Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endoscopy Nerves!


Bree

Recommended Posts

Bree Newbie

Hi all, just a newbie here, first time posting, but have been reading for a couple of weeks now and thank goodness I found this site, it has been most helpful!

Here is my wussy question. This Friday, Sept.7th, I am going in for an endoscopy and a colonoscopy, as my GI specialist believes I have Celiac Disease (waiting on the bloodwork) and either Crohn's or Colitis. Now she told me I would be knocked right out for the procedures, but the paperwork I have at home says the dr. could ask me to help her guide the scope down my throat. WHAT???? I asked at least 5 times if I would be "right out" and was told "absolutely." I feel like such a big baby, but I have a terrible gag reflex (the dentist is a nightmare for me!) and so while I am not even slightly bothered about the colonoscopy, I am freaking out about the throat one. I had two kids with no drugs, no freezing, nothing, you would think I could handle a 5 minute endoscopy test!

Does anyone who had both tests done at the same time remember anything from their Endoscopy? Please be brutally honest with me, I would rather know that not!

Thanks everyone, you are all so helpful and I enjoy this site almost hourly!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Emily Elizabeth Enthusiast

When I had mine done, I don't remember anything after them rolling me into the room and the anesthesiologist sticking a needle in my hand and it beginning to burn. I felt totally coherent and then I found myself being rolled into the recovery room all of the sudden. I came out of it slowly and barely remember what they said to me about what they found. My mom had to explain what they said later. It was really very easy. The only thing I noticed was that it was a little uncomfortable to swallow for about a day. Other than that, I wouldn't have even known that they did anything. I hope this helps! Good luck!

Does anyone who had both tests done at the same time remember anything from their Endoscopy? Please be brutally honest with me, I would rather know that not!
psawyer Proficient

I have had the procedure twice. The second time it was a different GI doctor and a different hospital.

The first time I was completely unaware of anything. I was given the sedative, and the next thing I knew I was in the recovery room.

The second time the sedation was lighter, and I was semi-conscious and have some memory, but it is fuzzy.

So, it can be either way. The second doctor said he prefers that the patient be semi-aware during the process so that he can talk to the patient, for example, asking to move. I was certainly too woozy to worry about anything.

Darn210 Enthusiast

I was in the room for my daughter's. They knocked her out completely. For my husband's (eight years ago and a different doc), the said they would have two levels of anesthesia. With the first, he would still be able to "take orders" : move, swallow, etc . . . he would be totally relaxed and wouldn't remember any of it. Then after they got the camera in, they would put him under the rest of the way. I wasn't in the room, but he doesn't remember any of it.

dlp252 Apprentice

Yes, I had an endoscopy and a colonoscopy at the same time last year, then proceded to have two more endoscopies. I don't remember anything from any of them. WIth the first one (with the colonoscopy), I was pretty groggy for a while after coming out of it and appearently I asked the nurse the same question three times, and still don't know what the answer was. :lol: My mom said she answered me each time, but I just couldn't remember anything from the time they wheeled me into the room until we were driving home.

It was the same for the second and third endoscopies, but was less groggy coming out of it...I guess because I didn't have the extra ooomph of the drugs for the colonoscopy.

Bree Newbie

Thanks for the replies everyone, my nerves are much calmer now! :rolleyes: I think when they call me this week to confirm and remind me (like I could forget, I have tried though!) I will reiterate to them just how freaked out I am about them going down my throat and remind them of my horrible gag reflex.

It sounds like I will remember nothing, even if I have asked something 3 times! ;) Life will be good.

Thanks again for your calming replies.

dlp252 Apprentice
It sounds like I will remember nothing, even if I have asked something 3 times! ;) Life will be good.

Yeah, apprently I had me some good drugs. :lol:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rach22 Newbie

I had to have my first endoscopy when I couldn't stop throwing up stomach acid. I was extremely sick, but still worried that I would get sick on the people when they put the scope in, etc. Anyway, they knocked me out and I don't remember any of it but I was told that I didn't get sick on anyone. Don't be nervous. It is totally painless, and really it gives you an excuse to lay on the couch for the rest of the day.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    2. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    4. - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

    5. - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,192
    • Most Online (within 30 mins)
      7,748

    DenisC
    Newest Member
    DenisC
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.