Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Some Testing Results


Linda56

Recommended Posts

Linda56 Apprentice

My doctor did blood test on me for Celiacs. It was the one that has to do with the antibodies. Its the test with the Tg and so on. That test was negative. I went ahead and ordered the genetic test from Entrolab. I got it today. I am not sure it was necessary to order but did anyway. If the genetic test comes back negative I assume I can finally stop wondering if Celiacs is my problem. Is this correct in my thinking? I appreciate thoughts on this.

Linda


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hathor Contributor

Nearly everyone diagnosed with "celiac" will have one or two "celiac genes." However, some get it without the genes.

Also, you can have a problem every bit as severe from non-celiac gluten sensitivity and not have the genes, too.

So a negative result for "celiac genes" will just tell you that you probably don't have classic celiac. It won't tell you if you have a problem with gluten or not.

You should consider doing the other Enterolab testing or a dietary test to figure that out.

Linda56 Apprentice

Hi Hathor,

I am thinking I will continue to do some of the other test with entro lab. I am thinking I want to find out to if maybe I have problem with yeast. Thanks for letting me know what else might be going on.

Linda

happygirl Collaborator

Your dr. can also order the gene test, which if you have insurance, may be cheaper than paying out of pocket for the gene test through enterolab.

The majority 95%+ of Celiacs have one of the two genes, but there are biopsy proven Celiacs without the gene....we have a few on this board.

Keep in mind that you may not have "true" Celiac, but a non-Celiac gluten intolerance...meaning you still have a problem with gluten.

Linda56 Apprentice

I went ahead and paid for the test. I have trouble with my doctor doing all I want. I hate to spend the money but figure if it gives me some peace of mind its worth it.

I guess I can't consider it all over with after all. I have an appt to see a gastro doctor and will talk to him about everything maybe he will do the right thing.

Linda

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,317
    • Most Online (within 30 mins)
      7,748

    Parky
    Newest Member
    Parky
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jack Common
      Hello! I'm doing a gluten challenge now. I don't know how much bread to eat. There are 4-6 slices of bread a day suggested in most articles. But one slice of bread can be 25 grams or 40 grams. So when it's 25, six slices are just 150 grams. When it's 40 grams, six slices are 240 grams. The difference is huge in my opinion. Can someone recommend the dosage?
    • Wheatwacked
      In what way? Skinese:  You paid for it, might as well try.  They are the usual mix and is gluten free. "Free of milk/casein, eggs, fish, shellfish, tree nuts, peanuts, wheat, gluten, and soybeans. Contains no artificial colors, flavors, or preservatives."   Are you using whole milk yogurt or the no fat yogurt.  The no fat has varius ingrediEnts to mimic fats texture but some people react to the  gums used.   Sibo: Foods that do not contain carbohydrates or fiber do not usually cause problems. This includes meats (beef, pork, lamb, venison); poultry (chicken, turkey, duck); fish and shellfish; eggs; and butter, oils, and hard cheeses. Stonyfield Whole milk yogert, I think, is the only one with lactase for lactose intolerance.  Naturally Fermented Pickles [The Complete Guide] For your skin health you need dietary iodine intake around 500 to 1000 micrograms a day.  I take Liquid Iodine 500 mcg a day.  It is the amount I ate daily in the 1960/s before they stopped using it in bread.  Since 1970 the daily intake of iodine has decrease 50%.  50 mcg/drop in the brand I use.  The dose used to prove Wolff-Chaikoff Effect was upwards of 11 grams The USDA lists the safe range from 125 mcg to 1000 mcg (1 gram).  Japanese say 3000 mcg is safe.  Look at tradition japanese hair, skin, and their childrens intellegence.  They must be doing something more right than us.   
    • Barcino
      FASANO DIET - not Dasani. For some reason, it is not allowing me to edit my post. 
    • Scott Adams
      Yes, she should be eating lots of gluten daily...4 slices of wheat bread would be ideal for the screenings.
    • Barcino
      Hello,  I cant get my daughter's TTG IGA antibodies to drop into the normal range. A bit of the backstory : both my kids were diagnosed in July of 2023. Both were >250 at diagnosis.  My son went from >250 July 2023  to 33 Nov 2023  to 15.7 July 2024. With <15 being negative. He is almost there.  My daughter went >250 July 2023 to 66.3 Dec 2023 to 31.7 July 2024 to now back up to 35.6.  We are a fully gluten free house and we do not eat out AT ALL in any restaurants other than one dedicated gluten-free bakery. We don't eat any oats. She takes anti epileptic drugs / vitamins so we are double checking all medications and supplements. One medication says they should be gluten free but cant guarantee excipients aren't contaminated so we will be changing that one to a different manufacturer.   Feeling a little worried that her levels are worse and we cant get her into the normal range. We are thinking about cutting dairy or doing the Dasani diet. She doesnt eat a crazy amount of processed food and what she has in gluten free certified and not made in shared lines but maybe we should cut it all out until her levels drop? Any other advice? We will check all personal products also, but we believe everything is gluten free. My son is away at school so trying to figure out what she does and eats that he doesnt. Chickpeas (canned), dairy (he doesnt eat much dairy due to acne) and of course her medications.   Thank you for any input you may have.
×
×
  • Create New...