Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Osteopenia


Mickide

Recommended Posts

Mickide Apprentice

I had a bone density scan on Monday and my doctor calls today saying it shows Osteopenia (?). I know this isn't uncommon in Celiacs. Aurg.. I am so frustrated all I can do is laugh! Like are you kidding me, here I am 33yrs old, I have lost 35lbs this year, have lost another 8 since I was diagnosed a few weeks ago(there is nothing left to lose), have the issues that come along with Celiacs, diagnosed with a heart condition 2 months ago and now Osteopenia!! What the heck, where do I start?? I am eatting healthier than I ever have. I am gluten-free/DF, now reading about other foods that can inhibit the absorbtion of calcium. I really just don't know where to start. I want to do this naturally, the Dr mentioned Fosomax, which I am not really interested in besides the fact I am breastfeeding my daughter. My Dr did say to take extra calcium and vit D and exercise 40 mins/day 6 days a week. Any ideas on naturally helping this out? Thanks for just letting me vent.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gemini Experienced

Good for you for not wanting to be goaded into taking Fosimax! Doctor's and their pills! I also have been told I have osteopenia but will not take bone pills for numerous reasons. I am older than you though, 48, so it should be easier for you to re-build your bones because you still have your hormones.

First off, once you remain gluten-free for awhile, you should start to absorb again. So, make sure you stay gluten-free and do not cheat so this can happen. Next, along with calcium, it's very important for you to take vitamin D3. Make sure it's D3 and not just labeled vitamin D. Research has shown that you can pretty much not overdose on the stuff so I am taking 2000 units per day. I have been told by my doctor it could probably be pushed all the way up to 5000 per day but to start lower. I recently had blood work done to see what my levels where and I could still use some more so that's what I take. As you are breastfeeding, make sure you check with your doctor before taking this amount....I'm sure it will be OK but I'm playing it safe here.

Also very important for calcium absorption is magnesium. I take a supplement for that too and, offhand, cannot remember the dose so could check that for you. All 3 taken together will give maximum effect.

Exercise is great but I am having trouble at the moment finding the time. I am thin anyway but my work schedule makes 6 days a week too difficult. I have to improve on that.

You are young still so you should not have to take Fosimax or anything along those lines. Having just had a baby, your hormone levels should be great and estrogen/progesterone will help build bones. I use bio-identical hormones at the moment and hope they help!

trents Grand Master

I am a 56 year-old male celiac with osteopenia. I'm on calcium and Fosamax and Vitamin D. I certainly can understand your reluctance to take Fosamax if you are breast feeding. I think for you the key would be weight resistance type exercise and Vitamin D supplementation. Celiacs tend not to absorb fat-soluble nutrients well, one of which is Vitaman D which as you probably know, is a key in calcium metabolism and strong bones. I recently started taking a 1000 IU vitamin D tab daily, in addition to what I'm getting from other sources such as milk, multivit, calcium tabs, etc. I think if you keep it under 2000 IU daily its safe. There is a lot of thought among nutritionists these days that most people don't get nearly enough Vitamin D since we work indoors and that the RDA is much too low. As far as calcium supplementation, there is a lot of controversy surrounding its effectivness but one key is to pair it with acidic foods and beverages as it is absorbed better in a low pH environment. A diet too high in calcium can actually inhibit calcium absorbption because calcium is a base mineral (the oppostie of acid) and tends to raise gut pH.

Steve

jkmunchkin Rising Star

If it makes you feel any better I also was told I have osteopenia and I'm 29. My doctor told me to take calcium 600 mg + Vitamin D 3x's a day and do excercise such as pilates. I was so excited to hear that I needed to take calcium 3x's a day, when the recommended dose for senior citizens is 2x's a day. (No, no sarcasm here. LOL)! Did I mention I'm 29!!!! Oh and if I remember correctly I was 28 when I found out I had osteopenia.

I'll be honest, I took 2 reformer pilates classes and it really hurt my back, so I haven't gone back. I had severe scoliosis and wore a back brace for 4+ years. The instructor kept insisting I wasn't on my center so I would shift where he told me to, but I felt centered and I think I was but it just didn't look it from above because I still have a bit of an S curve. I think this is what hurt my back and I'm just not sure if pilates is for me. I'm thinking of giving it another try.

Does anyone know when I should go back for a follow up scan to see if there has been any improvement?

SpikeMoore Apprentice

\\have been told that drinking carbonated beverages (soda pop) depletes calcium stores in your body due to the phosphate in it. So you could cut that out.

Some cities actually have osteoporosis exercise classes. My mom goes to one in London, Ont.

I agree with Steve who said that weight resistance training is important.

To Gemini, I will say to you what my husband says to me which is to ask you why you don't respect yourself enough to make time to do what you should to help your body heal. I have never been able to come up with a reply to that one. Being thin doesn't necessarily mean your bones are ok, apparently they need strong muscles to support them. Maybe you could seek out some sort of a trainer/therapist to get you going. I know that sometimes I feel too busy too, we all do, but do try. Ok, now I've talked myself into doing some weights (small weights). I find I can even accomplish something in as little as 10 minutes. Remember, any amount is better than nothing. You can do it!

Gemini Experienced

To Gemini, I will say to you what my husband says to me which is to ask you why you don't respect yourself enough to make time to do what you should to help your body heal. I have never been able to come up with a reply to that one. Being thin doesn't necessarily mean your bones are ok, apparently they need strong muscles to support them. Maybe you could seek out some sort of a trainer/therapist to get you going. I know that sometimes I feel too busy too, we all do, but do try. Ok, now I've talked myself into doing some weights (small weights). I find I can even accomplish something in as little as 10 minutes. Remember, any amount is better than nothing. You can do it!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Barcino posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Antibodies went up

    2. - jjiillee replied to jjiillee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      Daughter waiting for appointment

    3. - BoiseNic replied to BoiseNic's topic in Dermatitis Herpetiformis
      7

      Skinesa

    4. - knitty kitty replied to BoiseNic's topic in Dermatitis Herpetiformis
      7

      Skinesa

    5. - BoiseNic replied to BoiseNic's topic in Dermatitis Herpetiformis
      7

      Skinesa


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,308
    • Most Online (within 30 mins)
      7,748

    GoDawgs
    Newest Member
    GoDawgs
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Barcino
      Hello,  I cant get my daughter's TTG IGA antibodies to drop into the normal range. A bit of the backstory : both my kids were diagnosed in July of 2023. Both were >250 at diagnosis.  My son went from >250 July 2023  to 33 Nov 2023  to 15.7 July 2024. With <15 being negative. He is almost there.  My daughter went >250 July 2023 to 66.3 Dec 2023 to 31.7 July 2024 to now back up to 35.6.  We are a fully gluten free house and we do not eat out AT ALL in any restaurants other than one dedicated gluten-free bakery. We don't eat any oats. She takes anti epileptic drugs / vitamins so we are double checking all medications and supplements. One medication says they should be gluten free but cant guarantee excipients aren't contaminated so we will be changing that one to a different manufacturer.   Feeling a little worried that her levels are worse and we cant get her into the normal range. We are thinking about cutting dairy or doing the Dasani diet. She doesnt eat a crazy amount of processed food and what she has in gluten free certified and not made in shared lines but maybe we should cut it all out until her levels drop? Any other advice? We will check all personal products also, but we believe everything is gluten free. My son is away at school so trying to figure out what she does and eats that he doesnt. Chickpeas (canned), dairy (he doesnt eat much dairy due to acne) and of course her medications.   Thank you for any input you may have.
    • jjiillee
      She finally has her appointment today. They said in their opinion it’s likely celiac. But repeated the bloodwork today. Her frost bloodwork was weak positive 5.3 (4-10 is a weak positive) Dr wanted her own labs. And they will be calling us to schedule the endoscopy.  They told her to keep Eating gluten. She has been eating is again for the last couple weeks. 
    • BoiseNic
      Agreed. Dairy is just as bad as gluten for me.
    • knitty kitty
      Many probiotics start with growing the bacteria on a dairy substrate leaving traces of dairy in the probiotics.   Many Celiacs react to dairy in the same way as they react to gluten because certain protein chains in dairy resemble gluten protein chains.   @Wheatwacked ferments his own pickles.  Perhaps he can chime in.
    • BoiseNic
      Yes it happens if I eat yogurt to.
×
×
  • Create New...