Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Any Backpackers Out There?


tallfran

Recommended Posts

tallfran Apprentice

Hi Everyone,

I'm new here; not officially diagnosed yet, but fairly certain I'm celiac.

My passion is long-distance hiking. I did much of the southern part of the Appalachian Trail in 2006, but was having a lot of health issues that in retrospect are probably related to celiac.

I'm really concerned about what I will take to eat on my next long hike. It will have to be light in weight and non-gluten. That eliminates just about everything I was eating on my 2006 hike! <_<

Most days my diet was a couple of packets of instant oatmeal and a cup of hot chocolate with a spoonful of instant coffee added, and a power bar of some sort. Lunch was snacks, powerbars, candy, trail mix. Dinner was either a Mountain House entree or a Liptons Side with tuna, clams, or chicken added.

Even the rice Lipton's sides have macaroni product in them, making them unsuitable. Most of the Mountain House entrees are either pasta based, or have wheat-containing teriyaki sauce (I don't like those anyway!)

Any suggestions? Is my primary option to dehydrate everything ahead of time and make my own meals (a LOT of work). Or, am I, God forbid, going to have to give up backpacking completely.

I welcome your input. Thanks.

Fran


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



DingoGirl Enthusiast

Hello Fran!

I haven't backpacked in years, but still do some camping. I don't know that I"ll ever backpack again - partly because I'm out of shape (the old lungs! ugh!) and....partly becuase it's such a hassle with gluten-free eating.

I do think you'll have to rule out all of the standard dehydrated camping meals, and become quite clever. I don't know how long your longest sojourn is, so don't know how long things will keep.....

I would look into grains and a light cookstove. Quinoa (extremely high-protein, you will need to pre-cook it most likely), instant brown rice (add banana, sliced almonds, dried cranberries or whatever - a good breakfast), dried fruits, nuts, nut butters, Lara bars.......

I did find this on Amazon -

Open Original Shared Link

I would take Columbus meats (I get them at Trader Joe's) - pastrami, turkey, etc. and - if the weather's not too hot, they should keep for a day or two (well, I"m not too concerned about refrigeration of those things and eat them when they 've been out all day whilst camping - never had a problem) and make yourself some delicious gluten-free bread (there is a thread here started by Lorka called "the best gluten-free bread I've ever had," and, it truly is.

Add some fruits, some celery....(wait, do they take up too much volume and weight? :unsure: I'm a car-camper these days for Pete's sake!!)

oh heck, it's been so many years for me....I"ll have to ponder this some more.

There are many helpful people on this forum, glad you found us. One member, Tiffany (tarnalberry) has done lots of backpacking, I think she could help you out.

Happy Trails!

veggf Newbie

Hi,

I've used the following on long trips, hope this helps:

Breakfast--Instant grits or a quick rice hot cereal by Lundgrens, with dried fruit and nuts. Or for the first morning or two corn tortillas keep ok in cool weather, then put instant eggs and veggies in them.

Lunch--Lara Bars, rice crackers (I repackage them for the pack) with protein of choice, dried fruit bars, almonds, almonds with raisins, I think it is Clif Bars that also makes a gluten free fruit and nut bar.

Supper--Thai Kitchen packaged meals. There are several brands that produce instant gluten free soup (though I'm drawing a blank right now). Annie's makes a gluten-free mac and cheese. We have the cookbook Simple Foods for the Pack (an old Sierra Club book, I think??)--many of the recipes in there are gluten free or can be changed to be gluten free. We have used quinoa in place of bulgur in both a dried/backpacking tabouli recipe and a fresh one at home. For the dried/backpacking tabouli we use dried parsley flakes and diced sundried tomatoes, and other dried spices. Sorry I'm a vegetarian so no recommendation on the meats. Oh, and Lundgrens makes some instant rice pilafs and some boxed risotto mixes too. We also mix our own instant potatoes au gratin for trips too--purchased dried potato slices and gluten-free cheese powder.

Hope all goes well and you have many more miles!

veggf Newbie

To add to my previous message:

Here's a link to Fantastic which lists some of their instant soups. We've enjoyed the split pea during a lot of trips.

Open Original Shared Link

Hope this is helpful.

tarnalberry Community Regular

on my last backpacking trip, I took quinoa flakes with freeze dried mango cream of rice with flax meal with freeze dried strawberries for breakfasts. there were nuts, clif nectar bars, think organic bars, alpsnack bars, and dried fruit for lunch/snacks. and there was precooked, dried bean flakes and corn chowder, both with freeze dried vegetables and spices, and then precooked quinoa with dried broccoli and garlic. oh, and chocolate. :)

  • 2 weeks later...
corinne Apprentice

I haven't done any long backpacking trips gluten-free, but I have been packed for 5 days at a go and where I've had to pack light because of having mountaineering gear in my pack.

I'd second the instant grits or cream of rice for breakfast. Cream of rice is good too with some hot chocolate mix stirred in or dried fruit. For lunch, I usually do corn tortillas with some cheese now that I can eat dairy, or some jerkey or if it's a no grizzly area some foil pack tuna or chicken. Justtomatoes.com has lots of freeze-dried veggies and pretty much everything is nothing added. Dinners is rice with beans or tuna. The rice noodles are good too as mentioned.

Also, alpineaire has some entrees that are glutenfree for nights when you get into camp late/tired and don't feel like spending time on dinner.

ryebaby0 Enthusiast

I know this one!

There's a place called Harmony House that makes cheap, wonderful, portable dried veggies/beans/fruit for backpacking. It is EXCELLENT, affordable and versatile. Best of all for us, the packages are single-ingredient whole foods. They come in resealable heavy-duty plastic pouches; I've got 14 grams of dried spinach flakes here and it's about the size of an envelope. The broccoli pouch is slightly heavier but a handful is plenty so these are definitely NOT single-serving pkgs.

Harmony House has a website you can order from; I got carrots, beans, corn, broccoli, spinach, strawberries and a few other items (memory lapse, sorry) for my backpackers. They just toss them in the JetBoil pot with everything else and they cook up perfectly. I've been known to steal their stuff when I'm in a cooking bind myself!

joanna


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kbtoyssni Contributor
Supper--Thai Kitchen packaged meals. There are several brands that produce instant gluten free soup (though I'm drawing a blank right now).

I was going to suggest these as a Lipton's substitute, too! They are delicious and hardly weight anything. It's called Thai Kitchen Instant Rice Noodle Soup. They've got about 190 calories each.

  • 1 month later...
corinne Apprentice

My biggest problem is how many calories I need when backpacking. If I hike around 8-10 hours, I need about 4000 calories per day which means about 1500 at dinner. That's a lot of rice noodles! I try to compensate somewhat by bringing lots of peanut butter and chocolate but I still lose weight over the trip.

  • 6 months later...
Victory12 Rookie

Yeah, if you can, I think eating peanut butter is a safe bet. On backpacking trips I have to eat much more to pack on the calories. The links that everyone else put up are very helpful too.

tarnalberry Community Regular

As I learned on my trip up mt. st. helens a couple weeks ago, homemade chili dehydrates VERY well. Put it in a freezer bag, add boiling water when you make dinner, and boom - dinner (in its own trashbag). Tasty, filling, nutritious, and easy cleanup. Not to mention lightweight. (Takes about a day and a half to two days to dehydrate. Still a lot cheaper making your own than buying it. ;) One ~$8 pot of organic turkey chili made 4 good size servings.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,357
    • Most Online (within 30 mins)
      7,748

    Rhondaponda
    Newest Member
    Rhondaponda
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.1k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      We've got plenty Tiernan's over here across the Irish Sea! I think anything will irritate an open wound in the skin. My dermatologist suggested Aveno moisturiser and E45 Emollient shower cream when she thought it was Eczema. I'm sure they will help during a dermatitis herpetiformis outbreak, or be the least irritating. Rinsing off after exercise should give you some relief. Dapsone is an antibiotic and it does reduce the skin inflammation associated with dermatitis herpetiformis blisters as well as eliminating the itch. I don't think it affects the immune system like oral steroids though. My GP said it can affect the bone marrow ... I believe in terms of red blood cell production. It causes them to break apart prematurely. They measure the reticulocyte count (immature red blood cells) in your blood while on Dapsone to see it's effects. People with a G6PD deficiency are more susceptible to Dapsone side effects. Here's a leaflet from the British Association of Dermatologists explaining Dapsone in more detail ... https://www.skinhealthinfo.org.uk/condition/dapsone/ Your dermaotolgist would need to determine how long to be on Dapsone. I guess if the antibodies in the skin are reduced over time with a strict gluten-free diet, then the need for Dapsone is less likely when glutened. So, Knitty Kitty's advice on Niacin and all things dermatitis herpetiformis related is spot on.  Have you had the skin biopsy yet?
    • disneyfamilyfive
      Good morning, I thought I’d quickly update this post.  A week or so after my test results were posted, my doctor’s nurse called to say 2 of 3 blood tests showed elevated numbers and referred to GI for further evaluation.  It took about 3 -4 weeks to get into a GI, it was over the holidays too, so I’m sure that pushed things out a bit.  Met with the GI who was great, really listened and said that even though the main celiac test was still in normal range, there are 2 tests that are not and in his experience not all 3 tests need to be positive to take the next steps.  He said after listening to all my symptoms, and looking through my recent medical history he felt that celiac was very likely.  5 days later I was in for an endoscopy (and colonoscopy just to cover all bases at once) and 6 days later the biopsy results came back as positive for celiac sprue.  GI of course said a strict gluten free diet, referred to GI registered Dietitian and come back in one year for a repeat endoscopy to determine healing. If symptoms don’t subside (or improve) after gluten free diet for a couple then return sooner. 
    • knitty kitty
      @Matt13  I understand where you're coming from.  Seemed I was reacting to all sorts of foods there for a while, but a low histamine Paleo diet really helps.   We make histamine in our bodies as a useful  neurotransmitter (causing alertness), and also as a response in the immune system.  Histamine is made and released by Mast Cells.  Mast Cells can become hypersensitive to stimulus and release histamine easily, like having an itchy trigger finger.  Mast Cells need Thiamine Vitamin B 1 Benfotiamine in order to NOT release histamine.  Mast Cells that do not have sufficient Thiamine release histamine easily and at the slightest provocation.   Plants and other animals make histamine, too.  By removing high histamine foods from the diet, more histamine can be removed from the body.  We need Pyridoxine, Vitamin B 6, Vitamin C, Cobalamine, B12, and Thiamine B1 to make Diamine Oxidase, an enzyme that breaks down histamine.  If we don't make sufficient DAO ourselves, DAO supplements are available over-the-counter.   Removing Nightshades (tomatoes, potatoes, eggplant and peppers) was very helpful.  Nightshades contain alkaloids that cause Leaky Gut Syndrome wherein large molecules of food can pass through the walls of the intestines into the bloodstream, traveling to other organs and structures where they promote inflammation.   After a few days on the low histamine Paleo diet, the Autoimmune Protocol diet, I started feeling better.  My diet was really restricted, but I felt so much better, I stuck with it.  Eating foods that were easy to digest and low in histamine allowed time for healing.  After a few weeks, I was ready to add one food at a time (two week period) back into my diet.  I had setbacks when I ran into a food my body didn't like, and had to go back to the start, but it was worth doing.  Celiac is a marathon, not a sprint.   Blood tests are not accurate measurements for various B vitamin deficiencies.  Vitamin levels in the bloodstream are different from the amount stored inside cells inside organs where they are utilized.  You can have symptoms of a deficiency yet have "normal" blood levels.  The best way to test for a B vitamin deficiency is to take it and look for health improvement.  B vitamins are easily excreted because they are water soluble.  Malabsorption in Celiac can affect all the vitamins and minerals our bodies need, not just one.  Do talk to your doctor and nutritionist about supplementing while healing.  
    • Morgan Tiernan
      A little late to the party in terms of seeing this and responding to it, so apologies! But I wanted to responds as this sounds exactly like my experience. I had covid, followed by shingles, followed by strep… that unlucky bout of infections is what lead me here with dermatitis herpetiformis. I was also self diagnosed in the beginning and turns out I was absolutely right! Currently waiting for biopsy confirmation though. In terms of swollen lymph nodes, I get this when my rash is present. Mostly in my neck and they’re a lot more swollen if I’ve been cross-contaminated with gluten and when the rash is at its worst!   
    • knitty kitty
×
×
  • Create New...