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Gluten Free For A Month And A Half, Casein Free For 2 Weeks...


Panopticism

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Panopticism Rookie

Is it normal to still have the same bloating and cramping on a daily basis even after eliminating both gluten and casein? My diet consists of fruits, vegetables, chicken, occasionally turkey and fish and plenty of corn. Sometimes I eat nuts and seeds. How much of this is normal? My diarrhea went away almost immediately after eliminating gluten, but bloating and gas still. What's the deal here?


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stargazer Rookie

Maybe you are having a reaction to corn. I also have a problem with dairy and when I accidentally eat some, I get really bloated and have lots of gas that lasts for probably a week and a half to two weeks sometimes. The bloating and gas then goes away. Maybe the casein hasn't completely cleared out yet.

mommyagain Explorer

What form is your "plenty of corn" in? Some people have problems digesting whole corn kernals, but no problems with corn that's been mashed up. For instance, I can eat corn chips and corn tortillas til they come out my ears... but if I'm eating corn on the cob, I need to limit myself to 1 ear or I have problems. I think that it may have to do with how damaged our intestines are due to the gluten. Anything that is "difficult" to break down causes problems.

I realize that you're probably trying to use corn as your carbs, but you may want to eliminate the corn for a few days, try substituting rice or potatoes.

Panopticism Rookie

I eat a lot of Gluten Free tortilla chips, under the brand name "Go-Mex." I also eat pop corn, popped without oil and not buttered. I bread chicken and tilapia/haddock/halibut with corn flour once or twice a week. I do not eat a lot of corn on the cob or canned corn, because it tends to not feel so good.

I do eat a fair bit of rice and potatoes, too. I guess I forgot about them. Rice seems to be one of the few things I can eat any time without having some section of my digestive tract pissed off at me.

nora-n Rookie

I have read a lot of postings about people having problems with fruit, the fruit sugar.

You might want to look it up on the internet. Bloating is one of the symptoms.

Also, many celiacs have problems with fiber (roughage) in the beginning of a gluten-free diet.

This is because the villi are damaged.

mftnchn Explorer

It is possible that it is just taking awhile to fully resolve. Remember it takes adults 1-2 years to heal after going gluten-free.

It is also possible that you have other food intolerances which is common for celiacs. For some these seem to eventually resolve. For others, they don't. It is very individual.

Your confusion is normal, we all have to feel our way along. Lots of people can relate.

confusedks Enthusiast

I think you need to give casein free more time. Also, are you sure your gluten-free? New toaster, new pots and pans, dedicated toaster? If you do, ignore the suggestions, but just a thought.

Kassandra

Also, soy may be a problem.


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Panopticism Rookie

I could do with a new set of pots and pans and I don't use the toaster at all. Thanks for the tip.

mftnchn Explorer

The issue with pots and pans is what kind do you have? It they have porous or scratched surfaces that gluten could stick to, you might be having a problem.

Also what about your personal care products?

Are others in your house eating gluten, if so what precautions are you taking?

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    • trents
      We are all different and our immune systems are unique. I will say, however, that I have not gotten the impression as a moderator and reading hundreds and hundreds of posts on this forum over the years that a dermatitis herpetiformis outbreak caused by grains other than wheat, barley and rye is common. But perhaps it is more common than we have realized and it could be why it it is seems to be common that those who suffer from dermatitis herpetiformis struggle to keep it under control. Perhaps there are qualities found in all cereal grains besides gluten that are contributing factors. Also, have you tried a low iodine diet to see if it helps with your dermatitis herpetiformis? Reportedly, reducing iodine helps some folks afflicted with dermatitis herpetiformis.
    • Richardo
      Ok thanks Trents. I had the lesions biopsied and confirmed dermatitis herpetiformis, so I guess dermatitis herpetiformis can be associated with other grains not typically gluten. I appreciate your comment and I'll give Dr Osborne the benefit of the doubt because without him I would never have known of my grain intolerance and would still be suffering today. I simply never read anyone explain how grains could worsen dermatitis herpetiformis and I feel that information should be made much more readily available. Hey if someone tries going grain free and there's no improvement, no loss, however it drastically changed my life for the better and could at least be offered as a suggestion to sufferers from dermatitis herpetiformis. The other option is Dapsome and I wouldn't want anyone taking that chemical if there was a more natural solution. thanks again 
    • trents
      Welcome to the forum, @Richardo! We sometimes run across terms like "rice gluten", "corn gluten", and "oat gluten" but they are used informally and, technically, it is incorrect to speak of grains other than wheat, barley and rye as having gluten. Gluten is a protein with a specific structure found only in wheat, barley and rye. Other cereal grains contain proteins that are more or less similar in structure to gluten in some ways but are not actually gluten. Having said that, the proteins found in these other cereal grains are similar enough to gluten to possibly cause cross reactivity in some celiacs. Cross reactivity also happens with non cereal grain foods as well that have a protein structure similar to gluten. A prime example is dairy (the protein "casein"). Another example may be soy. Other foods can also cause cross reactivity for different reasons, such as microbial transglutaminase (aka, "meat glue") used commonly in pressed meat products. Just so you'll know, Dr. Osborne's claims have not received wide acceptance in the celiac community and are looked upon with skepticism by the medical and scientific community. Although he is a board certified nutritionist, his doctorates are actually in chiropractic medicine and pastoral science: https://www.drpeterosborne.com/about/dr-peter-osborne/ I am not sure Osborne has the training and background to address the chemical structure that defines gluten. I would encourage you to do some research on what gluten actually is. I have done this for myself and came away convinced that only wheat, barely and rye actually contain the protein gluten. I do not doubt your claims that you have breakouts of dermatitis herpetiformis from consuming these other grains. I am just contending it is not actually from gluten.
    • Richardo
      I was diagnosed celiac about 15 years ago and followed the usual diet restriction on Wheat, barley and rye and did very well on those restrictions with no problems with dermatitis herpetiformis. 4 years ago I started getting bad rashes on my knees and calves, buttocks, around my waist and my elbows and forearms and hands. It seemed to last about 11/2 to 2 months then clear up for a month and come back  again. I never changed anything in my diet and a dermatologist told me I  must getting  cross contamination, which I knew I wasn't.  Finally after struggling with it all that time, I watched a video by Dr Osborne who sited a study done in England showing that ALL grains (rice, corn etc) contain gluten. I went on a totally grain free diet and have now been 100 percent free of dermatitis herpetiformis for over a year. I tried a test and ate corn flour and it started to come back so I'm off all grains again. Long story I know, but my question is, why is practically EVERY celiac site private or Govt only mentioning the BIG 3 and never mentions other grains as a possible means of contamination? I am free  from a horribly uncomfortable condition now and I know there are others who would be encouraged by this.
    • trents
      Your chest pain could be related to the Sarcoidosis. "When it affects the lungs, wheezing, coughing, shortness of breath, or chest pain may occur." https://en.wikipedia.org/wiki/Sarcoidosis   The bowel incontinence could be caused by surgical damage (or scar tissue) to the cauda equina nerve bundle in the lumbar area of the spine. Or, it could be related to unintentional gluten exposure.
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