Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Putting Together Pieces Of The Puzzle


missy'smom

Recommended Posts

missy'smom Collaborator

In order to understand my kiddo's unique set of challenges,

I've been listening with interest to the conversations about autism that are out there as well as lonewolf's posts recently and in the past about kidney disease. I've been reading up on kidney disease and health as well lately. What I'm getting from what I've been hearing is that for those with kidney disease , or in the case of autism, those with sensitive, overloaded, whatever you call it, immune systems, gluten just tips the scales and is too much of a strain on an already strained system. In the case of autism this seems to result in neurological symptoms, not the same but in a very general way like those with celiac disease. What about those with kidney disease, like the boy that lonewolf is helping? What about kids with ADHD? Do they experience neurological symptoms that change when gluten is removed from the diet like the autistic kids do? In the case of kidney disease and gluten, what about someone with a healthy kidney but only one, could gluten overload their system as well, like those with diseased kidneys or the kids with autism?

The whole Autism-gluten connection makes sense to me and the whole kidney disease(nephrotic)-gluten connection makes sense from what little I've read, I'm wondering about a kidney, ADHD, gluten connection

These are the thoughts and questions rolling around in my mind lately.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor

I don't have any specific answers. I do know that my daughter broke out with HSP (Henoch Scholein Purpura) in February 06. It took a month to come up with a diagnosis. She suffered for over 3 months until we went gluten free after the enterolab tests. We had already been gluten light due to my food intolerances. It went away totally with the gluten free diet. It is a disease that affects the kidneys but I don't know specifically about kidney disease and gluten.

I do know there are other things that could be contributing but the gluten free/casein free diet helps take some of the stress off the immune system. Sugar is also something that can contribute to ADHD. My daughter tends toward some of the ADHD side.....or I should just say HD :P My oldest son too. With them, metals are playing a part. They also have candida. The gluten free diet hasn't calmed them down. We don't eat refined sugar but do eat things with sugar (like cereal and fruit spread) so I don't know if that would help or not with them.

Children on the autistic specturm generally have problems with metals too.

missy'smom Collaborator

Very interesting. Thank you for sharing.

Rachel--24 Collaborator

I just wanted to mention that the kidneys are severely effected by heavy metals...especially mercury....which tends to accumluate especially in the kidneys.

I think that would be the main connection between ASD's and kidney problems.

Today, the main effects of mercury exposure to humans are understood to be neurological, renal (kidney), cardiovascular and immunological impacts. Chronic exposure to mercury can cause damage to the brain, spinal cord, kidneys, liver and developing fetus. Exposure to mercury while in the womb can lead to neurodevelopmental problems in children.

Within the body, the kidneys accumulate the highest concentrations of all forms of mercury, yet mercury can also concentrate in the brain, the central nervous system, the liver, and indeed in most organs in the body.

UR Groovy Explorer
What I'm getting from what I've been hearing is that for those with kidney disease , or in the case of autism, those with sensitive, overloaded, whatever you call it, immune systems, gluten just tips the scales and is too much of a strain on an already strained system.

This reply is not about celiac. I'm aware that celiac is a whole different animal.

I would tend to agree with this thought most of all. I have the same kidney disease as the boy and lonewolf. I, unlike lonewolf or this boy, am not technically in remission, and I believe that's due to the fact that I'm continuing to over-stress the system with cigarettes. I don't believe I'm Celiac / I don't believe I have a wheat or gluten "allergy". I believe that it's an intolerance due to a weakened immune system and that this compromised system doesn't want to deal with these (sometimes perceived) enemies.

However, in regards to neurological symptoms, I'd like to mention that the depression and anxiety that I suffered in my teens, 20's and 30's has completely disappeared since going gluten-free. I have to believe that many people with ADHD and with kidney disease, or any syndrome that causes immune system short-circuiting would benefit by eliminating these proteins from their diet.

Although my theories continue to change as time goes by, I believe that the connection is an over-stressed immune system (again, I'm not referring to celiac in this case).

missy'smom Collaborator

Thank you again to all who have responded. It is helpful and is in keeping with the train of thought that I've been following lately.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

    2. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

    3. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    4. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,257
    • Most Online (within 30 mins)
      7,748

    Gabs
    Newest Member
    Gabs
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.