Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened Vs. Uterus


melmak5

Recommended Posts

melmak5 Contributor

JNB - thank you, I know this is temporary, its just kicking my butt today.

Yes. I was on probiotics, before, during and after being on the antibiotics. I have switched and mixed two different brands, to make sure I was getting enough.

I have avoided dairy, corn and soy for the past two months. (I tried re-introducing all three on separate occasions and each caused more pain/bloating/D)

I will be honest that I have had a little bit of dairy of the past week. I know its counter intuitive to feel unwell and still eat something that is not helping with that, but dairy is kind of my world. I work in a cheese shop, I have made cheese, I just finished writing a piece on raw milk for a magazine.

I know about blue cheese and haven't touched the stuff, but I did put some cow's milk in my coffee this morning... that's the extent of my "dairy free cheating."

I will take dairy back out again.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JNBunnie1 Community Regular
JNB - thank you, I know this is temporary, its just kicking my butt today.

Yes. I was on probiotics, before, during and after being on the antibiotics. I have switched and mixed two different brands, to make sure I was getting enough.

I have avoided dairy, corn and soy for the past two months. (I tried re-introducing all three on separate occasions and each caused more pain/bloating/D)

I will be honest that I have had a little bit of dairy of the past week. I know its counter intuitive to feel unwell and still eat something that is not helping with that, but dairy is kind of my world. I work in a cheese shop, I have made cheese, I just finished writing a piece on raw milk for a magazine.

I know about blue cheese and haven't touched the stuff, but I did put some cow's milk in my coffee this morning... that's the extent of my "dairy free cheating."

I will take dairy back out again.

I was actually asking because so many dairy things can be so very beneficial, ESPECIALLY raw milk, ESPECIALLY raw goat's milk if you can get it. A lot of people who can't tolerate normal dairy can tolerate raw goat's milk. Actually, after the last time I got glutened, I became temporarily lactose intolerant for the first time. I found that taking a lactase with each meal made it completely tolerable for me, and I stuck with it because I so deperately need the calories. If you'd like to try either of those things, they sell lactase super-cheap at walmart, and the wesbite realmilk.org can help you find a goat's milk supplier in you area, if it's legal in your state. It'll cost you though, that's the only problem.

Any chance you could tell me what brand probiotics you're using?

melmak5 Contributor

I can get raw cow's milk, but not goat at this time... though I am not sure my body is down with either.

I take Jarro-Dophilus (4.4 billion per capsule, 8 species)

FloraSmart (6 billion per caplet, 10 species)

I chose them cause they are both dairy-free, gluten-free and are not suppose to break down in the stomach.

I take one capsule in the morning, when I get up, with a full glass of water. (I try to get ready, THEN eat breakfast, so they have time in there by themselves).

I usually take another one in the evening.

JNBunnie1 Community Regular

Hmm, well, sounds to me like you're doing everything right, as far as my knowledge extends. How long have you been gluten-free, by the way?

For foods that are healing to the digestive tract, I'd try Weston Price's website, also. I found a farm that sells goat milk out in Mendon, not sure if they're operational or taking new customers or if you'd really wanna drive that far....

melmak5 Contributor

I don't have a car, so I probably won't make the trip, but its really good to know its available.

Gluten free since mid-June, but I had a lot of trouble (ie - was taking a multivitamin with wheat, working in an office licking envelopes, etc. - I had a big learning curve with one of those doctors who called on the phone and said "you have celiac disease, go look it up on the internet and don't eat gluten)

Maybe some of this is reproductively related. Hopefully once that is cleared up the focus can be all digestive.

Thanks again!

JNBunnie1 Community Regular

Well, good lord girl, give yourself a minute to breathe! Very rarely does anyone get better right away, and I think it WILL take a while for the bacterial stuff in your system to straighten out. You're still healing, it may take some time. But you're doing the exactly right thing.

And if it makes you feel any better, I didn't know that rye was unsafe for over a year after I stopped eating wheat. Only recently was I able to confirm to myself that I have Celiac, I got DH for the first time. Up til a few months before then, I'd been glutening myself unknowingly, and not understanding why I was still so tired all the time, even though my GI symptoms went away. I only learned when I came to this board.

And there's always a chance there's a co-op for raw dairy in your neighborhood, maybe get in touch with your local celiac support chapter for ideas? That's only if you're only lactose intolerant though, if you have a casein issue there's no pill you can take for that.

melmak5 Contributor

I know, patience is not my thing.

It took the doctors 2 months to diagnose me, and I know in "celiac diagnosis time" that is but a speck, but it just feels like I have been sick and unwell for a lot longer. Being in the ER last week just took so much physically and emotionally out of me. I just feel beat.

I have had some difficulties contacting the local support group, perhaps summer is a busy time for people. I hear nothing but great things about them, so I am going to give them another shot.

I just, just found a woman who lives close by who picks up raw milk every 3 weeks, so there is a chance I can car pool.

I have never been tested for any dairy issues. Many years ago my doctor told me to try lactaid when I had some digestive problems (when I was diagnosed as being allergic to MSG) and it helped some of the time, but not all. Right now anything with fat has been an issue, but maybe I can give lactaid + yogurt a try and see how that fairs.

I have the overwhelming urge to frankenstein myself some new body parts and see how they do too.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JNBunnie1 Community Regular
I know, patience is not my thing.

It took the doctors 2 months to diagnose me, and I know in "celiac diagnosis time" that is but a speck, but it just feels like I have been sick and unwell for a lot longer. Being in the ER last week just took so much physically and emotionally out of me. I just feel beat.

I have had some difficulties contacting the local support group, perhaps summer is a busy time for people. I hear nothing but great things about them, so I am going to give them another shot.

I just, just found a woman who lives close by who picks up raw milk every 3 weeks, so there is a chance I can car pool.

I have never been tested for any dairy issues. Many years ago my doctor told me to try lactaid when I had some digestive problems (when I was diagnosed as being allergic to MSG) and it helped some of the time, but not all. Right now anything with fat has been an issue, but maybe I can give lactaid + yogurt a try and see how that fairs.

I have the overwhelming urge to frankenstein myself some new body parts and see how they do too.

Good idea! Just make sure it's plain yogurt, pref. organic, definitely don't need all that extra sugar. I add frozn fruit, like cherries, makes a yummy syrup when it melts, and it's just plain fruit.

jmd3 Contributor
- I had a big learning curve with one of those doctors who called on the phone and said "you have celiac disease, go look it up on the internet and don't eat gluten)

I had two drs tell me the same thing, one in office, one on the phone. It is a shocked because you have no idea where to go.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Midwesteaglesfan posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Going for upper endoscopy today

    2. - marlene333 replied to Grace Good's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Bee balm lipbalm not gluten free

    3. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues

    4. - Scott Adams replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    5. - catsrlife replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,267
    • Most Online (within 30 mins)
      7,748

    Kristine Ryder
    Newest Member
    Kristine Ryder
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Midwesteaglesfan
      At 41 years old I have been fighting fatigue and joint pain for a couple months.  My family doctor kept saying nothing was wrong but I was insistent that I just didn’t feel right.  Finally after running several blood labs, one came back showing inflammation in my body and I was referred to a rheumatologist.  He was extremely thorough and sat with me and my family for a good hour asking questions and listening. He ordered X-rays of all my joints and more bloodwork.  He suspected some sort of reactive inflammatory arthritis.  My TTG (Tissue Transglutaminase) came back at 34. he told me to try going gluten free and out me on Salfasalzin to help the join inflammation.  Over the next couple days going gluten free and doing a lot of research and talking to people with celiacs,  we found that I should have an upper endoscopy for insurance purposes in the future.  I reached back out to my rheumatologist and expressed this concern and he got back to me stating I was correct and resume regular gluten diet and stop the medication until after that scope.     They were able to schedule me in for 2 days later.  I had been gluten free, or as close to it as I could be for about 5 days.  I know I ate some brats with it but wanted to use them up.  My symptoms had gotten slightly better in those 5 days.  I felt less fatigue and joint pain was slightly better(it had gotten really bad) so for these last 2 days I’ve gone crazy with wheat bread, pasta and such.  I’m hoping those 5 days didn’t screw this endoscopy up.  I can’t imagine after a life of gluten, my intestines healed in 5 days and after eating gluten again for these couple days,  my stomach hurts, joint pain is coming back up so I know the inflammation is there.   Hinesight after this diagnosis, I have had chronic migraines since my late teens.  Has that been a lingering symptom of celiacs all these years?  I’ve never really had the stomach issues, for me it came in heavy these last couple months as the fatigue, just always feeling tired and exhausted.  And the joint pain.     So getting in the car for the 2 hour drive to the hospital for this scope now.     Wish me luck!
    • marlene333
      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
    • Mari
      jmartes, Thank you for sharing  more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some  medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is not a killer disease, it is a disabling disease as  you have found out. You have time to find some ways to help you recover. Stay on your gluten-free diet and be more careful in avoiding cross contamination . KnittyKitty  and others here can give you advice about avoiding some foods that can give you the gluten auto immune reaction and advice about vitamins and supplement that help celiacs. You may need to take higher doses of Vit. B12  and D3.  About 20 years before a Dr. suggested I might have Celiac disease I had health problems that all other Dr said they could not identify or treat. I was very opposed to alternative providers and treatments. So many people were getting help from a local healer I decided to try that out. It was a little helpful but then, because I had a good education in medical laboraties she gave me a book  to read and what did I think. With great skeptism I started reading and before I was half way through it I began using the methods outlined in the book. Using those herbs and supplements I went from hardly able to work to being able to work almost fulltime. I still use that program. But because I had undiagnosed celiac disease by 10 years later some  of my problems returned and I started to loose weight.    So how does a person find a program that will benefit them? Among the programs you can find online there are many that are snake oil scams and some that will be beneficial. by asking around, as I did. Is there an ND in your area? Do they reccomend that person? If you would like to read about the program I use go to www.drclark.net   
    • Scott Adams
      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    • catsrlife
      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady didn't even know what she was talking about and said "they never turn out as celiac, they usually just say it's dermatitis so here's your meds," just like my regular quack. I'm trying to change insurance companies at the moment and that has been a battle because of red tape, wrong turns, and workers having wrong phone numbers. What a joke! The allergy blood days say I have a wheat allergy of .31. Hopefully it's just that and until I find a decent doctor and dermatologist, I'll just lay off the wheat anyway, since it gives me asthma, high blood sugar, and joint pain. So frustrated at this point. The rash on my back of arms/elbows is mostly gone. Both calves and chest have started up. smh. It comes and goes. It fades faster now, though, although my forearms still produce one or two bumps on each side. The itching has calmed down a lot except for the bump area. I have dry skin to begin with so anything affecting it just makes it crazy. i'm never going to eat wheat again. I don't care if they need it to produce results or if it is just an intolerance, allergy, or celiac. It gives me hell.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.