Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endoscopy Nerves!

Bree

Recommended Posts

Bree Newbie
Bree
Posted

Hi all, just a newbie here, first time posting, but have been reading for a couple of weeks now and thank goodness I found this site, it has been most helpful!

Here is my wussy question. This Friday, Sept.7th, I am going in for an endoscopy and a colonoscopy, as my GI specialist believes I have Celiac Disease (waiting on the bloodwork) and either Crohn's or Colitis. Now she told me I would be knocked right out for the procedures, but the paperwork I have at home says the dr. could ask me to help her guide the scope down my throat. WHAT???? I asked at least 5 times if I would be "right out" and was told "absolutely." I feel like such a big baby, but I have a terrible gag reflex (the dentist is a nightmare for me!) and so while I am not even slightly bothered about the colonoscopy, I am freaking out about the throat one. I had two kids with no drugs, no freezing, nothing, you would think I could handle a 5 minute endoscopy test!

Does anyone who had both tests done at the same time remember anything from their Endoscopy? Please be brutally honest with me, I would rather know that not!

Thanks everyone, you are all so helpful and I enjoy this site almost hourly!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Emily Elizabeth Enthusiast
Emily Elizabeth
Posted

When I had mine done, I don't remember anything after them rolling me into the room and the anesthesiologist sticking a needle in my hand and it beginning to burn. I felt totally coherent and then I found myself being rolled into the recovery room all of the sudden. I came out of it slowly and barely remember what they said to me about what they found. My mom had to explain what they said later. It was really very easy. The only thing I noticed was that it was a little uncomfortable to swallow for about a day. Other than that, I wouldn't have even known that they did anything. I hope this helps! Good luck!

Does anyone who had both tests done at the same time remember anything from their Endoscopy? Please be brutally honest with me, I would rather know that not!
psawyer Proficient
psawyer
Posted

I have had the procedure twice. The second time it was a different GI doctor and a different hospital.

The first time I was completely unaware of anything. I was given the sedative, and the next thing I knew I was in the recovery room.

The second time the sedation was lighter, and I was semi-conscious and have some memory, but it is fuzzy.

So, it can be either way. The second doctor said he prefers that the patient be semi-aware during the process so that he can talk to the patient, for example, asking to move. I was certainly too woozy to worry about anything.

Darn210 Enthusiast
Darn210
Posted

I was in the room for my daughter's. They knocked her out completely. For my husband's (eight years ago and a different doc), the said they would have two levels of anesthesia. With the first, he would still be able to "take orders" : move, swallow, etc . . . he would be totally relaxed and wouldn't remember any of it. Then after they got the camera in, they would put him under the rest of the way. I wasn't in the room, but he doesn't remember any of it.

dlp252 Apprentice
dlp252
Posted

Yes, I had an endoscopy and a colonoscopy at the same time last year, then proceded to have two more endoscopies. I don't remember anything from any of them. WIth the first one (with the colonoscopy), I was pretty groggy for a while after coming out of it and appearently I asked the nurse the same question three times, and still don't know what the answer was. :lol: My mom said she answered me each time, but I just couldn't remember anything from the time they wheeled me into the room until we were driving home.

It was the same for the second and third endoscopies, but was less groggy coming out of it...I guess because I didn't have the extra ooomph of the drugs for the colonoscopy.

Bree Newbie
Bree
Posted
  • Author

Thanks for the replies everyone, my nerves are much calmer now! :rolleyes: I think when they call me this week to confirm and remind me (like I could forget, I have tried though!) I will reiterate to them just how freaked out I am about them going down my throat and remind them of my horrible gag reflex.

It sounds like I will remember nothing, even if I have asked something 3 times! ;) Life will be good.

Thanks again for your calming replies.

dlp252 Apprentice
dlp252
Posted
It sounds like I will remember nothing, even if I have asked something 3 times! ;) Life will be good.

Yeah, apprently I had me some good drugs. :lol:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


rach22 Newbie
rach22
Posted

I had to have my first endoscopy when I couldn't stop throwing up stomach acid. I was extremely sick, but still worried that I would get sick on the people when they put the scope in, etc. Anyway, they knocked me out and I don't remember any of it but I was told that I didn't get sick on anyone. Don't be nervous. It is totally painless, and really it gives you an excuse to lay on the couch for the rest of the day.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,197
    • Most Online (within 30 mins)
      7,748
    Mrs. Ward
    Newest Member
    Mrs. Ward
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Coping with celiac

      By Scott Adams · Posted

      What is the LCHF diet...low carb high fiber?
    • knitty kitty
      Dangerously underweight, Perfect gluten free and insomnia

      By knitty kitty · Posted

      @SaiP, I noticed that you are eating foods that are high in histamine.  Bananas, avocados, spinach, gluten, and tuna are high histamine foods or are histamine liberators.  Histamine is released by mast cells in the body as part of the autoimmune reaction to gluten.  High histamine foods add to that histamine burden, making clearing histamine difficult.    Histamine is a helpful neurotransmitter, causing alertness.  We wake after sleep because our body produces histamine.  BUT, excess histamine causes insomnia.   We need vitamins and minerals, like Thiamine, Pyridoxine, Cobalamine, Vitamin C, and magnessium, to help our body break down and clear out histamine.   We need Thiamine and the other B vitamins to turn carbohydrates, like white rice, protein and fats into energy and fuel for the body.  The more carbohydrates you eat, the more thiamine is needed above normal.  More thiamine is needed when physically sick, or emotionally stressed.  Losing weight until skin and bones is a symptom of Thiamine deficiency. White rice is stripped of nutrients like Thiamine, when the germ is removed to make it white.  Vitamins added to enriched rice can be lost if the rice is washed.  If you are increasing your rice consumption, you need to increase your thiamine.  The form Benfotiamine has been shown to promote intestinal healing. Healthy fats like olive oil should be included in the diet.  Our body likes to use healthy fats as fuel.   Do look into a low histamine gluten free diet.
    • joleenrae
      + bloodwork - endoscopy.. then + bloodwork and another + bloodwork.. next endoscopy??

      By joleenrae · Posted

      The first lab was different because Allina switched which lab they work with in between March and October. But October and January were the same lab. All through Allina but two separate labs.  
    • trents
      + bloodwork - endoscopy.. then + bloodwork and another + bloodwork.. next endoscopy??

      By trents · Posted

      Since she is asymptomatic and her first biopsy was negative I would not assume she has developed celiac disease. If her upcoming biopsy shows evidence of mucosal damage you have the firm evidence you need to trigger the gluten-free protocol at the preschool. There are other causes for mildly elevated tTG-IGA levels besides celiac disease. Studies are all over the map with this statistic but there is somewhere between a 10% and an almost 50% chance that your daughter will develop celiac disease since she has a first degree relative who is a celiac (her sister). The important thing in this scenario is to continue to monitor the situation via testing and symptoms. You are already doing this so kudos to you and your doctors. But one question I have is, are the blood samples being tested by the same lab in each case? Different labs build these tests a little differently and there is no industry standard. So, to compare her tTg-IGA test scores from one time to the other is only useful if the analysis is being handled by the same lab.
    • joleenrae
      + bloodwork - endoscopy.. then + bloodwork and another + bloodwork.. next endoscopy??

      By joleenrae · Posted

      My daughter was tested at her annual appointment when she turned 4 because her brother has celiac's. She has no symptoms. She eats a lot of gluten.  Blood work round #1 March 2024:  -          Endomysial IgA Ab: Negative  (Range: Negative) -          Gliadin IgA: <10.0 U/ml  (Range: <20.0 Negative) -          IGA: 93.43 mg/dL  (Range: 27.00 - 195.00) -          TISSUE TRANSGLUTAMINASE IGA: 9.1 U/ml  (Range: <4.0) *** this was high. the range changes for the next one, but it was noted that it was about double the range.  We went for an endoscopy in May 2024 and it was negative.  Blood work round #2 October 2024: -          ENDOMYSIAL ANTIBODY TITER: 1:5 titer  (Range: <1:5) **flagged as high -          ENDOMYSIAL ANTIBODY SCR (IGA) W/REFL TO TITER: POSITIVE  (Range: NEGATIVE) **flagged because its not negative -          IMMUNOGLOBULIN A  TISSUE TRANSGLUTAMINASE AB, IGA:  28.8U/mL  (Range: 22 – 140.  <15.0  =Antibody not detected. >or= 15.0 =Antibody detected.) **flagged high but the ratio/range was different and about double. Note says: Serological evidence for celiac disease is present. Blood work round #3 January 2025: -          TTG IGA: 28.1U/mL  (Range: 22 – 140.  <15.0  =Antibody not detected. >or= 15.0 =Antibody detected.) Now we are scheduling another endoscopy. My main concern right now is if the endoscopy is negative again…where does that leave us??? Public Schools and daycare will not feel her gluten free if its not an official diagnosis.
×
×
  • Create New...