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Anyone Had Positive Diagnosis After Neg Bloodwork? Doc Wants To Scope Next Friday.

luvmytwoboys

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luvmytwoboys Newbie
luvmytwoboys
Posted

Hi everyone. I am VERY new to this, and have lots of questions. My almost three year old son went to the hospital in July with dehydration related to some diarreah that we think came on from an antibiotic. However, after the antiobiotic was through, the diarreah persisted. He has had it for two months. Luckily, I have a very good relationship with our pedi GI (he treated both my boys for severe milk protein allergies and reflux as infants) So, he called me at home last saturday night and said he wanted to see him right away monday morning. We went in Monday and he told me that he really didn't like my son's appearence. He still has dark circles under his eyes, tired, skinny with a distended abdomen (only after he eats) and jsut not glowing like kids do, know what I mean? He's almost three, 35-36 inches tall and 28 pounds. He also seems VERY irritable with everyone.

So, he orders a bunch of labwork. Here's what they called with today...they said everything so far is coming back negative. They are still waiting on the IgA results becuase if it comes back low, then we have a false negative. He wants to go ahead and scope him next friday and in the meantime we won't get the IgA results back until Tuesday because of Labor Day being Monday.

What do you guys think? Has anyone ever gotten a positive diagnosis after having negative bloodwork? I know that this will most likely be resolved next Friday when he looks inside. But I am going to crazy in the meantime wondering if everyhting I feed him is like poison to his little system.

Just looking for some advice, words of encouragement, and your experience getting a diagnosis. Thanks in advance for any wisdom or help.

Allison

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gfgypsyqueen Enthusiast
gfgypsyqueen
Posted

Hi, Yes, my blood work was negative and my scope was "text book celiac" positive biopsy.

I think diagnosing kids has got to be the hardest. My youngest is 2.5 and she has been blood tested and scoped. The scope was inconclsuive. So after months of dairy free helping but not making her better, she is now gluten-free/CF and seems to be doing better. Actually tomorrow is her 1 mth gluten-free anniversary. She has already had accidental gluten and back comes the diarrhea and rash. I think she is a celiac, but I need to wait a few months to see growth and health changes. She has only started to put on a little growth and weight since going dairy free. I am hoping now that she is gluten-free CF she will really start to grow fast and gain some weight.

IMO, if you have a dr who is willing to scope to look for celiacs, go with it. Rule out celiacs if you can. Make sure the dr takes enough biopsies and sends them to a good lab. Remember to keep feeding plenty of glutenous foods before the biopsy. Going gluten-free before the biopsy will skew the results.

Best of luck. I know it is really hard watching your little one feel terrible and worrying about their health. If the results are positive, everyone on here has ideas for foods and snacks.

natalie Apprentice
natalie
Posted

Mine blood work was negative, but I was Marsh 4 ( completely flat ) in my biopsy.

Guest j_mommy
Guest j_mommy
Posted

I would do the scope too, it is definetly possible for the scope to be positive. I had the dark circles under my eyes as well...those went away after going gluten-free.

Also I would do the testing b/c what if you put your child on a gluten-free diet and then the child wants to know for sure later? Than they have to do a gluten challenge and that is definetly not something I would want to go through.

Good Luck!

luvmytwoboys Newbie
luvmytwoboys
Posted
  • Author

Thanks for the replies. We are scoping on Friday. I can't wait to find out what is going on with my little boy. I am SO ready for the black circles around his eyes to go away. I can't imagine what people must think. They probably think I don't ever let him sleep. And people are ALWAYS asking me if I feed hime becuase he is so skinny. I really hope we can take care of those things on Friday.

I will be sure to post an update after the scope and let you know what we found out. Thanks again.

Allison

buffettbride Enthusiast
buffettbride
Posted

My DD also had the dark circles before dx and they have disappeared as well since going gluten-free. Her eyes have actually always been a good indicator of when she was getting sick. The normal bruise-ish look would turn red when she was getting a bonafide illness such as fever, strep, etc.

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