Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Milk Intollerance? Im So Frustrated!


ab123

Recommended Posts

ab123 Rookie

The past few, I eat cereal (and drink the cereal milk) drink a glass of milk, or eat ice cream, and I will get terrible diareah and stomach pains.

When I eat cheese or any other type of dairy I am totally fine. Its only when I consume milk.

I know that I have not been glutened anytime recently, so what is this? If I was lactose intollerant or something wouldnt I react to any form of dairy? Im so frustrated...first no bread products, now milk?!? Please explain this to me!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mango04 Enthusiast

Are you new to the gluten-free diet? A lot of people can't tolerate milk until their villi heal.

Some cheeses contain less lactose than others, so maybe that's why you react most severely to milk and ice cream.

ab123 Rookie

I got on the diet like 6 months ago.

Mango04 Enthusiast

Maybe you should give yourself another couple months to heal, without the added burden of dairy...then reintroduce dairy and see how it goes.

Yellow Rose Explorer

I have always had a problem with milk and icecream. Not with cheese or other dairy. Is this new for you? Have you been able to drink milk and eat icecream without problems in the past? If so then I would agree with Mango04 and give it a few months to settle down and then try reintroducing. But do it slowly when you start back up. Not more than one serving in a five day period.

Yellow Rose

ab123 Rookie

Ok, I will definatly do that. I have never had a problem in the past with any dairy products before. I actually didnt know that you are supposed to go dairy free for a while when you first eliminate gluten free from your diet. I found that out like 3 days ago.

Any suggestions on a good tasting soy milk or anything? Cereal is my favorite food and you cant have that without milk!! Thanks for yalls help!

  • 2 weeks later...
Samanthasmomma Apprentice
Ok, I will definatly do that. I have never had a problem in the past with any dairy products before. I actually didnt know that you are supposed to go dairy free for a while when you first eliminate gluten free from your diet. I found that out like 3 days ago.

Any suggestions on a good tasting soy milk or anything? Cereal is my favorite food and you cant have that without milk!! Thanks for yalls help!

With my cereal I use Lactose free milk. Safeway has their own brand, if you cant find that use Lactaid. They actually taste good, even a tad sweeter then regular milk.

When I go out for a latte, I order it with vanilla soy milk.

I prefer the soy milk, but I don't buy it for home use because it has a shorter shelf life and I don't drink it fast enough. The lactose free milks have a longer shelf life, so I buy them.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mom23boys Contributor
The lactose free milks have a longer shelf life, so I buy them.

Lactose free milks still have all the proteins though. They just change the sugar.

tarnalberry Community Regular

Given that you can have non-milk dairy products without symptoms, it's more likely that you are not intolerant to the casein (protein) in milk, but rather missing sufficient enzyme to break down all of the lactose (sugar). Your symptoms fit this pattern as well. You may want to try taking Lactaid - either getting the milk or taking the pill supplement (available at almost any market/drug store/etc.) - which gives your body the enzyme you need.

As we get older, or if we haven't consumed milk for a while, our bodies start making less and less lactase (the enzyme that breaks down lactose), and you can end up having enough to break down the lactose in - for example - cheese, but not milk. Eventually, many people find they are totally lactose intolerant. In fact, in the world population as a whole, being able to consume milk in adulthood is the exception, not the rule. (It's a genetic adaptation, thought to have started in the Northern European countries.)

Kelli Newbie

I also am a Celiac with Lactose intolerance. I knew I was lactose intolerant before I knew I was a Celiac. It is slightly more difficult to find meals that are dairy and Gluten free but their out there. I buy dairy free "kinda butter, and Lactaid milk is the best....there is also rice milk, almond milk, etc. have fun and try all of them and find what works best. I recently bought "Nayonaise" then tries Canola mayonnaise. I didn't exactly like those but was advised to try Smart bBalance Mayo. I tried it and wasn't sick at all and the best part is that it is in with the other normal mayo so it's easy to find. I take a liquid vitamin to help my body absorb calcium etc. before my small intestines and so far it's been good. Your best bet is to go to Barnes and Noble or any book store and get the Allergen Free Cookbook. THese are tasty recipes cooked with substitutes for dairy, eggs, and Gluten. I have never drank milk by itself but I had my son try the Lactaid and he liked it. I bought it to put on my cereal. (Puffins peanut butter flavored puffed corn cereal) I also bought gluten free granola (yikes) and a granola like mixture mixed with dried fruits (yum!) That seems to be a great ceral as well. Lactaid pills work but only sometimes for me-I just cut out the dairy. Soy yogurt is good frozen, and I have tried all the different icecreams mad ewith rice, soy and tofu. I have a new favorite "Tofutti" vanilla almond bark. It have chocolate liquer and almonds in it and I think it's better than regular icecream. I also buy mozzarella flavored "kinda" cheese-there isn't much of a difference hear so that's great! Salad dressings like Ranch and Ceasar contain dairy and can be found in the organic section that are for the most part dairy and gluten free. I just switched to balsamic vinegar and oil. I have always bought the "kinda" eggs and those are great to cook and eat. What's acouple months or so of waiting and being dairy free if it means being without stomach cramps and diarrhea?!

Samanthasmomma Apprentice
Lactose free milks still have all the proteins though. They just change the sugar.

They add lactase enzyme and it breaks down the lactose protein, into glucose which makes it lactose free and easy to digest. They say our bodies actually stop producing lactase after we are weaned as babies. I have also read that 50 percent of adults in the world are lactose intolerant.

ab123 Rookie

Thank yall so much for the help. Ive been drinking soy milk in my cereal and am sort of getting used to it. I def. will try lactaid milk next time. Maybe it will taste better. Ill also look for that book. I just canceled my meal plan at school so it will be usefull!

tarnalberry Community Regular
They add lactase enzyme and it breaks down the lactose protein, into glucose which makes it lactose free and easy to digest. They say our bodies actually stop producing lactase after we are weaned as babies. I have also read that 50 percent of adults in the world are lactose intolerant.

btw, lactose is not a protein, it's a sugar - a disaccharide of galactose and glucose. the protein (casein and whey being the major ones) remains unchanged with the use of lactase.

a person can be intolerant to either - though the mechanism of intolerance is different for each.

  • 2 weeks later...
Candy Contributor

Try Goat's milk -it's low in lactose,but I don't know if it has casein,I gotta read up on it. But it works OK for me. Look for MEYENBURGS goat milk .It's real whole milk dried,tastes pretty good. and I can't really eat soy ,or potatoes,or eggs too good either....?

tarnalberry Community Regular
Try Goat's milk -it's low in lactose,but I don't know if it has casein,I gotta read up on it. But it works OK for me. Look for MEYENBURGS goat milk .It's real whole milk dried,tastes pretty good. and I can't really eat soy ,or potatoes,or eggs too good either....?

goat's milk has casein - all forms of dairy have casein - but the proportions of different subtypes of casein vary between different mammalian milk. there are theories that people are often primarily intolerant to one or two subtypes, so trying a milk that has a significantly different proportion of proteins may make a difference and be low enough in the offending protein to be tolerable in small quantities. (this is *not* saying it's safe for anaphylatic allergies - almost all milks have the vast majority of subtypes of casein in some quantity.)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,777
    • Most Online (within 30 mins)
      7,748

    JuniperWuf
    Newest Member
    JuniperWuf
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
    • Nikki03
      Ok Ty i have a dermatologist so I’ll also discuss this with her as well as the new GI when I get in ty again so very much!!! Hope I get answers soon I’m sick of being sick every single day not even able to get my normal task done I feel so horrible. Appreciate all the info!
    • trents
      There is also something called "seronegative celiac disease" in which there is damage to the villous lining of the small bowel but no celiac antibodies are produced by the immune system. It's not very common and there can be numerous causes including infections, some medications and even some nongluten foods.  If you have dermatitis herpetiformis, that is proof positive you have celiac disease since there is no other known cause for it. If you get it biopsied during an outbreak it can be used to establish a diagnosis of celiac disease, therefore. But not every dermatologist knows how to biopsy dermatitis herpetiformis correctly and it can be difficult to get an appointment with one on short notice.
    • Nikki03
      Ty very helpful I’m in the process of getting in with a new gI doctor and will ask more about all that then and yes the rash is exactly like that. I have a half cousin with celiac but that’s it in my whole family and idk if that matters as I see it is hereditary and others say the the only in the family with it. Either way this was very much appreciated ty again. 
    • fritz2
      My first post includes the blood test report done by the second doctor.  They told me to take two Naproxen tablets per day.  Absolutely worthless but I'm doing it.  I get to visit the doctor again in two weeks.  These doctors are worthless.  I had to clue them in to the fact that they used to treat me for fibromyalgia 15 years ago with vicodin until some political stooge had it removed from the market.  Then I found out about my grandchild with celiac so I removed gluten from my diet and got better.  (I had hashimoto's then and still do).  They don't read my medical record, or they don't comprehend it.  Either case they're worthless turds with no answers that are helpful.
×
×
  • Create New...