Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Itchy Skin But No Rash


Janessa

Recommended Posts

Janessa Rookie

I have had very itchy skin for years that would itch so bad I would actually scratch it in my sleep and wake up with scabs. I never thought it was really related to anything until I went gluten free and it went completely away, and if I get glutened I get itchy again for about a week but I have never had a rash or bumps. Does anyone else get this? Is it DH if there is no rash?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sparkles Contributor

I have literally scratched the skin off because of this itch... no bumps, just itch! I don't think it is DH. I had a skin dr check it and the biopsy came back not DH. Of course, he could only biopsy the areas that were scratched off as there were no bumps. I wonder if besides celiac disease it could be an allergy to wheat though the allergy tests on wheat came back NO ALLERGY. I do have a dairy allergy and maybe that is what causes the itch. Whatever, I just spray on cortisone to control itch and try to watch intake of dairy.

Josina Newbie

When I am really down on my water I get really itchy. Maybe you just need to drink more water?

I used to get alot of rashes, but now that I am gluten free I have no problems with rashes at all. My skin does get pretty itchy but only when I am down on my water. I have been diagnosed with celiac disease, but I have observed that this disease makes people react in different ways.

If I consume gluten by accident, I usually end up with a few small bumps here and there, but whether that is from DH I am not sure.

When I used to consume gluten, I would get this horrible rash all over my arms and back. I went to several doctors over the past ten years and they never could figure out what it was. I am now free of all that.

Best of luck figuring it out!

wowzer Community Regular

I had itchy dry skin all of my life. I went gluten free the beginning of the year and my skin is so much better. I used to always itch after a shower, now I don't. I just wish I'd figured it out years ago. It is so nice not to itch all of the time. I will say if I get glutened, I may get a few itchy spots, but at least it isn't so intense.

  • 1 month later...
Joan (Maine) Newbie
I have had very itchy skin for years that would itch so bad I would actually scratch it in my sleep and wake up with scabs. I never thought it was really related to anything until I went gluten free and it went completely away, and if I get glutened I get itchy again for about a week but I have never had a rash or bumps. Does anyone else get this? Is it DH if there is no rash?
Joan (Maine) Newbie
I have had very itchy skin for years that would itch so bad I would actually scratch it in my sleep and wake up with scabs. I never thought it was really related to anything until I went gluten free and it went completely away, and if I get glutened I get itchy again for about a week but I have never had a rash or bumps. Does anyone else get this? Is it DH if there is no rash?

Yes, I itch without actually breaking out....with small amounts of gluten, dairy and/or iodine. as time goes on I react more quickly and to smaller amounts. My blisters have actually been small and mostly on my face and scalp....it took six months to get a dermatologist appt. so naturally I was clear when the appt. came around. The derm. did agree to try to see me on short notice if I accidently get ingest dairy, gluten or iodine and have an outbreak. I do itch with a small rash on my shins and upper back

  • 6 years later...
tonalynn Explorer

I don't know if this is related to my recent celiac diagnoses or not. But it seems like other people here have intensely itchy skin and no rash or DH.

 

I've been gluten free for about 10 weeks (I don't really feel any different yet). Every now and then (no rhyme or reason to it) I will have an itch on either my arms, legs or back that is SO itchy! Sometimes it feels like my entire body is just one big ITCH! If I try to ignore the itch and not scratch it, it becomes so painful that I've actually twitched involuntarily because of it. No matter what I do, the itch won't stop, sometimes for hours. I haven't broken skin yet, but I do break capillaries under the skin, because I will develop a rash of red spots just under the skin. Or scratch marks where the capillaries have broken in a line.

 

They occasionally wake me up, or I'll have an itch that I think is minor and scratch it and WHAM! It turns into the super painful itch. Itch relief creams, heavy duty moisturizers, cortizone, ice packs...none of them help. Once I was so itchy in the middle of the night I had to take a shower and scrub everything with a loofah just to stop the itching! I've tried taking Benedryl if I'm itchy before bed. I figure even if it doesn't stop the itch, maybe I'll just sleep through it!

 

I have no rash or telltale signs of DH. I have a bit of Keratosis Pilaris on the back of my arms I've had most of my life, but that's not always where I get itchy. I haven't ingested any gluten (that I'm aware of, as I don't seem to get the intense symptoms from it) in the last 10 weeks, but the itch is the same.

 

Could it be related to celiac? Or am I being paranoid and thinking everything that's wrong with me is celiac-related? ;-)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

Tonalyn, you've posted to a thread that is from 2007, I doubt any of those ppl are still hanging around here.

 

What you describe is likely related to gluten. Celiacs get lots of rashes & skin stuff. It's possible that you have something like pre dh but you've gone gluten-free now so that itch should begin to die down sooner or later.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    2. - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    3. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    4. - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    5. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,832
    • Most Online (within 30 mins)
      7,748

    Duhgirl
    Newest Member
    Duhgirl
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.