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Alaska Rookie

Does anyone else have trouble holding down a regular job? I am a Children's Librarian and just got offered a great job but after a few day's had to opt out because I'm just not a reliable employee anymore. I'm wondering if I'll ever be able to function in the world again. I was also just told I have candida as well, which doesn't help. Is this as good as it gets or can you really get better. I've never had many of the GI trouble, thank goodness. Mostly the neuro problems, brain fog, left side trouble. Has anyone had any success dealing with this?

Just wanted to let you people know I think you're the greatest. This certainly doesn't effect the heart and kindness.

The Greeks always say it's the heart that matters! That's definitely evident here. Efkaristo everyone.


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GFhopeful Rookie

Definitely something I'm worried about right now too as I am supposed to be going back to work full-time after the summer off. No stamina, off days, and continued issues make it hard for me to believe that I can be the reliable employee that I was a short while ago. Don't know what I'll do yet but am going to try it out and see from there. I have an upcoming appointment at Mayo Clinic to hopefully figure out if this is Celiac recovery for me or if I have something else going on too. Maybe that's why we aren't healing as quickly. I hope that this is temporary though and a part of getting better. Good luck to you.

gfgypsyqueen Enthusiast

After years of traditional drs just not figuring out my health problems or brushing me off with the standard "It's female problems!" etc. I now look heavily to alternative Drs. Go to traditional Drs for certain critical issues like cancers etc, but the alternative holistic drs are the ones who know how to make your body work together and work properly. Get them to recommend some high quality good for your particular body vitamins and minerals and you will see a world of difference. I have always had the best luck with the holistic drs recommended from healthfood stores or someone you know.

Hope you feel better soon, and yes, your body will settle down and you will be able to hold down a normal job and be a healthy person again. Sometimes it just takes a while to get your body to heal and start functioning again.

SillyBoo Newbie

I also found it difficult to work a regular full-time job. I was diagnosed last fall, while out on medical leave (I couldn't work at all at that point). I ended up quitting my job after a few very frustrating months back at work. My brain fog and fatigue, although better once off gluten, interfered too much for me to do a good job. So, I am now doing consulting work part-time. It is much better, but I still have difficulty with deadlines when I'm not feeling great. I am hoping this will get better over time.

I hope you are able to find something that works better for you (part-time? flexible hours?). How long have you been gluten-free? I am also curious about how others manage to work, and if it does get better after the first year or two.

blueeyedmanda Community Regular

I found I had a much worse time prediagnosis at work than after. Once I got onto the diet the GI problems I was having which was what was the problem at my job more or less cleared up. This was a help. The rest of the problems eventually worked out and I was fine. I found what helped me was getting my body on a routine. At the time I was working 2nd shift, so I made sure to eat lunch at a certain time and to stick to it. Not sure if this will help or not. Another thing that was a big bother for me was worrying...worrying if I would get sick or if everything would fall apart.

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    • trents
      Okay, it does make sense to continue the gluten challenge as long as you are already in the middle of it. But what will change if you rule it out? I mean, you have concluded that whatever label you want to give the condition, many of your symptoms improved when you went gluten free. Am I correct in that? According to how I understand your posting, the only symptom that hasn't responded to gluten free eating is the bone demineralization. Did I misunderstand? And if you do test positive, what will you do different than you are doing now? You have already been doing for years the main thing you should be doing and that is eating gluten free. Concerning how long you should stay on the gluten challenge, how many weeks are you into it already?
    • WildFlower1
      I mean that I will be re-taking the celiac blood test again while I am currently on the gluten challenge right now, but not sure how many weeks more to keep going, to ensure a false negative does not happen. Thank you.
    • WildFlower1
      Thank you for your help, I am currently in the middle of the gluten challenge. A bit over 6 weeks in. At 4 weeks I got the celiac blood tests and that is when they were negative. So to rule out the false negative, since I’m in the middle of the gluten challenge right now and will never do this again, I wanted to continue consuming gluten to the point to make sure the blood tests are not a false negative - which I did not receive a firm answer for how many weeks total.    My issue is, with these blood tests the doctors say “you are not celiac” and rule it out completely as a potential cause of my issues, when the symptoms scream of it. I want to rule out this 30 year mystery for my own health since I’m in the middle of it right now. Thank you!
    • trents
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    • WildFlower1
      Sorry to put it clearly, at 15, infertility started (tried to word it nicely) meaning menstruation stopped. Which is in correlation to celiac I mean. Thank you. 
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