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Blood Test Positive-wait To Go Gluten Free?

tumtumsmom

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tumtumsmom Newbie
tumtumsmom
Posted

Hi All, this is new to me but from what I've seen and read so far I think this website and messageboard might be the key to my sanity...

My 13 yr old son has had stomach problems for years and just last week went through a barrage of tests scheduled by his pediatrician. She called yesterday and said that his bloodwork shows he's positive for Celiac and that he also had blood in his stool. We've got an appt. with a GI doctor on Tuesday but my question is: Does my son need to keep eating glutens until we see the GI? I was going to start him gluten-free free immediatly but after reading books and such I'm guessing there will be further tests. I would call the Doctor but they are closed for the 3 day weekend.

I'm so glad to have found this site. Yesterday was such a shock and emotional time. At least I feel more calm and in control today. Reading these wonderful posts answers so many questions although I'm sure I'll have thousands of questions.

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confused Community Regular
confused
Posted

It is best to wait to talk to the gi dr, unless you dont want to do an scope. But since there is blood in his stool, i would think it is best to have all the test that the gi dr wants to do, that way you will get more accurate results. During this weekend, it would be best to read up as much as you can on what is safe and what is not safe. Get new pots and pans and get rid of plastic dishes, so when you are ready to go gluten free you will already be ready. Do things in bb steps so you will not be overwhelmed. Get yourself and spouse tested and if you have any other kids get them tested asap. Do you plan on everyone going gluten free or just your 13 yr old. My stepson was diagnosed at 13, and it has been so rough. He cheats all the time and it is hard on the whole family. IS your 13 yr old willing to go gluten free?

paula

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

When I was 17 my doctor told me to go gluten-free after my blood test and I never saw anyone else. My Brother, however, continued eating gluten and saw a specialist to get another postive. So, it is really up to you and him. The diet worked fine for me right away, so, I didn't want to go back on it for another test. It's a personal thing.

tumtumsmom Newbie
tumtumsmom
Posted
  • Author

Thanks for the responses. I think I'll just let him continue and eat gluten foods until we see the GI. I want to have any tests needed especially since he has blood in his stool. Both my husband and I are scheduled for a blood test and my other two sons will be next.

I'm a confused as to why I need to buy new pots and pans? Isn't dishwashing them enough? Or are these new ones to just be kept gluten free? I still have so much reading to do....

gfpaperdoll Rookie
gfpaperdoll
Posted

welcome to our group. The reason that you want new pots & pans is that if you have non stick ones or cast iron they are porous & have gluten hidden in the scratches, even dishwasher will not get that stuff out, same thing with plastic & wooden cutting boards, plastic spatulas, wooden spoons. So you might want to wait till you get the whole family tested to see if you are going to have a gluten-free kitchen or a "mixed" kitchen. Either way the flour canister has to go, because wheat flour will poof up & get into everything, not counting breathing it in. There are a lot of threads here on these issues...

Most newbies are very skeptical of this but then they learn the hard way & hence the many posts on these issues. Plus this info is also in most books on Celiac...

I have a gluten-free house & use stainless steel & glass pans & baking dishes. Well, I have some baking pans not stainless steel - new ones from Walmart. You will need things like parchment paper & cup cake liners (& I do suggest new muffin pans) because you will want to learn to bake gluten-free because it is healthier & better than bought gluten-free stuff... There is a learning curve but we have recipe sections etc. & we have all been there & are available to walk you though your first efforts. One of the easiest things to convert is a banana bread recipe or a carrot cake or an apple cake, that kind of stuff.

Just read a lot & take it one day at a time. This journey will surely result in healthier meals for everyone.

sickchick Community Regular
sickchick
Posted

Very good luck on your journey. B)

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      Hidden Gluten in distilled vinegar

      By knitty kitty · Posted

      @Manaan2, I was on Miralax for several months after I crushed three vertebrae and fractured my hip.  The compression fractures of my vertebrae affected the Vagus nerve that stimulates digestion and intestinal movement, peristalsis. Miralax just didn't relieve the constipation I was experiencing at all.  Nothing budged.  I tried Milk of Magnesia (magnesium oxide) which pulls water into the digestive tract, and found that rather harsh and dehydrating.   Bad idea. I was already taking thiamine in various forms, Benfotiamine, TTFD (tetrahydrofurfuryl  disulfude), Lipothiamine and Allithiamine.  Click on my name, then Activities in the pull down menu to get to my blog to learn more about my journey with thiamine.   Since we need more thiamine when we are physically ill and emotionally stressed, I decided to focus on TTFD,  Benfotiamine, and magnesium l-threonate.  Within a week of increasing my doses a bit, my constipation was gone.  It took several more months to heal the compressed nerve damage.  For pain, I take a combination of TTFD, Pyridoxine B 6, and  Cobalamine B12 which together have an analgesic effect.  I can't function with pharmaceutical pain killers, besides they cause constipation.   Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/ Yes, I did just stop the Miralax, but I wasn't on it as long as your daughter.  Yes, there's a difference between adults and children.  Yes, my circumstances were different than your daughter's, but thiamine deficiency does affect the nerves and the brain.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function (which activates the Vagus nerve and controls digestion).   I recommend you visit Dr. Chandler Marrs' website, hormonesmatter.com.  Dr. Marrs worked with Dr. Derrick Longsdale, a pioneer in thiamine research, specifically with children and autism spectrum disorders.  She has been very helpful to me when I reached out to her.  She would be better able to guide you about your daughter's care. https://hormonesmatter.com/sibo-ibs-constipation-thiamine-deficiency/#google_vignette Do stay in touch, please.  You can start another thread or personal message me any time.  My heart goes out to you, your husband, and especially your daughter.   Namaste
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      @knitty kitty  The information you've provided is invaluable!  I have a lot more homework to do before we make the official switch but you have significantly increased my hope that we can get her off Miralax (she started at 3 years old and is almost 8!).  This weekend my husband and I plan to solidify all the details for a start point, then adjust as we go along.  I realize that everyone's body is different, then there's also the fact that she's a child but just out of curiosity if you don't mind sharing and if you'd rather not, no problem at all-how long did you take Miralax before switching and when you switched, did you just completely stop the Miralax or was there a period where you did Miralax and the supplements?  I plan to research that piece this weekend but just curious what you did.  
    • BIg Nodge
      Opinions on my test results/symptoms

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