Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Diagnosed, First Time Here, Help!


GuitarGurl

Recommended Posts

GuitarGurl Newbie

Hello to all and thanks for letting me in. I am over 50, and just diagnosed this week with "severe Osteoarthritis, end-stage" whatever end-stage means, and I am being referred to an Orthopedic Surgeon.

My good friend has been gluten-free for several months now, and says her knees are so much better now that her arthritis pain is gone, so she referred me here. However, I don't know anything about Celiac Disease, or gluten-free, or how it relates to Arthritis. Can someone direct me how to find out?

And I need to find out the basics of a gluten-free diet, please don't make me cook everything from scratch, I can barely stand long enough to make myself a cup of tea! B)

Thanks to anyone who will lead me through this learning process!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tom Contributor

Well, GuitarGurl, coming here is good way to start gluten-free.

I just put down MY guitar to write this!

You'll find a lot of info here in the cooking/baking sections and in the gluten-free Products section.

Straight gluten-free is a helluva lot easier than it used to be.

I bought a breadmachine to make the bread part a breeze - never did find a store-bought loaf worth eating, tho I haven't looked in a few yrs.

I've been off yeast for a while now but I used to just buy a Bob's Red Mill bread mix and toss it in the machine and have fantastic fresh-baked bread before long.

It IS daunting at first, but in a few wks you'll have no problem eating great & gluten-free.

And, of course, probably feeling much better too. :)

Guest j_mommy

Mrs. Leepers brand pasta is good...I like the corn variety...still don't are for rice noodles!

www.sillyyakbakery.com and www.grandmaferdons.com : both of these sites have awesome premade bread!!!!

Good Luck to you!

Note: Gluten intolerance and celiac disease suck the nutrients out of your body(everything goes right through you) so this causes your bones to not get what they need which in turns causes osteo problems!!!!

Guest lorlyn

Hi and welcome :rolleyes: Just keep trying it does get easier.

mftnchn Explorer

Since there are lots of causes for arthritis, I would suggest before you delve into the gluten-free diet, ask for a celiac blood test panel

Antigliadin (AGA) IgA

Antigliadin (AGA) IgG

Anti - endomysial (EMA) IgA

Anti - tissue Transglutiminase (tTg) IgA

Total Serum IgA

If that is negative, consider Enterolab, which tests for gluten sensitivity and some other foods. Use that as a guideline, not a diagnosis for celiac.

Then you could do a trial on the diet. Just know that if you are celiac, you might need to wait for months to see the improvement as it is related to the healing of the damage in your gut and other places from the gluten. If you do stews in the crock pot and so forth, the cooking is easier. Do you have someone who can help for part of the work?

If you are celiac, you may need some supplements as your arthritis may be worsened by malabsorption.

We really hope to hear that you are better!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,819
    • Most Online (within 30 mins)
      7,748

    Susan Goodman
    Newest Member
    Susan Goodman
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AuntieAutoimmune
      Great tips, Deb. Thanks.  What a pity that they no longer mark items as gluten-free. And it is even more of a shame that you must bring protein bars instead of the crew helping you with your needs. Are you planning on sailing Royal again? 
    • Scott Adams
      I've not heard of any issues with Primal Kitchen, but it certainly would be worth not using the brand for a while to see if this helps. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • Scott Adams
      If you are super sensitive you may want to look for only Certified Gluten-Free Products, as @trents mentioned.
    • Scott Adams
      I'm not sure about low calorie, as puddings are typically a dessert, but we do have this category: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-pudding-recipes/ This one might work if you cut back on the sugar:    
    • DebJ14
      We are off next week on our 9th RCCL cruise since our diagnoses.  I send an email to special_needs@rccl.com before every cruise letting them know that I am both dairy and gluten free and my husband is gluten free.   Unfortunately, with the new menus they introduced in 2023, they removed the gluten-free designation from each item on the menu.  Instead of having a dedicated person take gluten-free orders, it now falls to your regular wait staff.  Some have been great and some not so good.  We had a great cruise in May and hit it off with our head waiter.  She went the extra mile and ordered gluten free desserts that were not on the menu.  My problem arises from other food allergies.  I am allergic to dairy, beef, and several types of fish.  On those days my husband is a happy camper with a steak or salmon, veggies and a baked potato.  I end up not getting enough protein, so I bring protein bars.  I also bring snacks for the room. As long as the food is commercially prepared and unopened, you can bring it. Often the only dessert choices that are gluten free contain dairy, so I am out of luck.  But, if you are just gluten free, they have plenty of choices.  See the head chef in the Windjammer buffet and he will give you a tour of the gluten-free choices.  They usually have 2 gluten free desserts out at lunch and they are labeled gluten free. We have found that it works best to have assigned dining rather than anytime.  That way the waiters learn from the get go what our needs are, and we don't have to explain ourselves every night.  We also get a private table for 2.  I frankly got sick and tired of tablemates telling me a little bit of gluten would not hurt me.
×
×
  • Create New...