Celebrities With Celiac?

[little flower]

  Kim said:

According to what I've read, the average time to diagnose celiac disease in the US is 11 years, in Europe, it's 3 weeks. So, I agree, we need to educate people, including the medical community.

There is apparently a radio talk show host in Chicago who is celiac disease as well, but I don't know that for a fact.

It took me 20 years to find out I was gluten intolerant and it still isn't accepted by the doctors here in france as I had started the diet before having the blood tests and biopsy. I have since got my brother and sister on the diet in england, I tried to talk them into having the tests first but they were discouraged by my results. We are all 100% better on the diet, but no way is it recognised and talked about a lot here. Perhaps in Italy where I've heard they test at birth.

  Kim said:

According to what I've read, the average time to diagnose celiac disease in the US is 11 years, in Europe, it's 3 weeks. So, I agree, we need to educate people, including the medical community.

There is apparently a radio talk show host in Chicago who is celiac disease as well, but I don't know that for a fact.

It took me 20 years to find out I was gluten intolerant and it still isn't accepted by the doctors here in france as I had started the diet before having the blood tests and biopsy. I have since got my brother and sister on the diet in england, I tried to talk them into having the tests first but they were discouraged by my results. We are all 100% better on the diet, but no way is it recognised and talked about a lot here. Perhaps in Italy where I've heard they test at birth.

[floridanative]

  ms_sillyak_screwed said:

I found something in his suitcase he left behind - "AIRBORNE Formula Herbal Power " -

What is this stuff? Anyone take this stuff? What is it for?

I take Airborne if I'm going to be around my neices/nephews. We have used it since hearing about it on Oprah and was thrilled to find it's gluten free after my dx. It's really good when you have to fly and be trapped in a box with millions of germs. I think it works for us anyway.

Regarding the Celiac celebrity issue, something just happened last week I meant to post. DH had friend at work tell him that Vikki Locke at Star 94 (bubblegum radio station in Atlanta) has Celiac. So I fianally e-mail Vikki through the stations website and she gets back to me the next day. She said recently there was someone on who had Celiac on the show and Vikki mentioned she eats wheat free. Vikki stated to me that maybe is why someone thought she had Celiac. She went on to say (in note to me) she was told years ago to go off wheat to get rid of bad heartburn. It worked so she stuck with it. She has never been tested for Celiac.....of so she said in her note. I thanked her and agreed that the person at DH's work must have misunderstood. Then of course I started thinking why would she not have gotten tested for Celiac. Maybe her doctor didn't tell her too OR maybe she did and has Celiac and doesn't want to admit it. I think there's a stigma attached to this disease that is not present with all diseases and that's why for the most part, all those Hollywood types that have it remean in the closet. Personally, I could not live with myself if I were in their position and did nothing to help further the cause of Celiac disease awareness. If you're reading this - aren't you ashamed of yourself? Can't you stand up to your publicist who YOU pay? So sad and pathetic really.

[tiffjake]

Has anyone mentioned Scarlett Johanson (sp?) ? I hear her say on TV that she had a wheat allergy (though she was talking about rolling around in the wheat field with fellow actor in Match Point). Anyone?

[ms-sillyak-screwed]

[

[Nantzie]

That would be hilarious!!

And anyway, that's what brothers and sisters do.. Play with the other's toys when they're not at home and mess with all their stuff. Siblings' rights. Even my 2yo son will go into his sister's room and take stuff when she's in preschool. Never plays with it. Just puts it in his room. It's so funny.

Nancy

[angel-jd1]

Oh goodness........you are going to have us ALL in trouble with your brother

Possibly we have a poet somewhere in the group that can help out more with lyrics than me. I'll try but no promises.........it probably won't go platinum!

No matter what it sure sounds like you are going to have such a fun time playing in the studio. Wish I was closer, I'd come help!! I don't sing well either, we would have a lovely duet. ha

I'll think about some lyrics.............hummmmmmmm

-Jessica

  ms_sillyak_screwed said:

'angel_jd1' -- Jessica you have given me an idea.

My brother called tonight (he has a break in the tour) to see how I was feeling, and how my test results turned out. I could hear the guys in the background asking how I am... kinda a really nice switch. They knew someone in the music biz that died of celiac disease.

While he is away (I'll get someone to help me) I'm going to fire up his recording studio here in his home and sing something c-e-l-i-a-c. Help me out with lyrics Maybe they put me in their music video? Ha! I can't sing to save my life, my talents are not in music. But, he'll either [get the hint] and a kick out of it; or he'll bar me from playing with his stuff. It's ok I'll take my marbles, or what's left of them, and play someplace else.

[Kaycee]

Have not read all this thread, but knew there was the question about celebs with coeliac.

Well I have just been reading a mag stating that Rachel Hunter, Danni Minogue (Kylies sister) and Geri Halliwell (ex Spice girl) have a wheat intolerance (That is how they described their conditions).

Cathy

[kalanfan]

  laurie@xtreme said:

I read in an article (10+) years ago that Goldie Hawn is celiac or she at least follows a gluten free diet. Don't know for sure if it is true, though.

I can understand why celebs would say they have food allergies. I often say it as well. It's allot easier to explain to a waitress that you are allergic to wheat than try and explain celiac to them. I have even gotten responses like "oh, well do you want white bread instead?"

thats funny cause usually when i tell a waitress that i cant have gluten they say " your celiac?" which im not im just gluten sensitive.....i dont actually have any damage.....

I read that sandra bolluck has IBS maybe its celiacs....

[gfp]

  little flower said:

It took me 20 years to find out I was gluten intolerant and it still isn't accepted by the doctors here in france as I had started the diet before having the blood tests and biopsy. I have since got my brother and sister on the diet in england, I tried to talk them into having the tests first but they were discouraged by my results. We are all 100% better on the diet, but no way is it recognised and talked about a lot here. Perhaps in Italy where I've heard they test at birth.

Its really just a matter of finding the right Dr.

The first one I had in France just told me I couldn't possibly have celiac disease since its a childhood disease..

The second one would say things like "Oh did you eat a cake or something by mistake" when I got glutened by CC

My medecin de travail just said I would have to "be sent home, since I couldn't do the job"

but now I have a good generaliste who is reasonably informed, orders me screening (to make sure Im staying gluten-free) which I never bother with... (no mutuelle) etc. and I know of another Dr. who contacted me (both in Paris)

[ms-sillyak-screwed]

-

[Nantzie]

I was wondering the same thing. Saw her on E! News and she said something about it being hard to be scrutinized when you're trying to do something about it. The poor woman looks so unhealthy and exhausted. Wouldn't surprise me...

Nancy

[zakismom]

I just read in a People type magazine that Gwyneth Paltrow is following a gluten free diet to lose baby weight. Maybe she always does?!

[schuyler]

  zakismom said:

I just read in a People type magazine that Gwyneth Paltrow is following a gluten free diet to lose baby weight. Maybe she always does?!

I read that too!

hmmm...

[jayhawkmom]

Honestly, I worry that my family and "acquiantances" are going to think I'm on some "fad diet" because it's becoming popular (in a sense). I have done Weight Watchers in the past, and I lost 70 lbs - but then I gained it all back with my last pregnancy.

While I do think it's interesting to find out whether or not "the pretty people" suffer from this as well, I just hope that it doesn't become the "cool thing to do" because people will simply not understand the implications and seriousness of it, once the "fad" wears off.

[Random Guy]

i hope it does become the cool thing. not because i want to be cool, but because more people will know what gluten is, and maybe, just maybe, more glutenfree restaurants will open.

that'd be aewsome

[jayhawkmom]

  Random Guy said:

i hope it does become the cool thing.

I do understand what you are saying. However, like "Atkins" - once people realized it was difficult to do, they started badmouthing it - and falling away from it. Granted, Atkins was a crazy diet - but that's not my point. I do want people to call awareness to it, I want doctors to become more educated about it, I want people to be helped instead of told they are "nuts" -- but, well....I guess I'm not able to figure out a way to better explain what I mean.

[Guest ~jules~]

  ms_sillyak_screwed said:

What's going on with NICOLE RICHIE???

Ya mrs richies looking pretty nasty these days, Its either a drug diet, anorexia, or a disease, like she's going to tell us....

[Random Guy]

  jayhawkmom said:

...I want people to be helped instead of told they are "nuts" -- but, well....I guess I'm not able to figure out a way to better explain what I mean.

that explains it pretty well.

i haven't gotten too much of the "you're nuts!" reaction from too many people. actually, i have, but not the ones that i care what they think.

honestly, i can't imagine this gluten free thing taking off as the in thing with people who don't need it. it is to hard.

but a few more restaurants would be GREAT!!!

we are not nuts (no matter how gluten-free nuts are)

[NYCEthan]

Audrey Hepburn, I have been told, had Celiac.

[DingoGirl]

  zakismom said:

I just read in a People type magazine that Gwyneth Paltrow is following a gluten free diet to lose baby weight. Maybe she always does?!

Interesting....everything I've read in the past says she's on a Raw Foods diet. Totally organic and nothing cooked above.....is it something like 110 degrees?

[Kayaking Mom]

Elizabeth Hasselbeck from The View supposedly is gluten intolerant. Drew Brees, quarterback for the New Orleans Saints is also glutent intolerant. Heidi Collins, anchor woman on the morning CNN news is celiac.

[Sillyyakdidi]

if anyone knows who kid rock is, his sidekick little joe DIED from celiac.

[NicoleAJ]

  hlm34 said:

I believe that there is widespread speculation that JFK had it.

Yes, you're right about that. I was just reading Dr. Green's new book, and he mentioned the fact that people believe that JFK had it.

Actress, Emmy Rossum, also has confirmed she has it, as well as that female newsanchor on CNN--someone will have to help me with the name. It's just slipped my mind.

[tarnalberry]

I think an interesting followup question - how many celebrities are reading this board?

[Nantzie]

Oooo... Good question Tiffany! I bet there are a few on here.

I would think being in show business during the undiagnosed period of the disease would make it almost impossible to do any kind of performing arts. Makes you wonder if there's a celebrity out there who has had a rep for being unreliable or flaky who actually has celiac.

Nancy