Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Putting Together Pieces Of The Puzzle

missy'smom

Recommended Posts

missy'smom Collaborator
missy'smom
Posted

In order to understand my kiddo's unique set of challenges,

I've been listening with interest to the conversations about autism that are out there as well as lonewolf's posts recently and in the past about kidney disease. I've been reading up on kidney disease and health as well lately. What I'm getting from what I've been hearing is that for those with kidney disease , or in the case of autism, those with sensitive, overloaded, whatever you call it, immune systems, gluten just tips the scales and is too much of a strain on an already strained system. In the case of autism this seems to result in neurological symptoms, not the same but in a very general way like those with celiac disease. What about those with kidney disease, like the boy that lonewolf is helping? What about kids with ADHD? Do they experience neurological symptoms that change when gluten is removed from the diet like the autistic kids do? In the case of kidney disease and gluten, what about someone with a healthy kidney but only one, could gluten overload their system as well, like those with diseased kidneys or the kids with autism?

The whole Autism-gluten connection makes sense to me and the whole kidney disease(nephrotic)-gluten connection makes sense from what little I've read, I'm wondering about a kidney, ADHD, gluten connection

These are the thoughts and questions rolling around in my mind lately.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AndreaB Contributor
AndreaB
Posted

I don't have any specific answers. I do know that my daughter broke out with HSP (Henoch Scholein Purpura) in February 06. It took a month to come up with a diagnosis. She suffered for over 3 months until we went gluten free after the enterolab tests. We had already been gluten light due to my food intolerances. It went away totally with the gluten free diet. It is a disease that affects the kidneys but I don't know specifically about kidney disease and gluten.

I do know there are other things that could be contributing but the gluten free/casein free diet helps take some of the stress off the immune system. Sugar is also something that can contribute to ADHD. My daughter tends toward some of the ADHD side.....or I should just say HD :P My oldest son too. With them, metals are playing a part. They also have candida. The gluten free diet hasn't calmed them down. We don't eat refined sugar but do eat things with sugar (like cereal and fruit spread) so I don't know if that would help or not with them.

Children on the autistic specturm generally have problems with metals too.

missy'smom Collaborator
missy'smom
Posted
  • Author

Very interesting. Thank you for sharing.

Rachel--24 Collaborator
Rachel--24
Posted

I just wanted to mention that the kidneys are severely effected by heavy metals...especially mercury....which tends to accumluate especially in the kidneys.

I think that would be the main connection between ASD's and kidney problems.

Today, the main effects of mercury exposure to humans are understood to be neurological, renal (kidney), cardiovascular and immunological impacts. Chronic exposure to mercury can cause damage to the brain, spinal cord, kidneys, liver and developing fetus. Exposure to mercury while in the womb can lead to neurodevelopmental problems in children.

Within the body, the kidneys accumulate the highest concentrations of all forms of mercury, yet mercury can also concentrate in the brain, the central nervous system, the liver, and indeed in most organs in the body.

UR Groovy Explorer
UR Groovy
Posted
What I'm getting from what I've been hearing is that for those with kidney disease , or in the case of autism, those with sensitive, overloaded, whatever you call it, immune systems, gluten just tips the scales and is too much of a strain on an already strained system.

This reply is not about celiac. I'm aware that celiac is a whole different animal.

I would tend to agree with this thought most of all. I have the same kidney disease as the boy and lonewolf. I, unlike lonewolf or this boy, am not technically in remission, and I believe that's due to the fact that I'm continuing to over-stress the system with cigarettes. I don't believe I'm Celiac / I don't believe I have a wheat or gluten "allergy". I believe that it's an intolerance due to a weakened immune system and that this compromised system doesn't want to deal with these (sometimes perceived) enemies.

However, in regards to neurological symptoms, I'd like to mention that the depression and anxiety that I suffered in my teens, 20's and 30's has completely disappeared since going gluten-free. I have to believe that many people with ADHD and with kidney disease, or any syndrome that causes immune system short-circuiting would benefit by eliminating these proteins from their diet.

Although my theories continue to change as time goes by, I believe that the connection is an over-stressed immune system (again, I'm not referring to celiac in this case).

missy'smom Collaborator
missy'smom
Posted
  • Author

Thank you again to all who have responded. It is helpful and is in keeping with the train of thought that I've been following lately.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Tazfromoz
      - Tazfromoz replied to Ginger38's topic in Related Issues & Disorders
      14

      Shingles - Could It Be Related to Gluten/ Celiac

      My understanding, and ex I erience is that we coeliacs are likely to suffer more extreme reactions from viruses. Eg we are more likely to be hospitalised with influenza. So, sadly, your shingles may be worse because you are coeliac. So sorry you had to go through this. My mother endured shingles multiple times. She was undiagnosed with coeliac disease until...
    2. hjayne19
      - hjayne19 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Celiac Screening

      Hi all, Looking for some advice. I started having some symptoms this past summer like night sweats and waking at 4 am and felt quite achy in my joints. I was training heavily for cycling for a few weeks prior to the onset of these symptoms starting. I have had low Ferratin for about 4 years (started at 6) and usually sits around 24 give or take. I was...
    3. yellowstone
      - yellowstone posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Cold/flu or gluten poisoning?

      Cold/flu or gluten poisoning? Hello. I've had another similar episode. I find it very difficult to differentiate between the symptoms of a cold or flu and those caused by gluten poisoning. In fact, I don't know if my current worsening is due to having eaten something that disagreed with me or if the cold I have has caused my body, which is hypersensitive...
    4. Churro
      - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

      I'm no longer dealing with constipation. I got my liver test last month and it was in normal range. Two years ago I did have a vitamin D deficiency but I'm know taking vitamin D3 pills. Last month I got my vitamin D checked and it was in normal range. I don't believe I've had my choline checked. However, I do drink almond milk eat Greek yogurt on a daily...
    5. Wheatwacked
      - Wheatwacked replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

      Non-Celiac Gluten Sensitivity (NCGS) can be associated with low ferritin and iron deficiency. Once Celiac Disease (1% of the population affected) has been ruled out by tests the next step is to check for Non Celiac Gluten Sensitivity (10% of the population affected) by eliminating gluten for a trial period, then re-introduce Gluten Challange. Have...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,073
    • Most Online (within 30 mins)
      7,748
    amaryliss
    Newest Member
    amaryliss
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Tazfromoz
      Shingles - Could It Be Related to Gluten/ Celiac

      By Tazfromoz · Posted

      My understanding, and ex I erience is that we coeliacs are likely to suffer more extreme reactions from viruses. Eg we are more likely to be hospitalised with influenza. So, sadly, your shingles may be worse because you are coeliac. So sorry you had to go through this. My mother endured shingles multiple times. She was undiagnosed with coeliac disease until she was 65. Me at 45. I've had the new long lasting vaccine. It knocked me around badly, but worth it to avoid shingles.
    • hjayne19
      Celiac Screening

      By hjayne19 · Posted

      Hi all,  Looking for some advice. I started having some symptoms this past summer like night sweats and waking at 4 am and felt quite achy in my joints. I was training heavily for cycling for a few weeks prior to the onset of these symptoms starting. I have had low Ferratin for about 4 years (started at 6) and usually sits around 24 give or take. I was doing some research and questioned either or not I might have celiac disease (since I didn’t have any gastric symptoms really). My family doctor ran blood screening for celiac. And my results came back: Tissue Transglutaminase Ab IgA HI 66.6 U/mL Immunoglobulin IgA 1.73 g/ My doctor then diagnosed me with celiac and I have now been gluten free for 3 months. In this time I no longer get night sweats my joint pain is gone and I’m still having trouble sleeping but could very much be from anxiety. I was since referred to an endoscopy clinic to get a colonoscopy and they said I should be getting a biopsy done to confirm celiac. In this case I have to return to eating gluten for 4-6 weeks before the procedure. Just wanted some advice on this. I seem to be getting different answers from my family physician and from the GI doctor for a diagnosis.    Thanks,  
    • yellowstone
      Cold/flu or gluten poisoning?

      By yellowstone · Posted

      Cold/flu or gluten poisoning? Hello. I've had another similar episode. I find it very difficult to differentiate between the symptoms of a cold or flu and those caused by gluten poisoning. In fact, I don't know if my current worsening is due to having eaten something that disagreed with me or if the cold I have has caused my body, which is hypersensitive, to produce symptoms similar to those of gluten poisoning.        
    • Churro
      Celiac disease symptoms

      By Churro · Posted

      I'm no longer dealing with constipation. I got my liver test last month and it was in normal range. Two years ago I did have a vitamin D deficiency but I'm know taking vitamin D3 pills. Last month I got my vitamin D checked and it was in normal range. I don't believe I've had my choline checked. However, I do drink almond milk eat Greek yogurt on a daily basis. 
    • Wheatwacked
      Celiac disease symptoms

      By Wheatwacked · Posted

      Non-Celiac Gluten Sensitivity (NCGS) can be associated with low ferritin and iron deficiency. Once Celiac Disease (1% of the population affected) has been ruled out by tests the next step is to check for Non Celiac Gluten Sensitivity (10% of the population affected) by eliminating gluten for a trial period, then re-introduce Gluten Challange. Have you been supplementing Iron? How are your liver enzymes? Low levels of ferritin indicate iron deficiency, while  59% transferrin saturation indicates high iron levels.  Possibly indicating Fatty Liver Disease.  Choline is crucial for liver health, and deficiency is a known trigger for Non-Alcoholic Fatty Liver.  Some experts say that less than 10% eat the the Food and Nutrition Board established Adequate Intake that are based on the prevention of liver damage. Severe constipation and hemorrhoids may be linked to a bile or choline deficiency.  "Ninety-five percent of phospholipids (PLs) in bile is secreted as phosphatidylcholine or lecithin."  Fatty acid composition of phospholipids in bile in man   Deficiency of these bile salts causes the bile to get thick. Some people with Celiac Disease are misdiagnosed with Gall Bladder bile issues.  Removal of the gallbladder provides only temporary relief. Whether or not celiac disease or NCGS are your issues you need to look at your vitamin D blood level.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.