Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Encouragement Needed!


moozicteacher

Recommended Posts

moozicteacher Newbie

Hi everyone! I am new and very annoyed. I have not been officially diagnosed with Celiac, but the doctors can't find anything else wrong with me, so my doc suggested that I go gluten/dairy free for a few months to see if it would help.

Ok, how does anyone with a life manage to do this!!!??? I have 2 small children and am a music teacher who works 60+ hours a week. I can't even frickin' go to the bathroom by myself, how can I possibly check every ingredient in every thing that I eat??

The list of "forbidden" things is ridiculous! I can't even pronounce and have never heard of most of them.

I "get" that this is what I need to do to feel better, but I have a feeling that I'll probably never feel better because I'm pretty sure I'll never be able to follow this.

I know this is a horribly negative attitude, but I'm a diagnosed compulsive overeater/binge eater, and I've been trying really hard to do Weight Watchers, but even THAT is difficult for me, and it's not even really that restrictive!

I'm feeling very frustrated. Does anyone have any words of wisdom, encouragement, ways to make this easier, etc?

Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Eriella Explorer

First of all, welcome to the board. Second of all, it really isn't that hard after you get through the initial month. It almost becomes like second nature.

I would buy a george forman grill and a rice maker, and start from there. For dinners grill meat with McCormick spices and make rice with Knnox Bullion or make a stew in the crock pot with veggies, meat or beans, and McCormick spices. It may get old, but it will make your feel better. For breakfast make eggs or eat gorilla munch cereal (kids love it!). Then for lunch eat either leftovers, peanut butter on a corn tortilla, or taco dip (McCormick's taco seasoning in a pan with ground beef and pinto beans). Don't eat out because it will just frustrate you and try to avoid processed foods. In a month or two you will feel so much better and will be able to start dealing with trying to understand the food labels. Also, if you do have a gluten issues, you will have so much more energy that it will become easier.

Also, shop at Wal-mart or wegmans. They label their generics gluten-free, so it is easy to know what is safe, plus the prices are reasonable. A lot of people think that this diet will take a lot of time and that cooking from scratch is going to be awful. I have a bunch of recipes which take 30 minutes from the time I enter the kitchen to the time we eat, and then freeze well so you only have to cook 1 or 2 nights a week. If you want my recipes, let me know.

If you need anything, please ask. We have all been through this!

moozicteacher Newbie

Thank you for responding. I would like any recipes that you have, that would be great.

The other thing is- does your family eat what you eat? My son is a picky eater and my husband doesn't eat any vegetables (or much other healthy foods). As a teacher- I can absolutely not afford to buy specialty things for myself AND food for them!!

Good Lord, I'm getting more and more frustrated!! ACK!!

missy'smom Collaborator

Welcome :)

Maybe this is not the most encouraging suggestion but, one approach would be eating only things made by nature, not by manufacturers, at least temporarily. I managed gestational diabetes by diet alone and I just took the list of foods and servings that they gave me and started over as if no other foods existed in the world and said OK what can I make with these. A similar approach may bring you quicker results and be less of a headache as far as reading labels go. Take one weekend and Set it up so when you open the fridge or pantry everything is safe. Plan a weeks worth of meals-write it down and then repeat it again the next week with minor changes or more changes as you feel up to it. If you can come up with enough meals for a week you can survive quite a while. It's also less headache and less time shopping if you buy the same stuff over again. As you feel better and are able to cope more you can read labels and introduce products back into your life. Or do this plus only things labeled gluten-free. Also when I was Diabetic I said, this is only three months out of my whole life and when I started gluten-free I said OK, I'm setting aside this year to get better, that's my whole goal for the year. I don't know how to explain this better but It really helped me. It relieved the pressure and stress rather than making more.

You can start a thread here entitled " what did you have for breakfast" and everyone will post their menues, most list brand names, many have done it in the past and if you do a search for "breakfast" "lunch" you may find some, I'm not suggesting that you search, Just FYI

Finding a support group may help. This site can be helpful in finding one.

Have you and your doctor discussed testing?

Have you thought about what you need to be able to start and stick to this or any diet? You know yourself best and different people need different things. Some need a diagnosis, others don't, some can just jump in and figure it out as they go along, others collect info and get organized first. I've given some suggestions above but what worked for me may not work for everyone.

If celiac disease is really what you have then, in my experience, the diet is totally worth it! Not only do I benefit but my son has gotten his mom back.

Keep in touch even if my suggestions sound more frustrating than helpful. Some things are hard to communicate across a message board. This forum is a good place to be and is very helpful. Give it time. The Celiac community is very supportive.

missy'smom Collaborator

I make simple, old-fashioned gluten-free dinners-same food for everyone-Roasted chicken(on the weekend), meatloaf(with gluten-free breadcrumbs) and mashed potatoes etc. Beaf stew in the crockpot is a working girl's friend.

During the week everyone has diffferent breakfast and lunch but we all eat the same thing on the weekends.

Here's a meatball recipie that doesn't require breadcrumbs. Use Lea and Perrins brand W. sauce. or omit.

Open Original Shared Link

Eriella Explorer

I have never believed in special meals, unless it was an unavoidable circumstance (ie my sister's graduation where everyone ran to get subs and I made Thai Kitchen Noodle Cart noodles for myself). A lot of times I will make naturally gluten free food which others can add things like bread or pasta to, but I don't need to do anything else.

Here are some of the meals that I cooked for my family in the past month:

Chicken pasta:

- Boil a pot of water and add a bag of Tinkyada pasta. Cook until almost done.

- Grill 2 chicken breasts on your george forman/outdoor grill

- In a sauce pan combine 1 32+ oz can of diced tomatoes, a diced onion, a diced pepper, basil, oregano, hot pepper, and 2 cloves of garlic. Let it simmer until the chicken is done, then slice the chicken and throw it in there.

- when the pasta is done, drain it, throw it back into the pot, and add a 1/2 a bag of baby spinach (if you chop it up finely with a knife or run it through the food processor people think it is just a spice, not a veggie) and the sauce mixture. Stir and let sit for 2 minutes.

Pot Roast

- Cube left over steak, potatoes, carrots, onion, and celery. Throw in a pot with a box of gluten free broth (I believe swanson's organic beef broth says gluten free right on the label).

- Add parsley, sage, rosemary, and thyme to taste.

- boil until the potatoes are done

Tacos

- grill a package of hamburger on a george forman until 1/2 way done to get out a lot of the fat

- in a sauce pan combine the hamburger with a diced onion, and some pepper flakes until done.

- add a packet McCormick's taco seasoning and a can of rinsed pinto beans. Simmer until the liquid is gone

- serve with salsa and guacamole as a dip with Tostidos or on Ole El Paso taco shells with veggies

Pasta Primavera

- boil a pot of water and cook Tinkayda pasta until almost done

- in a separate pan roast olive oil and garlic, as well as carrots, broccoli, and tomatoes.

- when the pasta is done, drain and throw the sauce with veggies

What I normally do to plan ahead is make a leftover portion or two so I will have food for the rest of the week. I also find that with spices, grilled meat, rice, and veggies never gets old.

Good luck!

gfpaperdoll Rookie

please be aware that gluten & dairy are addictive they have an opiate effect on your brain. so you might go thru withdrawal, & that is surely the reason that you have an eating problem. You have to take time to cook on the weekend & freeze some meals for your lunches etc.

I also second the recommendation that you just eat whole foods. an apple & a spoon of peanut butter or PB on celery is almost a meal, add some Boars Head deli meat & there you go (boars head will say gluten free right on the wrapping)

don't forget baked sweet potatoes. I think it would be a good idea to go dairy free at the same time, because if you do not, you will probably just sub cheese etc in place of gluten. Plus a lot of us have a dairy problem & almost all have a dairy problem in the beginning. & I do no advise to add in soy products, a lot us do not do good with soy. I do not have a big problem with soy, (which is in tuna & tons of other stuff) but I am not going to eat a soy product & develope an intolerance to it...

good luck, just take one apple at a time & breathe - you can do this...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



moozicteacher Newbie

Thank you so much for your kind responses. I really don't think that I can do this, but I'm trying.

One thing that I tend to do (on any diet) is wait too long to eat. Then I get so hungry that say "screw it" and eat everything in sight. Because I don't know WHAT to eat, I eat nothing. Then I get irritable and dizzy and BITCHY!!! I think I need to just sit down and come up with some meal and snack ideas.

Thanks for the recipes!

ElenaDragon Explorer

For easily portable snacks, you could try some raw food bars like Lara Bars and Cliff Nectar Bars. They are made of dried fruit and nuts - gluten free, dairy free, and soy free. No added sugar or other ingredients, and they are quite tasty! They could be a good option for when you're away from home, hungry, and don't have time to think about what to eat.

gfpaperdoll Rookie

yes, You have to eat three meals & two snacks a day. You will have to plan for those. It is good to eat a protein with a fruit, either a piece of meat & fruit or veggies, or fruit and nuts. You will need to purchase some walnuts and almonds & whatever nuts you like & keep them in the freezer... Maybe find your closest farmers market...

when you are gluten free you will not be binging on gluten food or you will be really really sick. Just think of it as rat poison - pretty much does the same thing to our bodies, & also know that within 5 years of being gluten free your risk of cancer will be less, more like that of a person that does not have an auto immune illness... If you continue to eat gluten at times & suffer the consequences then your chances of getting another auto immune illness are much greater. It is like exercise, you exercise for 30 minutes & you get benefits for the next 24 hours & you do that every day & you get benefits that will help you live longer...

my sister's best friend is 55 & has throat & stomach cancer. Think about it, that could be you - & even younger...

missy'smom Collaborator

Good advice from all.

We have a scheduled snack time everyday. For me because it helps with my energy levels and for my son to prevent him from snacking all night long. We sit down together at a certain time everyday and have a given portion of snack/s arranged on a small plate and a drink and that's it. No seconds and no snack outside of snacktime. We can look forward to it and not feel deprived. We balance the indulgent(cupcake with no frosting-gluten-free- Namaste makes a mix that's gluten-free and dairy free) with the healthy(protein, fruit) in addition to what gfpaperdoll said.

I do the waiting too long thing too, except I just eat nothing and then have no energy. Lately I've been giving myself a "deadline" of 1:00 for lunch because that's my problem meal. And no skipping breakfast. Eating something(healthy) on time, even if it's not a complete meal and even if it's not what I feel like eating, is better than waiting too long.

JonJonQ Rookie
Hi everyone! I am new and very annoyed. I have not been officially diagnosed with Celiac, but the doctors can't find anything else wrong with me, so my doc suggested that I go gluten/dairy free for a few months to see if it would help.

Ok, how does anyone with a life manage to do this!!!??? I have 2 small children and am a music teacher who works 60+ hours a week. I can't even frickin' go to the bathroom by myself, how can I possibly check every ingredient in every thing that I eat??

The list of "forbidden" things is ridiculous! I can't even pronounce and have never heard of most of them.

I "get" that this is what I need to do to feel better, but I have a feeling that I'll probably never feel better because I'm pretty sure I'll never be able to follow this.

I know this is a horribly negative attitude, but I'm a diagnosed compulsive overeater/binge eater, and I've been trying really hard to do Weight Watchers, but even THAT is difficult for me, and it's not even really that restrictive!

I'm feeling very frustrated. Does anyone have any words of wisdom, encouragement, ways to make this easier, etc?

Thanks.

kbtoyssni Contributor

There is a HUGE learning curve to this diet. The first two months will be very difficult trying to read every label and worry about CC, etc. But once you get it down, you won't spend any more time shopping or cooking than you did before. So know that if you can push through the first few months, it will be much better.

Another thing to realize is that if you do have celiac, gluten is horribly addicting and can have psychological effects. The binge eating may be a combination of these two so you may find that it goes away after being on a gluten-free diet for a while. I also feel that in the beginning, you can only handle so much and being truly gluten-free is better than a completely healthy diet. Don't beat yourself up too much about not having balanced meals all them time. Give yourself a chance to figure out the right brands first.

Phyllis28 Apprentice

Below are a few of the coping strategies I use:

Always make leftovers - I only cook main meals twice a week. I eat leftovers for lunch and dinner the rest of the week

I cook "Semi scratch" - I use canned foods such as tomato sauce or refried beans that have very few ingredients

Use alternatives for bread such as corn tortillas, rice cakes or even a bake potato. I very rarley ever bake. I simply live without cake, pie, cookies, etc....

If the meal goes over pasta such as spegetti sauce you can put it over rice instead. I have also put spegetti sauce over baked potato, mashed potatoes, spegetti squash and layed in corn totillas with cheese.

Make a tasty meals out of gluten free foods. Don't try to recreate gluten containing meals

Use the internet to locate receipes

Snacks - fruit, yogurt, tortilla chips, raw vegetables

Quick and easy meals: Hot Dog wrapped in a corn tortilla with cheese, Tuna heated on rice cake with cheese , a Hot Dog cut into baked beans and heated or Pizza Sauce and Cheese layered in a corn tortillas

I try to always have a portable snack with me.

Gluten Free eating becomes easier overtime.

confusedks Enthusiast

There's soy in tuna???? I didn't know that?!

Kassandra

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - DebD5 commented on Scott Adams's article in Spring 2026 Issue
      1

      The Dark Side of Gluten-Free: Counterfeit Labels and Global Food Safety Failures

    2. - Jmartes71 replied to Jmartes71's topic in Doctors
      6

      Second chance

    3. - trents replied to EssexMum's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Concerning GP advice

    4. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      327

      Terrible Neurological Symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,641
    • Most Online (within 30 mins)
      7,748

    JennaK23222
    Newest Member
    JennaK23222
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      Thats the thing, diagnosed in 1994 before foods eliminated celiac by biopsy colonoscopy at Kaiser in Santa Clara  now condo's but it has to be somewhere in medical land.1999 got married, moved, changed doctor's was with former for 25 years told him I waz celiac and that.Fast forward to last year.i googled celiac specialist and what popped up was a former well known heard of hospital. I thought I would get answers to be put through unnecessary colonoscopy KNOWING im glutenfree and she wasn't listening to me for help rather than screening me for celiac! Im already diagnosed seeking medical help.I did all the appointments ask from her and when I wanted my records se t to my pcp, thats when the with holding my records when I repeatedly messaged, it was down played the seriousness and I was labeled unruly when I asked why am I going through all this when its the celiac name that IS what my issue and All my ailments surrounding it related. I am dea6eoth the autoimmune part though my blood work is supposedly fabulous. Im sibo positive,HLA-DQ2 positive, dealing with skin, eye and now ms.I was employed as a bus driver making good money, I loved it for the few years my body let me do until I was yet again fired.i went to seek medical help because my body isn't well just to be made a disability chaser. Im exhausted,glutenfree, no lawyer will help and disability is in limbo thanks to the lax on my health from the fabulous none celiac Google bay area dr snd team. Its not right.
    • trents
      Welcome to the celiac.com community @EssexMum! First, let me correct some misinformation you have been given. Except in the case of what is known as "refractory" celiac disease, which is very rare, it is not true that the "fingers" will not grow back once a consistently gluten free diet is adopted. Celiac disease is an autoimmune condition whereby the ingestion of gluten triggers an inflammatory process that damages the millions of tiny finger-like projections that make up the lining of the small bowel. We call this the "villous lining". Over time, continued ingestion of gluten on a regular basis results in the wearing down of these fingers which greatly reduces the surface area of this very important membrane. It is where essentially all the nutrition from what we eat is absorbed. So, losing this surface area results in inefficiency in nutrient absorption and often to medical problems related to nutrient deficiencies. Again, if a gluten-free diet is consistently observed, the villous lining of the small bowel should rebound. "We was informed that her body absorbs the gluten rather then rejecting it and that is why she doesn't react to the gluten straight away, it will be a build up and then the pains start. " That sounds like unscientific BS to me. But it does sound like your stepdaughter may have a type of celiac disease we know as "silent" celiac disease, meaning, she is asymptomatic or at least the symptoms are not intense enough to usually notice. She is not completely asymptomatic, however, because you stated was experiencing tummy aches off and on. Cristiana gives some good suggestions about ordering "safe" food for your stepdaughter from restaurant menus in Europe. You must realize that as the step parent who only has her part of the time you have no real control over how cooperative her other set of parents are with regard to your stepdaughter's needs to eat gluten free. It sounds like they don't really understand the seriousness of the matter. This is very common in family settings where other members are ignorant about celiac disease and the damage it can do to body systems. So, they don't take it seriously. The best you can do is make suggestions. Perhaps print out some info about celiac disease from the Internet to send them. Being inconsistent with the gluten free diet keeps the inflammation smoldering and delays or inhibits healing of the villous lining. 
    • Scott Adams
      Here are some articles on cross-reactivity and celiac disease:      
    • knitty kitty
      @HectorConvector, Here are some articles about "dry Beriberi" and neuropathy.  I hope you've been able to acquire thiamine hydrochloride or Benfotiamine.  I'm concerned.   Dry Beriberi Due to Thiamine Deficiency Associated with Peripheral Neuropathy and Wernicke's Encephalopathy Mimicking Guillain-Barré syndrome: A Case Report and Review of the Literature https://pubmed.ncbi.nlm.nih.gov/30862772/ Dry Beriberi Manifesting as Acute Inflammatory Demyelinating Polyneuropathy in a Patient With Decompensated Alcohol-Induced Cirrhosis https://pmc.ncbi.nlm.nih.gov/articles/PMC7707918/ A Rare Case of Thiamine Deficiency Leading to Dry Beriberi, Peripheral Neuropathy, and Torsades De Pointes https://pmc.ncbi.nlm.nih.gov/articles/PMC10723625/
    • cristiana
      Good evening @EssexMum You are quite right to be concerned about this situation.  Once diagnosed as coeliac, always a coeliac, and the way to heal  is through adopting and sticking to a strict gluten diet. That said... I have travelled twice to France since my diagnosis, firstly in May 2013 and again in August 2019.   My spoken French isn't bad, and whilst there I tried my best to explain my needs to chefs and catering staff, and I read labels very carefully when shopping in supermarkets, but both times I came away with worsening gastric symptoms and pain. Interestingly,  after the second holiday, my annual coeliac review took place the following month and although I'd been very careful to avoid gluten all year, thanks to that August holiday my coeliac antibodies were elevated,  Clearly I hadn't been imagining these symptoms and they must have been caused by gluten sneaking in somehow. When I spoke to my gastroenterologist on my return, who is an excellent doctor, he told me with a smile that this was a very common experience in France among his patients, and not to worry too much about it! In fact, before we went away in May 2013, which was just after I had been formally diagnosed, he told me not to even bother trying to adopt a gluten free diet until I returned, knowing what France was like, but I was feeling so awful at that time I ignored his advice and at least tried to make a start with it. (I ought to say - both these visits were some time ago, so perhaps things are a lot better there now.) So what to do?  I would say at least try to explain to catering staff the situation - they should be able to rustle up a plate of cheese, boiled eggs, tuna, salad and fruit, and if things like crackers and gluten-free pot noodle or oats can be packed in the UK, those can be produced at mealtimes.    Of course, most larger supermarkets in France do now cater for coeliacs, but when I was last there the the choice wasn't as wide a range as we have in the UK but I think that is partly because the French like to cook from scratch, whereas our gluten-free aisles have quite a lot of dried or pre-baked goods in them/convenience foods, because I think we as a nation tend to use them more. I would be worth doing a bit of research on the internet before the trip, - the words you want are 'sans gluten'.  I've just googled 'sans gluten Disney Paris" and this came up.  I do hope at least some of this is of help. https://www.tripadvisor.co.uk/Restaurants-g2079053-zfz10992-Disneyland_Paris_Ile_de_France.html  Whatever befalls in France, at least your stepdaughter can resume her usual diet on her return. On a related tack, would you be happy to post any positive findings/tips upon her return - it might be of use to others travelling to Disneyland Paris with children in future? Cristiana
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.