Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm New And Just Not Getting It Right!


texasgal

Recommended Posts

texasgal Newbie

I'm new to this site and could use some help. You all seem to be so willing and friendly so I thought I would ask. I'll make it short. Been on the diet for almost a year and maybe I got a little too relaxed or maybe it was simply cross contamination but the last 4 days I was soooo ill. The body aches - oh my God - and migraine headaches, nothing helps. I feel better today but this last episode I thought I was literally dying. All I ate was a corn tortilla with beef, salsa and black beans at a restaurant and by that afternoon I was full blown glutened. This is not the first time in the last year this has happened and I think I'm being careful and then wham - I'm sick again. Did I mention how bad the body aches are????? Fortunately I have no other food allergies so I know it was gluten. Anyway, I guess I'm feeling a little defeated today. Probably not my best day.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kbtoyssni Contributor

The thing that jumps out at me is you ate at a restaurant. Restaurants are very risky so I would avoid those, especially if you're not feeling well. Give you body some time to heal which you eat guaranteed gluten-free meals at home. I tend to eat out more than most celiacs, but if I've been glutened, I ban myself from restaurants until I heal.

texasgal Newbie
The thing that jumps out at me is you ate at a restaurant. Restaurants are very risky so I would avoid those, especially if you're not feeling well. Give you body some time to heal which you eat guaranteed gluten-free meals at home. I tend to eat out more than most celiacs, but if I've been glutened, I ban myself from restaurants until I heal.

Thanks. Will do.

missy'smom Collaborator

It could very well be cross-contamination. I get really sick from just a little CC. When I do feel limited I focus on what other good things are in my life and what I CAN do. Sorry you feel so unwell. ((HUG)) This disease can be really debilitating. Do your best to take extra good care of yourself and don't make any important changes or decisions until you feel better.

texasgal Newbie
It could very well be cross-contamination. I get really sick from just a little CC. When I do feel limited I focus on what other good things are in my life and what I CAN do. Sorry you feel so unwell. ((HUG)) This disease can be really debilitating. Do your best to take extra good care of yourself and don't make any important changes or decisions until you feel better.

Good Advice. Thanks.

mommyagain Explorer

When you do venture back out to a restaurant, make sure you tell the server that the MUST tell the cook that you have food allergies and your food has to be cooked separately. Even if you are ordering something "safe", they could plop your corn tortilla right on the spot where a flour tortilla was, and you end up sick.

Actually, I usually say "severe allergies" because it gets their attention. I know people who say "gluten intolerance" instead of allergy but I think most people think of an intolerance as being less of a problem than allergy. I figure that when I'm at a restaurant, I'm not there to educate, I'm there to eat! :D

bfarnsworth0709 Rookie

I agree. Definitely say "severe food allergy". I know for me it helps get their attention, and they are way more helpful to adapt to my needs. If I say "gluten intolerance" they usually don't know what the heck I am talking about and therefore, blow it off as not a big deal. Even if after I say "severe food allegy" and they have that deer in a head lights look, I will use the words, "deathly ill" to reiiterate that I am being absolutely serious. And I am not lying b/c sometimes when we are glutened, we swear we are dying and sometimes would rather just die than feel as miserable as we are feeling.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

cross contamination from the tortilla?

sauce to marinate the beef in?

filler/flavor in the beans?

filler in the spices?

other contamination in the kitchen?

there are a number of potential sources - ditto on avoiding restaurants until healthy, and then being very clear on the need to not contaminate your food when you're willing to take the risk again.

texasgal Newbie

You're right. I need to be a little more aggressive when I order. Sometimes I have said I have can't eat flour and then they think I'm on the Adkins Diet .... thanks.

texasgal Newbie
cross contamination from the tortilla?

sauce to marinate the beef in?

filler/flavor in the beans?

filler in the spices?

other contamination in the kitchen?

there are a number of potential sources - ditto on avoiding restaurants until healthy, and then being very clear on the need to not contaminate your food when you're willing to take the risk again.

Wow so many choose from. It could have been anything. I know one thing for sure, I won't be eating at that restaurant again. And I'll certainly work on being more clear when ordering. Thanks.

texasgal Newbie
I agree. Definitely say "severe food allergy". I know for me it helps get their attention, and they are way more helpful to adapt to my needs. If I say "gluten intolerance" they usually don't know what the heck I am talking about and therefore, blow it off as not a big deal. Even if after I say "severe food allegy" and they have that deer in a head lights look, I will use the words, "deathly ill" to reiiterate that I am being absolutely serious. And I am not lying b/c sometimes when we are glutened, we swear we are dying and sometimes would rather just die than feel as miserable as we are feeling.

"Severe food allergies" yes, I'll use that term and when I think of the last 4 days, I'll have no problem at all using "deathly ill". Thank the Lord, it is passing. I appreciate your comments.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,285
    • Most Online (within 30 mins)
      7,748

    kristine Michaelson
    Newest Member
    kristine Michaelson
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I think most of us, when we first got our diagnosis, imagined that going gluten free would be the magic the bullet that would restore us to perfect health. We soon find out that it usually isn't quite that simple and that celiac disease has long fingers.
    • Celiacsugh
      Thanks! I still have much to learn, I'd hoped going gluten-free would be a magic bullet and I'm learning my system is still very sensitive which is overwhelming and discouraging at times. Thanks for the yogurt tip! There is comfort in knowing that this is common during early healing and I'm not alone! 
    • Celiacsugh
      Thanks so much for the response. Are you usually able to pinpoint a trigger when you get the pain again? What I didn’t share in my earlier post is that I also usually eat out on weekends (though I share celiacs/needs to be gluten-free) and I’ve also been under a lot of stress lately in my personal life. While I’m speculating that it’s the wine it could certainly be a number of things. Do you ever notice the pain more when you are stressed? Learning so much about the brain/gut connection and celiacs. Thanks, there is comfort in hearing others have experienced similar symptoms. 
    • Raquel2021
      This was my main symptom. I still get it from time to time. Also feels like a burning pain on the upper abdomen. I think the wine could definitely cause the pain to be worse. There are do many things I still can't eat.
    • trents
      Yes and this is true of gluten free ready made, processed and prepackaged foods in general. In particular, hard to digest polysaccharides are commonly used in these products that give many celiacs issues and I personally don't handle some emulsifiers well. IMO, reactions to these ingredients are often mistaken for a gluten reaction.
×
×
  • Create New...