Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ok - Anybody Out There From Oklahoma!


adiftime

Recommended Posts

adiftime Rookie

Hi!

I am in the Tulsa area and just wondering if there is anyone in this group around here? :D

Billie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



WW340 Rookie

I don't live in Tulsa anymore, but I still work there part time. I also do a lot of my gluten free shopping at the wild oats store on 41st. I love that store.

My GI doc is in Tulsa. He is very knowledgable about celiac disease. He says that Tulsa is a hotbed for celiac disease. There are 2 of us in one small office, so I guess he is right.

adiftime Rookie
I don't live in Tulsa anymore, but I still work there part time. I also do a lot of my gluten free shopping at the wild oats store on 41st. I love that store.

My GI doc is in Tulsa. He is very knowledgable about celiac disease. He says that Tulsa is a hotbed for celiac disease. There are 2 of us in one small office, so I guess he is right.

Wild Oats is a neat store. I haven't been there but a couple of times so far. Hopefully when I get to feeling a little better I will be able to spend a little more time lokking at what they have to offer.

If you dont mind me asking, Who is your GI doctor? Right now I am pretty much dependent on my dietician for info. The GI that I went to for the scope, just did the scope and sent me back to my primary, who doesn't seem to know a whole lot. My dietician is doing some checking for me also, but I really think I should be working with a doctor that understands the disease a little bit better than my primary care doctor.

I was beginning to think I was alone on this site as far as any one being in Oklahoma. Surely there is more Oklahomans on this site than just us two. :D

Thanks for responding, talk to you soon.

Billie

WW340 Rookie

My doctor is Dr. Nightengale. He doesn't spend so much time talking about the diet itself, he sent me to a nutritionist for that, but he does answer any specific questions I may have about the diet. He does all the blood tests for possible vitamin deficiencies, B12, folate,anemia, thyroid, liver enzymes, etc.

He immediately sent me for a dexa scan upon diagnosis which showed severe osteoporosis. He followed me every 3 mos. initially, now every 6 mos. with continuing monitoring of the previously mentioned blood work.

He is a Mayo trained doctor, and very smart. He also checked me for other GI diseases in addition to celiac and told me I have the markers for crohns disease as well.

I feel he has a real interest in the disease and is very thorough in his workups.

adiftime Rookie
My doctor is Dr. Nightengale. He doesn't spend so much time talking about the diet itself, he sent me to a nutritionist for that, but he does answer any specific questions I may have about the diet. He does all the blood tests for possible vitamin deficiencies, B12, folate,anemia, thyroid, liver enzymes, etc.

He immediately sent me for a dexa scan upon diagnosis which showed severe osteoporosis. He followed me every 3 mos. initially, now every 6 mos. with continuing monitoring of the previously mentioned blood work.

He is a Mayo trained doctor, and very smart. He also checked me for other GI diseases in addition to celiac and told me I have the markers for crohns disease as well.

I feel he has a real interest in the disease and is very thorough in his workups.

Thanks for the info. I may try to get in to see him. I have a wonderful dietician, but your doctor sounds just like what I'm looking for.

Thanks again,

Billie

  • 1 month later...
glutenfreewife Rookie

Hey there! I'm in Tulsa and am recently gluten-free. I've been looking for some great restaurants I can eat at. I've found Outback, Carraba's, and Carrino's. Any else?

Anna

Diagnosed with IBS 2007. gluten free for a month, allergic to eggs and milk.

Centa Newbie
Hey there! I'm in Tulsa and am recently gluten-free. I've been looking for some great restaurants I can eat at. I've found Outback, Carraba's, and Carrino's. Any else?

Anna

Diagnosed with IBS 2007. gluten free for a month, allergic to eggs and milk.

I was through Tulsa recently and was taken to a restaurant in Utica Square shopping center called The Polo Grill, and it turns out that the chef has developed a gluten free menu...ask for it; it comes in a separate menu...it was a slow time, in between lunch and dinner...the chef came out to meet me and said they even have a separate prep area in the kitchen for the gluten free dishes. He really sounded like he understood the business of cross contamination. And they aren't all salads.... The server was knowlegeable, too...she was able to say which items on the regular menu were gluten free and what their contents were.

There was a P.F. Changs in the same shopping center.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



WW340 Rookie

There are several places in Tulsa that at least understand gluten free. I have recently heard that Michael Fusco's Riverside Grill is a good place to go, because Michael, the chef/owner, has celiac disease. He has gluten free items on his menu. I have not eaten there myself, but another woman in my office has celiac, and she ate there and thought it was good.

The chalkboard will prepare a gluten free meal, but they require 3 - 4 days notice. The food is well worth the effort though.

There is another restaurant in Utica square, but I can't think of the name of it. I will try to find it and post later.

My GI doc says that Tulsa is a hotbed of celiac disease, and there are more restaurants catering to us popping up all the time.

  • 2 weeks later...
WW340 Rookie

Oh my, I ate lunch Thursday at Michael's Riverside Grill. It was fabulous. The majority of the menu is gluten free. I had lobster bisque and breaded fish and chips. They even serve a little cornbread muffin that is gluten free with the meal.

The menu denotes which items are gluten free and the servers are all very knowledgeable.

The dinner menu is also loaded with gluten free choices. I can highly recommend it. My husband and I just couldn't believe our eyes or taste buds. I am very sensitive and did not have any reaction at all.

It is pricey, but well worth it. We will be making this a regular for us.

April in KC Apprentice

Hello! I am traveling to Stillwater on Wednesday for business. Does anyone know where I can get a gluten-free meal near OSU? No biggie if not - I am only there one day.

Thanks! - April

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,656
    • Most Online (within 30 mins)
      7,748

    AdrianaMarin
    Newest Member
    AdrianaMarin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      UPDATE I've been asked for an update by someone who sent a PM, but It's best to post health info publicly because this means fellow Mods can make sure I'm staying on the straight and narrow path with any advice I'm giving out! Alex...   Yes, my symptoms did slowly improve.  They started around October, from memory.  Approaching Christmas I remember the feeling as if there were feathers irritating my chest in my lower throat and in my lungs, and things like scented candles made things even worse.  I had a endoscopy and they found nothing wrong, I also had a chest X-Ray because of the cough which lasted more than six weeks and nothing showed. In the end I think the end it settled because I was doing the following: following a reflux/gastritis diet  (you can find lots of these diets on line, which focus on a low fat, low acidndiet, avoiding spices etc, avoiding alcohol and coffee etc) not eating three hours before I went to bed, which means going to bed with an empty stomach sleeping with a wedge pillow, which I still do, five years on... taking Gaviscon Advanced before bedtime, and after meals (not much, just a large teaspoon) using a blue Salbutamol inhaler, I think it was two puffs in the morning and two puffs at night. I felt a lot better after about three or four months.  I then only used the inhaler and Gaviscon when I had to, if I started to feel my chest was getting irritated again. I find keeping on top of reflux symptoms the way forward.  My gastroenterologist told me that the cough was to do with reflux/gasses in the gut coming up that can irritate the throat and airways and the fact I noticed improvement when using Gaviscon showed that that was what was causing it, because it provides a barrier that stops this happening. From the Gaviscon UK website: "It creates a protective barrier or raft over the Stomach contents (which is mostly acid, but also pepsin and bile)." https://www.gaviscon.co.uk/#:~:text=It creates a protective barrier,water and other neutral substances. This protective barrier stopped the contents of my stomach from coming up to irritate my throat, as I understand it, and allowed any irritation in my throat to settle. I do still take Gaviscon if I eat a late meal but not every day.  I hope this helps.  Do come back to me on this thread if I can help further. Cristiana    
    • Scott Adams
      Let us know what you find out, the reference ranges should appear on the original test results.
    • MommaBear82
      Hepatotoxicity DOES happen with kratom. It happened to my husband. He turned yellow with jaundice and his urine became brown. This was only after taking it three times. I know because I was the one who gave it to him, unfortunately. People should realize that it can and does happen. 
    • Toaster
      No other tests. This was from about 10 years ago, I noticed it when checking through my all bloods to look for patterns.  I will go back to my doctor...
    • trents
      Were there any other tests besides the EMA run for celiac disease? If not, you should request them. At minimum, "total IGA" and "tTG-IGA" should be ordered. A more complete celiac panel would also include the DGP-IGA, DGP-IGG and TTG-IGG. And very importantly, you should not have been reducing gluten consumption in the weeks/months leading up to the testing blood draw.
×
×
  • Create New...