Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endocopy For Celiac On Tuesday

mmshutt

By mmshutt
in Doctors

Recommended Posts

mmshutt Newbie
mmshutt
Posted

I have a question that I need help with and don't know if my doctor or his nurse can answer it.

I think the people of this "community" have more knowledge.

I have been on the Celiac diet since 8/16/07. I am to have a 2nd biopsy of my small intestine on Tuesday to see if the diet has "worked' to know for sure that I do indeed have Celiac. My problem is that yesterday, i got a little flavor packet to add to my water and noticed it has maltodextrin in it. Something I recognized as a no no. I have been using these packet almost daily for 3 weeks. Is this going to screw up the validity of the biopsy I am having in 3 days???????? It was too late to call my doctor and I don't know if he would know anyway. Should the test be rescheduled??

When I first started the diet, I kept making mistakes out of ignorance. I feel like I have gotten pretty good at staying gluten free, but I am afraid this is could be a big deal. Does anyone have any suggestions or know if this will affect my test????

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mftnchn Explorer
mftnchn
Posted

Call the company and inquire about the source--maybe the maltodextrin isn't barley??

Nancym Enthusiast
Nancym
Posted

maltodextrin comes from corn in the US.

happygirl Collaborator
happygirl
Posted

Maltodextrin in the USA is corn--it is safe. If it were from wheat, it would be required by the allergen labeling law to be safe.

mmshutt Newbie
mmshutt
Posted
  • Author

Thank you to all 3 of you for your help. I didn't know maltodextrin wasn't wheat in the US. It is just on my "forbidden" list given to me by my doctor. I will call the manufacturer to be positive that it is okay to have. Thanks!

mama2 Apprentice
mama2
Posted
Thank you to all 3 of you for your help. I didn't know maltodextrin wasn't wheat in the US. It is just on my "forbidden" list given to me by my doctor. I will call the manufacturer to be positive that it is okay to have. Thanks!

don't know, you may have read but, I really liked shelly Case's book the gluten-free diet for outline of the diet. It's up to date and I carry it around with my to know whats safe and not. She explained Maltodextrin

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. K6315
      - K6315 replied to K6315's topic in Related Issues & Disorders
      4

      Newly gluten free… withdrawal?

      Well, that's interesting. I am lactose intolerant and have been managing that for years. I'd be interested in seeing if that changes once I feel better from not eating gluten (one thing at a time for now, though). Helpful to hear about the avenin. I will do some digging and pose that to the dietitian. Grateful for your feedback.
    2. kate g
      - kate g posted a topic in Gluten-Free Restaurants
      0

      Nandos improper preparion celiac childrens food

      Recently my daughter ate in nandos harlow I rang in advance to speak about the celiac protocals and learned that childs portion chicken nandinos is cooked on the same grill as garlic bread even if they are celiac! Even if you clean it this is not good practise and will be making many children ill. I learnt adults butterfly chicken cooked on a grill purely...
    3. Scott Adams
      - Scott Adams replied to TexasCeliacNewbie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High blood test numbers - with scales. Any advice?

      I agree with @RMJ, you have multiple positive tests so celiac disease is likely. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease.
    4. trents
      - trents replied to K6315's topic in Related Issues & Disorders
      4

      Newly gluten free… withdrawal?

      One small study found that 50% of celiacs react to the dairy protein "casein" like they do to gluten. It is also common for celiacs to be lactose (the sugar in milk) intolerant, though that often disappears in time as the villi heal. About 10% of celiacs react to the oat protein "avenin" like they do gluten.
    5. K6315
      - K6315 replied to K6315's topic in Related Issues & Disorders
      4

      Newly gluten free… withdrawal?

      Thank you so much Trents (Scott?)! I have started working with a dietitian and did a deep research dive as soon as I got the diagnosis. I am aware of what you mentioned in the first two paragraphs, and was not aware of anything in the third, so I am grateful for that information, and will talk to the dietitian about that. I think I was most interested in...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,753
    • Most Online (within 30 mins)
      7,748
    Alison A
    Newest Member
    Alison A
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • K6315
      Newly gluten free… withdrawal?

      By K6315 · Posted

      Well, that's interesting. I am lactose intolerant and have been managing that for years. I'd be interested in seeing if that changes once I feel better from not eating gluten (one thing at a time for now, though). Helpful to hear about the avenin. I will do some digging and pose that to the dietitian. Grateful for your feedback.
    • kate g
      Nandos improper preparion celiac childrens food

      By kate g · Posted

      Recently my daughter ate in nandos harlow I rang in advance to speak about the celiac protocals and learned that childs portion chicken nandinos is cooked on the same grill as garlic bread even if they are celiac! Even if you clean it this is not good practise and will be making many children ill. I learnt adults butterfly chicken cooked on a grill purely for chicken.  This is fine and what we ordered however nandos need to take note of your practises for the safety of celiac children. my daughter has been ill from their nandinos chicken before and i emailed head office and they wouldnt accept responsibility 
    • Scott Adams
      High blood test numbers - with scales. Any advice?

      By Scott Adams · Posted

      I agree with @RMJ, you have multiple positive tests so celiac disease is likely.  This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease.     
    • trents
      Newly gluten free… withdrawal?

      By trents · Posted

      One small study found that 50% of celiacs react to the dairy protein "casein" like they do to gluten. It is also common for celiacs to be lactose (the sugar in milk) intolerant, though that often disappears in time as the villi heal. About 10% of celiacs react to the oat protein "avenin" like they do gluten.
    • K6315
      Newly gluten free… withdrawal?

      By K6315 · Posted

      Thank you so much Trents (Scott?)! I have started working with a dietitian and did a deep research dive as soon as I got the diagnosis. I am aware of what you mentioned in the first two paragraphs, and was not aware of anything in the third, so I am grateful for that information, and will talk to the dietitian about that. I think I was most interested in the withdrawal process - it gives me hope that, although I have felt unwell recently, I just need to be patient (not a strong suit). I have printed the article you sent and will look at it more closely. Thanks again!
×
×
  • Create New...