Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Putting Together Pieces Of The Puzzle


missy'smom

Recommended Posts

missy'smom Collaborator

In order to understand my kiddo's unique set of challenges,

I've been listening with interest to the conversations about autism that are out there as well as lonewolf's posts recently and in the past about kidney disease. I've been reading up on kidney disease and health as well lately. What I'm getting from what I've been hearing is that for those with kidney disease , or in the case of autism, those with sensitive, overloaded, whatever you call it, immune systems, gluten just tips the scales and is too much of a strain on an already strained system. In the case of autism this seems to result in neurological symptoms, not the same but in a very general way like those with celiac disease. What about those with kidney disease, like the boy that lonewolf is helping? What about kids with ADHD? Do they experience neurological symptoms that change when gluten is removed from the diet like the autistic kids do? In the case of kidney disease and gluten, what about someone with a healthy kidney but only one, could gluten overload their system as well, like those with diseased kidneys or the kids with autism?

The whole Autism-gluten connection makes sense to me and the whole kidney disease(nephrotic)-gluten connection makes sense from what little I've read, I'm wondering about a kidney, ADHD, gluten connection

These are the thoughts and questions rolling around in my mind lately.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor

I don't have any specific answers. I do know that my daughter broke out with HSP (Henoch Scholein Purpura) in February 06. It took a month to come up with a diagnosis. She suffered for over 3 months until we went gluten free after the enterolab tests. We had already been gluten light due to my food intolerances. It went away totally with the gluten free diet. It is a disease that affects the kidneys but I don't know specifically about kidney disease and gluten.

I do know there are other things that could be contributing but the gluten free/casein free diet helps take some of the stress off the immune system. Sugar is also something that can contribute to ADHD. My daughter tends toward some of the ADHD side.....or I should just say HD :P My oldest son too. With them, metals are playing a part. They also have candida. The gluten free diet hasn't calmed them down. We don't eat refined sugar but do eat things with sugar (like cereal and fruit spread) so I don't know if that would help or not with them.

Children on the autistic specturm generally have problems with metals too.

missy'smom Collaborator

Very interesting. Thank you for sharing.

Rachel--24 Collaborator

I just wanted to mention that the kidneys are severely effected by heavy metals...especially mercury....which tends to accumluate especially in the kidneys.

I think that would be the main connection between ASD's and kidney problems.

Today, the main effects of mercury exposure to humans are understood to be neurological, renal (kidney), cardiovascular and immunological impacts. Chronic exposure to mercury can cause damage to the brain, spinal cord, kidneys, liver and developing fetus. Exposure to mercury while in the womb can lead to neurodevelopmental problems in children.

Within the body, the kidneys accumulate the highest concentrations of all forms of mercury, yet mercury can also concentrate in the brain, the central nervous system, the liver, and indeed in most organs in the body.

UR Groovy Explorer
What I'm getting from what I've been hearing is that for those with kidney disease , or in the case of autism, those with sensitive, overloaded, whatever you call it, immune systems, gluten just tips the scales and is too much of a strain on an already strained system.

This reply is not about celiac. I'm aware that celiac is a whole different animal.

I would tend to agree with this thought most of all. I have the same kidney disease as the boy and lonewolf. I, unlike lonewolf or this boy, am not technically in remission, and I believe that's due to the fact that I'm continuing to over-stress the system with cigarettes. I don't believe I'm Celiac / I don't believe I have a wheat or gluten "allergy". I believe that it's an intolerance due to a weakened immune system and that this compromised system doesn't want to deal with these (sometimes perceived) enemies.

However, in regards to neurological symptoms, I'd like to mention that the depression and anxiety that I suffered in my teens, 20's and 30's has completely disappeared since going gluten-free. I have to believe that many people with ADHD and with kidney disease, or any syndrome that causes immune system short-circuiting would benefit by eliminating these proteins from their diet.

Although my theories continue to change as time goes by, I believe that the connection is an over-stressed immune system (again, I'm not referring to celiac in this case).

missy'smom Collaborator

Thank you again to all who have responded. It is helpful and is in keeping with the train of thought that I've been following lately.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    2. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    3. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    4. - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,211
    • Most Online (within 30 mins)
      7,748

    MogwaiStripe
    Newest Member
    MogwaiStripe
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.