Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Increased Gi Symptoms After Going Gluten-free


JolieLuLu

Recommended Posts

JolieLuLu Newbie

Hello everyone,

I have been reading the message board for several months and finally I am making my first post.

I have been gluten free for about a month and NOW I have terrible gas, increased looses BMs and intestinal spasms! (I know details)...

Prior to going gluten free--I was constipated and had no other GI symptoms.

Anyone else have this experience?

Thanks,

jolie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mftnchn Explorer

Hi, Joilie, Welcome!!!

My response wasn't as dramatic, but definite changes started at Day 10. I had struggled with the big C too. It is like my body is making major adjustments. I also had a period where I was bloated and very uncomfortable for days, the first month. The twinges started about 1 week, but haven't really been having severe spasms.

I haven't had much loose stool yet, in fact, have been taking huge doses of Vitamin C and magnesium just to be able to go a little bit every day--and that occasionally does bring on a loose stool. However, what is significant is that I have started to be able to cut back on that amount. I can't quite find the right amount---which may be partly due to the ups and downs of the healing process. Remember it takes 1-2 years for our intestines to heal.

Also remember many celiacs alternate between C and D, so you have perhaps shifted from C, to C + D, as a stage of your healing.

I think that the shift is really significant, and that maybe you should just hang in there. If you are too miserable with it you might consider trying milk free, as many of us don't tolerate milk well, especially in the first few months. (The casein protein is similar to gluten, and the enzyme to digest lactose in milk is made in the tips of the villi. With our messed up villi--we don't make the enzyme until we heal).

Personally, going soy free last month as well has seemed to help me a lot. (Actually almost totally have avoided legumes as well).

Hope this helps!

hathor Contributor

I agree with what mftnchn said.

I always was a C sort myself. But at about week 3 I had this incredible D experience. (Didn't know I had that capacity :lol: ) For maybe the next month, my system was up and down. Then things slowly became more normal.

Given my experience, I've been noticing all the people who have a similar experience. It doesn't seem to be too uncommon. It is as if one's body has to adjust to being gluten-free and is trying to learn how to work. Or perhaps there is gluten adhering to the gut and the body finally is trying to purge itself of the nasty stuff? Whatever is involved, it happens and then it gets better.

Again, cut out dairy and see if that helps. Hang in there and realize it does get better.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Manaan2 replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Hidden Gluten in distilled vinegar

    2. - BIg Nodge replied to BIg Nodge's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Opinions on my test results/symptoms

    3. - Dawn Meyers replied to Dawn Meyers's topic in Related Issues & Disorders
      16

      Vaccines

    4. - Scott Adams replied to Dawn Meyers's topic in Related Issues & Disorders
      16

      Vaccines

    5. - Dawn Meyers replied to Dawn Meyers's topic in Related Issues & Disorders
      16

      Vaccines


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,852
    • Most Online (within 30 mins)
      7,748

    Mahogany
    Newest Member
    Mahogany
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Manaan2
      @knitty kitty  The information you've provided is invaluable!  I have a lot more homework to do before we make the official switch but you have significantly increased my hope that we can get her off Miralax (she started at 3 years old and is almost 8!).  This weekend my husband and I plan to solidify all the details for a start point, then adjust as we go along.  I realize that everyone's body is different, then there's also the fact that she's a child but just out of curiosity if you don't mind sharing and if you'd rather not, no problem at all-how long did you take Miralax before switching and when you switched, did you just completely stop the Miralax or was there a period where you did Miralax and the supplements?  I plan to research that piece this weekend but just curious what you did.  
    • BIg Nodge
      Scott, thanks so much for the thoughtful replies. My doctor did actually just re-order thyroid labs to see what is going on with my TPOs. I agree that will be interesting information.  I think I know the answer to this, but as far as the biopsy . . .. that would be quite conclusive as far as celiac goes, but a negative result would not rule out NCGS, correct? Does NCGS also cause damage to the lower intestine/leaky gut?  I appreciate the thought that I should be open-minded to other causes. I did not have dysautonomia on my radar, so I will look into that. From a quick scan at the potential symptoms it seems like almost anyone could convince themselves they have it, very broad! I can see why that is a tricky one to diagnose. I did also show low vitamin D, I'm in New England so that is somewhat common. I have a memory of low iron on some lab result as well but I can't find it, so I'll look into that. My cholesterol is high too, so working on that.  While the initial adjustment was tough, I have actually adapted fairly well to going gluten-free at home. The tough part for me is I love eating out and traveling, so that has been a challenge. I suppose if the answer ends up being NCGS then I could maintain a mostly gluten-free diet but also experiment with the occasional splurges. Snowboarding just doesn't feel right without a beer in the lodge . . ... cider is just not the same!  Thanks again.  
    • Dawn Meyers
      I did some research and found out that vaccines put preservatives, sugar alcohols and metals in them. Which I have a intolerance too.  I was supposed to do testing to find out metal's I was allergic to because I can't  wear jewelry of any kind. Mayo felt I had other allergies also.
    • Scott Adams
      For individuals who have experienced negative reactions to the flu vaccine, there are alternative formulations that may reduce the risk of allergic responses. Traditional flu vaccines are typically produced using egg-based methods, which can pose issues for those with egg allergies. However, there are now several egg-free options available, such as cell-based and recombinant flu vaccines. Recombinant Vaccines (e.g., Flublok Quadrivalent): These are produced without the use of eggs and are grown in insect cells, making them a suitable option for individuals with egg allergies. Cell-Based Vaccines (e.g., Flucelvax Quadrivalent): These vaccines are also egg-free and are produced using mammalian cell cultures, which can be a safer alternative for those with egg allergies. Other Considerations: If you have had a reaction to a specific component of the flu vaccine (e.g., gelatin, preservatives, or antibiotics), discussing your medical history with a healthcare provider is crucial. They can help identify vaccines that exclude these ingredients. It's important to consult with an allergist or healthcare provider to determine the safest option based on your specific allergies and medical history. They can also provide guidance on pre-vaccination testing or desensitization protocols if necessary. Also, at @trents mentioned, could you be getting hidden gluten in your diet? Do you eat in restaurants? If so, this could be why you still have high gluten antibodies.
    • Dawn Meyers
      Mayo is great and yes I had the same experience.  They take you seriously and they check everything.  I to wish other Dr's cared that much. I sure hope it's not refractory celiac also.  
×
×
  • Create New...