Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Noodles & Co.


musicchick64

Recommended Posts

musicchick64 Rookie

I love Noodles & Co. And I think I hate them. I've been there twice since my diagnosis last April. Told them I couldn't have anything with gluten. The Manager always seemed to "get it".... I ordered the gluten free Pad Thai. Within a couple hours I was miserable. It happened again last night. Has anyone else had issues with them? I had read such good things about how they really cater to celiacs needs. I'm so disappointed which isn't helping me feel any better right now.

Lisa


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Sweetfudge Community Regular

hm, i've never had a problem w/ them. i always say i have a very severe gluten allergy (seems to make it more "real"), and am very specific about having them cook in clean pans. hm, i don't know what to tell you. maybe go in and have a serious discussion w/ the manager...

Sweetfudge Community Regular

just had another thought....could it be soy sauce? i know they use that black bottle w/ the red lid, can't think of the name, but i have seen it in the kitchen. i know it has gluten in it. wheat is the first ingredient. i'd ask if thats what they use in the pad thai.

musicchick64 Rookie
just had another thought....could it be soy sauce? i know they use that black bottle w/ the red lid, can't think of the name, but i have seen it in the kitchen. i know it has gluten in it. wheat is the first ingredient. i'd ask if thats what they use in the pad thai.

I didn't think that Pad Thai used soy sauce. I can ask. A friend was wondering if it was maybe that they boiled the noodles in a contaminated pan of water... Odd that it would happen twice. Maybe there is another allergy that I'm unaware of. Maybe one of the spices. I stay away from soy altogether now as I've read that it is hard on the thyroid. Sometimes this is really, really frustrating for me. *sigh*

All I know is that my tummy hurts! :(

sixtytwo Apprentice

Whenever I get the chance I eat at Noodles and Co. and order buttered rice noodles with chicken, tomatoes, broccoli and extra cheese. I have never had a problem. My granddaughter, who is very sensitive eats there and has pretty much the same thing and she does well too. Try changing your order and see what happens. Barbara

musicchick64 Rookie

My understanding is that the chicken is a no no because it has a soy sauce marinade on it. I could be wrong though.

  • 2 weeks later...
mommy2two99 Newbie

I ate at a Noodles & Co. earlier this week in Bloomington, IL and it was great! I had the pad thai and the manager was very helpful in making sure they used fresh water and clean pans to reheat the noodles. It was great!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Sweetfudge Community Regular

yay mommy2two99!

how are you feeling musicchick64?

DarkIvy Explorer

Noodles used to be one of my standby choices for restaurants, but I've given up on them. I ate there a few times and got sick in August, and came to find out that they had changed their gluten-free menu. I'd ordered the pasta fresca (which used to be on the gluten-free menu) but was no longer, but no one bothered to tell me that even though I asked them to do the allergy aware thing and everything.

Now it seems the only things left are the pesto, pad thai, and buttered noodles. I was told none of the meats or tofu is safe anymore. Truthfully, I'm a bit disappointed with these changes. It's step backwards because now there are even fewer options than there was before, and all of the "good" stuff is not available to us. It'd be awesome if they'd make a gluten-free version of their mac and cheese, or bring back the pasta fresca... or anything. I don't even think their marinara was safe.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to MI-Hoosier's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Test uncertainty

    2. - MI-Hoosier replied to MI-Hoosier's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Test uncertainty

    3. - trents replied to MI-Hoosier's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Test uncertainty

    4. - MI-Hoosier posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Test uncertainty

    5. - Sunshine4 replied to Sunshine4's topic in Related Issues & Disorders
      3

      Neurologic symptoms - Muscle Twitching and Hand Tremors


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,253
    • Most Online (within 30 mins)
      7,748

    MI-Hoosier
    Newest Member
    MI-Hoosier
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      To put this in perspective, most recent pretest "gluten challenge" guidelines for those having already been eating reduced gluten or gluten free for a significant time period is the daily consumption of 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of two weeks leading up to the day of testing (antibody or biopsy). And I would certainly give it more than two weeks to ensure a valid test experience. Short answer: If it were me, yes, I would assume I have celiac disease and launch full bore into gluten-free eating. I think the tTG-IGA is reliable enough and your score is solid enough to make that a reasonable conclusion. Here is an article to help you get off to a good start. It's easy to achieve a reduced gluten free state but much more difficult to achieve consistency in truly gluten-free eating. Gluten is hidden in so many ways and found in so many food products where you would never expect to find it. For example, soy sauce and canned tomato soup (most canned soups, actually), pills, medications, health supplements. It can be disguised in terminology. And then there is the whole issue of cross contamination where foods that are naturally gluten free become contaminated with gluten incidentally in agricultural activities and manufacturing processes: Eating out at restaurants is a mine field for those with celiac disease because you don't know how food is handled back in the kitchen. Gluten free noodles boiled in the same water that was used for wheat noodles, eggs cooked on the same griddle that French toast was, etc.  
    • MI-Hoosier
      Thank you for the response and article. I was placed on the Mediterranean diet and been on that now for about 3 weeks. While not gluten free I am eating very little bread or anything with gluten ie a slice of whole wheat bread every couple days so assume that would cause issues now with a biopsy.  With the condition my liver is in I am unsure moving back to higher bread consumption is ideal.  In this scenario would my test results be enough to assume positive Celiac and just move forward gluten free?
    • trents
      Welcome to the forum, @MI-Hoosier! You are operating on a misconception about your "mixed" test results. You only had two celiac disease diagnostic tests run out of six that could have been ordered if your doctor had opted for a complete celiac panel. It is perfectly normal to not test positive for all possible celiac disease diagnostic tests. That is why there is more than one test option. It is the same way with other diagnostic testing procedures for many or most other diseases. Generally, when diagnosing a condition, a number of different tests are run and a diagnosis is arrived at by looking at the total body of evidence. The tTG-IGA test is the centerpiece of celiac disease blood antibody testing and the one most commonly ordered by doctors. You were strongly positive for that test. It was not an unequivocal result, IMO.  Having said that, it is standard procedure to confirm a positive celiac disease blood antibody test result with an endoscopy/biopsy which is still considered the gold standard of celiac disease diagnosis. Had your tTG-IGA been 150 or greater, your doctor many have opted out of the endoscopy/biopsy. The absence of GI distress in the celiac disease population is very common. We call them "silent celiacs". That can change as damage to the lining of the small bowel worsens. Elevated liver enzymes/liver stress is very common in the celiac population. About 18% of celiacs experience it. I was one of them. Persistently elevated liver enzymes over a period of years in the absence of other typical causes such as hepatitis and alcohol abuse was what eventually led to my celiac disease diagnosis. But it took thirteen years to get that figured out. Within three months of going gluten free my liver enzymes were back into normal range. Thank goodness, there is more awareness these days about the many long fingers of celiac disease that are not found in the classic category of GI distress. Today, there have been over 200 symptoms/medical conditions identified as connected to celiac disease. It is critical that you not begin a gluten free diet until your endoscopy/biopsy of the small bowel is over. Doing so before that procedure will invalidate it because it will allow healing of the small bowel lining to begin. Here is a link to an article covering celiac disease blood antibody testing:  
    • MI-Hoosier
      Hi,  I was recently diagnosed with stage 3 NASH and doctor is concerned something is caused my disease to progress quicker than they would expect.   During blood tests a celiac screen was pulled as my mom is a celiac. My ttg was a 49.4 (normal >15) but my endomysial antibody was negative. I have never had gluten symptoms and no issues with bread and am 54. Do I need a biopsy to rule celiac in or out with this mixed test? Any thoughts are appreciated.  
    • Sunshine4
      Many apologies for somehow changing your first name Scott! 
×
×
  • Create New...