands, to make sure I was getting enough.

I have avoided dairy, corn and soy for the past two months. (I tried re-introducing all three on separate occasions and each caused more pain/bloating/D)

I will be honest that I have had a little bit of dairy of the past week. I know its counter intuitive to feel unwell and still eat something that is not helping with that, but dairy is kind of my world. I work in a cheese shop, I have made cheese, I just finished writing a piece on raw milk for a magazine.

I know about blue cheese and haven't touched the stuff, but I did put some cow's milk in my coffee this morning... that's the extent of my "dairy free cheating."

I will take dairy back out again.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JNBunnie1 Community Regular
JNB - thank you, I know this is temporary, its just kicking my butt today.

Yes. I was on probiotics, before, during and after being on the antibiotics. I have switched and mixed two different brands, to make sure I was getting enough.

I have avoided dairy, corn and soy for the past two months. (I tried re-introducing all three on separate occasions and each caused more pain/bloating/D)

I will be honest that I have had a little bit of dairy of the past week. I know its counter intuitive to feel unwell and still eat something that is not helping with that, but dairy is kind of my world. I work in a cheese shop, I have made cheese, I just finished writing a piece on raw milk for a magazine.

I know about blue cheese and haven't touched the stuff, but I did put some cow's milk in my coffee this morning... that's the extent of my "dairy free cheating."

I will take dairy back out again.

I was actually asking because so many dairy things can be so very beneficial, ESPECIALLY raw milk, ESPECIALLY raw goat's milk if you can get it. A lot of people who can't tolerate normal dairy can tolerate raw goat's milk. Actually, after the last time I got glutened, I became temporarily lactose intolerant for the first time. I found that taking a lactase with each meal made it completely tolerable for me, and I stuck with it because I so deperately need the calories. If you'd like to try either of those things, they sell lactase super-cheap at walmart, and the wesbite realmilk.org can help you find a goat's milk supplier in you area, if it's legal in your state. It'll cost you though, that's the only problem.

Any chance you could tell me what brand probiotics you're using?

melmak5 Contributor

I can get raw cow's milk, but not goat at this time... though I am not sure my body is down with either.

I take Jarro-Dophilus (4.4 billion per capsule, 8 species)

FloraSmart (6 billion per caplet, 10 species)

I chose them cause they are both dairy-free, gluten-free and are not suppose to break down in the stomach.

I take one capsule in the morning, when I get up, with a full glass of water. (I try to get ready, THEN eat breakfast, so they have time in there by themselves).

I usually take another one in the evening.

JNBunnie1 Community Regular

Hmm, well, sounds to me like you're doing everything right, as far as my knowledge extends. How long have you been gluten-free, by the way?

For foods that are healing to the digestive tract, I'd try Weston Price's website, also. I found a farm that sells goat milk out in Mendon, not sure if they're operational or taking new customers or if you'd really wanna drive that far....

melmak5 Contributor

I don't have a car, so I probably won't make the trip, but its really good to know its available.

Gluten free since mid-June, but I had a lot of trouble (ie - was taking a multivitamin with wheat, working in an office licking envelopes, etc. - I had a big learning curve with one of those doctors who called on the phone and said "you have celiac disease, go look it up on the internet and don't eat gluten)

Maybe some of this is reproductively related. Hopefully once that is cleared up the focus can be all digestive.

Thanks again!

JNBunnie1 Community Regular

Well, good lord girl, give yourself a minute to breathe! Very rarely does anyone get better right away, and I think it WILL take a while for the bacterial stuff in your system to straighten out. You're still healing, it may take some time. But you're doing the exactly right thing.

And if it makes you feel any better, I didn't know that rye was unsafe for over a year after I stopped eating wheat. Only recently was I able to confirm to myself that I have Celiac, I got DH for the first time. Up til a few months before then, I'd been glutening myself unknowingly, and not understanding why I was still so tired all the time, even though my GI symptoms went away. I only learned when I came to this board.

And there's always a chance there's a co-op for raw dairy in your neighborhood, maybe get in touch with your local celiac support chapter for ideas? That's only if you're only lactose intolerant though, if you have a casein issue there's no pill you can take for that.

melmak5 Contributor

I know, patience is not my thing.

It took the doctors 2 months to diagnose me, and I know in "celiac diagnosis time" that is but a speck, but it just feels like I have been sick and unwell for a lot longer. Being in the ER last week just took so much physically and emotionally out of me. I just feel beat.

I have had some difficulties contacting the local support group, perhaps summer is a busy time for people. I hear nothing but great things about them, so I am going to give them another shot.

I just, just found a woman who lives close by who picks up raw milk every 3 weeks, so there is a chance I can car pool.

I have never been tested for any dairy issues. Many years ago my doctor told me to try lactaid when I had some digestive problems (when I was diagnosed as being allergic to MSG) and it helped some of the time, but not all. Right now anything with fat has been an issue, but maybe I can give lactaid + yogurt a try and see how that fairs.

I have the overwhelming urge to frankenstein myself some new body parts and see how they do too.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JNBunnie1 Community Regular
I know, patience is not my thing.

It took the doctors 2 months to diagnose me, and I know in "celiac diagnosis time" that is but a speck, but it just feels like I have been sick and unwell for a lot longer. Being in the ER last week just took so much physically and emotionally out of me. I just feel beat.

I have had some difficulties contacting the local support group, perhaps summer is a busy time for people. I hear nothing but great things about them, so I am going to give them another shot.

I just, just found a woman who lives close by who picks up raw milk every 3 weeks, so there is a chance I can car pool.

I have never been tested for any dairy issues. Many years ago my doctor told me to try lactaid when I had some digestive problems (when I was diagnosed as being allergic to MSG) and it helped some of the time, but not all. Right now anything with fat has been an issue, but maybe I can give lactaid + yogurt a try and see how that fairs.

I have the overwhelming urge to frankenstein myself some new body parts and see how they do too.

Good idea! Just make sure it's plain yogurt, pref. organic, definitely don't need all that extra sugar. I add frozn fruit, like cherries, makes a yummy syrup when it melts, and it's just plain fruit.

jmd3 Contributor
- I had a big learning curve with one of those doctors who called on the phone and said "you have celiac disease, go look it up on the internet and don't eat gluten)

I had two drs tell me the same thing, one in office, one on the phone. It is a shocked because you have no idea where to go.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - science enthusiast Christi posted a topic in Coping with Celiac Disease
      0

      Sugar intolerance 10 years into gluten-free diet

    2. - trents replied to Healthierbody2026's topic in Introduce Yourself / Share Stuff
      1

      New at gluten sensitivity

    3. - Healthierbody2026 posted a topic in Introduce Yourself / Share Stuff
      1

      New at gluten sensitivity

    4. - knitty kitty replied to Jmartes71's topic in Coping with Celiac Disease
      12

      Related issues

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,462
    • Most Online (within 30 mins)
      7,748

    jjwejackso
    Newest Member
    jjwejackso
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • science enthusiast Christi
      Hey Celiac friends,  I'm wondering how weird I am. About a year ago, I started getting bloated all the time and having extremely smelly gas. Lots of it. I had to avoid people, keep windows open, etc. It really upended my life in a somewhat horrifying way. I figured out that if I didn't eat any sugar, the symptoms mostly resolved. With more experimentation, I found out that I'm intolerant to any disaccharides (things with sucrose, maltose) and some starches. I've since figured my small intestine stopped making some digestive enzymes. Since Celiac causes the immune system to attack the small intestine, I wonder if I was getting low-level gluten contamination from my environment. (My family eats gluten in our home, and I have to use a shared kitchen at work for lunch.)  I am apparently among the 2% of Celiacs who also have a similar reaction to soy. I've been avoiding both gluten and soy for over a decade now, but sometimes you just get poisoned. For example, I love my houseplants and bought an insect-preventing spray online. After spraying it on all my houseplants, I found out it has soybean oil. Sure enough, two days later I was sick. Soy is such a big ingredient used in everything, I doubt it's possible for me to avoid it completely. Everyone uses lotions with soy on their hands, so every doorknob and switch and item I touch is risky for me.  I was just wondering, has anyone else had carbohydrate intolerance after or related to Celiac? My doctor doesn't know anything about it, especially since I can still digest lactose. Wondering if there are other people out there with similar stories. If eating was complicated before, now it's a bit crazy to be honest.  Thanks, Community! 
    • trents
      Welcome to the celiac.com community, @Healthierbody2026! Just let me check something with you because there is still much confusion in the general population regarding the terminology associated with gluten disorders. You say you have recently been diagnosed with gluten sensitivity. Do you mean NCGS (Non Celiac Gluten Sensitivity) or Celiac disease (aka, "gluten intolerance")? The symptoms of these two conditions overlap. Celiac disease has an autoimmune base and so, there are tests that can be run to detect antibodies in the blood that are produced. Celiac disease does damage to the small bowel lining because of the inflammation present from the autoimmune attack. This is not the case with NCGS for which there are no tests. Celiac disease must first be ruled out in order to arrive at a diagnosis of "gluten sensitivity". 
    • Heatherisle
    • Healthierbody2026
      Hi I was recently diagnosed with gluten sensitivity I’m very new at this and trying learn everything I can about everything dealing with this any advice suggestions would be appreciated 
    • knitty kitty
      I take Niacin, bilberry, Omega threes, zinc, selenium, and Vitamins C and A for eye health, skin health and digestive tract health.  The skin, digestive system and eyes are all derived from basically the same sort of cells.  Niacin is extremely important to keeping these tissues healthy.    Niacin has be shown to prevent cataracts and improve eye health.  Niacin is turned into tryptophan which is necessary to heal the digestive tract.  Tryptophan is used to make Serotonin, a very important neurotransmitter in mood regulation.  Those with Niacin insufficiency become irritable and easily upset, angry, even. Niacin improves skin health.  The flushing of Niacin opens the smallest blood vessels in the skin so that waste products can more easily be removed.  I have Dermatitis Herpetiformis.  Niacin helps drain away those built up antibodies in the blisters and improve skin health.   Bilberry contains lutein and zeaxanthin and other anthocyanins,  potent antioxidants that help protect the eyes from macular degeneration and cataracts.  Bilberry has sGLT1 and GLUT2 which help to lower glucose levels by removing excess glucose from the bloodstream.  High blood glucose levels are bad for eye health.   Omega Threes are important to provide relief in dry eyes.  You are familiar with how oil floats on water.  Same thing happens with eyes.  Omega threes provide the oily layer that protects water from evaporating from the eyes causing dry eyes.  Omega threes in olive oil, sunflower seed oil,  and flaxseed oils will help improve dry eyes. Vitamin A and Riboflavin B2 are important in this function as well.   None of the medications I was given improved my dry eyes.  I increased my Omega threes and Vitamin A, and had improvement very quickly. Selenium and zinc are important in skin and eye barrier functions, too, and are important to preventing infections. When I take 100 mg of Niacin every three hours (but not more than 500 mg/day), my skin and eye health improves.  If one is deficient in Niacin, the flushing effects may be uncomfortable, but ride it out, continue taking Niacin and the flushing goes away as niacin stores inside cells are repleted.  When flushing, don't scratch!  Use pressure applied over a bigger area above the itch.  I wrap up in a towel or blanket to create the counter pressure.  The flushing goes away the longer one takes Niacin.  Don't use Niacinamide (the non flushing form of Niacin).   Other vitamins that improve eye health are Vitamin E and Pyridoxine B6 and Thiamine B1.  Most Vitamin E sold is derived from wheat germ, so find another source of Vitamin E.  I used Evening Primrose oil, also a source of healthy Omega threes and helps with female problems like perimenopause  and menopause symptoms. Do be aware that antifungals and antibiotics (as are frequently prescribed) destroy Thiamine.  Immunosuppressive drugs can suppress production of tTg antibodies.  Supplementing with thiamine above the RDA is safe and nontoxic.  RDA were set as the lowest amount to prevent illness.  Optimal health is seen in higher amounts.   Do talk to your doctor and dietician about supplementing essential nutrients.   References: https://pubmed.ncbi.nlm.nih.gov/39183990/ https://pubmed.ncbi.nlm.nih.gov/41156490/ https://pmc.ncbi.nlm.nih.gov/articles/PMC7602486/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.