Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need To Find Celiacs In My Area


dark wolf

Recommended Posts

dark wolf Newbie

Hello, I am a beginner at computers I can not figure out how to use this space. All I wanted is to be able to meet people in my area with celiac. I would just like to be able to talk or make friends with someone who understands. Non-celiacas think they understand or the opposite & tell me I use as an excuse to not participate. If any one is willing to expain this site and how it works. Can you accually type back and forth with people?? Please e-mail me @ crt491@yahoo.com I am in central florida

Also interested in how to make people understand how easy it is to cross contaminate. Like how I can't share a drink w/ someone eating glutenous foods, and cookware. I swear people really think Ive gone over the edge to exclude my self including my family!!

Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jamilah Rookie

Also interested in how to make people understand how easy it is to cross contaminate. Like how I can't share a drink w/ someone eating glutenous foods, and cookware. I swear people really think Ive gone over the edge to exclude my self including my family!!

No problem eating w/ someone eating gluten---it doen't cc to that extent. Wooden and plastic dishes can retain gluten, but other dishes/glasses are fine. It's good to be careful, but you can't live in a bubble.

Cheers---

Vrazel Newbie
Hello, I am a beginner at computers I can not figure out how to use this space. All I wanted is to be able to meet people in my area with celiac. I would just like to be able to talk or make friends with someone who understands. Non-celiacas think they understand or the opposite & tell me I use as an excuse to not participate. If any one is willing to expain this site and how it works. Can you accually type back and forth with people?? Please e-mail me @ crt491@yahoo.com I am in central florida

Also interested in how to make people understand how easy it is to cross contaminate. Like how I can't share a drink w/ someone eating glutenous foods, and cookware. I swear people really think Ive gone over the edge to exclude my self including my family!!

Thanks.

Hello. I do not know how to use this either but I live in P'cola, Florida and was just diagnosed with celiac. My daughter was diagnosed first in Atlanta and the doctor said I must be the carrier so I went to Atlanta and had the biopsy and that confirmed it. I am also a diabetic. This is very hard for me. My daughter has stuck to the gluten free diet and it has made the biggest difference in her life. I have been very sick for a long time, diagnosed with fibromyalgia, crohn's disease, asthma, acid reflux, iron deficient anemic, B12 is low, been losing hair, gained weight, have sleep aepnea, etc. My doctors in Pensacola told me I did not have celiac. I kept losing blood, staying tired and I was very depressed. The doctors in Atlanta have helped me. I am hoping to find a support group in Pensacola, Florida, or nearby. I am just newly diagnosed and don't quite understand how easy it is to cross contaminate. My son and daughter in law do not feel celiac is anything to worry about. They feel I should worry more about taking care of my diabetes.

taylor- Rookie

Hey there...there are a ton of people from florida here! I'm from Bradenton (below Tampa) but Im in Tallahassee now for school.

You should definitly look into a support group! https://www.celiac.com/st_prod.html?p_prodid=310

Even though this place could pretty much answer any questions you might have...its so great to have those people close to home. if you have any questions I would be happy to help..if i can..my email is tbv07@fsu.edu

Good luck!

  • 3 weeks later...
ackdavis Rookie

First, it's tough feeling isolated, nobody understands your basics to live freely. There is a lot of help on the Internet. And in person. There are lots of us who do well gluten-free and who pitch in to help actively.

Do try Open Original Shared Link to find a group near you for information and support. There are others: GIG, CSA so snoop around until you find what fits you best. Check out Open Original Shared Link and print out what you need to inform your friends? - gotta wonder if they are friends saying things like that - and family. Gluten Free Works site Open Original Shared Link has real simple Diet Cards which you can show off to anyone, to help them understand. Since they are sompact and preprinted, they look official but more importantly, they are accurate. Celiac sites for Travel have cards you can download but they aren't as detailed.

You know you are doing the right thing in sticking to gluten-free, for your well-being. I find I can do much more with a positive attitude and a smile than when I sound negative so I try to always approach the unknowing as if I am helping them. Seems to work for me.

Try Open Original Shared Link and celiac chicks site too. They have lots to say in a good manner, all that helps gluten-free and Celiacs everywhere and with a social context.

Best of fortune! The more we get our word out about how easy it it to mess up a simple plate, the better for you and for all of us! Our eats are delicious! Others should have as much variety in their diets as we do.

B)

Hello, I am a beginner at computers I can not figure out how to use this space. All I wanted is to be able to meet people in my area with celiac. I would just like to be able to talk or make friends with someone who understands. Non-celiacas think they understand or the opposite & tell me I use as an excuse to not participate. If any one is willing to expain this site and how it works. Can you accually type back and forth with people?? Please e-mail me @ crt491@yahoo.com I am in central florida

Also interested in how to make people understand how easy it is to cross contaminate. Like how I can't share a drink w/ someone eating glutenous foods, and cookware. I swear people really think Ive gone over the edge to exclude my self including my family!!

Thanks.

mamaw Community Regular

Hello & welcome

First off I'm not from Florida but you can learn so much from this site. I'm not good at this computer thing either so don't let that stop you...

I think you are asking how to navigate around this site? If you wish to answer a thread or message just hit the relpy button & post you response.If you want to post a new question , hit new topic in the section that best fits your question. Ie: a recipe ? would be placed in the cooking section.

You also will see an option choice, if you would like to be notified when someone answers your ? just click on immediate notification & it will let you know someone has answered.

There are many topics as Doctors, Cooking,& so on then when you click on a topic all the ???'s appear & you can read the ones that interest you. They go on forever.

I will tell you that you will learn more right here than most doctors could ever tell you. The recipes are wonderful & alot of sharing & caring takes place here.

I hope this was what you were asking.....

Please ask questions because everyone here will help you.....

blessings

mamaw

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,285
    • Most Online (within 30 mins)
      7,748

    kristine Michaelson
    Newest Member
    kristine Michaelson
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Celiacsugh
      Thanks! I still have much to learn, I'd hoped going gluten-free would be a magic bullet and I'm learning my system is still very sensitive which is overwhelming and discouraging at times. Thanks for the yogurt tip! There is comfort in knowing that this is common during early healing and I'm not alone! 
    • Celiacsugh
      Thanks so much for the response. Are you usually able to pinpoint a trigger when you get the pain again? What I didn’t share in my earlier post is that I also usually eat out on weekends (though I share celiacs/needs to be gluten-free) and I’ve also been under a lot of stress lately in my personal life. While I’m speculating that it’s the wine it could certainly be a number of things. Do you ever notice the pain more when you are stressed? Learning so much about the brain/gut connection and celiacs. Thanks, there is comfort in hearing others have experienced similar symptoms. 
    • Raquel2021
      This was my main symptom. I still get it from time to time. Also feels like a burning pain on the upper abdomen. I think the wine could definitely cause the pain to be worse. There are do many things I still can't eat.
    • trents
      Yes and this is true of gluten free ready made, processed and prepackaged foods in general. In particular, hard to digest polysaccharides are commonly used in these products that give many celiacs issues and I personally don't handle some emulsifiers well. IMO, reactions to these ingredients are often mistaken for a gluten reaction.
    • Monte Carlo Fine Taste
      Intolerance to certified gluten-free pasta may be due to additives or stabilizers included in the pasta's ingredients, even among the top brands. It's important to check thoroughly before purchasing and consuming; you can find the actual ingredients listed in the detailed component descriptions on Amazon.  
×
×
  • Create New...