Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Abdominal Pain - Worse In Morning


KerriAnne

Recommended Posts

KerriAnne Rookie

Has anyone else ever had bad abdominal pain, particularly in the morning? Over my 3.5y on a gluten-free diet since being diagnosed, occasionally I have these spells where, even though I cannot easily identify any dietary changes, I feel horrible again...and then the symptoms resolve almost as suddenly as they came on. One particular symptom is abdominal pain - and I don't mean gas pain.

Pain is so hard to describe but I'll do my best... it's the worst in the morning but doesn't necessarily ever go away during these "spells", it gets worse with pressure (like if you suck in your stomach or press into your stomach), and it doesn't get better or worse with eating. Sometimes just taking a deep breath makes me feel the pain sharply. I have often wondered whether this is an indication of intestinal damage - do you think the damage caused by gluten is painful? For the most part I've done very well on the diet, so it's hard to imagine that these sick spells that may be caused by a mysterious source of gluten would cause enough damage to cause pain... but it's just a thought. I've had severe gas pain before - I'm fairly certain this pain is due to something else.... I just don't know what!

Let me know if you have ever felt this way or know what causes it.

Thanks.

Kerri


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest kivmom3

Kerri

Just so you don't feel alone in your stomach pain....

I too have horrible stomach pain. It's about the same as you described. I am going to the GI celiac specialist tomorrow to see if he can figure out what is causing this horrible pain!!!

I can get back to you if he finds anything so that you can inquire to your doctor. Just PM me and I will get back to you.

Hopefully some other people will post to see if there is any other correlation....

Hang in there.

Gg

JNBunnie1 Community Regular

That sounds awful. Has that been happening ever since you went gluten-free? What's the frequency of it? It occurred to me you may have some kind of intestinal blockage, I don't know whether Celiac can cause enough damage to have pain like that when you're gluten-free. Ulcer, maybe?

KerriAnne Rookie

I had an ulcer years ago... doesn't feel the same as far as I can remember, and the pain this time is in the lower/central abdomen - my ulcer pain was under my ribs. I had this pain before being diagnosed - and in general, it went away with my other symptoms when I went on the gluten-free diet. I just wish I knew what causes it. I could be wrong - it could be gas pain, I suppose. I just don't get it. It's a deep stabbing-like pain. Anyhow, I'm going to go do some searching & reading to see what I can find... I'll let you all know if I get enlightened!

tempurachic Newbie

I can relate. I wake up with a painful abdomin often lately. I don't attribute it to consuming gluten or gas either. It particularly hurts under my ribs on the right. It feels hard to the touch and hurts badly. It's hard to push through in the morning. We have two little kids and there is no time to lay down and rest it seems. My husband encourages me to lay down after work and take it easy but it's not practical. Life still has to go on.

Before my stomach would bloat up if I ate gluten. But for the last two weeks my stomach is constantly bloated. It sucks. It hurts. I don't know what is causing it. It's embarassing because it looks like I'm pregnant...and I'm not! My stomach measured at 39 inches and that's no where near my usual size. My clothes arn't fitting and that's discouraging too.

I went to my GI doctor and he ordered another CAT scan. I'm thankful to have an attentive doctor but I'm confident the CAT scan is going to come back negative which is good but doesn't help us explain what's goign on.

It feels good to say this stuff to other peopel with celiac disease. My husband is wonderful and fully supportive but i know he's getting a little weary of this bout with my stomach being so bloated and me not being my usual self.

If anyone has any words for me I'd love to hear them!

  • 2 weeks later...
Runner1978 Rookie

I've been gluten free for about a month and I feel sicker now than I did then. I have the same pains you have described. I also have a complete loss of appetite, which is not normal given that I'm a runner. These pains are worse in the morning and they are followed by nausea. I also get them throughout the day.

Please let me know what you find out.

oceangirl Collaborator

For the females with this pain: Please check this out with a GYN just to be safe. Celiac and GI symptoms can be many things. Where you've had this for awhile, KerriAnne, I think you should check out your reproductive system just to have peace of mind. Of course, you may already have done this. I have terrible abdominal pain with gluten and now am having some again although I live in a gluten-free household and make everything myself! Very frustrating! I hope you fel better very soon!

lisa


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dinali63 Rookie

I was diagnosed with celiac disease and have been on a gluten free diet for a little over three months. At first I did a lot better on the diet and was feeling great, then I started having the same kind of stomach pains. I posted last week, and got some great suggestions, and on Monday cut out soy from my diet (I realized that many of the prepared items I was eating contained some sort of soy). The pain improved in a day and this morning I feel great!

Always check things out medically, but you may want to think about other food intolerances. :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,202
    • Most Online (within 30 mins)
      7,748

    Rach 123
    Newest Member
    Rach 123
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • kopiq
      I also have food particles left on toiet paper when i wipe and my stool is light yellow not absorbing fats. I urinate about 15 times a day and have very sticky snot,dry throat.
    • kopiq
      Hi all, I was diagnosed by blood work about 2 months ago and have since went on a strict gluten free diet. I have an endoscopy in January and the GI dr said nothing about staying on gluten for it; hes aware i went no gluten. starting to heal symptoms include: (this is huge) sensation coming back to genitals and when having a bowl movement. everything has been numb for a long time down there including lower belly button area. good size (not abnormal) bowel movements once a day or every two days. small dot size wart just fell off my finger that was there for years. have not broke out with a cold sore this winter (every winter prior for years i would develop a cold sore on my lip) Ongoing issues I don't sweat. not from my hands, or armpits or feet. I do not get butterflys in stomach. my hands have been so dry for years ive been using a crack cream as they crack and bleed very severely in the fall and winter.  (since going gluten free ive not used crack cream but they are still very very dry and chapped/flaky, no sweat or moisture in palms of hands at all. I dont crave food. i have no cravings at all, not for pizza, ice cream , nothing. my cravings are dead. smell of foods kinda make me hungry, but my stomach blocks it. pins needles in feet get weak legs standing up from sitting and dizzy, things almost turn black. i cannot tolerate veggies or vitamins. Iam vitamin D deficient according to my Dr and Ive tried vitamin D pills. they give me a massive migraine for 8 hours and upset my stomach. the heat from the direct sun make me extremely tired to the point of wanting to pass out. again i don't sweat. broccoli gives me a migraine headache as well. mushrooms, bell peppers burn my stomach. fruits burn my stomach, fats (peanut butter, any oil or fat from meats make me sick to my stomach for a couple hours or longer. salt and pepper burns my stomach. all these issues cause pain at my belly button area and expand to the rest of my upper stomach and sides the more i ingest through out the day. I currently eat bland basmati rice, chicken, pork chops (fat trim), boiled russet potatoes no skin for three meals a day. my snacks are gluten free ground buckwheat flour pancakes. (just water, no oil , salt, dairy.) how am i to get vitamins in my system if i cannot tolerate them in my stomach? i mentioned epidermal vitamin patchs but dr said no. why cant i stand the heat from the sun ? why cant i sweat? thanks for any info.                
    • trents
      Because you have significantly reduced your gluten intake over a considerable amount of time, it is likely that you will test negative on the antibody tests. However, if the $112 for the Quest test is not a burden, it wouldn't hurt to try. It tests for total IGA (to ascertain if you are IGA deficient) and tTG-IGA. If total IGA is deficient, it can result in false negatives in other IGA tests. The tTG-IGA is the single most popular test ordered by physicians. The Quest test is not a complete celiac panel by any means (refer to the linked article above) but it might be a good place to start. Personally, I think you know enough to conclude that you need to get serious about avoiding gluten, whether you have celiac disease or NCGS. Human nature being what it is, however, many people seem to need an official diagnosis of celiac disease in order to stay on the bandwagon. Otherwise, they seem to rationalize cheating on the gluten-free diet. And there is this misconception out there that NCGS is inconvenient and uncomfortable but not harmful so it's okay to cheat. The more we learn about gluten-related disorders the more they seem to not fit into our neat little black and white categories. By the way, celiac disease is not a food allergy. It is classified as an autoimmune disorder.
    • More2Learn
      These responses are all extremely helpful, ty.  Really good reminder about omega 6.  I also know I'm low in zinc; I took the zinc test where I drank it on a spoon and couldn't taste it.  To that end, I try to eat a lot of oysters.  I do think it would be a good idea to get the blood test.  Two questions: 1-  Is there any reason you wouldn't recommend that I just buy and take a test like this as a first step? 2- I've been somewhat gluten free since ~Jan 2023 (technically organic, gluten free, soy free, light on dairy).  I eat a lot of meat, vegetables, rice -- a common breakfast for me is three eggs and a sausage link, and I can't remember the last time I had a sandwich or bread.  However, because in my mind I didn't think I had an allergy, and I more was doing gluten free to avoid artificially iron-enriched foods, I do make exceptions.  I'll eat breaded calamari.  When my Dad visits, I split mozzarella sticks with him because he loves them so much.  I'll eat the "gluten sensitive" items at a restaurant and if they asked, "is cross contamination ok?",  I always said yes.  Based on that, since I never probably fully eliminated gluten, but it was significantly reduced... is that good enough to take the blood test?  Because the pain in my side gets SO bad (really sometimes I can't function, and I absolutely thought I was dying), I am hesitant to do the gluten challenge.  Would it make sense to take the test, and if it's negative, then consider doing the challenge and seeing if I can deal with eating the bread every day? Thanks again!
    • Yaya
      For me, with osteoporosis, Celiac and more than 1 heart condition, the slower, safer route is preferable.  I'm on 5 meds per day.  Too much of anything can disturb absorption of this or that. Have a Happy Thanksgiving.  I'm gone for a few days.  
×
×
  • Create New...