Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doctors In Michigan

melissa1236

By melissa1236
in Doctors

Recommended Posts

melissa1236 Newbie
melissa1236
Posted

Ok, my daughters regular pedatric dr. just told me to avoid wheat when she had a reaction to wheat. I took it upon my self to read up on things, and went back to a gluten free diet. I recently took my daughter to an allergist to test her for all allergies since she had another trip to the hospital do to egg allergy. Well I asked the allergist if it was possible that she could have celiac disease and he stated that my daughter is to healthy and growing to well. The thing is she has never really had a diet with gluten in it. After her first reaction to wheat I went back to a diet with just veggies, meat , rice. I guess what I need help with is does anyone know if they test children this young(13 months old) and if so where are the doctors in michigan who specialize in celiac disease.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest Doll
Guest Doll
Posted
Ok, my daughters regular pedatric dr. just told me to avoid wheat when she had a reaction to wheat. I took it upon my self to read up on things, and went back to a gluten free diet. I recently took my daughter to an allergist to test her for all allergies since she had another trip to the hospital do to egg allergy. Well I asked the allergist if it was possible that she could have celiac disease and he stated that my daughter is to healthy and growing to well. The thing is she has never really had a diet with gluten in it. After her first reaction to wheat I went back to a diet with just veggies, meat , rice. I guess what I need help with is does anyone know if they test children this young(13 months old) and if so where are the doctors in michigan who specialize in celiac disease.

Contrary to popular belief, Celiac Disease is not an allergy or directly related to IgE allergies (although some people have both, including me), it is an autoimmune disease. A gluten allergy (IgE mediated) is different from Celiac Disease. Also, a wheat allergy is not necessarily a gluten allergy. Your daughter may react to wheat gluten but not barley. Was your daughter tested for allergies to other gluten containing grains like oats and barley? Did she react? The testing for Celiac Disease tests for IgE/IgA antibodies and intestinal damage.

If you are concerned that she has Celiac, you can ask to have her screened by a pediatric GI specialist who is familiar with Celiac (most doctors are not). Her allergist can check her for allergies to barley, oats, rye, etc. That said, a lot of small children grow out of their allergies, and the tests for Celiac are often not accurate in young children.

Either way, a gluten-free diet certainly won't hurt her, although you really shouldn't cut out oats and other whole grains if she is *not* allergic to them and does *not* have Celiac. These foods may help prevent Type 2 diabetes (the preventable kind related to obesity that is becoming an epidemic) as she gets older.

This is really a tough call, but I think a screening for antibodies with a good Ped. GI is a good start (although do be aware there may be a false negative in a very young child). Ask your family doctor for a referal or call a University Hosptial or local Children's Hospital. There is no harm if she is growing normally to keep her on a gluten-free diet, but again, you don't want to restrict a growing child with allergies any more than you have to, IMHO.

StrongerToday Enthusiast
StrongerToday
Posted

Where are you in Michigan? There are several support groups (tri-county, ann arbor, lansing) that would have recommendations for you. If you're on the western side of the state, Chicago has a great center at the U of Chicago.

melissa1236 Newbie
melissa1236
Posted
  • Author
Contrary to popular belief, Celiac Disease is not an allergy or directly related to IgE allergies (although some people have both, including me), it is an autoimmune disease. A gluten allergy (IgE mediated) is different from Celiac Disease. Also, a wheat allergy is not necessarily a gluten allergy. Your daughter may react to wheat gluten but not barley. Was your daughter tested for allergies to other gluten containing grains like oats and barley? Did she react? The testing for Celiac Disease tests for IgE/IgA antibodies and intestinal damage.

If you are concerned that she has Celiac, you can ask to have her screened by a pediatric GI specialist who is familiar with Celiac (most doctors are not). Her allergist can check her for allergies to barley, oats, rye, etc. That said, a lot of small children grow out of their allergies, and the tests for Celiac are often not accurate in young children.

Either way, a gluten-free diet certainly won't hurt her, although you really shouldn't cut out oats and other whole grains if she is *not* allergic to them and does *not* have Celiac. These foods may help prevent Type 2 diabetes (the preventable kind related to obesity that is becoming an epidemic) as she gets older.

This is really a tough call, but I think a screening for antibodies with a good Ped. GI is a good start (although do be aware there may be a false negative in a very young child). Ask your family doctor for a referal or call a University Hosptial or local Children's Hospital. There is no harm if she is growing normally to keep her on a gluten-free diet, but again, you don't want to restrict a growing child with allergies any more than you have to, IMHO.

I did have her tested for wheat , barley , rye, oats, eggs, she had an allergy to all, I asked for a test to determine if it was gluten and a blood test was given and she is allegric to gluten.

Still not sure if it was Celiac Disease so just thought I would ask to see what other people thought.

Thanks so much...

mandasmom Rookie
mandasmom
Posted
I did have her tested for wheat , barley , rye, oats, eggs, she had an allergy to all, I asked for a test to determine if it was gluten and a blood test was given and she is allegric to gluten.

Still not sure if it was Celiac Disease so just thought I would ask to see what other people thought.

Thanks so much...

She should def have a clear diagnosis--its just not safe to assume that allergy and cleiac diesase are one in the same---they simply are not. In order to insure her ongoing good health she should be "officially" and acurately diagnosed. The tricounty gluten intolerance group can likely suggest an MD....and of course Childrens Hopital in Detroit and Mott childrens Hop in Ann Arbor both have specialty clinics of all types. Good luck

mommida Enthusiast
mommida
Posted

My daughter was tested by Hernando Lyons, Pediatric Gastroenterologist. He is at St. John's hospital which is on the border of Grosse Pointe and Detroit. He also has a satellite office in Macomb County near the M59 corridor on Romeo Plank Road (if I remember that right).

If you are going for further testing your child will have to consume gluten for enough damage to elevate the tests. Genetic testing can be a gluten free option, but is not fully covered by most insurance carriers. Dr. Lyons would only diagnose my daughter as probable Celiac disease with elevated blood work and two celiac genes, because we refused to do the endoscopy with biopsy - due to the fact she was being hospitalized for dehydration during the gluten challenge.

Test results in patients under 24 months is not very reliable.

If you are closer to Beaumont hospital in

Royal Oak that would be a great place to look for a pediatric Gastro.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,943
    • Most Online (within 30 mins)
      7,748
    Luz Kuehn
    Newest Member
    Luz Kuehn
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • ognam
      Glutening symptom? oily stool

      By ognam · Posted

      Has anyone had Steatorrhea (oily/fatty poop) as a temporary glutening symptom or should I be concerned I've introduced chronic gluten somewhere (like in meds)? I haven't gotten Steatorrhea since before I went gluten free. However, I moved in the past few weeks and haven't been as careful - I've eaten at restauraunts with cross contamination but only experienced minor symptoms like headache. The past week, I ate only gluten free food at home except I went to Red Robin and got fries (told them gluten-free; allergy). The next day I had Steatorrhea and the day after that.   I know it's a symptom of malabsorption so I was wondering if it was the kind of thing that could be caused by one event or if it was due to a more chronic issue. Of course I will speak to a GI but I recently moved and need to find one.   Thank you for any info
    • plumbago
      Anyone else with very high HDL?

      By plumbago · Posted

      A relative has opened another door for me on this issue -- the possibility of menopause raising HDL. Most studies suggest that menopause decreases HDL-C, however, one study found that often it's increased. "Surprisingly, HDL cholesterol was higher (p < 0.001) in postmenopausal women by 11%. Further, the number of women who had low HDL cholesterol was higher in pre vs. postmenopausal women. The range of ages were 26–49 years for pre-menopausal and 51–74 years for postmenopausal women. "This interesting finding has also been observed by other investigators. It is possible that the observed increase in HDL-C in postmenopausal women could be due to a protective mechanism to counterbalance the deleterious effects of biomarkers associated with menopause. However, further studies are needed to confirm this theory. And to the point raised earlier about functionality: "...some patients with elevated HDL-C concentrations could remain at risk for coronary events if HDL is not functional and some authors have suggested that this could be the case for menopausal women." Postmenopausal Women Have Higher HDL and Decreased Incidence of Low HDL than Premenopausal Women with Metabolic Syndrome. By no means to I think this is definitive, rather food for thought.
    • ognam
      Increasing symptoms after going gluten free

      By ognam · Posted

      Yes, lots of delicious things have barley malt. It also doesn't include rye. And there are a number of grains commonly cross contaminated such as oats.   Additionally, wheat allergies are different from gluten allergies as wheat allergies are a reaction to a wheat protein. So something *could* contain wheat gluten without causing a wheat allergic response (though realistically,  I don't know how likely that is to occur)
    • trents
      Increasing symptoms after going gluten free

      By trents · Posted

      Although it is true that FDA regulations don't require gluten to be included in allergy info, it does require wheat and ingredients made from wheat to be listed. Of course, that doesn't preclude gluten from barley being found in a product.
    • ognam
      Increasing symptoms after going gluten free

      By ognam · Posted

      I had a lot of weird/random symptoms for a few months after going gluten free. But eventually they evened out and I felt SO MUCH BETTER. The person above wrote a very detailed message that looks helpful. I'd add don't forget to check for gluten in places like medicine. Advil liquigels, for example, have gluten. It's very frustrating trying to figure out if things are gluten free as us law doesn't require it to be declared. The only labeling rule is that if the product says gluten free, it must have less than 20ppm gluten.
×
×
  • Create New...