Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free/casein Free Mentioned On Oprah Today


SofiEmiMom

Recommended Posts

SofiEmiMom Enthusiast

It was in regards to autism...but it was mentioned more than once and it was amazing to hear Gluten Free mentioned on Oprah. It was also touched upon how Dr's need to listen to Mother's more and display more respect to parents and their gut instincts. This also is relevant to those of us with Celiac and parents of Celiac children.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gfpaperdoll Rookie

Wow, Gluten Free & Dairy Free made the Oprah show today in the discussion with two Hollywood moms re their oys that have autism. Not many details but they were very enthusiastic on how much it has helped their children.

they also mentioned how the pediatriations are clueless and actually insulting to moms. Guess we already knew that.

did anyone else see the show???

jerseyangel Proficient

I only caught the last 10 minutes or so, but the first thing I heard was Holly Robinson-Peete say "gluten" and how when they removed wheat from her son's diet, he improved greatly (words to that effect).

I wish I had seen the whole show...

blueeyedmanda Community Regular

I didn't see the show, but John's cousin who is 11 has downs syndrome and autism--recently diagnosed in the last few years. One thing they mentioned to her mother about autism was a gluten free diet. It was real nice to talk to her when we first met, we had something in common to talk about. Amy (the little girl) is the sweetest girl you would ever meet, she is enrolled into the school district, so she does go to classes. Her parents really work with her too, so she has come a long way just since I met her.

mama2 Apprentice

I happen to watch to the show and was so excited to here them talk about Gluten! I am hopeing that this leads to a oprah show about celiacs!

angel-jd1 Community Regular
I only caught the last 10 minutes or so, but the first thing I heard was Holly Robinson-Peete say "gluten" and how when they removed wheat from her son's diet, he improved greatly (words to that effect).

I wish I had seen the whole show...

I was actually super disapointed in that part. I hated that she said that they had to remove gluten and then only mentioned removing wheat........bummer for the mis-information!!! Hopefully she knows that gluten is in more than JUST wheat....

-Jessica

blueeyedmanda Community Regular
I was actually super disapointed in that part. I hated that she said that they had to remove gluten and then only mentioned removing wheat........bummer for the mis-information!!! Hopefully she knows that gluten is in more than JUST wheat....

-Jessica

Good point Jessica. It might confuse a lot of new celiacs or parents of new celiac children.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gfpaperdoll Rookie

Well she also mentioned her google degree...

AND - she did say how you heal the gut - you heal the brain & that it is all connected !!!!

& she did mention the complete yeast overgrowth from the whole body to the head...

floridanative Community Regular
I was actually super disapointed in that part. I hated that she said that they had to remove gluten and then only mentioned removing wheat........bummer for the mis-information!!! Hopefully she knows that gluten is in more than JUST wheat....

-Jessica

Jessica - you're missing the point - I know you're smarter than that. You're very insightful for such a young person. Consider this: my first doctor (the one that was smart enough to run the Celiac panel on me) told me I'd have to stop eating bread if I had Celiac. He never mentioned gluten or wheat - EVER. The point is if people hear about the wheat free/dairy free diet for Autism, they'll Google it as well and figure out that gluten is in everything and is much more than just wheat. This exposure will help countless families with Autistic families and will give us a hand up as well - everyone on the gluten free diet will benefit because the more demand, the more power we have.

On the show Jenny said 'in laymens terms it means wheat free/dairy free' when Oprah asked about the diet. She said that because her purpose was not to explain the gluten-free/cf diet. She just wanted other Mothers to know how much it helped her son and that she could NOT believe none of her doctors told her about it. To that I say - why would they tell her about a diet that no industry benefits from financially? Except the gluten-free food companies I mean. No - doctors aren't going to tell people about any diet that can benefit them but they'll be the first to cram meds down our throats.

Though I don't have kids I felt so sad for all the Celiac Mothers out there who were made to feel dumb by doctor after doctor - just like Jenny and Holly were. They were talking about exactly what so many of you went through with your own kids. We owe a debt of gratitude to these two ladies. Do you know how many shows have been doing huge Autism stories lately? A LOT of them have aired in the last year and this is the first time anyone has mentioned the gluten-free/cf diet as a possible cure - though people with Celiac know all about the connection. It's a shame for all those stuggling families and if I had to pick a disease for anyone's kids to have it would be Celiac over Autism any day. Let's be happy about all the good the show did for the families with Autistic kids instead of being aggravted that the diet wasn't explained in full detail. We need to look at the big picture here.

Judyin Philly Enthusiast
Well she also mentioned her google degree...

AND - she did say how you heal the gut - you heal the brain & that it is all connected !!!!

& she did mention the complete yeast overgrowth from the whole body to the head...

GOOD OVERVIEW PAPERDOLL

I WATCHED THE WHOLE SHOW AND IT WAS OUTSTANDING.

GENNY'S BOOK WOULD BE A 'MUST BUY' FOR ALL AUTISM PARENTS.

SHE WAS SO POWERFUL

SHE REALLY KEPT HITTING HOME THAT THE PARENTS HAVE TO BE THE CHILD'S ADVOCATE...AND THEY ARE THE ONES WHO WILL HEAL THEIR CHILDREN...OR...GET THEM TO THEIR POTENTIAL.

SHE HIT SO MANY GOOD POINTS

TOO MANY TO MENTION HERE BUT ALL THE THINGS WE KEEP SAYING OVER AND OVER...THE MAIN THING I CAME AWAY WITH WAS

'MOTHERS INTUITION' LISTEN TO YOUR GUT..YOU KNOW YOUR CHILD BETTER THAN AN DR.

IT IS HER PERSONAL OPINION...................AND SHE KEPT STRESSING THAT....THE CHILD SHE GOT BACK AFTER THE 'MMR' UNIONIZATIONS AT A YEAR I THINK...GAVE HER BACK A TOTALLY DIFFERENT CHILD WHO WAS LOST INSIDE HIMSELF AND SHE AND MS PETE KEPT STRESSING...YOU HAVE TO BREAK DOWN THE WALL PIECE BY PIECE.

ESP MS PETE WAS SO HAPPY THAT THE CDC HAS RELEASED A NEW STATEMENT IN REGARD TO THEIR POSITION ON THE IMMUNIZATIONS.

PLEASE DON'T LET THIS THREAD TURN INTO A BIG DEBATE ON THAT 'CAUSE' ISSUE

LET'S FOCUS ON THE GLUTEN AND CASEIN......BEING FOUND BY MOM'S HELPED THEIR KIDS...NOT THE MEDICAL PROFESSION.

AGAIN..I THOUGHT I WAS AN OUTSTANDING SHOW.

JUDY

Judyin Philly Enthusiast
Right on Judy! __________________________________________________________________________________

THANKS FOR THE KIND WORDS FLORIDANATIVE ...

I FOUND A GREAT LINK FOR THE SHOW AND IT LISTS SO MANY GOOD POINTS.

Open Original Shared Link

LOOK UNDER THAT SLIDE SHOW PHOTOS FOR THE TEXT FROM THE SHOW.

WHAT JENNY KEPT TALKING ABOUT WAS ..."MOMMY INSTINCTS"....

WHICH I KNOW WE ALL AGREE WITH.

ANXIOUS TO HEAR WHAT YOU ALL THINK OF THE TEXT.

JUDY

Ridgewalker Contributor

Judy, thank you for the link! I missed the episode, but just went and read the article. It was very inspiring.

I saw on the last page, there was a notice that said the message boards over there were so overwhelmed with responses from viewers, that Jenny and Holly were having trouble posting answers to questions! The website people are working on the technical problems, and it said that more from Jenny and Holly will be posted soon.

-Sarah

Judyin Philly Enthusiast
Judy, thank you for the link! I missed the episode, but just went and read the article. It was very inspiring.

I saw on the last page, there was a notice that said the message boards over there were so overwhelmed with responses from viewers, that Jenny and Holly were having trouble posting answers to questions! The website people are working on the technical problems, and it said that more from Jenny and Holly will be posted soon.

-Sarah

Sarah,

GLAD YOU PICKED THIS UP..ENCOURAGING THAT MORE GOOD GLUTEN FREE NEWS MANY FOLLOW.

JUDY

blueeyedmanda Community Regular

Thanks for the link :) I was unable to catch the show but the article was great. :)

Judyin Philly Enthusiast

EDITED BY JUDY

Judyin Philly Enthusiast

EDITED BY JUDY

blueeyedmanda Community Regular
Open Original Shared Link
Judyin Philly Enthusiast
Open Original Shared Link

Thanks Amanda.

that link said you had to sign in--THIS ONE YOU DO NOT

Open Original Shared Link

OK THANKS TO OUR AMAZING LEADER MODERATOR EXTRODINARE.....PATTI

--I WILL NOT COMMIT MYSELF INTO NUT BIN ...AT LEAST FOR TODAY :lol:

I GUESS WHILE I WAS ON VACATION I THOUGHT THAT THE FORMAT CHANGED ON THE FORUM.

NOPE...PATTI TOLD ME SOMEHOW I'D PROBABLY CHANGED THE 'OPTIONS' FROM 'STANDARD'

THAT'S WHY YOU GUYS CAN SEE IT AND I COULDN'T

THANKS FOR BEARING WITH ME IN MY 'MELT DOWN'

HUGS

JUDY

rock on Apprentice
It was in regards to autism...but it was mentioned more than once and it was amazing to hear Gluten Free mentioned on Oprah. It was also touched upon how Dr's need to listen to Mother's more and display more respect to parents and their gut instincts. This also is relevant to those of us with Celiac and parents of Celiac children.

I was thrilled to see that episode! I had just emailed a friend of mine who's son has Asperger's & told him about my research on celiac as it relates to autism. He said he'd check into it, but I heard through my mom that he hadn't followed through...then came yesterday's Oprah episode. Now, my friend & his wife are out buying gluten free things & looking into changing thier son's diet. Although I have thought of Oprah & her fan base as almost fanatical, I am sooooo glad that she has the power to make people really think about issues.

Thank goodness for Jenny Mcarthy's enthusiasm!!

Crystalkd Contributor

I don't usually get to see the show because I'm at work but my nephew was sick so I was taking care of him. I about came up off the sofa when they said something about gluten-free. It's so hard to make people understand. To clarify Holly's comment she said that her son wa allegic to wheat so they took it out. My friend has a sister that is autistic and after going gluten-free I passed the info on to her mom and I think the now have her on the diet as well but I'm not sure what the out come will be since she's 18 now. All in all I thought it was at the least a very good over view.

Judyin Philly Enthusiast

FOUND IN ..........Google News Alert for: gluten free........EMAI ALERT

Your Dinner Secret Gluten-free Casein-free Expert Supports Jenny McCarthy Book on ...

Business Wire (press release) - San Francisco,CA,USA

One of the most important tools that Jenny describes in her book is the Gluten-Free, Casein-Free diet on which she placed her child. ...

See all stories on this topic

hi

just found this but our forum deleted the link.

i do not know anything about this company nor do i support it.........this is just info...bet you could google it and see what it is about.

i read the article that was attached and they really talked about the cc issue and how important it was was for companies who were doing mail order meals to protect their customers from this.

just some more info.

judy

Nikki'smom Apprentice

I saw the show and was very excited to see gluten-free mentioned!

Canadian Karen Community Regular

Holy Jeepers!

There sure are alot of parents of children with autism that are TOTALLY unaware of the fact that gluten is, indeed, poison.

Open Original Shared Link

I keep praying for the day that Cornell some other prestigious Ivy League university comes out with definite proof and puts the doubt to rest finally! (My niece is studying Environmental Studies at Cornell and is in her fourth year - I keep on telling her to direct her research into this area!!!!)

Karen

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,817
    • Most Online (within 30 mins)
      7,748

    Terry49
    Newest Member
    Terry49
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • ABP2025
      Got it. Thanks Scott. I'll set up an appointment with a GI after the holidays and get all the celiac disease screening done. Thanks to this amazing forum and to all who have answered my question, I now know what my next steps are.
    • ABP2025
      Aah it sucks that there's no definitive way to confirm NCGS or celiac. I've found a GI clinic that is covered by my insurance and I'll contact them after the holidays to setup an appointment. I hope to get some sort of clarity with further tests. 
    • ABP2025
      Thanks @knitty kitty. I didn't know about thiamine deficiency before you had mentioned it. I'm doing more research into what it is and how I can test for that deficiency. Is Vitamin B1 test the best way to find it? I saw that there is another test: Erythrocyte transketolase activity coefficient (ETKAC) assay to test for thiamine deficiency but I'm not sure how that test is done. Is that something I can take on my own or do I need GI referral. If it does turn out that I'm thiamine deficient, does that confirm that I have celiac disease or could it just mean that I have not been consuming Vitamin B1 rich food and once I address that with a supplement or food, I would no longer be thiamine deficient? Also full disclosure, I'm a vegetarian and only last year I found out that my Vitamin D level was very low. It was 3.7 ng/ml and the ideal range is >29.9 ng/ml. After a year of taking multivitamin supplement, my Vitamin D level has gone up to 27 ng/ml. Though it's better than 3.7 ng/ml, it's still below the range. I'm not sure for how long my Vitamin D level was around 3.7 ng/ml before 2023 as I didn't have my Vitamin D test taken prior to that. My doctor also wanted to check my Vitamin B12 level as I might not be getting enough of it from vegetarian sources. When I took that test last year, Vitamin B12 was 247 pg/ml and ideal range is 200-1100 pg/ml. So it's still within the range though it's on the lower end of the ideal range. I also have recently started taking vitamin b-complex tablets daily. I've never checked other Vitamin B levels including Vitamin B1. Do you know if such a very low level of Vitamin D and moderately lower level of Vitamin B12 would cause celiac disease or may contribute to some of the symptoms I've been experiencing? Regarding the DNA test to test celiac genes, are you referring to HLA DQ2 and HLA DQ8 tests? As soon as I got the result where my IgG was above range, I had ordered the "HLA Typing for Celiac Disease" test in Quest Diagnostics which measures HLA DQ2 and HLA DQ8. The test is 2 weeks from now and I'll post my results here once I receive them.  
    • Russ H
      Small amounts of gliadin are detectable in some samples of human breast milk but these are at too low a level to cause symptoms. No gliadin has been detected in the beef of grain-fed cattle.   https://pmc.ncbi.nlm.nih.gov/articles/PMC5622696/
    • knitty kitty
      Welcome to the forum, @Kiwifruit, I agree further testing is needed.  Disaccharidase deficiency is a symptom of Celiac disease.   On your test results, this line  "IgA: 0.9 g/l (norm 0.8 - 4.0)" is referring to Total IgA and it's very low.  People with low or deficient Total IgA should also have DGP IgG test done.  Low Total IgA means you are making low levels of tTg  IgA as well, leading to false negatives or "weak positives".  Maybe a DNA test for known Celiac genes.   Anemia, diabetes, and thiamine deficiency can cause test results like these.  Get checked for B12 deficiency anemia and have your iron (ferritin) checked.  Vitamin D deficiency is common, too.   Might be time to find a gastrointestinal doctor who is more familiar with diagnosing Celiac Disease.   Best wishes on your journey!  Please keep us posted on your progress.  
×
×
  • Create New...