Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hiatal Hernias, Potassium Deficiency, Feeding Tube


BettyL.

Recommended Posts

BettyL. Rookie

It is just over a month now that I had surgery to repair a hiatal hernia for the third time in 6 years. It was the same hernia that broke open each time. The first time in 2002 started with vomiting and dry spams. Nothing show on the tests; but the doctor I was seeing said " something is wrong and we will find out". He order a barium swallow. The hernia showed up at once. It was only a wait until I could get schedule for surgery. Four days in the hospital and I was having dry heaves & body spams as I left the hospital. Two years later (2005) I had emergency surgery to repair the damage. This time 3 weeks in the hospital and not appetite. I still had body spams; but not as bad as after the first surgery. In May of this year I started have spams again, sore throat, etc. At first it was thought I had an allergic reaction to lisinophril I was taking for blood pressure. Change of blood pressure medicine help; but didn't solve the problem. Barium swallow again; I need more surgery to repair my hernia. This time all product used were gluten free. My doctor learned about Celiac problem this time. I spent a week in the hospital, and had a feeding tube put in place. One tube goes into the stomach area and the feeding tube is placed on the duodenum of the small intestine. At first I was on a 24 hour feeding schedule, now I am receiving the same amount of food in 16 hours, so I have 8 hours free. My food is Fibersource HN with Nutrishield. Each can has 1/4 of the daily recommended FDR . I take 6 cans daily. Four and 7 tenth cans gives me 1,400 calories. I am now allow a soft diet starting with water yogurt, soup, etc. My body has responded. My skin is no longer dry, improved hair growth, and nails I have again. I have had only a few spams this time. The doctor feels the spams are the cause of the damage. It is taking me longer to respond this time and it is hope that I will not need another repair in the future.

I looking for other causes for the problem as I thought I was on a gluten-free diet all this years.

Betty L

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      124,706
    • Most Online (within 30 mins)
      7,748

    WentK
    Newest Member
    WentK
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.7k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      There are some causes besides celiac disease for elevated tTG-IGA, such as cow's milk protein, some other bowel diseases, NSAIDs, a certain blood pressure med and parasitic infections but the chances of that being true are not very high compared to the cause being celiac disease. And even with CMP (Cow's Milk Protein) most of those cases involve people who already have celiac disease.   
    • cristiana
      Hi @Schellee94,  it is good to know that you have found this a helpful thread.  Do let us know how you get on! Cristiana
    • trents
      Did you purchase it thinking it was gluten free? The company doesn't advertise it as such do they? Barley is not one of the eight main allergens that the FDA requires to be posted in the allergen info. Wheat is but not barley. But good catch. We don't see many products with barley and rye as ingredients and it is easy to get lazy, not really read the detailed ingredient list and to just go straight for the allergen list.
    • TraceyG
      @Wheatwacked thank you for checking in about choline. I do meet me recommended amount on a plant-based diet already, per my nutritionist. Thankfully, I am not intolerant to soy and the cruciferous veggies I enjoy! 
    • TraceyG
      @Wheatwacked thanks for your input. I am fully committed to being gluten-free if I truly have celiac disease.  I suppose my question is more so wondering if that blood test means I definitely have celiac disease. I had one doc look at the results and tell me to ignore them if I don’t have the classic celiac symptoms. The next doc (a few months later, when viewing the same results) said the results were suspicious and might mean gluten sensitivity, but then had her nurse call me later the same day to say I actually have celiac disease based on the results. So my care team seemed a little unsure. It sounds like, from this forum, that the general consensus is any abnormal blood results indicate celiac.
×
×
  • Create New...