Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Itchy Skin But No Rash


Janessa

Recommended Posts

Janessa Rookie

I have had very itchy skin for years that would itch so bad I would actually scratch it in my sleep and wake up with scabs. I never thought it was really related to anything until I went gluten free and it went completely away, and if I get glutened I get itchy again for about a week but I have never had a rash or bumps. Does anyone else get this? Is it DH if there is no rash?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sparkles Contributor

I have literally scratched the skin off because of this itch... no bumps, just itch! I don't think it is DH. I had a skin dr check it and the biopsy came back not DH. Of course, he could only biopsy the areas that were scratched off as there were no bumps. I wonder if besides celiac disease it could be an allergy to wheat though the allergy tests on wheat came back NO ALLERGY. I do have a dairy allergy and maybe that is what causes the itch. Whatever, I just spray on cortisone to control itch and try to watch intake of dairy.

Josina Newbie

When I am really down on my water I get really itchy. Maybe you just need to drink more water?

I used to get alot of rashes, but now that I am gluten free I have no problems with rashes at all. My skin does get pretty itchy but only when I am down on my water. I have been diagnosed with celiac disease, but I have observed that this disease makes people react in different ways.

If I consume gluten by accident, I usually end up with a few small bumps here and there, but whether that is from DH I am not sure.

When I used to consume gluten, I would get this horrible rash all over my arms and back. I went to several doctors over the past ten years and they never could figure out what it was. I am now free of all that.

Best of luck figuring it out!

wowzer Community Regular

I had itchy dry skin all of my life. I went gluten free the beginning of the year and my skin is so much better. I used to always itch after a shower, now I don't. I just wish I'd figured it out years ago. It is so nice not to itch all of the time. I will say if I get glutened, I may get a few itchy spots, but at least it isn't so intense.

  • 1 month later...
Joan (Maine) Newbie
I have had very itchy skin for years that would itch so bad I would actually scratch it in my sleep and wake up with scabs. I never thought it was really related to anything until I went gluten free and it went completely away, and if I get glutened I get itchy again for about a week but I have never had a rash or bumps. Does anyone else get this? Is it DH if there is no rash?
Joan (Maine) Newbie
I have had very itchy skin for years that would itch so bad I would actually scratch it in my sleep and wake up with scabs. I never thought it was really related to anything until I went gluten free and it went completely away, and if I get glutened I get itchy again for about a week but I have never had a rash or bumps. Does anyone else get this? Is it DH if there is no rash?

Yes, I itch without actually breaking out....with small amounts of gluten, dairy and/or iodine. as time goes on I react more quickly and to smaller amounts. My blisters have actually been small and mostly on my face and scalp....it took six months to get a dermatologist appt. so naturally I was clear when the appt. came around. The derm. did agree to try to see me on short notice if I accidently get ingest dairy, gluten or iodine and have an outbreak. I do itch with a small rash on my shins and upper back

  • 6 years later...
tonalynn Explorer

I don't know if this is related to my recent celiac diagnoses or not. But it seems like other people here have intensely itchy skin and no rash or DH.

 

I've been gluten free for about 10 weeks (I don't really feel any different yet). Every now and then (no rhyme or reason to it) I will have an itch on either my arms, legs or back that is SO itchy! Sometimes it feels like my entire body is just one big ITCH! If I try to ignore the itch and not scratch it, it becomes so painful that I've actually twitched involuntarily because of it. No matter what I do, the itch won't stop, sometimes for hours. I haven't broken skin yet, but I do break capillaries under the skin, because I will develop a rash of red spots just under the skin. Or scratch marks where the capillaries have broken in a line.

 

They occasionally wake me up, or I'll have an itch that I think is minor and scratch it and WHAM! It turns into the super painful itch. Itch relief creams, heavy duty moisturizers, cortizone, ice packs...none of them help. Once I was so itchy in the middle of the night I had to take a shower and scrub everything with a loofah just to stop the itching! I've tried taking Benedryl if I'm itchy before bed. I figure even if it doesn't stop the itch, maybe I'll just sleep through it!

 

I have no rash or telltale signs of DH. I have a bit of Keratosis Pilaris on the back of my arms I've had most of my life, but that's not always where I get itchy. I haven't ingested any gluten (that I'm aware of, as I don't seem to get the intense symptoms from it) in the last 10 weeks, but the itch is the same.

 

Could it be related to celiac? Or am I being paranoid and thinking everything that's wrong with me is celiac-related? ;-)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

Tonalyn, you've posted to a thread that is from 2007, I doubt any of those ppl are still hanging around here.

 

What you describe is likely related to gluten. Celiacs get lots of rashes & skin stuff. It's possible that you have something like pre dh but you've gone gluten-free now so that itch should begin to die down sooner or later.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      315

      Terrible Neurological Symptoms

    2. - Russ H replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

    3. - Jane02 replied to HectorConvector's topic in Related Issues & Disorders
      315

      Terrible Neurological Symptoms

    4. - Jane02 replied to HectorConvector's topic in Related Issues & Disorders
      315

      Terrible Neurological Symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,585
    • Most Online (within 30 mins)
      7,748

    canmich111
    Newest Member
    canmich111
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • HectorConvector
      These symptoms started initially in 2009/2010 and I've had normal blood sugar readings in all the blood tests - so never been diagnosed with diabetes or pre-diabetes. I did request another blood test recently (yesterday in fact) which I have had, and if the blood sugar looks high it'll come up in my results which I'll be able to see next week. I don't have any other symptoms relevant to diabetes except for the nerve pain, which had been in existence for many years with "normoglycaemia", but we'll see. In terms of my current diet: I get roughly 60% of my calories from fat and protein, and 40% from carbs (an estimation). I'm on currently about 2200 calories per day, which is too low for someone of my size, so I've been slowly losing weight that I want to put back on again. But I don't want to do that without using weights, which flare my pain up unfortunately. 
    • Russ H
      I used to react very badly to milk - much worse than to gluten and I was always worried about exposure. Any diary product would make me extremely ill and put me out of action for 5 days or so. I would have watery and bloody diarrhoea, bloating, malaise and be unable to eat. If I recall correctly, it was about a year after being diagnosed with coeliac disease and going on a strict gluten free diet that I accidentally consumed dairy products and didn't react. From then on, I have been fine with diary. 
    • Jane02
      Sorry, I just realized how old this thread is and only read the initial post from 2021. I'll have to catch up on the comments in this thread. 
    • Jane02
      Sorry to hear you're going through such a hard time. It would be worth looking into MCAS/histamine issues and also Long Covid. Perhaps there is something occurring in addition to celiac disease. It would be worth ruling out micronutrient deficiencies such as the b vitamins (B12, folate, B1, etc), vit D, and ferritin (iron stores). 
    • knitty kitty
      This sounds very similar to the neuropathic pain I experienced with type two diabetes.  Gloves and boots pattern of neuropathy is common with deficiencies in Cobalamine B12 (especially the pain in the big toe), Niacin B3, and Pyridoxine B6.  These are vitamins frequently found to be low in people with pre-diabetes and diabetes.  Remember that blood tests for vitamin levels is terribly inaccurate.  You can have vitamin deficiencies before there are any changes in blood levels.  You can have "normal" serum levels, but be deficient inside organs and tissues where the vitamins are actually utilized.  The blood is a transportation system, moving vitamins absorbed in the intestines to organs and tissues.  Just because there's trucks on the highway doesn't mean that the warehouses are full.  The body will drain organs and tissues of their stored vitamins and send them via the bloodstream to important organs like the brain and heart.  Meanwhile, the organs and tissues are depleted and function less well.   Eating a diet high in simple carbohydrates can spike blood sugar after meals.  Eating a diet high in carbohydrates consistently over time can cause worsening of symptoms.  Thiamine and other B vitamins like Niacin B3 and Pyridoxine B6, (which I noticed you are not supplementing), are needed to turn carbs, proteins and fats into energy for the body to use.  Alcohol consumption can lower blood sugar levels, and hence, alleviate the neuropathic pain.  Alcohol destroys many B vitamins, especially Pyridoxine, Thiamine and Niacin.  With alcohol consumption, blood glucose is turned into fat, stored in the liver or abdomen, then burned for fuel, thus lowering blood glucose levels.  With the cessation of alcohol and continued high carb diet, the blood glucose levels rise again over time, resulting in worsening neuropathy.   Heavy exercise can also further delete B vitamins.  Thiamine and Niacin work in balance with each other.  Sort of like a teeter-totter, thiamine is used to produce energy and Niacin is then used to reset the cycle for thiamine one used again to produce energy.  If there's no Niacin, then the energy production cycle can't reset.  Niacin is important in regulating electrolytes for nerve impulse conduction.  Electrolyte imbalance can cause neuropathic pain.   Talk to your doctors about testing for Type Two diabetes or pre-diabetes beyond an A1C test since alcohol consumption can lower A1C giving inaccurate results. Talk to your doctors about supplementing with ALL eight B vitamins, and correcting deficiencies in Pyridoxine, Niacin, and B12.  Hope this helps! Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ P. S.  Get checked for Vitamin C deficiency, aka Scurvy.  People with Diabetes and those who consume alcohol are often low in Vitamin C which can contribute to peripheral neuropathy.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.