Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Encouragement Needed!


moozicteacher

Recommended Posts

moozicteacher Newbie

Hi everyone! I am new and very annoyed. I have not been officially diagnosed with Celiac, but the doctors can't find anything else wrong with me, so my doc suggested that I go gluten/dairy free for a few months to see if it would help.

Ok, how does anyone with a life manage to do this!!!??? I have 2 small children and am a music teacher who works 60+ hours a week. I can't even frickin' go to the bathroom by myself, how can I possibly check every ingredient in every thing that I eat??

The list of "forbidden" things is ridiculous! I can't even pronounce and have never heard of most of them.

I "get" that this is what I need to do to feel better, but I have a feeling that I'll probably never feel better because I'm pretty sure I'll never be able to follow this.

I know this is a horribly negative attitude, but I'm a diagnosed compulsive overeater/binge eater, and I've been trying really hard to do Weight Watchers, but even THAT is difficult for me, and it's not even really that restrictive!

I'm feeling very frustrated. Does anyone have any words of wisdom, encouragement, ways to make this easier, etc?

Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Eriella Explorer

First of all, welcome to the board. Second of all, it really isn't that hard after you get through the initial month. It almost becomes like second nature.

I would buy a george forman grill and a rice maker, and start from there. For dinners grill meat with McCormick spices and make rice with Knnox Bullion or make a stew in the crock pot with veggies, meat or beans, and McCormick spices. It may get old, but it will make your feel better. For breakfast make eggs or eat gorilla munch cereal (kids love it!). Then for lunch eat either leftovers, peanut butter on a corn tortilla, or taco dip (McCormick's taco seasoning in a pan with ground beef and pinto beans). Don't eat out because it will just frustrate you and try to avoid processed foods. In a month or two you will feel so much better and will be able to start dealing with trying to understand the food labels. Also, if you do have a gluten issues, you will have so much more energy that it will become easier.

Also, shop at Wal-mart or wegmans. They label their generics gluten-free, so it is easy to know what is safe, plus the prices are reasonable. A lot of people think that this diet will take a lot of time and that cooking from scratch is going to be awful. I have a bunch of recipes which take 30 minutes from the time I enter the kitchen to the time we eat, and then freeze well so you only have to cook 1 or 2 nights a week. If you want my recipes, let me know.

If you need anything, please ask. We have all been through this!

moozicteacher Newbie

Thank you for responding. I would like any recipes that you have, that would be great.

The other thing is- does your family eat what you eat? My son is a picky eater and my husband doesn't eat any vegetables (or much other healthy foods). As a teacher- I can absolutely not afford to buy specialty things for myself AND food for them!!

Good Lord, I'm getting more and more frustrated!! ACK!!

missy'smom Collaborator

Welcome :)

Maybe this is not the most encouraging suggestion but, one approach would be eating only things made by nature, not by manufacturers, at least temporarily. I managed gestational diabetes by diet alone and I just took the list of foods and servings that they gave me and started over as if no other foods existed in the world and said OK what can I make with these. A similar approach may bring you quicker results and be less of a headache as far as reading labels go. Take one weekend and Set it up so when you open the fridge or pantry everything is safe. Plan a weeks worth of meals-write it down and then repeat it again the next week with minor changes or more changes as you feel up to it. If you can come up with enough meals for a week you can survive quite a while. It's also less headache and less time shopping if you buy the same stuff over again. As you feel better and are able to cope more you can read labels and introduce products back into your life. Or do this plus only things labeled gluten-free. Also when I was Diabetic I said, this is only three months out of my whole life and when I started gluten-free I said OK, I'm setting aside this year to get better, that's my whole goal for the year. I don't know how to explain this better but It really helped me. It relieved the pressure and stress rather than making more.

You can start a thread here entitled " what did you have for breakfast" and everyone will post their menues, most list brand names, many have done it in the past and if you do a search for "breakfast" "lunch" you may find some, I'm not suggesting that you search, Just FYI

Finding a support group may help. This site can be helpful in finding one.

Have you and your doctor discussed testing?

Have you thought about what you need to be able to start and stick to this or any diet? You know yourself best and different people need different things. Some need a diagnosis, others don't, some can just jump in and figure it out as they go along, others collect info and get organized first. I've given some suggestions above but what worked for me may not work for everyone.

If celiac disease is really what you have then, in my experience, the diet is totally worth it! Not only do I benefit but my son has gotten his mom back.

Keep in touch even if my suggestions sound more frustrating than helpful. Some things are hard to communicate across a message board. This forum is a good place to be and is very helpful. Give it time. The Celiac community is very supportive.

missy'smom Collaborator

I make simple, old-fashioned gluten-free dinners-same food for everyone-Roasted chicken(on the weekend), meatloaf(with gluten-free breadcrumbs) and mashed potatoes etc. Beaf stew in the crockpot is a working girl's friend.

During the week everyone has diffferent breakfast and lunch but we all eat the same thing on the weekends.

Here's a meatball recipie that doesn't require breadcrumbs. Use Lea and Perrins brand W. sauce. or omit.

Open Original Shared Link

Eriella Explorer

I have never believed in special meals, unless it was an unavoidable circumstance (ie my sister's graduation where everyone ran to get subs and I made Thai Kitchen Noodle Cart noodles for myself). A lot of times I will make naturally gluten free food which others can add things like bread or pasta to, but I don't need to do anything else.

Here are some of the meals that I cooked for my family in the past month:

Chicken pasta:

- Boil a pot of water and add a bag of Tinkyada pasta. Cook until almost done.

- Grill 2 chicken breasts on your george forman/outdoor grill

- In a sauce pan combine 1 32+ oz can of diced tomatoes, a diced onion, a diced pepper, basil, oregano, hot pepper, and 2 cloves of garlic. Let it simmer until the chicken is done, then slice the chicken and throw it in there.

- when the pasta is done, drain it, throw it back into the pot, and add a 1/2 a bag of baby spinach (if you chop it up finely with a knife or run it through the food processor people think it is just a spice, not a veggie) and the sauce mixture. Stir and let sit for 2 minutes.

Pot Roast

- Cube left over steak, potatoes, carrots, onion, and celery. Throw in a pot with a box of gluten free broth (I believe swanson's organic beef broth says gluten free right on the label).

- Add parsley, sage, rosemary, and thyme to taste.

- boil until the potatoes are done

Tacos

- grill a package of hamburger on a george forman until 1/2 way done to get out a lot of the fat

- in a sauce pan combine the hamburger with a diced onion, and some pepper flakes until done.

- add a packet McCormick's taco seasoning and a can of rinsed pinto beans. Simmer until the liquid is gone

- serve with salsa and guacamole as a dip with Tostidos or on Ole El Paso taco shells with veggies

Pasta Primavera

- boil a pot of water and cook Tinkayda pasta until almost done

- in a separate pan roast olive oil and garlic, as well as carrots, broccoli, and tomatoes.

- when the pasta is done, drain and throw the sauce with veggies

What I normally do to plan ahead is make a leftover portion or two so I will have food for the rest of the week. I also find that with spices, grilled meat, rice, and veggies never gets old.

Good luck!

gfpaperdoll Rookie

please be aware that gluten & dairy are addictive they have an opiate effect on your brain. so you might go thru withdrawal, & that is surely the reason that you have an eating problem. You have to take time to cook on the weekend & freeze some meals for your lunches etc.

I also second the recommendation that you just eat whole foods. an apple & a spoon of peanut butter or PB on celery is almost a meal, add some Boars Head deli meat & there you go (boars head will say gluten free right on the wrapping)

don't forget baked sweet potatoes. I think it would be a good idea to go dairy free at the same time, because if you do not, you will probably just sub cheese etc in place of gluten. Plus a lot of us have a dairy problem & almost all have a dairy problem in the beginning. & I do no advise to add in soy products, a lot us do not do good with soy. I do not have a big problem with soy, (which is in tuna & tons of other stuff) but I am not going to eat a soy product & develope an intolerance to it...

good luck, just take one apple at a time & breathe - you can do this...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



moozicteacher Newbie

Thank you so much for your kind responses. I really don't think that I can do this, but I'm trying.

One thing that I tend to do (on any diet) is wait too long to eat. Then I get so hungry that say "screw it" and eat everything in sight. Because I don't know WHAT to eat, I eat nothing. Then I get irritable and dizzy and BITCHY!!! I think I need to just sit down and come up with some meal and snack ideas.

Thanks for the recipes!

ElenaDragon Explorer

For easily portable snacks, you could try some raw food bars like Lara Bars and Cliff Nectar Bars. They are made of dried fruit and nuts - gluten free, dairy free, and soy free. No added sugar or other ingredients, and they are quite tasty! They could be a good option for when you're away from home, hungry, and don't have time to think about what to eat.

gfpaperdoll Rookie

yes, You have to eat three meals & two snacks a day. You will have to plan for those. It is good to eat a protein with a fruit, either a piece of meat & fruit or veggies, or fruit and nuts. You will need to purchase some walnuts and almonds & whatever nuts you like & keep them in the freezer... Maybe find your closest farmers market...

when you are gluten free you will not be binging on gluten food or you will be really really sick. Just think of it as rat poison - pretty much does the same thing to our bodies, & also know that within 5 years of being gluten free your risk of cancer will be less, more like that of a person that does not have an auto immune illness... If you continue to eat gluten at times & suffer the consequences then your chances of getting another auto immune illness are much greater. It is like exercise, you exercise for 30 minutes & you get benefits for the next 24 hours & you do that every day & you get benefits that will help you live longer...

my sister's best friend is 55 & has throat & stomach cancer. Think about it, that could be you - & even younger...

missy'smom Collaborator

Good advice from all.

We have a scheduled snack time everyday. For me because it helps with my energy levels and for my son to prevent him from snacking all night long. We sit down together at a certain time everyday and have a given portion of snack/s arranged on a small plate and a drink and that's it. No seconds and no snack outside of snacktime. We can look forward to it and not feel deprived. We balance the indulgent(cupcake with no frosting-gluten-free- Namaste makes a mix that's gluten-free and dairy free) with the healthy(protein, fruit) in addition to what gfpaperdoll said.

I do the waiting too long thing too, except I just eat nothing and then have no energy. Lately I've been giving myself a "deadline" of 1:00 for lunch because that's my problem meal. And no skipping breakfast. Eating something(healthy) on time, even if it's not a complete meal and even if it's not what I feel like eating, is better than waiting too long.

JonJonQ Rookie
Hi everyone! I am new and very annoyed. I have not been officially diagnosed with Celiac, but the doctors can't find anything else wrong with me, so my doc suggested that I go gluten/dairy free for a few months to see if it would help.

Ok, how does anyone with a life manage to do this!!!??? I have 2 small children and am a music teacher who works 60+ hours a week. I can't even frickin' go to the bathroom by myself, how can I possibly check every ingredient in every thing that I eat??

The list of "forbidden" things is ridiculous! I can't even pronounce and have never heard of most of them.

I "get" that this is what I need to do to feel better, but I have a feeling that I'll probably never feel better because I'm pretty sure I'll never be able to follow this.

I know this is a horribly negative attitude, but I'm a diagnosed compulsive overeater/binge eater, and I've been trying really hard to do Weight Watchers, but even THAT is difficult for me, and it's not even really that restrictive!

I'm feeling very frustrated. Does anyone have any words of wisdom, encouragement, ways to make this easier, etc?

Thanks.

kbtoyssni Contributor

There is a HUGE learning curve to this diet. The first two months will be very difficult trying to read every label and worry about CC, etc. But once you get it down, you won't spend any more time shopping or cooking than you did before. So know that if you can push through the first few months, it will be much better.

Another thing to realize is that if you do have celiac, gluten is horribly addicting and can have psychological effects. The binge eating may be a combination of these two so you may find that it goes away after being on a gluten-free diet for a while. I also feel that in the beginning, you can only handle so much and being truly gluten-free is better than a completely healthy diet. Don't beat yourself up too much about not having balanced meals all them time. Give yourself a chance to figure out the right brands first.

Phyllis28 Apprentice

Below are a few of the coping strategies I use:

Always make leftovers - I only cook main meals twice a week. I eat leftovers for lunch and dinner the rest of the week

I cook "Semi scratch" - I use canned foods such as tomato sauce or refried beans that have very few ingredients

Use alternatives for bread such as corn tortillas, rice cakes or even a bake potato. I very rarley ever bake. I simply live without cake, pie, cookies, etc....

If the meal goes over pasta such as spegetti sauce you can put it over rice instead. I have also put spegetti sauce over baked potato, mashed potatoes, spegetti squash and layed in corn totillas with cheese.

Make a tasty meals out of gluten free foods. Don't try to recreate gluten containing meals

Use the internet to locate receipes

Snacks - fruit, yogurt, tortilla chips, raw vegetables

Quick and easy meals: Hot Dog wrapped in a corn tortilla with cheese, Tuna heated on rice cake with cheese , a Hot Dog cut into baked beans and heated or Pizza Sauce and Cheese layered in a corn tortillas

I try to always have a portable snack with me.

Gluten Free eating becomes easier overtime.

confusedks Enthusiast

There's soy in tuna???? I didn't know that?!

Kassandra

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,857
    • Most Online (within 30 mins)
      7,748

    LowellFrancis
    Newest Member
    LowellFrancis
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • Jillian83
      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.