Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Informal Poll


L.A.

Recommended Posts

L.A. Contributor

Hi Everyone: I really miss oatmeal...and was wondering who eats oats and who doesn't. Too many conflicting reports on whether oats are safe and I'm afraid to try them for fear of getting sick. Would love your input. Just leaving work now, but will check back in the morning. Thanks, L.A.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Luisa2552 Apprentice

I'm still healing and afraid to try them. I'm going to look into the guaranteed gluten-free ones.

burdee Enthusiast

There are several varieties of certified gluten free oats (grown in oats only fields, processed in oats only factories and verified gluten free). I tried and like "Gifts of Nature" and "Gluten Free Oats". I'm VERY sensitive to gluten (react with painful cramps and bloating). I did not react to either of those.

BURDEE

sickchick Community Regular

I eat oats. Oat flour. :)

MaryJones2 Enthusiast

I've tried several brands of gluten free oats and can say that oats cause the worst reaction of all the glutens for me.

happygirl Collaborator

I have successfully eaten certified gluten free oats.

NWLAX36Mom Rookie
I've tried several brands of gluten free oats and can say that oats cause the worst reaction of all the glutens for me.

Does that mean that gluten free oats do cause the worst reaction or all or regular oats?

I miss oats more than anything but I'm still too afraid to try even the gluten free ones yet. If I test well once I have follow-up medical tests, I am planning to try them.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rsm Newbie

I have purchased some guaranteed gluten free oats but have been too afraid to try them. I love oatmeal, but raw oats have always been a problem for me. When I get the courage up I'll try them. They are very expensive! The brand I have is also Gifts of nature.

mamaw Community Regular

I have been gluten-free for over 4 years now , I started eating oats when they first became available.If you are new to the diet & not recovered yet I would say don't eat them until you have been gluten-free totally for over two years. If you are one of the very sensitives ones , I would say DO NOT eat them.

Everyone is different so you might just have to take a chance but I would not eat the non gluten-free oats ever.

I eat only a 1/2 cup serving to this date. I think again this can be a product that many will eat & eat until it causes a reaction so go very slowly starting out maybe once a week.....I never thought I would say I miss Oats but I did...

I love the Lara's oats the best but I'm using the gluten-free oats from Powell, Wy as shipping was cheaper at the time. Now Lara's can be found in the US fairly easy.....

mamaw

melrobsings Contributor

I'm crazy allergic to them. If you touch them and then touch me I'm in hives! but I LOVE LOVE LOVE THEM!!! i think it got worse cause as a child I could somewhat tolerate them and would eat them all the time....I just kept getting worse and worse and worse...now I can't even touch them...

Yellow Rose Explorer

The problem with oats is not gluten as oats don't have gluten it is the contamination of oats. There are only a few factories that process oats in the US but these places also process other grains like wheat. So if you can find a place that grows oats without growing other gluten grains in the same field and then find a place that processes without processing other grains you will be ok to eat oats.

Yellow Rose

Luisa2552 Apprentice
I've tried several brands of gluten free oats and can say that oats cause the worst reaction of all the glutens for me.

I'm confused. Oats don't have gluten. Do you think the gluten-free oats are contaminated or do you have an allergy or intolerance to oats?

confusedks Enthusiast

I just wanted to make a suggestion, have you tried quinoa flakes? I know they're not the same thing, but they are a similar idea to oats. I have them in the morning with banana, brown sugar and cinnamon. I don't eat oats. I get too worried about CC in my own home, I couldn't imagine glutening myself! EEK.

Kassandra

sickchick Community Regular

Something I have tried recently (that has a similar texture to cream of wheat) is Polenta. If you are just craving something warm and hearty and sweet, I made mine with milk, honey and sliced bananas!

They were yuuuuuuuum :)

Ursa Major Collaborator

Somehow oats don't agree with me. The protein in oats is very similar to gluten, and some people aren't just having a reaction because of contamination, but rather because they are intolerant to the protein in oats as well.

ENF Enthusiast

I'm OK with Lara's Creamhill oats for the most part, but they do cause a major cleaning out of my digestive system. The reaction isn't exactly the same as when I had problematic celiac digestive symptoms before going gluten-free - but makes me wonder if it's only because of the fiber in oats, which is one reason some people eat them, or if something else is going on, since I do not have a problem with C whether I eat oats or not.

darlindeb25 Collaborator
The problem with oats is not gluten as oats don't have gluten it is the contamination of oats
The problem is, that all grains do have their own type of gluten, it's not necessarily called gluten as in wheat, rye, and barley--which, if I recall, isn't really technically called gluten anyways. Some of us just tend to react to all grains and when the monies are there and and full force research gets going on celiac disease, I think they will find there are different varients of gluten. Just like now, there are gluten sensitive, gluten intolerant, and celiacs--these levels will become much closer defined in time.

I think it will someday be proven that there are definitely celiacs who absolutely can not have oats either and I know I am one. I reacted to oats in foods long before we knew anything about gluten. Long before we knew anything about celiac disease, I reacted to meatloaf, which my mom added oatmeal, oatmeal cookies, apple crisp--anything with oatmeal bothered me. Now, I will not try oatmeal, I still react to oatmeal in lotions and such, so I am positive I can't eat it anyways, I can't eat any other grains anyhow. It's just not worth upsetting the balance. :(

L.A. Contributor

Thanks for the input--think I will stick with my Cream of Rice cereal. You guys are great! L.A. :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - JohannesW85 replied to JohannesW85's topic in Related Issues & Disorders
      4

      Do I have celiac/Gluten sensitivity?

    2. - captaincrab55 replied to Connie Smitj's topic in Coping with Celiac Disease
      2

      Hunger, nervous stomach or Hpylori?

    3. - trents replied to Connie Smitj's topic in Coping with Celiac Disease
      2

      Hunger, nervous stomach or Hpylori?

    4. - Connie Smitj posted a topic in Coping with Celiac Disease
      2

      Hunger, nervous stomach or Hpylori?

    5. - trents replied to Brown42186's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      Help Understanding Test Results


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,369
    • Most Online (within 30 mins)
      7,748

    FionaM
    Newest Member
    FionaM
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • JohannesW85
      Did you take a look at my pics that I uploaded?    These rashes is not itchy, but I have seen that people have this too that have celiac and it’s not itchy for them either. I have also heard that sulfur burps are a common things with celiac too.  Yes it can be something else too but it’s to much symptoms that I have that match with either gluten sensitivity or celiac.   Hopefully it’s just gluten intolerance and not celiac.  As I said before I have the gen type for celiac and diabetes typ 1 and the those diseases going hand in hand.    Thanks again Trent for your time to reply, and I wonder if any body else have kind of the same symptoms that I have?   
    • captaincrab55
      Welcome Connie Smitj,  Did you have a follow up test to see if the treatment for H Pylori was successful?  It's possible to catch it again, especially from a partner.  When I contracted it a second time my wife was tested and was positive for two of the bacteria in H Pylori.  
    • trents
      Welcome to the forum, @Connie Smitj! Can you give us a little more history about your celiac journey? How long ago were you diagnosed and how long have your been gluten free? Do you have other symptoms besides quick onset of hunger after eating and gut pain? How long have these symptoms being happening?
    • Connie Smitj
      I eat a gluten-free diet but hunger pains start within an hour of eating dinner. I  had h pylori infection before I was diagnosed. Occasionally I’ll have bouts of pain. Could it come back or is it just celiac disease?
    • trents
      Scott, am I missing something? For the TTG-IGA normal is anything 3 or less and his score less than 2. I think that one is in normal range. @Brown42186, if the GI doc is not interested in doing an endoscopy with biopsy of the small bowel lining based on the elevated TTG-IGG I would request a repeat on the bloodwork now that you have resumed gluten consumption again.
×
×
  • Create New...