Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

First Gluten Free Trip

~alex~

By ~alex~
in Traveling with Celiac Disease

Recommended Posts

~alex~ Explorer
~alex~
Posted

My fiance and I recently got invited to go see some friends about 2 hours away from where we live. I'm nervous about going but I really want to and I don't want to let Celiac get in the way of doing what I want to do. I've been feeling quite good lately (almost normal :) ) so I feel like I'm ready. Here is what I have considered to try and make sure things go smoothly:

  • Our hotel room will have a kitchen
  • We're bringing some pots, pans, plates, cutlery, etc.
  • I'll bring extra diabetes supplies
  • Imodium and Pepto Bismol (just in case)
  • We're bringing some food and will stop at a grocery store when there

Is there any other preparation that I might be missing? I'm so worried we'll get there and think 'how could have we forgot about that'! So if anyone has any suggestions about things they forgot to think about when they went on their first gluten-free trip that would be great. I'm so nervous but excited.

Thank you

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Emily Elizabeth Enthusiast
Emily Elizabeth
Posted

Alex,

It sounds like you have everything covered. My first trip, I didn't get a hotel room with a kitchen and I have to admit it was a bit difficult. I brought pre-made frozen dinners with me, and had a refrigerator in my room, but had to go to the restaurant to get them microwaved. Anyway, I was way more nervous then I needed to be though. Everything went well in the end. Good luck and have a good time!

Emily

My fiance and I recently got invited to go see some friends about 2 hours away from where we live. I'm nervous about going but I really want to and I don't want to let Celiac get in the way of doing what I want to do. I've been feeling quite good lately (almost normal :) ) so I feel like I'm ready. Here is what I have considered to try and make sure things go smoothly:
  • Our hotel room will have a kitchen
  • We're bringing some pots, pans, plates, cutlery, etc.
  • I'll bring extra diabetes supplies
  • Imodium and Pepto Bismol (just in case)
  • We're bringing some food and will stop at a grocery store when there

Is there any other preparation that I might be missing? I'm sorry worried we'll get there and think 'how could have we forgot about that'! So if anyone has any suggestions about things they forgot to think about when they went on their first gluten-free trip that would be great. I'm so nervous but excited.

Thank you

canary46 Newbie
canary46
Posted
My fiance and I recently got invited to go see some friends about 2 hours away from where we live. I'm nervous about going but I really want to and I don't want to let Celiac get in the way of doing what I want to do. I've been feeling quite good lately (almost normal :) ) so I feel like I'm ready. Here is what I have considered to try and make sure things go smoothly:
  • Our hotel room will have a kitchen
  • We're bringing some pots, pans, plates, cutlery, etc.
  • I'll bring extra diabetes supplies
  • Imodium and Pepto Bismol (just in case)
  • We're bringing some food and will stop at a grocery store when there

Is there any other preparation that I might be missing? I'm so worried we'll get there and think 'how could have we forgot about that'! So if anyone has any suggestions about things they forgot to think about when they went on their first gluten-free trip that would be great. I'm so nervous but excited.

Thank you

There are lots of travel ideas for celiacs on the web. Here are a few:

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link (I think this person deserves donations! His language cards are great!)

tom Contributor
tom
Posted

Oh yeah u got it covered.

Did u check your tire pressure? :)

The hotel room w/ kitchen is the way to go.

I should find that bkmrk for the site that lists kitchenette hotels cross-country.

Sometimes they try to pass off a microwave & coffeemaker as a 'kitchen', but not that much.

Open Original Shared Link

Great site for us. B)

~alex~ Explorer
~alex~
Posted
  • Author

Thanks for those websites guys. We're leaving tomorrow so it's good to do some last minute reading to assure myself that we're prepared. I've tried to think of everything so I'm feeling pretty confident that things will go smoothly. We're only going for a weekend and I think I've packed more stuff than when we went to live in a different city for 6 weeks! If I've forgotten anything or make any mistakes at least I'll have some advice to pass on of what not to do.

Lisa Mentor
Lisa
Posted

Have a wonderful time Alex and Ryan. Ya got it covered babe! ;)

blueeyedmanda Community Regular
blueeyedmanda
Posted

You sounds like you have everything you need. Have a safe and enjoyable trip :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


~alex~ Explorer
~alex~
Posted
  • Author

Our trip went really well. The kitchen in our hotel was great and we were able to make gluten free meals just like at home. My blood sugar was a little erratic due to my schedule being off but nothing serious. The prospect of going on a honeymoon doesn

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,197
    • Most Online (within 30 mins)
      7,748
    Mrs. Ward
    Newest Member
    Mrs. Ward
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Coping with celiac

      By Scott Adams · Posted

      What is the LCHF diet...low carb high fiber?
    • knitty kitty
      Dangerously underweight, Perfect gluten free and insomnia

      By knitty kitty · Posted

      @SaiP, I noticed that you are eating foods that are high in histamine.  Bananas, avocados, spinach, gluten, and tuna are high histamine foods or are histamine liberators.  Histamine is released by mast cells in the body as part of the autoimmune reaction to gluten.  High histamine foods add to that histamine burden, making clearing histamine difficult.    Histamine is a helpful neurotransmitter, causing alertness.  We wake after sleep because our body produces histamine.  BUT, excess histamine causes insomnia.   We need vitamins and minerals, like Thiamine, Pyridoxine, Cobalamine, Vitamin C, and magnessium, to help our body break down and clear out histamine.   We need Thiamine and the other B vitamins to turn carbohydrates, like white rice, protein and fats into energy and fuel for the body.  The more carbohydrates you eat, the more thiamine is needed above normal.  More thiamine is needed when physically sick, or emotionally stressed.  Losing weight until skin and bones is a symptom of Thiamine deficiency. White rice is stripped of nutrients like Thiamine, when the germ is removed to make it white.  Vitamins added to enriched rice can be lost if the rice is washed.  If you are increasing your rice consumption, you need to increase your thiamine.  The form Benfotiamine has been shown to promote intestinal healing. Healthy fats like olive oil should be included in the diet.  Our body likes to use healthy fats as fuel.   Do look into a low histamine gluten free diet.
    • joleenrae
      + bloodwork - endoscopy.. then + bloodwork and another + bloodwork.. next endoscopy??

      By joleenrae · Posted

      The first lab was different because Allina switched which lab they work with in between March and October. But October and January were the same lab. All through Allina but two separate labs.  
    • trents
      + bloodwork - endoscopy.. then + bloodwork and another + bloodwork.. next endoscopy??

      By trents · Posted

      Since she is asymptomatic and her first biopsy was negative I would not assume she has developed celiac disease. If her upcoming biopsy shows evidence of mucosal damage you have the firm evidence you need to trigger the gluten-free protocol at the preschool. There are other causes for mildly elevated tTG-IGA levels besides celiac disease. Studies are all over the map with this statistic but there is somewhere between a 10% and an almost 50% chance that your daughter will develop celiac disease since she has a first degree relative who is a celiac (her sister). The important thing in this scenario is to continue to monitor the situation via testing and symptoms. You are already doing this so kudos to you and your doctors. But one question I have is, are the blood samples being tested by the same lab in each case? Different labs build these tests a little differently and there is no industry standard. So, to compare her tTg-IGA test scores from one time to the other is only useful if the analysis is being handled by the same lab.
    • joleenrae
      + bloodwork - endoscopy.. then + bloodwork and another + bloodwork.. next endoscopy??

      By joleenrae · Posted

      My daughter was tested at her annual appointment when she turned 4 because her brother has celiac's. She has no symptoms. She eats a lot of gluten.  Blood work round #1 March 2024:  -          Endomysial IgA Ab: Negative  (Range: Negative) -          Gliadin IgA: <10.0 U/ml  (Range: <20.0 Negative) -          IGA: 93.43 mg/dL  (Range: 27.00 - 195.00) -          TISSUE TRANSGLUTAMINASE IGA: 9.1 U/ml  (Range: <4.0) *** this was high. the range changes for the next one, but it was noted that it was about double the range.  We went for an endoscopy in May 2024 and it was negative.  Blood work round #2 October 2024: -          ENDOMYSIAL ANTIBODY TITER: 1:5 titer  (Range: <1:5) **flagged as high -          ENDOMYSIAL ANTIBODY SCR (IGA) W/REFL TO TITER: POSITIVE  (Range: NEGATIVE) **flagged because its not negative -          IMMUNOGLOBULIN A  TISSUE TRANSGLUTAMINASE AB, IGA:  28.8U/mL  (Range: 22 – 140.  <15.0  =Antibody not detected. >or= 15.0 =Antibody detected.) **flagged high but the ratio/range was different and about double. Note says: Serological evidence for celiac disease is present. Blood work round #3 January 2025: -          TTG IGA: 28.1U/mL  (Range: 22 – 140.  <15.0  =Antibody not detected. >or= 15.0 =Antibody detected.) Now we are scheduling another endoscopy. My main concern right now is if the endoscopy is negative again…where does that leave us??? Public Schools and daycare will not feel her gluten free if its not an official diagnosis.
×
×
  • Create New...